Methodological and ethical challenges in designing and conducting research at the end of life: A systematic review of qualitative and textual evidence.
Int J Nurs Pract
; : e13224, 2023 Dec 19.
Article
em En
| MEDLINE
| ID: mdl-38113927
ABSTRACT
AIM:
This systematic review aims to identify methodological and ethical challenges in designing and conducting research at the end of life from the perspective of researchers and provide a set of recommendations.BACKGROUND:
Conducting research with patients and family carers facing end-of-life issues is ethically and methodologically complex.DESIGN:
A systematic review was conducted. DATA SOURCES Four databases (MEDLINE, EMBASE, CINAHL, PsycInfo) were searched from inception until the end of 2021 in February 2022. REVIEWMETHODS:
The Preferred Reporting Items for Systematic Reviews was followed, and the JBI Approach to qualitative synthesis was used for analysis.RESULTS:
Seventeen of 1983 studies met inclusion criteria. Data were distilled to six main themes. These included (1) the need for flexibility at all stages of the research process; (2) careful attention to timing; (3) sensitivity in approach; (4) the importance of stakeholder collaboration; (5) the need for unique researcher skills; and (6) the need to deal with the issue of missing data.CONCLUSION:
The findings illuminate several considerations that can inform training programmes, ethical review processes and research designs when embarking on research in this field.
Texto completo:
1
Base de dados:
MEDLINE
Tipo de estudo:
Systematic_reviews
Idioma:
En
Ano de publicação:
2023
Tipo de documento:
Article