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Stakeholders' perspectives on transplant metrics: the 2022 Scientific Registry of Transplant Recipients' consensus conference.
Snyder, Jon J; Schaffhausen, Cory R; Hart, Allyson; Axelrod, David A; Dils, Dorrie; Formica, Richard N; Gaber, A Osama; Hunt, Heather F; Jones, Jennifer; Mohan, Sumit; Patzer, Rachel E; Pinney, Sean P; Ratner, Lloyd E; Slaker, Dirk; Stewart, Darren; Stewart, Zoe A; Van Slyck, Sean; Kasiske, Bertram L; Hirose, Ryutaro; Israni, Ajay K.
Afiliação
  • Snyder JJ; Scientific Registry of Transplant Recipients, Hennepin Healthcare Research Institute, Minneapolis, Minnesota, USA; Department of Medicine, Hennepin Healthcare, University of Minnesota, Minneapolis, Minnesota, USA; Department of Epidemiology and Community Health, School of Public Health, University o
  • Schaffhausen CR; Scientific Registry of Transplant Recipients, Hennepin Healthcare Research Institute, Minneapolis, Minnesota, USA; Department of Medicine, Hennepin Healthcare, University of Minnesota, Minneapolis, Minnesota, USA.
  • Hart A; Scientific Registry of Transplant Recipients, Hennepin Healthcare Research Institute, Minneapolis, Minnesota, USA; Department of Medicine, Hennepin Healthcare, University of Minnesota, Minneapolis, Minnesota, USA.
  • Axelrod DA; Scientific Registry of Transplant Recipients, Hennepin Healthcare Research Institute, Minneapolis, Minnesota, USA; Organ Transplant Center, University of Iowa, Iowa City, Iowa, USA.
  • Dils D; Gift of Life Michigan, Ann Arbor, Michigan, USA.
  • Formica RN; Departments of Medicine and Surgery, Yale University, New Haven, Connecticut, USA.
  • Gaber AO; Department of Surgery, Houston Methodist Hospital, J.C. Walter Jr Transplant Center, Houston, Texas, USA.
  • Hunt HF; General Public, Living Liver Donor, Osterville, Massachusetts, USA.
  • Jones J; American Association of Kidney Patients, Kidney Transplant Recipient, Tampa, Florida, USA.
  • Mohan S; Department of Medicine, Vagelos College of Physicians and Surgeons, Columbia University, New York, New York, USA; Department of Epidemiology, Mailman School of Public Health, Columbia University, New York, New York, USA.
  • Patzer RE; Department of Surgery, Division of Transplantation, Emory University School of Medicine, Atlanta, Georgia, USA; Department of Epidemiology, Rollins School of Public Health, Emory University, Atlanta, Georgia, USA; Department of Medicine, Emory University School of Medicine, Atlanta, Georgia, USA.
  • Pinney SP; Department of Medicine, The University of Chicago, Chicago, Illinois, USA.
  • Ratner LE; Department of Surgery, Columbia University, New York, New York, USA.
  • Slaker D; Optum Health Solutions, Eden Prairie, Minnesota, USA.
  • Stewart D; Department of Surgery, NYU Langone Health, New York, New York, USA.
  • Stewart ZA; Department of Surgery, NYU Langone Health, New York, New York, USA.
  • Van Slyck S; Sierra Donor Services, Sacramento, California, USA.
  • Kasiske BL; Scientific Registry of Transplant Recipients, Hennepin Healthcare Research Institute, Minneapolis, Minnesota, USA; Department of Medicine, Hennepin Healthcare, University of Minnesota, Minneapolis, Minnesota, USA.
  • Hirose R; Scientific Registry of Transplant Recipients, Hennepin Healthcare Research Institute, Minneapolis, Minnesota, USA; Department of Surgery, University of California San Francisco, San Francisco, California, USA.
  • Israni AK; Scientific Registry of Transplant Recipients, Hennepin Healthcare Research Institute, Minneapolis, Minnesota, USA; Department of Medicine, Hennepin Healthcare, University of Minnesota, Minneapolis, Minnesota, USA; Department of Epidemiology and Community Health, School of Public Health, University o
Am J Transplant ; 23(7): 875-890, 2023 07.
Article em En | MEDLINE | ID: mdl-36958628
ABSTRACT
In July 2022, the Scientific Registry of Transplant Recipients (SRTR) hosted an innovative, multistakeholder consensus conference to identify information and metrics desired by stakeholders in the transplantation system, including patients, living donors, caregivers, deceased donor family members, transplant professionals, organ procurement organization professionals, payers, and regulators. Crucially, patients, caregivers, living donors, and deceased donor family members were included in all aspects of this conference, including serving on the planning committee, participating in preconference focus groups and learning sessions, speaking at the conference, moderating conference sessions and breakout groups, and shaping the conclusions. Patients constituted 24% of the meeting participants. In this report, we document the proceedings and enumerate 160 recommendations, 10 of which have been highly prioritized. SRTR will use the recommendations to develop new presentations of information and metrics requested by stakeholders to support informed decision-making.
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Obtenção de Tecidos e Órgãos / Transplantes Tipo de estudo: Qualitative_research Limite: Humans Idioma: En Ano de publicação: 2023 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Obtenção de Tecidos e Órgãos / Transplantes Tipo de estudo: Qualitative_research Limite: Humans Idioma: En Ano de publicação: 2023 Tipo de documento: Article