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Towards a roadmap for COSEB: the next steps in harmonization of outcomes for epidermolysis bullosa.
Korte, Eva W H; Pasmooij, Anna M G; Bolling, Maria C; Hickey, Sinéad; Hussain, Sagair; Kiritsi, Dimitra; Kottner, Jan; Prinsen, Cecilia A C; Sauvestre, Angélique; Sendin, Gaston; Spuls, Phyllis I; Tarrats, Núria; Wally, Verena; Welponer, Tobias; Laimer, Martin; van den Akker, Peter C.
Afiliação
  • Korte EWH; Department of Dermatology, UMCG Center of Expertise for Blistering Diseases, University of Groningen, University Medical Center Groningen, Groningen, The Netherlands.
  • Pasmooij AMG; Department of Dermatology, UMCG Center of Expertise for Blistering Diseases, University of Groningen, University Medical Center Groningen, Groningen, The Netherlands.
  • Bolling MC; Dutch Medicines Evaluation Board, Utrecht, the Netherlands.
  • Hickey S; Division of Pharmacoepidemiology and Clinical Pharmacology, Utrecht Institute for Pharmaceutical Sciences (UIPS), Utrecht University, Utrecht, The Netherlands.
  • Hussain S; Department of Dermatology, UMCG Center of Expertise for Blistering Diseases, University of Groningen, University Medical Center Groningen, Groningen, The Netherlands.
  • Kiritsi D; DEBRA Ireland, Dublin, Ireland.
  • Kottner J; DEBRA UK, Bracknell, UK.
  • Prinsen CAC; Department of Dermatology, Medical Center, Faculty of Medicine, University of Freiburg, Freiburg, Germany.
  • Sauvestre A; First Department of Dermatology, Faculty of Medicine, Aristotle University of Thessaloniki, Thessaloniki, Greece.
  • Sendin G; Charité-Universitätsmedizin Berlin, Institute of Clinical Nursing Science, Berlin, Germany.
  • Spuls PI; CHORD COUSIN Collaboration, Department of Dermatology, Amsterdam Public Health, Infection and Immunology, AUMC, Location AMC, University of Amsterdam, Amsterdam, the Netherlands.
  • Tarrats N; DEBRA France, Marseille, France.
  • Wally V; DEBRA Austria, Vienna, Austria.
  • Welponer T; Department of Dermatology, Amsterdam Public Health, Infection and Immunology, AUMC, Location AMC, University of Amsterdam, Amsterdam, the Netherlands.
  • Laimer M; DEBRA Spain, Marbella, Spain.
  • van den Akker PC; Department of Dermatology and Allergology and EB House Austria, University Hospital of the Paracelsus Medical University, Salzburg, Austria.
Br J Dermatol ; 2024 Jun 12.
Article em En | MEDLINE | ID: mdl-38865426
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Texto completo: 1 Base de dados: MEDLINE Idioma: En Ano de publicação: 2024 Tipo de documento: Article
Texto completo
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XML
PubMed Links
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Texto completo: 1 Base de dados: MEDLINE Idioma: En Ano de publicação: 2024 Tipo de documento: Article