Detalhe da pesquisa
1.
Engagement and return of results preferences among a primarily African American genomic sequencing research cohort.
Am J Hum Genet
; 108(5): 894-902, 2021 05 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-33887195
2.
The Parent PrU: A measure to assess personal utility of pediatric genomic results.
Genet Med
; 26(1): 100994, 2024 Jan.
Artigo
em Inglês
| MEDLINE | ID: mdl-37838931
3.
Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for pediatric diagnostic testing.
Genet Med
; : 101146, 2024 Apr 24.
Artigo
em Inglês
| MEDLINE | ID: mdl-38676451
4.
The PrU: Development and validation of a measure to assess personal utility of genomic results.
Genet Med
; 25(3): 100356, 2023 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-36516964
5.
Motivations to learn genomic information are not exceptional: Lessons from behavioral science.
Clin Genet
; 104(4): 397-405, 2023 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-37491896
6.
Use of a web-based portal to return normal individual research results in Early Check: Exploring user behaviors and attitudes.
Clin Genet
; 103(6): 672-680, 2023 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-36960544
7.
Future-oriented Emotions and Decisions to Receive Genomic Testing Results Among U.S. Adults of African Ancestry.
Ann Behav Med
; 57(5): 418-423, 2023 04 22.
Artigo
em Inglês
| MEDLINE | ID: mdl-36356050
8.
Acceptability of an online communication training intervention for genetic counseling students.
J Genet Couns
; 2023 Oct 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-37795757
9.
Misunderstood terms and concepts identified through user testing of educational materials for fragile X premutation: "Not weak or fragile?"
J Genet Couns
; 2023 May 26.
Artigo
em Inglês
| MEDLINE | ID: mdl-37232511
10.
The Genomic Medicine Integrative Research Framework: A Conceptual Framework for Conducting Genomic Medicine Research.
Am J Hum Genet
; 104(6): 1088-1096, 2019 06 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-31104772
11.
ORCA, a values-based decision aid for selecting additional findings from genomic sequencing in adults: Efficacy results from a randomized trial.
Genet Med
; 24(8): 1664-1674, 2022 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-35522237
12.
An accessible, relational, inclusive, and actionable (ARIA) model of genetic counseling compared with usual care: Results of a randomized controlled trial.
Genet Med
; 24(11): 2228-2239, 2022 11.
Artigo
em Inglês
| MEDLINE | ID: mdl-36053287
13.
Further validation of the Perceptions of Uncertainties in Genome Sequencing scale among patients with cancer undergoing tumor sequencing.
Clin Genet
; 102(2): 110-116, 2022 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-35615816
14.
Psychological predictors of advanced cancer patients' preferences for return of results from comprehensive tumor genomic profiling.
Am J Med Genet A
; 188(3): 725-734, 2022 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-34755933
15.
Validation of the multidimensional impact of Cancer Risk Assessment Questionnaire to assess impact of waiting for genome sequencing results.
Psychooncology
; 31(7): 1204-1211, 2022 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-35194887
16.
Identifying Needs, Challenges, and Benefits Among Adults and Parents of Children With Hirschsprung Disease.
J Pediatr Gastroenterol Nutr
; 74(5): e103-e108, 2022 05 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-35149644
17.
Return of comprehensive tumour genomic profiling results to advanced cancer patients: a qualitative study.
Support Care Cancer
; 30(10): 8201-8210, 2022 Oct.
Artigo
em Inglês
| MEDLINE | ID: mdl-35809119
18.
The role of future-oriented affect in engagement with genomic testing results.
J Behav Med
; 45(1): 103-114, 2022 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-34480685
19.
Value of whole-genome sequencing to Australian cancer patients and their first-degree relatives participating in a genomic sequencing study.
J Genet Couns
; 31(1): 96-108, 2022 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-34218500
20.
Outcomes of Counseling after Education about Carrier Results: A Randomized Controlled Trial.
Am J Hum Genet
; 102(4): 540-546, 2018 04 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-29526281