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Are genetic counselors prepared to counsel active-duty service members? A survey of genetic counselors' self-efficacy, counseling techniques, and knowledge of military policy.
Kamen, Michael; Hellwig, Lydia D; Maloney, Kristin A; Scott, Jessica; Turner, Clesson; Dixon, Shannan.
Afiliação
  • Kamen M; Master's in Genetic Counseling Training Program, Baltimore, Maryland, USA.
  • Hellwig LD; Department of Pediatrics, Uniformed Services University of the Health Sciences, Bethesda, Maryland, USA.
  • Maloney KA; Henry M. Jackson Foundation for the Advancement of Military Medicine, Inc., Bethesda, Maryland, USA.
  • Scott J; Department of Medicine, University of Maryland School of Medicine, Baltimore, Maryland, USA.
  • Turner C; Marlene and Stewart Greenebaum Comprehensive Cancer Center, University of Maryland Medical Center, Baltimore, Maryland, USA.
  • Dixon S; Department of Pediatrics, Uniformed Services University of the Health Sciences, Bethesda, Maryland, USA.
J Genet Couns ; 31(6): 1363-1372, 2022 12.
Article em En | MEDLINE | ID: mdl-35950707
Given the expected rise in genomic sequencing projects within the US Military and the increased availability of genetic testing to the United States as a whole, current and prospective active-duty service members (SMs) may undergo genetic counseling services in the civilian sector for pre-test and post-test counseling. The overall goal of this study was to better understand genetic counselors' preparedness to address military-specific policies and psychosocial needs of patients from this underrepresented population. Members of the National Society of Genetic Counselors were asked to complete a four-part survey including demographic information, Likert scale questions to separately rate self-efficacy when working with civilians and SMs, case scenarios with multiple-choice options and open-ended responses to assess knowledge of military policy, and open-ended questions regarding psychosocial scenarios related to military service. Eighty-eight responses were analyzed using Microsoft Office Excel for the qualitive thematic analysis and SPSS/RStudio for the quantitative data. While over 75% (n = 69/88, SD = 0.48) of surveyed genetic counselors scored 4 of 4 on knowledge of military policy and reported similarly high levels of self-efficacy when working with SMs (mean = 26.77 out of 30, SD = 4.15) and the general population (mean = 27.99 out of 30, SD = 4.31), the qualitative data suggested an alternative perspective. Up to 57% (n = 50/88) of responses were scored as expressing low confidence concerning knowledge of military policy. One potential explanation for this uncertainty may be due to participants reporting that they never (69.32% (n = 61/88]) or are unsure if (12.50% (n = 11/88]) they received training related to providing counseling services to SMs. We suggest the establishment of educational initiatives for genetic counselors focusing on how to discuss genetic testing with SMs in relation to their health and safety, well-being, and potential employment implications.
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Conselheiros / Militares Tipo de estudo: Observational_studies / Prognostic_studies / Qualitative_research Limite: Humans País como assunto: America do norte Idioma: En Ano de publicação: 2022 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Conselheiros / Militares Tipo de estudo: Observational_studies / Prognostic_studies / Qualitative_research Limite: Humans País como assunto: America do norte Idioma: En Ano de publicação: 2022 Tipo de documento: Article