Uncertain futures and unsolicited findings in pediatric genomic sequencing: guidelines for return of results in cases of developmental delay.

Cornelis, Candice; Dondorp, Wybo; Bolt, Ineke; de Wert, Guido; van Summeren, Marieke; Brilstra, Eva; Knoers, Nine; Bredenoord, Annelien L

Cornelis, Candice; Dondorp, Wybo; Bolt, Ineke; de Wert, Guido; van Summeren, Marieke; Brilstra, Eva; Knoers, Nine; Bredenoord, Annelien L.

Afiliação

Cornelis C; Department of Genetics, University Medical Center Utrecht, Utrecht, the Netherlands. c.i.cornelis-12@umcutrecht.nl.
Dondorp W; Julius Center, Department of Medical Humanities, University Medical Center Utrecht, Utrecht, the Netherlands. c.i.cornelis-12@umcutrecht.nl.
Bolt I; Department of Health, Ethics & Society, Maastricht University, Maastricht, the Netherlands.
de Wert G; Department of Medical Ethics, Philosophy and History of Medicine, Erasmus Medical Center, Rotterdam, the Netherlands.
van Summeren M; Department of Health, Ethics & Society, Maastricht University, Maastricht, the Netherlands.
Brilstra E; Department of General Pediatrics, University Medical Center Utrecht, Utrecht, the Netherlands.
Knoers N; Department of Genetics, University Medical Center Utrecht, Utrecht, the Netherlands.
Bredenoord AL; Department of Genetics, University Medical Center Utrecht, Utrecht, the Netherlands.

BMC Med Ethics ; 24(1): 98, 2023 11 11.

Article em En | MEDLINE | ID: mdl-37951889

Assuntos

Consentimento Livre e Esclarecido; Pais; Criança; Humanos; Sequenciamento Completo do Genoma; Incerteza; Genômica

Palavras-chave

Children; Future autonomy; Genomic sequencing; Return of results; Unsolicited findings

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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Pais / Consentimento Livre e Esclarecido Limite: Child / Humans Idioma: En Ano de publicação: 2023 Tipo de documento: Article

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