RESUMO
OBJECTIVE: This study explores the unmet psychosocial rehabilitation needs of cancer survivors. METHODS: Sixty-eight cancer survivors from the Shanghai Cancer Rehabilitation Club in China participated in one of the eight focus groups. These were transcribed verbatim, coded using thematic analysis and analysed using NVivo 10. RESULTS: Five main themes were identified: the need for (1) better information: Chinese cancer survivors find it difficult to sort and evaluate the overwhelming mass of information with which they are confronted; (2) psychological support: survivors fear cancer relapse and neighbours' discrimination against them; support from other cancer survivors can relieve the stress; (3) support for survivors' families: like the survivors, family members are under great but usually unacknowledged pressure; (4) improved health and medical services: community health service centres provide little medical, informational or psychological support for cancer survivors, who seek and expect more communication with doctors; and (5) assistance with the financial burden: costs of treatment and lack of adequate medical insurance cause substantial financial pressure for survivors. CONCLUSIONS: This study shows that, in addition to their illness, Chinese cancer survivors experience a range of stresses related to their financial circumstances, lack of reliable and summarised information, poor access to support and services (including for their families) and discrimination. Support from families seems to improve survivors' ability to cope. Cancer survivors (and their families) need an integrated package of support from their families, doctors and other service providers, hospitals and communities. These findings can inform approaches to continuing care for cancer survivors. Copyright © 2015 John Wiley & Sons, Ltd.
Assuntos
Adaptação Psicológica , Sobreviventes de Câncer/psicologia , Reabilitação Psiquiátrica , China , Família , Feminino , Grupos Focais , Humanos , Pessoa de Meia-IdadeRESUMO
BACKGROUND: China has become the world's largest producer and consumer of tobacco and lung cancer is China's leading cause of cancer deaths. The large majority of Chinese smokers are men. Tobacco consumption is of particular concern among China's internal floating (or migrant) population, which has become a permanent feature of Chinese society, because this population is very large (over 100 million persons) and it has a high prevalence of smoking. Considering additionally that like the general population of China, the smoking prevalence rate of women from this group is quite low, we therefore aimed to explore smoking-related knowledge, attitudes and behaviours among male smokers in the floating population to help inform the development of effective smoking cessation interventions in this important target group in China. METHODS: We interviewed 39 floating population male smokers in six focus groups and performed a qualitative content analysis of the interviews. RESULTS: Most participants knew that smoking is risky to health but they knew little about why. Habit and social participation were key drivers of smoking. Smoking was regarded as a core component of their identity by the urban residents. Some participants had tried to stop smoking but none reported having ever been educated about smoking. CONCLUSIONS: Smoking cessation interventions for China's male floating population would need to incorporate comprehensive education and information about why smoking is dangerous and the benefits of stopping.
Assuntos
Assunção de Riscos , Abandono do Hábito de Fumar/métodos , Fumar/epidemiologia , Produtos do Tabaco/estatística & dados numéricos , Adolescente , Adulto , China/epidemiologia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Prevalência , Características de Residência , Prevenção do Hábito de Fumar , MigrantesRESUMO
OBJECTIVE: NSW has just experienced its worst drought in a century. As years passed with insufficient rain, drought-related mental health problems became evident on farms. Our objective is to describe how, in response, the Rural Adversity Mental Health Program was introduced in 2007 to raise awareness of drought-related mental health needs and help address these needs in rural and remote NSW. The program has since expanded to include other forms of rural adversity, including recent floods. SETTING: Rural NSW. DESIGN, PARTICIPANTS, INTERVENTIONS: Designed around community development principles, health, local service networks and partner agencies collaborated to promote mental health, education and early intervention. Strategies included raising mental health literacy, organising community social events and disseminating drought-related information. Priority areas were Aboriginal communities, older farmers, young people, women, primary health care and substance use. RESULTS: Over 3000 people received mental health literacy training in the four years of operation from 2007 to 2010. Stakeholders collaborated to conduct hundreds of mental health-related events attended by thousands of people. A free rural mental health support telephone line provided crisis help and referral to rural mental health-related services. CONCLUSION: Drought affected mental health in rural NSW. A community development model was accepted and considered effective in helping communities build capacity and resilience in the face of chronic drought-related hardship. Given the scale, complexity and significance of drought impacts and rural adjustment, and the threats posed by climate change, a long-term approach to funding such programs would be appropriate.
Assuntos
Atitude Frente a Saúde/etnologia , Desastres , Serviços de Saúde do Indígena/organização & administração , Saúde Mental/estatística & dados numéricos , Havaiano Nativo ou Outro Ilhéu do Pacífico/estatística & dados numéricos , Serviços de Saúde Rural/organização & administração , População Rural/estatística & dados numéricos , Adaptação Psicológica , Características Culturais , Feminino , Promoção da Saúde/organização & administração , Nível de Saúde , Humanos , Masculino , New South Wales/epidemiologia , Apoio SocialRESUMO
OBJECTIVE: To describe the experiences of older farmers in the face of prolonged drought and rapid change. DESIGN: Content analysis of issues and priorities raised in semi-structured community forums. SETTING: Rural centres in NSW. PARTICIPANTS: One hundred and fifty older farmers, their families, Industry and Investment NSW, rural financial and mental health services, the Country Women's Association and other non-government agencies. INTERVENTION: Five public forums organised under the Rural Adversity Mental Health Program. RESULTS: Prolonged drought caused pressures on farmers that compounded the usual stresses of farming and of ageing. These were experienced in the context of rapid social and industry change, fuel price volatility and the insidious threat of climate change. Three main themes were articulated: loss, government compliance pressures and difficulties accessing and/or inappropriate services. CONCLUSION: Older farmers felt an overwhelming sense of loss: of profitability and professional success, community status, physical well-being and comfort, the ability to participate in the modern world and, above all, of relationships (partners, children and friends moving away). They interpreted government compliance requirements as evidence of community and government loss of trust in famers. They resisted using the few mental health services that might be available, fearing being labelled as 'crazy' and discouraged by the culturally inappropriate way in which services were offered. Older farmers would benefit from joint services related to health and well-being simultaneously with modern business management offered in trusted, comfortable settings.
Assuntos
Doenças dos Trabalhadores Agrícolas/epidemiologia , Serviços Comunitários de Saúde Mental/organização & administração , Desastres , Transtornos Mentais/epidemiologia , Havaiano Nativo ou Outro Ilhéu do Pacífico/estatística & dados numéricos , Serviços de Saúde Rural/organização & administração , População Rural/estatística & dados numéricos , Idoso , Doenças dos Trabalhadores Agrícolas/psicologia , Mudança Climática , Feminino , Humanos , Masculino , Transtornos Mentais/psicologia , Pessoa de Meia-Idade , New South Wales/epidemiologia , Fatores de Risco , Apoio SocialRESUMO
OBJECTIVE: To report Aboriginal communities' views of how prolonged drought in rural NSW has affected their social and emotional well-being, and of possible adaptive strategies. DESIGN: Content analysis of issues, priorities and adaptive strategies raised in semistructured community forums. SETTING: Rural centres across NSW. PARTICIPANTS: Aboriginal people, service providers and other stakeholders. Voluntary participation by invitation with consent to record discussions. RESULTS: Three themes (containing six issues) emerged: (i) impacts on culture (harm to traditional family structure, culture and place; bringing shame to culture); (ii) sociodemographic and economic impacts (skewing of the population profile; loss of livelihood and participation; aggravation of existing socioeconomic disadvantage); and (iii) loss. In addition to continuing well-being programs that were already successful, proposed adaptive strategies were: capturing the spirit of Aboriginal knowledge and traditions; knowing your land; and Aboriginal arts. CONCLUSION: Prolonged drought presented substantial and unique adversity for rural NSW Aboriginal communities, compounding existing, underlying disadvantage. Drought-induced degradation of and, sometimes, the necessity to leave traditional land drove people apart and disrupted Caring for Country activities. Some people reported despair at not being able to discharge cultural obligations. At the same time, the drought prompted increased love of and concern for land and a renewed enthusiasm for expressing connectedness to land through all forms of art. Modern Aboriginal and wider community well-being programs helped frame a response to drought alongside traditional Aboriginal dreaming and cultural approaches to emotional health and well-being.
Assuntos
Atitude Frente a Saúde/etnologia , Características Culturais , Desastres , Comportamentos Relacionados com a Saúde/etnologia , Havaiano Nativo ou Outro Ilhéu do Pacífico/estatística & dados numéricos , População Rural/estatística & dados numéricos , Adaptação Psicológica , Emigração e Imigração/estatística & dados numéricos , Feminino , Serviços de Saúde do Indígena , Nível de Saúde , Humanos , Masculino , New South Wales/epidemiologia , Meio Social , Apoio Social , Inquéritos e QuestionáriosRESUMO
OBJECTIVE: To record the drought-related experiences of young people and to contrast these with their teachers' and other adults' observations. DESIGN: Content analysis of issues and priorities raised in semistructured school-based forums. SETTING: Rural schools in NSW centres. PARTICIPANTS: Young people, their teachers and service providers. INTERVENTION: Six youth and community forums organised under the Rural Adversity Mental Health Program. RESULTS: Participants welcomed increased community connectedness in response to prolonged drought but reported that drought's mental health impact was mainly negative. Adults observed children's distress, wondering if anyone else noticed it. They witnessed young people worrying about their families, increasingly isolated, at risk of harm, unable to obtain help and facing educational and employment limitations. Young people disclosed many mental health and relationship difficulties at school and at home. They worried about their families, communities and futures and about money and being isolated. CONCLUSION: Adults and young people reported similar effects of prolonged drought on young people's mental health. But, while adults were more concerned with risks to young people (of harm, abuse, homelessness, problems with the law and constrained opportunities), young people were simply overwhelmed, wanting help for their immediate worries. They sought coordinated support within schools, schools working together, more information about mental health and where to seek help for them and their friends, and support people who understood drought and rural circumstances and on whose discretion they could rely. Mental health programs that are developed in and for metropolitan contexts need to be adapted before being deployed in rural settings.
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Atitude Frente a Saúde/etnologia , Características Culturais , Desastres , Comportamentos Relacionados com a Saúde/etnologia , Saúde Mental/etnologia , Havaiano Nativo ou Outro Ilhéu do Pacífico/estatística & dados numéricos , População Rural/estatística & dados numéricos , Adaptação Psicológica , Adulto , Emigração e Imigração/estatística & dados numéricos , Feminino , Humanos , Masculino , New South Wales/epidemiologia , Meio Social , Apoio Social , Inquéritos e Questionários , Adulto JovemRESUMO
Participating in the social and civic life of communities is protectively associated with the onset and course of physical and mental disorders, and is considered important in achieving health promotion goals. Despite its importance in health research, there is no systematically developed measure of community participation. Our aim was to undertake the preliminary development of a community participation questionnaire, including validating it against an external reference, general psychological distress. Participants were 963 randomly selected community members, aged 19-97, from coastal New South Wales, Australia, who completed an anonymous postal survey. There were 14 types of community participation, most of which were characterised by personal involvement, initiative and effort. Frequency of participation varied across types and between women and men. Based on multiple linear regression analyses, controlling for socio-demographic factors, nine types of participation were independently and significantly associated with general psychological distress. Unexpectedly, for two of these, "expressing opinions publicly" and "political protest", higher levels of participation were associated with higher levels of distress. The other seven were: contact with immediate household, extended family, friends, and neighbours; participating in organised community activities; taking an active interest in current affairs; and religious observance. We called these the "Big 7". Higher levels of participation in the Big 7 were associated with lower levels of distress. Participating in an increasing number of the Big 7 types of participation was strongly associated in linear fashion with decreasing distress.
Assuntos
Participação da Comunidade/métodos , Participação da Comunidade/psicologia , Saúde Mental , Inquéritos e Questionários , Adulto , Idoso , Idoso de 80 Anos ou mais , Austrália , Redes Comunitárias , Relações Familiares , Feminino , Humanos , Modelos Lineares , Masculino , Pessoa de Meia-Idade , Política , Reprodutibilidade dos Testes , Fatores Sexuais , Apoio Social , Voluntários/organização & administração , Voluntários/psicologiaRESUMO
Although the implications of climate change for public health continue to be elucidated, we still require much work to guide the development of a comprehensive strategy to underpin the adaptation of the health system. Adaptation will be an evolving process as impacts emerge. The authors aim is to focus on the responses of the Australian health system to health risks from climate change, and in particular how best to prepare health services for predicted health risks from heat waves, bushfires, infectious diseases, diminished air quality, and the mental health impacts of climate change. In addition, the authors aim to provide some general principles for health system adaptation to climate change that may be applicable beyond the Australian setting. They present some guiding principles for preparing health systems and also overview some specific preparatory activities in relation to personnel, infrastructure, and coordination. Increases in extreme weather-related events superimposed on health effects arising from a gradually changing climate will place additional burdens on the health system and challenge existing capacity. Key characteristics of a climate change-prepared health system are that it should be flexible, strategically allocated, and robust. Long-term planning will also require close collaboration with the nonhealth sectors as part of a nationwide adaptive response.
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Mudança Climática , Planejamento em Saúde/organização & administração , Austrália , Política de Saúde , Humanos , Saúde PúblicaRESUMO
Social capital is associated with better health, but components of social capital and their associations with different types of health are rarely explored together. The aim of this study was to use nationally representative data to develop population norms of community participation and explore the relationships between structural and cognitive components of social capital with three forms of health - general health, mental health and physical functioning. Data were taken from Wave 6 (2006) of the Household, Income and Labour Dynamics in Australia Survey. Using individual-level data, the structural component of social capital (community participation) was measured using a twelve-item short-form of the Australian Community Participation Questionnaire, and the cognitive component (social cohesion) by sense of belonging, tangible support, trust and reciprocity. Three subscales of the SF-36 provided measures of health. Multiple hierarchical regression modelling was used to investigate multivariate relationships among these factors. Higher levels of participation were related to higher levels of social cohesion and to all three forms of (better) health, particularly strongly to mental health. These findings could not be accounted for by sex, age, Indigenous status, education, responsibility for dependents, paid work, living alone or poverty. Controlling for these and physical health, structural and cognitive components of social capital were each related to mental health, with support for a possible mediated relationship between the structural component and mental health. Social capital was related to three forms of health, especially to mental health. Notable gender differences in this relationship were evident, with women reporting greater community participation and social cohesion than men, yet worse mental health. Understanding the mechanisms underlying this apparent anomaly needs further exploration. Because community participation is amenable to intervention, subject to causal testing, our findings may assist in the development of programs which are effective in promoting social cohesion and, thereby, mental health.
Assuntos
Participação da Comunidade/estatística & dados numéricos , Nível de Saúde , Identificação Social , Apoio Social , Adulto , Austrália , Feminino , Humanos , Relações Interpessoais , Masculino , Saúde Mental , Pessoa de Meia-Idade , Análise Multivariada , Análise de Regressão , Fatores Sexuais , Fatores Socioeconômicos , Inquéritos e QuestionáriosRESUMO
OBJECTIVES: Climate change will bring more frequent, long lasting and severe adverse weather events and these changes will affect mental health. We propose an explanatory framework to enhance consideration of how these effects may operate and to encourage debate about this important aspect of the health impacts of climate change. METHODS: Literature review. RESULTS: Climate change may affect mental health directly by exposing people to trauma. It may also affect mental health indirectly, by affecting (1) physical health (for example, extreme heat exposure causes heat exhaustion in vulnerable people, and associated mental health consequences) and (2) community wellbeing. Within community, wellbeing is a sub-process in which climate change erodes physical environments which, in turn, damage social environments. Vulnerable people and places, especially in low-income countries, will be particularly badly affected. CONCLUSIONS: Different aspects of climate change may affect mental health through direct and indirect pathways, leading to serious mental health problems, possibly including increased suicide mortality. We propose that it is helpful to integrate these pathways in an explanatory framework, which may assist in developing public health policy, practice and research.
Assuntos
Mudança Climática , Saúde Mental , Adaptação Psicológica , Humanos , Transtornos Mentais/etiologia , Saúde PúblicaRESUMO
With the prevalence and costs of mental health problems increasing, safe, effective and economically viable prevention and treatment strategies are urgently needed. Community participation is protectively linked to mental health and is considered a valid mental health promotion strategy. However, little consideration has been given to socio-demographically driven patterns of participation that would differentially affect the success of such a strategy. The aims of this study were to group and describe members of a socio-economically disadvantaged rural region according to patterns of community participation, report on their levels of social cohesion and psychological distress and reflect on policy implications. Participants were 963 community members, aged 19-97, randomly selected from a socio-economically disadvantaged coastal Australian region, who voluntarily completed an anonymous postal survey. Measures included (1) frequency of fourteen types of participation, (2) thoughts and feelings about each type, and (3) five aspects of social cohesion. Two-step cluster analysis was undertaken to derive groupings of respondents based on their socio-demographic characteristics and levels of and perceptions about their participation. Psychological distress was assessed for each group. Four distinct groupings of participants were identified: social capital elite; busy working parents; aging, participating less; and excluded participators. The last of these reported particularly poor participation, cohesion and psychological distress. For mental health promotion strategies to be effective, they must be tailored to the circumstances of intended recipients. This requires a sophisticated analysis of target groups. This study has shown that members of a socio-economically disadvantaged rural region may be described according to systematically varying patterns of socio-demographic characteristics, participation, social cohesion and distress. Policy-makers might consider (1) how and whether different groups might respond to the use of increased community participation as a mental health promotion strategy and (2) barriers that might have to be overcome in different groups.