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European Health Data Space-An Opportunity Now to Grasp the Future of Data-Driven Healthcare.
Horgan, Denis; Hajduch, Marian; Vrana, Marilena; Soderberg, Jeannette; Hughes, Nigel; Omar, Muhammad Imran; Lal, Jonathan A; Kozaric, Marta; Cascini, Fidelia; Thaler, Verena; Solà-Morales, Oriol; Romão, Mário; Destrebecq, Frédéric; Sky Gross, Edith.
Afiliação
  • Horgan D; European Alliance for Personalised Medicine, 1040 Brussels, Belgium.
  • Hajduch M; Department of Molecular and Cellular Engineering, Jacob Institute of Biotechnology and Bioengineering, Faculty of Engineering and Technology, Sam Higginbottom University of Agriculture, Technology and Sciences, Prayagraj 211007, India.
  • Vrana M; Institute of Molecular and Translational Medicine, Faculty of Medicine and Dentistry, Palacký University, 77900 Olomouc, Czech Republic.
  • Soderberg J; European Heart Network, 1000 Brussels, Belgium.
  • Hughes N; Juvenile Diabetes Research Foundation, 68 Rue du Faubourg Saint Honoré, 75008 Paris, France.
  • Omar MI; Janssen Pharmaceutica NV, 2340 Beerse, Belgium.
  • Lal JA; Academic Urology Unit, Health Sciences Building, University of Aberdeen, Aberdeen AB25 2ZD, UK.
  • Kozaric M; Department of Molecular and Cellular Engineering, Jacob Institute of Biotechnology and Bioengineering, Faculty of Engineering and Technology, Sam Higginbottom University of Agriculture, Technology and Sciences, Prayagraj 211007, India.
  • Cascini F; Institute for Public Health Genomics, Department of Genetics and Cell Biology, GROW School of Oncology and Developmental Biology, Faculty of Health, Medicine and Life Sciences, Maastricht University, 6229 ER Maastricht, The Netherlands.
  • Thaler V; European Alliance for Personalised Medicine, 1040 Brussels, Belgium.
  • Solà-Morales O; Section of Hygiene and Public Health, Department of Life Sciences and Public Health, Catholic University of the Sacred Heart, 00168 Rome, Italy.
  • Romão M; MedTech Europe, 1000 Brussels, Belgium.
  • Destrebecq F; FHiTT-Fundació HiTT, 08015 Barcelona, Spain.
  • Sky Gross E; Intel Corporation, 2550 Kontich, Belgium.
Healthcare (Basel) ; 10(9)2022 Aug 26.
Article em En | MEDLINE | ID: mdl-36141241
The May 2022 proposal from the European commission for a 'European health data space' envisages advantages for health from exploiting the growing mass of health data in Europe. However, key stakeholders have identified aspects that demand clarification to ensure success. Data will need to be freed from traditional silos to flow more easily and to cross artificial borders. Wide engagement will be necessary among healthcare professionals, researchers, and the patients and citizens that stand to gain the most but whose trust must be won if they are to allow use or transfer of their data. This paper aims to alert the wider scientific community to the impact the ongoing discussions among lawmakers will have. Based on the literature and the consensus findings of an expert multistakeholder panel organised by the European Alliance for Personalised Medicine (EAPM) in June 2022, it highlights the key issues at the intersection of science and policy, and the potential implications for health research for years, perhaps decades, to come.
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Texto completo: 1 Base de dados: MEDLINE Tipo de estudo: Prognostic_studies Idioma: En Ano de publicação: 2022 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Tipo de estudo: Prognostic_studies Idioma: En Ano de publicação: 2022 Tipo de documento: Article