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Framing the Family: A Qualitative Exploration of Factors That Shape Family-Level Experience of Pediatric Genomic Sequencing.
Smith, Hadley Stevens; Bonkowski, Emily S; Hickingbotham, Madison R; Deloge, Raymond Belanger; Pereira, Stacey.
Afiliação
  • Smith HS; PRecisiOn Medicine Translational Research (PROMoTeR) Center, Department of Population Medicine, Harvard Medical School and Harvard Pilgrim Health Care Institute, Boston, MA 02215, USA.
  • Bonkowski ES; Institute for Public Health Genetics, University of Washington School of Public Health, Seattle, WA 98195, USA.
  • Hickingbotham MR; Center for Pediatric Neurological Disease Research, St. Jude Children's Research Hospital, Memphis, TN 38105, USA.
  • Deloge RB; PRecisiOn Medicine Translational Research (PROMoTeR) Center, Department of Population Medicine, Harvard Medical School and Harvard Pilgrim Health Care Institute, Boston, MA 02215, USA.
  • Pereira S; Department of Molecular and Human Genetics, Baylor College of Medicine, Houston, TX 77030, USA.
Children (Basel) ; 10(5)2023 Apr 25.
Article em En | MEDLINE | ID: mdl-37238322

Texto completo: 1 Base de dados: MEDLINE Tipo de estudo: Prognostic_studies / Qualitative_research Idioma: En Ano de publicação: 2023 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Tipo de estudo: Prognostic_studies / Qualitative_research Idioma: En Ano de publicação: 2023 Tipo de documento: Article