Towards a National Portal for Medical Research Data (FDPG): Vision, Status, and Lessons Learned.
Stud Health Technol Inform
; 302: 307-311, 2023 May 18.
Article
em En
| MEDLINE
| ID: mdl-37203668
ABSTRACT
Harmonizing medical data sharing frameworks is challenging. Data collection and formats follow local solutions in individual hospitals; thus, interoperability is not guaranteed. The German Medical Informatics Initiative (MII) aims to provide a Germany-wide, federated, large-scale data sharing network. In the last five years, numerous efforts have been successfully completed to implement the regulatory framework and software components for securely interacting with decentralized and centralized data sharing processes. 31 German university hospitals have today established local data integration centers that are connected to the central German Portal for Medical Research Data (FDPG). Here, we present milestones and associated major achievements of various MII working groups and subprojects which led to the current status. Further, we describe major obstacles and the lessons learned during its routine application in the last six months.
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Texto completo:
1
Base de dados:
MEDLINE
Assunto principal:
Informática Médica
/
Pesquisa Biomédica
Limite:
Humans
Idioma:
En
Ano de publicação:
2023
Tipo de documento:
Article