Effect of the addition of a mental health specialist for evaluation of undiagnosed patients in centres for rare diseases (ZSE-DUO): a prospective, controlled trial with a two-phase cohort design.

Hebestreit, Helge; Lapstich, Anne-Marie; Brandstetter, Lilly; Krauth, Christian; Deckert, Jürgen; Haas, Kirsten; Pfister, Lisa; Witt, Stefanie; Schippers, Christopher; Dieris-Hirche, Jan; Maisch, Tim; Tüscher, Oliver; Bârlescu, Lavinia; Berger, Alexandra; Berneburg, Mark; Britz, Vanessa; Deibele, Anna; Graeßner, Holm; Gündel, Harald; Heuft, Gereon; Lücke, Thomas; Mundlos, Christine; Quitmann, Julia; Rutsch, Frank; Schubert, Katharina; Schulz, Jörg Bernhard; Schweiger, Susann; Zeidler, Cornelia; Zeltner, Lena; de Zwaan, Martina

Hebestreit, Helge; Lapstich, Anne-Marie; Brandstetter, Lilly; Krauth, Christian; Deckert, Jürgen; Haas, Kirsten; Pfister, Lisa; Witt, Stefanie; Schippers, Christopher; Dieris-Hirche, Jan; Maisch, Tim; Tüscher, Oliver; Bârlescu, Lavinia; Berger, Alexandra; Berneburg, Mark; Britz, Vanessa; Deibele, Anna; Graeßner, Holm; Gündel, Harald; Heuft, Gereon; Lücke, Thomas; Mundlos, Christine; Quitmann, Julia; Rutsch, Frank; Schubert, Katharina; Schulz, Jörg Bernhard; Schweiger, Susann; Zeidler, Cornelia; Zeltner, Lena; de Zwaan, Martina.

Afiliação

Hebestreit H; Centre for Rare Diseases - Reference Centre Northern Bavaria (ZESE), University Hospital Würzburg, Josef-Schneider-Str. 2, 97080, Würzburg, Germany.
Lapstich AM; Centre for Health Economics Research Hannover and Institute for Epidemiology, Social Medicine and Health Systems Research, Hannover Medical School, Carl-Neuberg-Strasse 1, 30625, Hannover, Germany.
Brandstetter L; Institute of Clinical Epidemiology and Biometry, University of Würzburg, Josef-Schneider-Str. 2, 97080, Würzburg, Germany.
Krauth C; Centre for Health Economics Research Hannover and Institute for Epidemiology, Social Medicine and Health Systems Research, Hannover Medical School, Carl-Neuberg-Strasse 1, 30625, Hannover, Germany.
Deckert J; Department of Psychiatry, Psychosomatics and Psychotherapy, Centre of Mental Health, University Hospital, Margarete-Höppel-Platz 1, 97080, Würzburg, Germany.
Haas K; Institute of Clinical Epidemiology and Biometry, University of Würzburg, Josef-Schneider-Str. 2, 97080, Würzburg, Germany.
Pfister L; Centre for Rare Diseases - Reference Centre Northern Bavaria (ZESE), University Hospital Würzburg, Josef-Schneider-Str. 2, 97080, Würzburg, Germany.
Witt S; Department of Medical Psychology, University Medical Centre Hamburg-Eppendorf, Martinistr. 52, 20246, Hamburg, Germany.
Schippers C; Center for Rare Diseases and Department of Digitalization and General Practice, RWTH Aachen University Hospital, Pauwelsstraße 30, 52074, Aachen, Germany.
Dieris-Hirche J; Department of Psychosomatic Medicine and Psychotherapy, LWL-University Hospital, Ruhr-University Bochum, Alexandrinenstraße 1-3, 44791, Bochum, Germany.
Maisch T; Centre for Rare Diseases Regensburg, University Hospital Regensburg, Franz-Josef-Strauss-Allee 11, 93053, Regensburg, Germany.
Tüscher O; Centre for Rare Diseases and Department of Psychiatry and Psychotherapy, University Medical Centre. Johannes Gutenberg University, and Institute for Molecular Biology, 55131, Mainz, Germany.
Bârlescu L; Department of Neurology, University of Ulm, Oberer Eselsberg 45, 89081, Ulm, Germany.
Berger A; Frankfurt Reference Centre for Rare Diseases, University Hospital Frankfurt, Goethe University Frankfurt, Theodor-Stern-Kai 7, 60590, Frankfurt am Main, Germany.
Berneburg M; Centre for Rare Diseases Regensburg, University Hospital Regensburg, Franz-Josef-Strauss-Allee 11, 93053, Regensburg, Germany.
Britz V; Frankfurt Reference Centre for Rare Diseases, University Hospital Frankfurt, Goethe University Frankfurt, Theodor-Stern-Kai 7, 60590, Frankfurt am Main, Germany.
Deibele A; Central German Competence Network for Rare Diseases, University Hospital Magdeburg, Leipziger Straße 44, 39120, Magdeburg, Germany.
Graeßner H; Centre for Rare Disease, University Hospital Tübingen, Calwerstr. 7, 72076, Tübingen, Germany.
Gündel H; Department of Psychosomatic Medicine and Psychotherapy, University Hospital Ulm, Albert.-Einstein-Allee 23, 89081, Ulm, Germany.
Heuft G; Department of Psychosomatic Medicine Und Psychotherapy, University Hospital Münster, Albert-Schweitzer-Campus 1, 48149, Münster, Germany.
Lücke T; University Hospital of Paediatrics and Adolescent Medicine, Ruhr-University Bochum, Alexandrinenstr. 5, 44791, Bochum, Germany.
Mundlos C; Allianz Chronischer Seltener Erkrankungen (ACHSE) e.V., c/o DRK Kliniken Berlin Mitte, Dronheimer Str. 39, 13359, Berlin, Germany.
Quitmann J; Department of Medical Psychology, University Medical Centre Hamburg-Eppendorf, Martinistr. 52, 20246, Hamburg, Germany.
Rutsch F; Department of General Paediatrics, Muenster University Children's Hospital and Centre for Rare Diseases, Muenster University Hospital, Albert-Schweitzer-Campus 1, Gebäude A1, 48149, Münster, Germany.
Schubert K; Central German Competence Network for Rare Diseases, University Hospital Magdeburg, Leipziger Straße 44, 39120, Magdeburg, Germany.
Schulz JB; Department of Neurology, RWTH Aachen University, Pauwelsstraße 30, 52074, Aachen, Germany.
Schweiger S; Centre for Rare Diseases and Institute for Human Genetics, University Medical Centre, Johannes Gutenberg University, and Institute for Molecular Biology, 55131, Mainz, Germany.
Zeidler C; Centre for Rare Diseases, Hannover Medical School, Carl-Neuberg-Strasse 1, 30625, Hannover, Germany.
Zeltner L; Department of Psychosomatics and Psychotherapy, University Hospital Tübingen, Osianderstraße 5, 72076, Tübingen, Germany.
de Zwaan M; Department of Psychosomatic Medicine and Psychotherapy, Hannover Medical School, Carl-Neuberg-Strasse 1, 30625, Hannover, Germany.