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Understanding the living-related pediatric liver transplantation donor's decision process: A questionnaire-based retrospective study.
Jain, Shalu; Kumar, Karunesh; Malhotra, Smita; Venuthurimilli, Arun; Goyal, Neerav; Sibal, Anupam.
Afiliação
  • Jain S; Department of Pediatric Gastroenterology and Hepatology, Indraprastha Apollo Hospitals, New Delhi, India.
  • Kumar K; Department of Pediatric Gastroenterology and Hepatology, Indraprastha Apollo Hospitals, New Delhi, India.
  • Malhotra S; Department of Pediatric Gastroenterology and Hepatology, Indraprastha Apollo Hospitals, New Delhi, India.
  • Venuthurimilli A; Liver Transplant and Hepato-Pancreatico-Biliary Surgery (LTHPS) Unit, Indraprastha Apollo Hospital, New Delhi, India.
  • Goyal N; Liver Transplant and Hepato-Pancreatico-Biliary Surgery (LTHPS) Unit, Indraprastha Apollo Hospital, New Delhi, India.
  • Sibal A; Department of Pediatric Gastroenterology and Hepatology, Indraprastha Apollo Hospitals, New Delhi, India.
J Pediatr Gastroenterol Nutr ; 78(3): 497-505, 2024 Mar.
Article em En | MEDLINE | ID: mdl-38299260
ABSTRACT

OBJECTIVES:

To analyse the donor characteristics and understand the sociocultural and familial aspects of the decision to donate for living donor liver transplant.

METHODS:

This is a retrospective study done in the Department of Pediatric Gastroenterology and Hepatology of a liver transplant centre. We enrolled the consenting donors of pediatric liver transplantation between January 2020 and January 2022. The study was conducted through an anonymized questionnaire which was drafted in a multiple-choice format. The questionnaire had three domains having questions pertaining to demographic details, donor characteristics and sociofamilial aspects of the decision-making process.

RESULTS:

The study cohort consisted of 50 donors, 23 males (46%) and 27 females (54%), with the mean age being 31.8 ± 5.6 years. Parent-to-child was the most frequent relationship (n = 39, 78%). More than half of our donors had annual income <2.5 lakh/annum or <3500 USD (n = 27, 54%). Twenty-six (52%) responders had >4 members in their family; 62% were residing in urban areas and 52% of the donors were graduates. The main source of information regarding the feasibility of living donor liver transplantation was primary physicians in 46%. Financial management was the main hurdle in 72%. Majority (74%) denied any effect on their marital relationship and 6% of donors thought that the degree of information provided to them before the transplantation regarding donation was insufficient.

CONCLUSION:

Our study serves as an essential tool for health professionals to provide sufficient support to the donor. Clinical outcomes and cost must be part of the discussion between caregivers, health professionals and fund contributors.
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Transplante de Fígado Tipo de estudo: Observational_studies / Prognostic_studies Limite: Adult / Child / Female / Humans / Male Idioma: En Ano de publicação: 2024 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Transplante de Fígado Tipo de estudo: Observational_studies / Prognostic_studies Limite: Adult / Child / Female / Humans / Male Idioma: En Ano de publicação: 2024 Tipo de documento: Article