Patients' and Publics' Preferences for Data-Intensive Health Research Governance: Survey Study.

Muller, Sam H A; van Thiel, Ghislaine J M W; Vrana, Marilena; Mostert, Menno; van Delden, Johannes J M

Muller, Sam H A; van Thiel, Ghislaine J M W; Vrana, Marilena; Mostert, Menno; van Delden, Johannes J M.

Afiliação

Muller SHA; Department of Medical Humanities, Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht University, Utrecht, Netherlands.
van Thiel GJMW; Department of Medical Humanities, Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht University, Utrecht, Netherlands.
Vrana M; European Heart Network, Brussels, Belgium.
Mostert M; Department of Medical Humanities, Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht University, Utrecht, Netherlands.
van Delden JJM; Department of Medical Humanities, Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht University, Utrecht, Netherlands.

JMIR Hum Factors ; 9(3): e36797, 2022 Sep 07.

Article em En | MEDLINE | ID: mdl-36069794

Palavras-chave

big data; data sharing; data-intensive health research; ethics; governance; health data sharing conditions; patient and public involvement; patient and public preferences; policy; research participants; trust

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Texto completo: 1 Base de dados: MEDLINE Idioma: En Ano de publicação: 2022 Tipo de documento: Article

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Texto completo: 1 Base de dados: MEDLINE Idioma: En Ano de publicação: 2022 Tipo de documento: Article