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Co-creation of a toolkit to assist risk communication and clinical decision-making in severe preeclampsia: SPOT-Impact study design.
Amoakoh, Hannah Brown; De Kok, Bregje C; Yevoo, Linda Lucy; Olde Loohuis, Klaartje M; Srofenyoh, Emmanuel K; Arhinful, Daniel K; Koi-Larbi, Koiwah; Adu-Bonsaffoh, Kwame; Amoakoh-Coleman, Mary; Browne, Joyce L.
Afiliação
  • Amoakoh HB; Department of Epidemiology, Noguchi Memorial Institute for Medical Research, University of Ghana, Accra, Ghana.
  • De Kok BC; Department of Global Health and Bioethics, Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht, Netherlands.
  • Yevoo LL; Anthropology Department, University of Amsterdam, Amsterdam, Netherlands.
  • Olde Loohuis KM; Department of Epidemiology, Noguchi Memorial Institute for Medical Research, University of Ghana, Accra, Ghana.
  • Srofenyoh EK; Department of Obstetrics and Gynaecology, Greater Accra Regional Hospital, Accra, Ghana.
  • Arhinful DK; Department of Global Health and Bioethics, Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht, Netherlands.
  • Koi-Larbi K; Department of Global Health and Bioethics, Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht, Netherlands.
  • Adu-Bonsaffoh K; Department of Obstetrics and Gynaecology, Greater Accra Regional Hospital, Accra, Ghana.
  • Amoakoh-Coleman M; Department of Epidemiology, Noguchi Memorial Institute for Medical Research, University of Ghana, Accra, Ghana.
  • Browne JL; Executive Council, Action on Preeclampsia Ghana, Accra, Ghana.
Glob Health Action ; 17(1): 2336314, 2024 12 31.
Article em En | MEDLINE | ID: mdl-38717819
ABSTRACT
Globally, the incidence of hypertensive disorders of pregnancy, especially preeclampsia, remains high, particularly in low- and middle-income countries. The burden of adverse maternal and perinatal outcomes is particularly high for women who develop a hypertensive disorder remote from term (<34 weeks). In parallel, many women have a suboptimal experience of care. To improve the quality of care in terms of provision and experience, there is a need to support the communication of risks and making of treatment decision in ways that promote respectful maternity care. Our study objective is to co-create a tool(kit) to support clinical decision-making, communication of risks and shared decision-making in preeclampsia with relevant stakeholders, incorporating respectful maternity care, justice, and equity principles. This qualitative study detailing the exploratory phase of co-creation takes place over 17 months (Nov 2021-March 2024) in the Greater Accra and Eastern Regions of Ghana. Informed by ethnographic observations of care interactions, in-depth interviews and focus group and group discussions, the tool(kit) will be developed with survivors and women with hypertensive disorders of pregnancy and their families, health professionals, policy makers, and researchers. The tool(kit) will consist of three components quantitative predicted risk (based on external validated risk models or absolute risk of adverse outcomes), risk communication, and shared decision-making support. We expect to co-create a user-friendly tool(kit) to improve the quality of care for women with preeclampsia remote from term which will contribute to better maternal and perinatal health outcomes as well as better maternity care experience for women in Ghana.
Adverse maternal and perinatal outcomes is high for women who develop preeclampsia remote from term (<34 weeks). To improve the quality of provision and experience of care, there is a need to support communication of risks and treatment decisions that promotes respectful maternity care.This article describes the methodology deployed to cocreate a user-friendly tool(kit) to support risk communication and shared decision-making in the context of severe preeclampsia in a low resource setting.
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Pré-Eclâmpsia / Comunicação / Pesquisa Qualitativa Limite: Female / Humans / Pregnancy País como assunto: Africa Idioma: En Ano de publicação: 2024 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Pré-Eclâmpsia / Comunicação / Pesquisa Qualitativa Limite: Female / Humans / Pregnancy País como assunto: Africa Idioma: En Ano de publicação: 2024 Tipo de documento: Article