Pesquisa | Portal de Pesquisa da BVS

1.

Adolescent/Young Adult Self-Management and Independence Self-Report Scale: Preliminary psychometric findings.

Ridosh, Monique M; Smith, Zoe; Adams, William; Brei, Timothy J; Fremion, Ellen; Holmbeck, Grayson N; Roach, Audrey J; Sawin, Kathleen J; Sherburne, Eileen.

Child Care Health Dev ; 50(1): e13229, 2024 01.

Artigo em Inglês | MEDLINE | ID: mdl-38265130

2.

Quality of Life in Adolescents and Young Adults with and Without Spina Bifida: An Exploratory Analysis.

Ridosh, Monique M; Sawin, Kathleen J; Roux, Gayle; Brei, Timothy J.

J Pediatr Nurs ; 49: 10-17, 2019.

Artigo em Inglês | MEDLINE | ID: mdl-31421392

3.

Self-management and spina bifida: A systematic review of the literature.

Sawin, Kathleen J; Margolis, Rachel H F; Ridosh, Monique M; Bellin, Melissa H; Woodward, Jason; Brei, Timothy J; Logan, Lynne Romeiser.

Disabil Health J ; 14(1): 100940, 2021 01.

Artigo em Inglês | MEDLINE | ID: mdl-32980287

4.

Guidelines and scientifically-based spina bifida care: Guidance across the lifespan in a global health context.

Castillo, Jonathan; Castillo, Heidi; Brei, Timothy J.

J Pediatr Rehabil Med ; 13(4): 453-455, 2020.

Artigo em Inglês | MEDLINE | ID: mdl-33325406

5.

Quality of life: Guidelines for the care of people with spina bifida.

Sawin, Kathleen J; Brei, Timothy J; Houtrow, Amy J.

J Pediatr Rehabil Med ; 13(4): 565-582, 2020.

Artigo em Inglês | MEDLINE | ID: mdl-33325410

6.

Scientific methodology of the development of the Guidelines for the Care of People with Spina Bifida: An initiative of the Spina Bifida Association.

Dicianno, Brad E; Beierwaltes, Patricia; Dosa, Nienke; Raman, Lisa; Chelliah, Jerome; Struwe, Sara; Panlener, Juanita; Brei, Timothy J.

Disabil Health J ; 13(2): 100816, 2020 04.

Artigo em Inglês | MEDLINE | ID: mdl-31248776

7.

The experience of self-management in adolescent women with spina bifida.

Sawin, Kathleen J; Bellin, Melissa H; Roux, Gayle; Buran, Constance F; Brei, Timothy J.

Rehabil Nurs ; 34(1): 26-38, 2009.

Artigo em Inglês | MEDLINE | ID: mdl-19160922

8.

Immigration and transition: Changing demographics forecast the emerging trends in spina bifida care.

Castillo, Jonathan; Brei, Timothy J.

J Pediatr Rehabil Med ; 12(4): 337-338, 2019.

Artigo em Inglês | MEDLINE | ID: mdl-31796707

9.

The relationship of neuropsychological functioning to adaptation outcome in adolescents with spina bifida.

Heffelfinger, Amy K; Koop, Jennifer I; Fastenau, Philip S; Brei, Timothy J; Conant, Lisa; Katzenstein, Jennifer; Cashin, Susan E; Sawin, Kathleen J.

J Int Neuropsychol Soc ; 14(5): 793-804, 2008 Sep.

Artigo em Inglês | MEDLINE | ID: mdl-18764974

10.

The development of the Adolescent/Young Adult Self-Management and Independence Scale II: Psychometric data.

Sawin, Kathleen J; Heffelfinger, Amy; Cashin, Susan E; Brei, Timothy J.

J Pediatr Rehabil Med ; 11(4): 311-322, 2018.

Artigo em Inglês | MEDLINE | ID: mdl-30507585

11.

A Global Family Quality of Life Scale: Preliminary psychometric evidence.

Ridosh, Monique M; Sawin, Kathleen J; Brei, Timothy J; Schiffman, Rachel F.

J Pediatr Rehabil Med ; 11(2): 103-114, 2018.

Artigo em Inglês | MEDLINE | ID: mdl-30010149

12.

Health risk behaviors in spina bifida: the need for clinical and policy action.

Sawin, Kathleen J; Brei, Timothy J.

Dev Med Child Neurol ; 54(11): 974-5, 2012 Nov.

Artigo em Inglês | MEDLINE | ID: mdl-22937951

13.

The future of the multidisciplinary clinic.

Brei, Timothy J.

ScientificWorldJournal ; 7: 1752-6, 2007 Nov 12.

Artigo em Inglês | MEDLINE | ID: mdl-18040537

14.

The experience of adolescent women living with spina bifida. Part II: Peer relationships.

Roux, Gayle; Sawin, Kathleen J; Bellin, Melissa Hayden; Buran, Constance F; Brei, Timothy J.

Rehabil Nurs ; 32(3): 112-9, 2007.

Artigo em Inglês | MEDLINE | ID: mdl-17514995

15.

The experience of adolescent women living with spina bifida part I: self-concept and family relationships.

Bellin, Melissa Hayden; Sawin, Kathleen J; Roux, Gayle; Buran, Constance F; Brei, Timothy J.

Rehabil Nurs ; 32(2): 57-67, 2007.

Artigo em Inglês | MEDLINE | ID: mdl-17432634

16.

Prevention and awareness of birth defects across the lifespan using examples from congenital heart defects and spina bifida.

Farr, Sherry L; Riley, Catharine; Van Zutphen, Alissa R; Brei, Timothy J; Leedom, Vinita Oberoi; Kirby, Russell S; Pabst, Laura J.

Birth Defects Res ; 114(2): 35-44, 2022 01 15.

Artigo em Inglês | MEDLINE | ID: mdl-34921598

17.

Management of drooling.

Brei, Timothy J.

Semin Pediatr Neurol ; 10(4): 265-70, 2003 Dec.

Artigo em Inglês | MEDLINE | ID: mdl-14992458

18.

Factors associated with quality of life in adolescents with spina bifida.

Sawin, Kathleen J; Brei, Timothy J; Buran, Constance F; Fastenau, Philip S.

J Holist Nurs ; 20(3): 279-304, 2002 Sep.

Artigo em Inglês | MEDLINE | ID: mdl-12240958

19.

The experience of parenting an adolescent with spina bifida.

Sawin, Kathleen J; Bellin, Melissa Hayden; Roux, Gayle; Buran, Constance; Brei, Timothy J; Fastenau, Philip S.

Rehabil Nurs ; 28(6): 173-85, 2003.

Artigo em Inglês | MEDLINE | ID: mdl-14649165

20.

Needs assessment in a spina bifida program: a comparison of the perceptions by adolescents with spina bifida and their parents.

Buran, Constance F; McDaniel, Anna M; Brei, Timothy J.

Clin Nurse Spec ; 16(5): 256-62, 2002 Sep.

Artigo em Inglês | MEDLINE | ID: mdl-12394114

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