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Key drivers of family-level utility of pediatric genomic sequencing: a qualitative analysis to support preference research.
Smith, Hadley Stevens; Bonkowski, Emily S; Deloge, Raymond Belanger; Gutierrez, Amanda M; Recinos, Alva M; Lavelle, Tara A; Veenstra, David L; McGuire, Amy L; Pereira, Stacey.
Afiliação
  • Smith HS; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA. hadley.smith@bcm.edu.
  • Bonkowski ES; Institute for Public Health Genetics, University of Washington School of Public Health, Seattle, WA, USA.
  • Deloge RB; School of Health Professions, Baylor College of Medicine, Houston, TX, USA.
  • Gutierrez AM; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA.
  • Recinos AM; Texas Children's Cancer Center, Texas Children's Hospital, Houston, TX, USA.
  • Lavelle TA; Department of Pediatrics, Baylor College of Medicine, Houston, TX, USA.
  • Veenstra DL; Center for the Evaluation of Value and Risk in Health (CEVR), Institute for Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, MA, USA.
  • McGuire AL; Comparative Health Outcomes, Policy & Economics (CHOICE) Institute, School of Pharmacy, University of Washington, Seattle, WA, USA.
  • Pereira S; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA.
Eur J Hum Genet ; 31(4): 445-452, 2023 04.
Article em En | MEDLINE | ID: mdl-36434257

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Qualidade de Vida / Família Tipo de estudo: Prognostic_studies / Qualitative_research Limite: Child / Humans Idioma: En Ano de publicação: 2023 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Qualidade de Vida / Família Tipo de estudo: Prognostic_studies / Qualitative_research Limite: Child / Humans Idioma: En Ano de publicação: 2023 Tipo de documento: Article