RESUMO
BACKGROUND: Knowledge of the discourse performance of non-brain-damaged individuals is critical not only for its differentiation from disordered expression but also for more accurate models of ageing and communication. The effect of ageing and cognitive skills on the cohesive adequacy of discourse has, until now, presented a confusing and ambiguous picture. AIMS: To examine comprehensively the effects of both age and cognitive skills on the discourse cohesion of 32 non-brain-damaged males divided into four age groups. METHODS & PROCEDURES: A large body of narrative and procedural samples (394 samples) was elicited from the participants. Their cognitive skills were determined using three tests, whilst their discourse cohesion was analyzed and correlated with the cognitive test results. OUTCOMES & RESULTS: This extensive investigation of ageing effects on discourse cohesion and their relationship to cognitive behaviour did not provide neat generalizable results. It showed that ageing significantly increases the number of cohesive errors and reduces the quantity of referential ties in picture-sequence narratives. The changes with age were limited to two aspects of cohesion and not linear across age groups. The participants' cognitive skills declined with age. Correlations between some cognitive tests and certain cohesive changes suggest co-occurring deficits rather than a causal explanation of cohesive decline with age. CONCLUSIONS & IMPLICATIONS: With ageing there are increased cohesive errors and decreased referential ties, co-occurring with declining cognitive skills. This study yields important guidance for future research, suggesting that picture-sequence narrative is the most effective tool for clinical evaluation of discourse, but also that findings from one discourse sample may be misleading.
Assuntos
Cognição , Envelhecimento Cognitivo/psicologia , Idioma , Narração , Fatores Etários , Idoso , Idoso de 80 Anos ou mais , Humanos , Masculino , Pessoa de Meia-IdadeRESUMO
BACKGROUND: While the prevalence of language and communication difficulties among young people in custody is well established, holistic understanding of the complexity and co-occurrence of additional vulnerabilities among this population are rare. METHODS: Ninety-three young people in a young offenders institution in England were assessed using the Comprehensive Health Assessment Tool, the Test of Word Knowledge, and a range of additional assessments of communication, cognition, and neurodevelopmental difficulties. RESULTS: Forty-seven percent of the young people demonstrated an aspect of language skills significantly below the population average, with more than one in four identified as having impairment. Only one in four of those with an impairment had previously accessed speech and language services. Language needs were associated with difficulties with social communication and nonverbal cognition, as well as higher risk of self-harm and substance misuse. CONCLUSIONS: Earlier identification of language difficulties requires routine assessment of young people at risk of engagement in offending behavior. Where language difficulties are identified, holistic assessments of needs should be undertaken. There is a need for speech and language therapy provision within youth justice services, as well as in other services accessed by young people at risk of engagement in offending.
Assuntos
Criminosos , Diagnóstico Tardio , Delinquência Juvenil , Transtornos da Linguagem/diagnóstico , Testes de Linguagem , Adolescente , Criminosos/estatística & dados numéricos , Diagnóstico Tardio/estatística & dados numéricos , Inglaterra/epidemiologia , Humanos , Delinquência Juvenil/estatística & dados numéricos , Transtornos da Linguagem/epidemiologia , Testes de Linguagem/estatística & dados numéricos , MasculinoRESUMO
BACKGROUND: There have been calls for speech and language therapists (SLTs) to work within a public-health framework to support language development. Innovative practice is reported, but the range of services remains unknown. Furthermore, the potential impact of public health practice in speech and language therapy on early child development is also currently unknown. A new method in SLT research, systematic scoping reviews enable greater breadth of focus than traditional systematic reviews when identifying innovative practice. AIM: To report scope and critically appraise evidence of family-focused health-promotion practice for early language development in this area. METHODS & PROCEDURES: Using the Cochrane Public Health Group scoping review framework, data from reports of health-promotion practice with families of children aged 0-3 years were extracted and critically appraised on service delivery, information, reach and evaluation. MAIN CONTRIBUTION: Group-based service delivery was the most popular form of service delivery. There were limited reports on the information given in services and on their reach. Questionnaires were the most popular reported evaluation method. Quality of evaluations was poor due to lack of replicability and experimental control in the studies reported. CONCLUSIONS & IMPLICATIONS: This method of systematic review has highlighted the scope of health-promotion practice in speech and language therapy and also demonstrated the lack of evidence for its effectiveness on child language development. It is argued that systematic scoping reviews are valuable for scoping innovative practice in areas where either there is a lack of robust evidence or there is a high level of heterogeneity in practice or evaluation. To support clinician appraisal of available evidence, recommendations are given for development of questionnaire appraisal and for categorization of evidence levels on summary databases.
Assuntos
Linguagem Infantil , Prestação Integrada de Cuidados de Saúde/métodos , Intervenção Médica Precoce/métodos , Transtornos do Desenvolvimento da Linguagem/reabilitação , Terapia da Linguagem/métodos , Prática de Saúde Pública , Patologia da Fala e Linguagem/métodos , Fatores Etários , Pré-Escolar , Relações Familiares , Promoção da Saúde , Humanos , Lactente , Recém-Nascido , Transtornos do Desenvolvimento da Linguagem/diagnóstico , Transtornos do Desenvolvimento da Linguagem/psicologia , Equipe de Assistência ao Paciente , Papel Profissional , Relações Profissional-PacienteRESUMO
BACKGROUND: At least 60% of young people in the UK who are accessing youth justice services present with speech, language and communication difficulties which are largely unrecognized. The contributing reasons for this are discussed, suggesting that early language difficulty is a risk factor for other problems such as literacy difficulties and educational failure that may increasingly put the young person at risk of offending. Opportunities for identification and remediation of language difficulties before young people reach youth justice services are also outlined. AIMS: To examine language skills in a sample of children in a secure children's home aged 11-17 years. METHODS & PROCEDURES: A sample of 118 males were routinely assessed on four Comprehensive Evaluation of Language Fundamentals (CELF) subtests and the British Picture Vocabulary Scale (BPVS). OUTCOMES & RESULTS: Around 30% of the participants presented with language difficulties scoring 1.5 SD (standard deviation) below the mean on the assessments. Despite them entering the home because their vulnerability was recognized, only two participants had a previous record of language difficulties. A total of 20% of the participants had a diagnosis of mental illness, 50% had a history of drug abuse and 31% had looked-after status prior to entry to the home. CONCLUSIONS & IMPLICATIONS: Children experiencing educational or emotional difficulties need to be routinely assessed for speech, language and communication difficulties. More population-based approaches to supporting the development of oral language skills in children and young people are also supported.
Assuntos
Sintomas Afetivos/terapia , Transtornos da Linguagem/diagnóstico , Transtornos da Linguagem/terapia , Terapia da Linguagem , Prisioneiros/psicologia , Fonoterapia , Adolescente , Sintomas Afetivos/diagnóstico , Sintomas Afetivos/psicologia , Criança , Comorbidade , Humanos , Transtornos da Linguagem/psicologia , Testes de Linguagem , Masculino , Transtornos Mentais/diagnóstico , Transtornos Mentais/psicologia , Transtornos Mentais/terapia , Transtornos Relacionados ao Uso de Substâncias/diagnóstico , Transtornos Relacionados ao Uso de Substâncias/terapia , Reino UnidoRESUMO
AIM AND OBJECTIVE: To understand how nurses and midwives manage informal complaints at ward level. BACKGROUND: The provision of high quality, compassionate clinical nursing and midwifery is a global priority. Complaints management systems have been established within the National Health Service in the UK to improve patient experience yet little is known about effective responses to informal complaints in clinical practice by nurses and midwives. DESIGN: Collaborative action research. METHODS: Four phases of data collection and analysis relating to primarily one National Health Service trust during 2011-2014 including: scoping of complaints data, interviews with five service users and six key stakeholders and eight reflective discussion groups with six midwives over a period of nine months, two sessions of communications training with separate groups of midwives and one focus group with four nurses in the collaborating trust. RESULTS: Three key themes emerged from these data: multiple and domino complaints; ward staff need support; and unclear complaints systems. CONCLUSIONS: Current research does not capture the complexities of complaints and the nursing and midwifery response to informal complaints. RELEVANCE TO CLINICAL PRACTICE: Robust systems are required to support clinical staff to improve their response to informal complaints and thereby improve the patient experience.
Assuntos
Tocologia , Papel do Profissional de Enfermagem , Relações Enfermeiro-Paciente , Satisfação do Paciente , Local de Trabalho , Adulto , Feminino , Humanos , Gravidez , Medicina Estatal , Reino UnidoRESUMO
OBJECTIVE: To compare two approaches to providing training to care assistants in Parkinson's disease. DESIGN: Pragmatic parallel arm controlled trial. SETTING: Training either by an interactive training day at a local medical education establishment or self study. SUBJECTS: Care assistants recruited from local health and social care providers. INTERVENTIONS: The content of both interventions was similar, covering causes, symptoms, diagnosis of Parkinson's disease, multidisciplinary management, mobility, communication, swallowing, and involving 5 hours of study time. MAIN MEASURES: Knowledge about Parkinson's (assessed by true/false quizzes and identifying 'four facts' about Parkinson's) immediately post training and six weeks later; views on training methods of care assistants and employers/managers. RESULTS: Thirty-seven employers nominated 100 care staff who were allocated to interactive training (49) and self study (51). Training completion rates (retained to six-week follow-up) were lower for self study (42.1% vs. 83.7% training day). There were no significant differences between groups on quiz or 'four facts' scores at baseline or six-week follow-up. Immediately post training, the self-study group (with access to written materials) had significantly higher quiz scores than the training day group (no access to materials at test). Within-group comparisons showed improvements post training. Although interactive training may be preferred, obtaining release from duties can be problematic. CONCLUSIONS: Both approaches have similar effects on knowledge of care assistants without prior specific training. Providing a variety of approaches will cater for all preferences. The findings may be generalizable to training the care workforce for other specific roles.
Assuntos
Cuidadores/educação , Doença de Parkinson/terapia , Ensino/métodos , Adulto , Idoso , Atitude do Pessoal de Saúde , Competência Clínica , Avaliação Educacional , Feminino , Processos Grupais , Conhecimentos, Atitudes e Prática em Saúde , Humanos , Masculino , Pessoa de Meia-Idade , Reino Unido , Adulto JovemRESUMO
OBJECTIVE: Our goal was to investigate the frequency of specific signs and symptoms following sexual assault-related non-fatal strangulation (NFS) and to explore the interaction between assault characteristics and physical exam findings. METHODS: This retrospective observational study included all adults (>18 years) reporting strangulation during sexual assault who presented for a forensic sexual assault exam at one of six urban community hospitals contracted with a single forensic nurse agency. Demographic information, narrative elements, and physical exam findings were abstracted from standardized sexual assault reporting forms. We analyzed data with descriptive statistics and compared specific variables using chi-square testing. RESULTS: Of the 580 subjects 99% were female, with a median age of 27 (interquartile range 22-35 years). The most common injury location was the neck (57.2%), followed by the mouth (29.1%). We found that 19.1% of the victims had no injuries evident on physical exam and 29.8% reported a loss of consciousness. Eye/eyelid and neck findings did not significantly differ between subjects who reported blows to the head in addition to strangulation and those who did not. The time that elapsed between assault and exam did not significantly correlate with the presence of most head and torso physical exam findings, except for nose injury (P = 0.02). CONCLUSION: Slightly more than half of the victims who reported strangulation during sexual assault had visible neck injuries. Other non-anogenital findings were present even less frequently, with a substantial portion of victims having no injuries documented on physical exam. The perpetrators' use of blows to the head may account for many of the non-anogenital injuries observed, but not for the neck and eye/eyelid injuries, which may be more specific to non-fatal strangulation. More research is needed to definitively establish strangulation as the causal mechanism for these findings, and to determine whether any long-term neurologic or vascular sequelae resulted from the observed injuries.
Assuntos
Asfixia , Delitos Sexuais , Adulto , Asfixia/diagnóstico , Vítimas de Crime/estatística & dados numéricos , Feminino , Humanos , Masculino , Lesões do Pescoço/diagnóstico , Exame Físico , Estudos Retrospectivos , Avaliação de Sintomas , Adulto JovemRESUMO
BACKGROUND: Increasing numbers of children with behaviour and school problems (related to both academic achievement and social participation) are recognized as having undiagnosed speech, language and communication difficulties. Both speech, language and communication difficulties and school failure are risk factors for offending. AIMS: To investigate the prevalence of speech, language and communication difficulties in a group of persistent and prolific young offenders sentenced to the Intensive Supervision and Surveillance Programme (ISSP), and to provide a preliminary evaluation of the impact of speech and language therapy (SLT) intervention. METHODS & PROCEDURES: Seventy-two entrants to ISSP over 12 months were screened by the speech and language therapist. Those showing difficulties then had a detailed language assessment followed by intervention delivered jointly by the speech and language therapist and the youth offending team staff. Reassessment occurred at programme completion. OUTCOMES & RESULTS: A total of 65% of those screened had profiles indicating that they had language difficulties and might benefit from speech and language therapy intervention. As a cohort, their language skills were lower than those of the general population, and 20% scored at the 'severely delayed' level on standardized assessment. This is the first study of speech and language therapy within community services for young offenders, and is the first to demonstrate language improvement detectable on standardized language tests. However, further research is needed to determine the precise role of speech and language therapy within the intervention programme. CONCLUSIONS & IMPLICATIONS: Children and young people with behavioural or school difficulties coming into contact with criminal justice, mental health, psychiatric, and social care services need to be systematically assessed for undiagnosed speech, language and communication difficulties. Appropriate interventions can then enable the young person to engage with verbally mediated interventions.
Assuntos
Transtornos da Comunicação/terapia , Criminosos/psicologia , Transtornos do Desenvolvimento da Linguagem/terapia , Terapia da Linguagem/métodos , Distúrbios da Fala/terapia , Fonoterapia/métodos , Adolescente , Criança , Cognição , Transtornos da Comunicação/epidemiologia , Transtornos da Comunicação/psicologia , Criminosos/estatística & dados numéricos , Humanos , Incidência , Transtornos do Desenvolvimento da Linguagem/epidemiologia , Transtornos do Desenvolvimento da Linguagem/psicologia , Masculino , Prevalência , Fatores de Risco , Habilidades Sociais , Distúrbios da Fala/epidemiologia , Distúrbios da Fala/psicologia , Percepção da Fala , Testes de Associação de PalavrasRESUMO
INTRODUCTION: Delayed discharge from acute hospital has been a cause of concern for the last 10 years. Older people with complex health needs are particularly vulnerable to delayed discharge with negative consequences for their health and wellbeing. SOURCE OF DATA: Review of the literature on the impact of the Community Care (Delayed Discharge) Act (2003) and subsequent policy initiatives on delayed discharges. Areas of agreement A number of cross-institutional complexities contribute to delayed discharges. Policy measures have contributed positively to reducing delayed discharges. Investment in intermediate care services has provided a range of services to promote maximum independence for older people after acute hospital admission. Joint working between health and social services is necessary to prevent delayed discharges. AREAS OF CONTROVERSY: Pressure to achieve rapid hospital throughput may be contributing to older people leaving hospital too soon and to recent increases in hospital re-admission rates. Policy measures are extending to older people with mental health problems. AREAS TIMELY FOR DEVELOPING RESEARCH: Patient and carer experiences of delayed or premature discharge. Quality and equity of access to intermediate care for older people.
Assuntos
Eficiência Organizacional/normas , Política de Saúde , Necessidades e Demandas de Serviços de Saúde/normas , Alta do Paciente/normas , Administração em Saúde Pública/normas , Eficiência Organizacional/economia , Necessidades e Demandas de Serviços de Saúde/economia , Humanos , Tempo de Internação , Alta do Paciente/economia , Administração em Saúde Pública/economia , Fatores de TempoRESUMO
OBJECTIVE: There are many issues concerning the assessment of older people from ethnic minority groups, the most significant being the language barrier experienced by those whose English is an additional language (EAL). This study aimed to test the hypothesis that EAL participants would score less well than those with English as a first language (EFL) on the sub-tests of the Barnes Language Assessment (BLA), elucidate the reasons for any such differences and discuss the implications. METHODS: The Barnes Language Assessment (BLA) is an accurate tool providing information about expected patterns of language in different dementia syndromes. This study compares the performance of EAL participants with EFL participants. The BLA was administered to 144 participants, divided into sub-groups with respect to age, gender and educational background, none of whom had a working diagnosis of dementia. RESULTS: Results suggest that EAL speakers performed less well compared to EFL speakers when other variables were matched. Significantly better BLA scores, at the one percent level, were found in both EAL and EFL groups with higher educational achievement for eight of the 15 sub-tests. CONCLUSION: Differences were found in performance on the BLA between EAL and EFL participants. The degree of difference between EAL and EFL speakers decreased as educational achievement rose. The consequences of these findings for service delivery and the problems of recruitment of older EAL participants are discussed.
Assuntos
Demência/epidemiologia , Etnicidade/estatística & dados numéricos , Testes de Linguagem , Grupos Minoritários/estatística & dados numéricos , Aceitação pelo Paciente de Cuidados de Saúde/estatística & dados numéricos , Idoso , Barreiras de Comunicação , Comparação Transcultural , Demência/psicologia , Etnicidade/psicologia , Feminino , Avaliação Geriátrica , Humanos , Idioma , Masculino , Pessoa de Meia-Idade , Grupos Minoritários/psicologia , Aceitação pelo Paciente de Cuidados de Saúde/psicologiaRESUMO
AIM: The study investigated the lived experiences of older patients who had been in hospital, to explore their views on dignity and the factors which promote dignity. BACKGROUND: The UK government's new ambition for old age (New Ambition for Old Age: Next Steps in implementing the National Service Framework for Older People: A Report from Professor Ian Philip, DH) states that older people should be treated with dignity. The dignity in Care Campaign ('Dignity in Care'Public Survey, October 2006: Report of the Survey, DH) highlighted the need to raise staff's awareness and understanding of dignity. DESIGN: A purposive sample of older people took part in semi- structured interviews which focussed on their recent experiences of hospital admission. Qualitative data analysis was used. METHOD: Ten participants aged 73-83 were interviewed by a nurse researcher at home. All of the participants had an unplanned admission and were discharged home. RESULTS: The participants although generally satisfied with their care had strong views on dignity. The following factors had the potential to promote dignity; privacy for the body, cleanliness, independence and being able to exert control, sufficient time from staff, attitudes to older people and communication. CONCLUSIONS: This study suggests that independence and effective communication are of central importance in maintaining dignity through achieving control of their situation. The participants observed that factors such as speaking inappropriately and waiting for personal care undermined older people's perceptions of dignity. Several participants feared for their own dignity should they have cognitive problems later in their lives. RELEVANCE TO CLINICAL PRACTICE: Staff need to be aware that communicating in a way that conveys empathy and responds to the individual as a valued person is an important factor in maintaining dignity. Nurses on hospital wards particularly need to take measures to safeguard the dignity of older people with cognitive problems who have difficulty in making their needs known.
Assuntos
Serviços Hospitalares de Assistência Domiciliar , Pesquisa em Enfermagem , Alta do Paciente , Satisfação do Paciente , Autonomia Pessoal , Direito a Morrer , Autoimagem , Fatores Etários , Idoso , Idoso de 80 Anos ou mais , Envelhecimento , Comunicação , Feminino , Humanos , Masculino , Aceitação pelo Paciente de Cuidados de Saúde , Pesquisa Qualitativa , Reino UnidoRESUMO
A Japanese-speaking stroke patient with disrupted phonology but relatively good semantics was severely impaired in nonword reading, with better preserved and imageability-modulated word-reading in both kanji and kana. This basic similarity of reading in the two Japanese scripts was accompanied by the following differences: (i) distinct error patterns (prominent semantic errors for kanji vs. phonological errors for kana); (ii) a more pronounced imageability effect for kanji; and (iii) a remarkable pseudohomophone advantage for kana. The combination of deep dyslexia for kanji and phonological dyslexia for kana in a single patient suggests that these are not two distinct reading disorders.
Assuntos
Dislexia Adquirida/fisiopatologia , Dislexia/fisiopatologia , Idioma , Leitura , Acidente Vascular Cerebral/fisiopatologia , Feminino , Humanos , Japão , Pessoa de Meia-Idade , Testes Neuropsicológicos , Fonética , Semântica , Acidente Vascular Cerebral/patologiaRESUMO
Health and social care agencies in the UK. have been under pressure for some time to reduce delayed transfers of older people from hospital because they absorb scarce health service resources and incur a human cost through inappropriate placement. A local study based on an analysis of records and interviews with managers showed that delays reflect the complex needs of older people, and arise from financing and organisational problems at both the planning and implementation stages of a discharge. Family resistance may also be a factor. Budgetary constraints result in delays in confirming public support for some clients. Shortages of professional staff and care assistants limit the provision of domiciliary packages. The contraction of the residential sector has reduced the availability of beds and increased the cost of care home placements. Scope exists for expediting administrative aspects of transfers by coordinating health and social services. More recent legislation that imposes fines on social service departments for delayed transfers does not address underlying causes.
Assuntos
Política Organizacional , Transferência de Pacientes/organização & administração , Idoso , Humanos , Medicina Estatal , Fatores de Tempo , Reino UnidoRESUMO
AIMS: This research investigates the relationship between dyslexia traits and nurse performance on a laboratory task designed to assess one of the key cognitive skills involved in drug administration. The potential moderating role of perceived performance control was also assessed, based on previous work demonstrating the importance of self-belief as a facilitator of vocational success. BACKGROUND: Dyslexia within the health care professions has been the subject of wide and emotionally charged debate but has not yet been scientifically examined. Those who fear clinicians with dyslexia do so because of a presumed or potential risk to patient health and safety posed by dyslexia-induced performance error (e.g. problems with drug administration). DESIGN, SAMPLE AND METHODS: 46 nurses (40 student nurses and 6 qualified nurses) volunteered to complete a battery of computerised tasks assessing for dyslexia traits (using four accuracy tasks measuring different types of literacy skill), a paired association task designed to measure one of the key cognitive skills involved in drug administration) and a self-report questionnaire (Learning Styles Questionnaire, self-reported reading difficulty and a history of educational support, perceived control over performance). The performance criterion measure was constructed after detailed job analysis (involving analysis of official documentation, in-depth interviews and field observation across a variety of clinical settings) and involved matching drug names to patient names and vice versa. RESULTS: The results showed that the dyslexia indicators (objective and self-report) were significantly correlated with performance on the paired association task. Contrary to expectation however, the perceived control variable was not associated with performance. CONCLUSION: The findings provide tentative support for the idea that some tasks might be problematic for the clinician with dyslexia. Taken in isolation however, it would be inappropriate to conclude that this will necessarily translate into true performance errors without taking into consideration the entire performance context. Suggestions are made for replicating and extending the study to provide a more solid and constructive basis for intervention (e.g. support measures, a built-in checking process).
Assuntos
Competência Clínica/normas , Diagnóstico por Computador/métodos , Tratamento Farmacológico/enfermagem , Dislexia/diagnóstico , Avaliação de Desempenho Profissional/métodos , Programas de Autoavaliação/métodos , Adaptação Psicológica , Adolescente , Adulto , Atitude do Pessoal de Saúde , Cognição , Dislexia/prevenção & controle , Dislexia/psicologia , Feminino , Humanos , Masculino , Erros de Medicação/métodos , Erros de Medicação/enfermagem , Erros de Medicação/psicologia , Pessoa de Meia-Idade , Modelos de Enfermagem , Modelos Psicológicos , Avaliação das Necessidades , Enfermeiras e Enfermeiros/psicologia , Pesquisa em Avaliação de Enfermagem , Saúde Ocupacional , Aprendizagem por Associação de Pares , Autoeficácia , Apoio Social , Inquéritos e QuestionáriosRESUMO
PURPOSE: This paper aims to briefly review leadership within the contemporary UK National Health Services (NHS) including Department of Health and Royal College of Nursing (RCN) initiatives. DESIGN/METHODOLOGY/APPROACH: It is argued that the concept of clinical leadership is a viable and important one, and is theoretically consistent with the contemporary social psychological literature on the importance of "local" leadership to effective organizational functioning. Field theory proposes that local influences (e.g. local management) on attitudes and behaviour will to a large extent mediate the impact of the organization (e.g. organisational structure and values) on (in this instance) health care delivery. FINDINGS: The reality of clinical leadership must involve a judicious blend effective management in the conventional sense with skill in transformational change in order to make real difference to the care delivery process. PRACTICAL IMPLICATIONS: For leadership initiatives to become truly culturally embedded into the "way we do things around here", they require more than just individual training and development. ORIGINALITY/VALUE: A view is offered for the practical interpretation of the clinical leadership concept in relationship terms. This will involve management of the relationship between health care professionals, between health care professionals and the "organizations" to which they are accountable and between health care professionals and service users.
Assuntos
Atenção à Saúde/organização & administração , Liderança , Humanos , Cultura Organizacional , Medicina Estatal , Reino UnidoRESUMO
While poor communication between service users and front-line staff causes many service user complaints in the British National Health Service, staff rarely reflect on the causes of these complaints. We discuss findings from an action research project with midwives which suggest that the midwives struggled to fully understand complaints from women, their partners and families particularly about restricted visiting and the locked door to the midwifery unit. They responded to individual requests to visit out of hours while maintaining the general policy of restricted visiting. In this way, the door was a gatekeeping device which allowed access to the unit within certain rules. The locked door remained a barrier to women and their families and as a result was a common source of informal complaints. We argue that the locked door and restricted visiting to the midwifery unit were forms of gatekeeping and boundary making by midwives which reveals a tension between their espoused woman-centred care and contemporary midwifery practice which is increasingly constrained by institutional values.
Assuntos
Maternidades/organização & administração , Tocologia , Resolução de Problemas , Visitas a Pacientes , Família/psicologia , Feminino , Pesquisa sobre Serviços de Saúde , Humanos , Masculino , Gravidez , Medicina Estatal , Reino UnidoRESUMO
AIM: To evaluate the experiences of health-care professionals, service users and carers of service users from a UK hospice in relation to dependency assessment. DESIGN: Qualitative evaluation. SAMPLE: Purposive, convenience sample of hospice staff, patients receiving hospice services and carers of patients receiving hospice services. METHODS: Focus group interviews with hospice staff and carers of hospice service users. Individual interviews with patients. RESULTS: Staff felt the tool used produced inaccurate results, in part because of omissions in content. They did not perceive the data produced affected working practice, e.g. staffing levels. Patients described unobtrusive assessment and stated their needs were met. Carers reported feelings of isolation. They also described differing information and support needs from the patients. CONCLUSION: Further research is required to improve the validity of dependency data collection. Further investigation of carer assessment is also justified.
Assuntos
Dependência Psicológica , Hospitais para Doentes Terminais , Avaliação das Necessidades , Cuidados Paliativos , Idoso , Cuidadores , Feminino , Grupos Focais , Humanos , Masculino , Neoplasias/enfermagem , Reino UnidoRESUMO
People with a dementia syndrome and a superimposed terminal illness are increasingly being referred to palliative care services. Creutzfeldt-Jakob disease (CJD) is a dementia syndrome in the early stages of which people experience a variety of psychological symptoms that may lead to them being admitted to psychiatric services. People with CJD have died in psychiatric units. There is clearly a need for collaboration between mental health and palliative care services in providing care for people with CJD and other dementia syndromes. An inductive qualitative study of one case of variant CJD (vCJD) was carried out to explore issues that were raised in providing care for a young person with the disease who had died in a hospice unit. The study, which was a pilot for a larger study, highlights some of the complexities of providing care for people with an end-stage dementia and identifies the need for the development of education initiatives to increase knowledge and understanding of the end-of-life needs of people with CJD and other dementia syndromes, and their families.