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Patients' Perspectives on Life and Recovery 1 Year After COVID-19 Hospitalization.
Chow, Carolyn P; Chesley, Christopher F; Ward, Michaela; Neergaard, Rebecca; Prasad, Taara V; Dress, Erich M; Reagan, Sara; Kalyani, Priyanka; Smyk, Nathan; Turner, Alexandra P; Agyekum, Roseline S; Ittner, Caroline A G; Sandsmark, Danielle K; Meyer, Nuala J; Harhay, Michael O; Kohn, Rachel; Auriemma, Catherine L.
Afiliação
  • Chow CP; Perelman School of Medicine, the University of Pennsylvania, Philadelphia, PA, USA.
  • Chesley CF; Palliative and Advanced Illness Research (PAIR) Center, the University of Pennsylvania, Philadelphia, PA, USA.
  • Ward M; Division of Pulmonary, Allergy and Critical Care, the University of Pennsylvania, Philadelphia, PA, USA.
  • Neergaard R; Leonard Davis Institute of Health Economics, the University of Pennsylvania, Philadelphia, PA, USA.
  • Prasad TV; Mixed Methods Research Laboratory, the University of Pennsylvania, Philadelphia, PA, USA.
  • Dress EM; Mixed Methods Research Laboratory, the University of Pennsylvania, Philadelphia, PA, USA.
  • Reagan S; Palliative and Advanced Illness Research (PAIR) Center, the University of Pennsylvania, Philadelphia, PA, USA.
  • Kalyani P; Palliative and Advanced Illness Research (PAIR) Center, the University of Pennsylvania, Philadelphia, PA, USA.
  • Smyk N; Department of Neurology, the University of Pennsylvania, Philadelphia, PA, USA.
  • Turner AP; Department of Neurology, the University of Pennsylvania, Philadelphia, PA, USA.
  • Agyekum RS; Department of Neurology, the University of Pennsylvania, Philadelphia, PA, USA.
  • Ittner CAG; Division of Pulmonary, Allergy and Critical Care, the University of Pennsylvania, Philadelphia, PA, USA.
  • Sandsmark DK; Division of Pulmonary, Allergy and Critical Care, the University of Pennsylvania, Philadelphia, PA, USA.
  • Meyer NJ; Division of Pulmonary, Allergy and Critical Care, the University of Pennsylvania, Philadelphia, PA, USA.
  • Harhay MO; Department of Neurology, the University of Pennsylvania, Philadelphia, PA, USA.
  • Kohn R; Division of Pulmonary, Allergy and Critical Care, the University of Pennsylvania, Philadelphia, PA, USA.
  • Auriemma CL; Perelman School of Medicine, the University of Pennsylvania, Philadelphia, PA, USA.
J Gen Intern Med ; 38(10): 2374-2382, 2023 08.
Article em En | MEDLINE | ID: mdl-37268779
BACKGROUND: Many patients hospitalized for COVID-19 experience prolonged symptoms months after discharge. Little is known abou t patients' personal experiences recovering from COVID-19 in the United States (US), where medically underserved populations are at particular risk of adverse outcomes. OBJECTIVE: To explore patients' perspectives on the impact of COVID-19 hospitalization and barriers to and facilitators of recovery 1 year after hospital discharge in a predominantly Black American study population with high neighborhood-level socioeconomic disadvantage. DESIGN: Qualitative study utilizing individual, semi-structured interviews. PARTICIPANTS: Adult patients hospitalized for COVID-19 approximately 1 year after discharge home who were engaged in a COVID-19 longitudinal cohort study. APPROACH: The interview guide was developed and piloted by a multidisciplinary team. Interviews were audio-recorded and transcribed. Data were coded and organized into discrete themes using qualitative content analysis with constant comparison techniques. KEY RESULTS: Of 24 participants, 17 (71%) self-identified as Black, and 13 (54%) resided in neighborhoods with the most severe neighborhood-level socioeconomic disadvantage. One year after discharge, participants described persistent deficits in physical, cognitive, or psychological health that impacted their current lives. Repercussions included financial suffering and a loss of identity. Participants reported that clinicians often focused on physical health over cognitive and psychological health, an emphasis that posed a barrier to recovering holistically. Facilitators of recovery included robust financial or social support systems and personal agency in health maintenance. Spirituality and gratitude were common coping mechanisms. CONCLUSIONS: Persistent health deficits after COVID-19 resulted in downstream consequences in participants' lives. Though participants received adequate care to address physical needs, many described persistent unmet cognitive and psychological needs. A more comprehensive understanding of barriers and facilitators for COVID-19 recovery, contextualized by specific healthcare and socioeconomic needs related to socioeconomic disadvantage, is needed to better inform intervention delivery to patients that experience long-term sequelae of COVID-19 hospitalization.
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: COVID-19 Tipo de estudo: Observational_studies / Qualitative_research / Risk_factors_studies Limite: Adult / Humans País como assunto: America do norte Idioma: En Ano de publicação: 2023 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Assunto principal: COVID-19 Tipo de estudo: Observational_studies / Qualitative_research / Risk_factors_studies Limite: Adult / Humans País como assunto: America do norte Idioma: En Ano de publicação: 2023 Tipo de documento: Article