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People with disability and privacy in precision medicine research: what's at stake?
Kapur, Supriya Lal; Sabatello, Maya.
Afiliação
  • Kapur SL; Center for Precision Medicine and Genomics, Department of Medicine, Columbia University Irving Medical Center, New York, NY 10032, USA.
  • Sabatello M; Center for Precision Medicine and Genomics, Department of Medicine, Columbia University Irving Medical Center, New York, NY 10032, USA; Division of Ethics, Department of Medical Humanities and Ethics, Columbia University Irving Medical Center, New York, NY 10032, USA. Electronic address: ms4075@cumc.columbia.edu.
Trends Genet ; 39(5): 335-337, 2023 05.
Article em En | MEDLINE | ID: mdl-36707316
Re-identification from data used in precision medicine research is presumed to create minimal risk but may disproportionately impact health disparity populations. We consider plausible privacy risks and the negative ramifications thereof for people with disabilities, the largest health disparity population in the USA, and suggest measures to address these concerns.
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Pessoas com Deficiência / Medicina de Precisão Tipo de estudo: Prognostic_studies Limite: Humans Idioma: En Ano de publicação: 2023 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Pessoas com Deficiência / Medicina de Precisão Tipo de estudo: Prognostic_studies Limite: Humans Idioma: En Ano de publicação: 2023 Tipo de documento: Article