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1.
Cancer ; 129(7): 1064-1074, 2023 04 01.
Artigo em Inglês | MEDLINE | ID: mdl-36704995

RESUMO

BACKGROUND: There is little longitudinal information about the type and frequency of harm resulting from medication errors among outpatient children with cancer. We aimed to characterize rates and types of medication errors and harm to outpatient children with leukemia and lymphoma over 7 months of treatment. METHODS: We recruited children taking medications at home for leukemia or lymphoma from three pediatric cancer centers. Errors were identified by chart review, in-home medication review, observation of administration, and interviews. Physician reviewers confirmed error (Fleiss' κ = 0.95), harm (Fleiss' κ = 0.82), and suggested interventions. Generalized linear mixed models with random effects were used to account for clustering by site. RESULTS: Among 131 children taking 1669 medications with 367 home visits, 408 errors were identified, including 242 with potential for harm and 39 with harm (1.0 harm per 1000 patient-days [95% CI, 0.1-9.8]). Ten percent of children were injured by errors and 42% had errors with potential for harm. Twenty-six percent of caregivers reported that miscommunication led to missed doses or overdoses at home. Children on >13 medications had significantly more serious medication errors than those on fewer medications (77% vs 61%; p = .05). Physician reviewers judged that improved communication among caregivers and between caregivers and clinicians may have prevented the most harm (66%). CONCLUSIONS: In this longitudinal study, 10% children with leukemia or lymphoma experienced adverse drug events because of outpatient medication errors. Improvements addressing communication with and among caregivers should be codeveloped with families and based on human-factors engineering. PLAIN LANGUAGE SUMMARY: In this longitudinal study, medication errors in the clinic, pharmacy, or at home among children with leukemia or lymphoma over a 7-month period were common, and 10% suffered harm because of errors. Children on >13 medications had significantly more serious medication errors than those on fewer medications (77% vs 61%; p = .05). Physician reviewers judged that improved communication among caregivers and between caregivers and clinicians may have prevented the most harm (66%). Improvements addressing communication with and among caregivers should be codeveloped with families and based on human-factors engineering.


Assuntos
Leucemia , Linfoma , Neoplasias , Criança , Humanos , Pacientes Ambulatoriais , Estudos Longitudinais , Erros de Medicação/prevenção & controle , Preparações Farmacêuticas , Linfoma/tratamento farmacológico , Leucemia/tratamento farmacológico , Neoplasias/tratamento farmacológico
2.
Health Expect ; 25(6): 3105-3113, 2022 12.
Artigo em Inglês | MEDLINE | ID: mdl-36161973

RESUMO

INTRODUCTION: This pilot, randomized controlled trial aimed to evaluate the usability, among adolescents and young adults (AYAs) with ulcerative colitis (UC), of a web-based tool ('iBDecide') designed to facilitate shared decision making (SDM). METHODS: AYAs with UC (n = 35) were randomized to intervention (iBDecide, n = 14) and control (n = 12) arms before a scheduled clinic visit. We measured the usability of iBDecide, SDM, preferred decision-making style, decision conflict and intervention use. RESULTS: Participants in the intervention group found iBDecide easy to use and agreed that it made them feel ready to participate in decision making and that they would use it to prepare for appointments. There were 130 visits to iBDecide, lasting on average 3 min, 41 s. The medication and nutrition trackers were among the most-viewed pages. Pages specifically designed to facilitate SDM were viewed only four times. Across groups, too few participants reported making decisions during clinic visits for decision-related measures to be reported. CONCLUSIONS: This pilot trial provides evidence for the usability of iBDecide and guidance for developing a larger-scale trial of a combined web-based and in-clinic SDM intervention. Overall, iBDecide shows promise in engaging AYAs with UC in SDM and condition management. PATIENT OR PUBLIC CONTRIBUTION: Patients, specifically AYAs with UC, and healthcare providers were involved in the design of this study's intervention, iBDecide. Additionally, the research team, from study conception to manuscript writing, included a young adult with inflammatory bowel disease. CLINICAL TRIAL REGISTRATION: This study was registered at clinicaltrials.gov (NCT04207008).


Assuntos
Colite Ulcerativa , Tomada de Decisão Compartilhada , Adulto Jovem , Humanos , Adolescente , Participação do Paciente , Tomada de Decisões , Colite Ulcerativa/terapia , Projetos Piloto
3.
J Gen Intern Med ; 36(5): 1319-1326, 2021 05.
Artigo em Inglês | MEDLINE | ID: mdl-33694071

RESUMO

BACKGROUND: The HERO registry was established to support research on the impact of the COVID-19 pandemic on US healthcare workers. OBJECTIVE: Describe the COVID-19 pandemic experiences of and effects on individuals participating in the HERO registry. DESIGN: Cross-sectional, self-administered registry enrollment survey conducted from April 10 to July 31, 2020. SETTING: Participants worked in hospitals (74.4%), outpatient clinics (7.4%), and other settings (18.2%) located throughout the nation. PARTICIPANTS: A total of 14,600 healthcare workers. MAIN MEASURES: COVID-19 exposure, viral and antibody testing, diagnosis of COVID-19, job burnout, and physical and emotional distress. KEY RESULTS: Mean age was 42.0 years, 76.4% were female, 78.9% were White, 33.2% were nurses, 18.4% were physicians, and 30.3% worked in settings at high risk for COVID-19 exposure (e.g., ICUs, EDs, COVID-19 units). Overall, 43.7% reported a COVID-19 exposure and 91.3% were exposed at work. Just 3.8% in both high- and low-risk settings experienced COVID-19 illness. In regression analyses controlling for demographics, professional role, and work setting, the risk of COVID-19 illness was higher for Black/African-Americans (aOR 2.32, 99% CI 1.45, 3.70, p < 0.01) and Hispanic/Latinos (aOR 2.19, 99% CI 1.55, 3.08, p < 0.01) compared with Whites. Overall, 41% responded that they were experiencing job burnout. Responding about the day before they completed the survey, 53% of participants reported feeling tired a lot of the day, 51% stress, 41% trouble sleeping, 38% worry, 21% sadness, 19% physical pain, and 15% anger. On average, healthcare workers reported experiencing 2.4 of these 7 distress feelings a lot of the day. CONCLUSIONS: Healthcare workers are at high risk for COVID-19 exposure, but rates of COVID-19 illness were low. The greater risk of COVID-19 infection among race/ethnicity minorities reported in the general population is also seen in healthcare workers. The HERO registry will continue to monitor changes in healthcare worker well-being during the pandemic. TRIAL REGISTRATION: ClinicalTrials.gov identifier NCT04342806.


Assuntos
COVID-19 , Pandemias , Adulto , Estudos Transversais , Feminino , Pessoal de Saúde , Humanos , Masculino , Sistema de Registros , SARS-CoV-2
4.
J Nurs Adm ; 51(11): 543-545, 2021 Nov 01.
Artigo em Inglês | MEDLINE | ID: mdl-34705761

RESUMO

Sufficient sleep is vital to the health and safety of healthcare workers and patients alike. Despite this, formal sleep promotion programs rarely exist within healthcare. Guidance does exist for how to incorporate strategies within healthcare organizations. Nurse leaders can spearhead efforts by promoting healthy sleep and instituting change through scheduling practices, unit policies, and supporting staff when barriers to healthy sleep develop.


Assuntos
COVID-19/psicologia , Pessoal de Saúde/psicologia , Recursos Humanos de Enfermagem Hospitalar/psicologia , Inovação Organizacional , Sono/fisiologia , Fadiga/etiologia , Humanos , Liderança , Cultura Organizacional
5.
J Nurs Adm ; 46(12): 636-641, 2016 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-27851704

RESUMO

OBJECTIVE: The purpose of this study was to develop a valid and reliable patient classification system (PCS) for a neonatal ICU (NICU). BACKGROUND: PCSs have been widely used to determine required care hours, budgeting, and staffing. There is a lack of and a vital need for a valid and reliable pediatric PCS because of differences in needs and treatment from adults. METHODS: Data were collected in a NICU using work sampling, chart reviews, and expert opinion. The resulting PCS was assessed for validity and reliability, ease of use, effectiveness, and satisfaction. RESULTS: The PCS showed significantly high reliability and validity. Survey scores revealed nurses perceived the tool to be easy to use and effective. CONCLUSIONS: Using subjective and objective methods, a NICU PCS was shown to be a valid and reliable measure to determine the hours per patient day required to provide care.


Assuntos
Pacientes Internados/classificação , Unidades de Terapia Intensiva Neonatal/normas , Admissão e Escalonamento de Pessoal/normas , Hospitais Pediátricos , Humanos , Recém-Nascido , Unidades de Terapia Intensiva Neonatal/organização & administração , Meio-Oeste dos Estados Unidos , Avaliação das Necessidades , Variações Dependentes do Observador , Estudos de Casos Organizacionais , Admissão e Escalonamento de Pessoal/organização & administração , Admissão e Escalonamento de Pessoal/estatística & dados numéricos , Psicometria , Reprodutibilidade dos Testes , Recursos Humanos
6.
J Nurs Adm ; 46(9): 468-76, 2016 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-27556656

RESUMO

BACKGROUND: Noise is a problem placing registered nurses (RNs) at risk for safety events, decreased job performance, fatigue, irritability, and hearing loss. OBJECTIVE: The purpose of this study is to measure noise levels and sources on pediatric inpatient units as well as to explore the health impact of noise on RNs. METHODS: This was a descriptive nonexperimental study with 65 pediatric RNs from 14 units. Noise (levels, source, location, and activity), heart rate (HR), and stress were measured. Correlations between sound pressure levels (SPLs), HR, and stress were examined. RESULTS: Mean (SD) SPLs were 75.8 (8.9) dBA and were significantly higher than SPLs for patients. Noise was significantly associated with HR but not with time in tachycardia or stress. Primary sources of noise were employee conversations in patient rooms. CONCLUSIONS: On all units, SPLs exceeded protection agency guidelines. Cost-prohibitive structural changes underscore the importance of using behavioral and culture modification to reduce noise.


Assuntos
Unidades Hospitalares , Ruído , Pediatria , Adulto , Criança , Feminino , Humanos , Masculino
7.
Nurs Health Sci ; 16(1): 19-25, 2014 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-24450474

RESUMO

This study identified the nursing work activities that could be the primary sources of work-related acute fatigue in US hospital nurses. Continuous recording of working heart rate and random observations of nursing activities were applied to collect data from eight nurses during two consecutive 12 h day shifts. Using descriptive statistics and random-effect analysis of variance, the contributions of individual nursing work activities to acute fatigue were compared based on the activity frequencies and nurses' corresponding heart rate elevations. Of 860 observed nursing-related work activities, manual patient-handling, bedside-care, care-coordinating, and walking/standing activities accounted for 5%, 16%, 38%, and 41%, respectively. After controlling for the differences of participant and shift, the percentage of working heart rate to maximal heart rate of manual patient-handling (64.3%), bedside-care (59.7%), and walking/standing (57.4%) activities were significantly higher than that of care-coordinating activities (52.3%, F[3, 38.0] = 7.5, P < 0.001). These findings suggest that bedside care and walking/standing, other than manual patient handling, contributed most to the level of acute fatigue.


Assuntos
Fadiga/psicologia , Frequência Cardíaca/fisiologia , Processo de Enfermagem , Recursos Humanos de Enfermagem Hospitalar/psicologia , Tolerância ao Trabalho Programado , Adulto , Análise de Variância , Índice de Massa Corporal , Competência Clínica/estatística & dados numéricos , Fadiga/epidemiologia , Feminino , Humanos , Kentucky/epidemiologia , Monitorização Fisiológica/instrumentação , Recursos Humanos de Enfermagem Hospitalar/estatística & dados numéricos , Doenças Profissionais/epidemiologia , Admissão e Escalonamento de Pessoal , Estudos de Amostragem , Inquéritos e Questionários , Estudos de Tempo e Movimento
8.
J Nurs Manag ; 22(5): 593-603, 2014 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-23607540

RESUMO

AIM: The study investigated the status of acute fatigue, chronic fatigue and inter-shift recovery among 12-hour shift nurses and how they differed by organisational and individual factors. BACKGROUND: While the 12-hour shift has been a widely accepted staffing solution in hospitals, the fatigue-recovery process in nurses working 12-hour shifts remains unclear. METHODS: A cross-sectional survey was completed by 130 full-time nurses working 12-hour dayshifts in three hospitals to assess the perceived levels of acute fatigue, chronic fatigue and inter-shift recovery, as well as their associations with selected organisational and individual factors. RESULTS: Nurses experienced a moderate to high level of acute fatigue and moderate levels of chronic fatigue and inter-shift recovery. Fatigue and recovery levels differed by the interaction between hospital and unit after controlling for individual factors. Lack of regular exercise and older age were associated with higher acute fatigue. CONCLUSIONS: An unhealthy fatigue-recovery process was found for nurses working a 12-hour shift during the day. IMPLICATIONS FOR NURSING MANAGEMENT: There appears to be a need to establish fatigue intervention programmes for 12-hour shift nurses in hospitals. Hospital administration, unit managers and staff nurses need to collaborate to achieve a healthy fatigue-recovery balance when implementing 12-hour shifts.


Assuntos
Fadiga/terapia , Enfermeiras e Enfermeiros , Recursos Humanos de Enfermagem Hospitalar , Transtornos do Sono do Ritmo Circadiano/terapia , Tolerância ao Trabalho Programado , Adulto , Estudos Transversais , Fadiga/etiologia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Transtornos do Sono do Ritmo Circadiano/etiologia , Inquéritos e Questionários
9.
Pediatr Nurs ; 40(3): 127-35, 2014.
Artigo em Inglês | MEDLINE | ID: mdl-25134226

RESUMO

Patient falls are considered a significant safety risk, but little evidence regarding the significance of falls in children is available. A multisite, observational study of fall events occurring in pediatric inpatients (younger than 18 years of age) from Child Health Corporation of America member hospitals was conducted to determine the prevalence and significance of falls. Fall prevalence was 0.84 per 1,000 patient days with 48% classified as preventable. Injuries occurred in 32%, but only two falls resulted in an increased length of stay; none resulted in permanent disability or death. Only 47% of the children who fell were identified to be at risk for fall. Alert mechanisms were used in 60% and preventive measures in 23%. These findings suggest that while inpatient pediatric fall rates are lower than those of adults, greater diligence in identification and risk reduction may further reduce the prevalence of falls and the proportion of fall-related injuries.


Assuntos
Acidentes por Quedas , Hospitais Pediátricos , Pacientes Internados , Adolescente , Criança , Pré-Escolar , Feminino , Humanos , Lactente , Masculino , Comportamento de Redução do Risco , Estados Unidos
10.
Work ; 2024 May 29.
Artigo em Inglês | MEDLINE | ID: mdl-38820042

RESUMO

Background: Despite the high risks associated with occupational fatigue in healthcare, few organizations require nurses to screen and report fatigue symptoms. As a result, little is known about if and how nurses would report fatigue while on the job. Objective: To determine if hospital-based pediatric nurses reported fatigue as part of an active injury reporting method. Methods: This secondary analysis of qualitative data used a descriptive design with content analysis. Data from the parent study were collected at a U.S. pediatric hospital where nurses verbally reported on-shift injuries or near misses and pre- and post-shift health status via a digital voice recorder. Researchers used content analysis to independently code data for nurses' references to fatigue. Codes were then analyzed for patterns and themes. Results: Approximately 30% (n = 104) of participants reported fatigue-related content. Emergent themes were Work Stressors, Individual Risk Factors, Fatigue Descriptors, Adverse Outcomes from Fatigue, Fatigue Buffers, Descriptors for Buffered Fatigue, and Favorable Outcomes from Buffered Fatigue. Fatigue descriptions align with prior literature, demonstrating the accuracy of the voice recorder data collection method. In addition, nurses expressed uncertainty about the appropriateness of reporting fatigue symptoms. Conclusion: Findings from this study support pediatric nurses will report fatigue, when provided an opportunity. Additional efforts are needed to better understand effective ways to improve fatigue reporting among nurses, including harnessing current technology for real-time reporting and how to change the culture around fatigue reporting.

11.
PLoS One ; 18(6): e0287428, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-37327216

RESUMO

IMPORTANCE: The COVID-19 pandemic stressed the healthcare field, resulting in a worker exodus at the onset and throughout the pandemic and straining healthcare systems. Female healthcare workers face unique challenges that may impact job satisfaction and retention. It is important to understand factors related to healthcare workers' intent to leave their current field. OBJECTIVE: To test the hypothesis that female healthcare workers were more likely than male counterparts to report intention to leave. DESIGN: Observational study of healthcare workers enrolled in the Healthcare Worker Exposure Response and Outcomes (HERO) registry. After baseline enrollment, two HERO 'hot topic' survey waves, in May 2021 and December 2021, ascertained intent to leave. Unique participants were included if they responded to at least one of these survey waves. SETTING: HERO registry, a large national registry that captures healthcare worker and community member experiences during the COVID-19 pandemic. PARTICIPANTS: Registry participants self-enrolled online and represent a convenience sample predominantly composed of adult healthcare workers. EXPOSURE(S): Self-reported gender (male, female). MAIN OUTCOME: Primary outcome was intention to leave (ITL), defined as having already left, actively making plans, or considering leaving healthcare or changing current healthcare field but with no active plans. Multivariable logistic regression models were performed to examine the odds of intention to leave with adjustment for key covariates. RESULTS: Among 4165 responses to either May or December surveys, female gender was associated with increased odds of ITL (42.2% males versus 51.4% females reported intent to leave; aOR 1.36 [1.13, 1.63]). Nurses had 74% higher odds of ITL compared to most other health professionals. Among those who expressed ITL, three quarters reported job-related burnout as a contributor, and one third reported experience of moral injury. CONCLUSIONS AND RELEVANCE: Female healthcare workers had higher odds of intent to leave their healthcare field than males. Additional research is needed to examine the role of family-related stressors. TRIAL REGISTRATION: ClinicalTrials.gov identifier NCT04342806.


Assuntos
Esgotamento Profissional , COVID-19 , Adulto , Humanos , Masculino , Feminino , Estudos Transversais , Pandemias , Intenção , COVID-19/epidemiologia , Pessoal de Saúde , Inquéritos e Questionários , Satisfação no Emprego , Esgotamento Profissional/epidemiologia , Reorganização de Recursos Humanos , Atenção à Saúde
12.
Pediatrics ; 152(5)2023 Nov 01.
Artigo em Inglês | MEDLINE | ID: mdl-37823246

RESUMO

BACKGROUND: Pediatric patients with behavioral needs are frequently admitted to the hospital for medical care; when behavioral crises occur, patients and staff are at risk for injury. Our aim was to implement a behavior response team (BRT) to increase the days between employee injury due to aggressive patient interactions on the inpatient medical units from 99 to 150 over 1 year. METHODS: A multidisciplinary team used quality improvement methods to design and implement the BRT system that includes 2 options: huddle to proactively plan for patients exhibiting early signs of escalation and STAT for immediate help for patients with imminent risk of harm to self or others. Using run and statistical process control charts, we tracked events per month, days between Occupational Safety & Health Administration-recordable events, and violent restraint use over time for 1 year after implementation. Staff pre and postimplementation surveys were compared to assess staff perception of safety and support provided by the BRT intervention. RESULTS: The BRT was implemented across the inpatient system in July 2020, with an average number of 13 events per month. Days between Occupational Safety & Health Administration-recordable events remained stable with a maximum of 134 days. Restraint use remained stable at 0.74 per 1000 patient days. The perception of behavioral support available to staff increased significantly pre to postsurvey. CONCLUSIONS: The implementation of a BRT can improve staff perception of support and confidence in safely caring for patients with behavior needs on the inpatient medical unit, although additional provider- and system-level improvements are needed to prevent employee injuries.


Assuntos
Agressão , Melhoria de Qualidade , Humanos , Criança , Terapia Comportamental , Cuidados Críticos , Hospitais Pediátricos
13.
J Nurs Manag ; 19(1): 57-68, 2011 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-21223406

RESUMO

AIM: The aim was to determine whether hospital nurses are experiencing physiological strain at work by examining their physiological and behavioural response patterns over 12-hour shifts. BACKGROUND: Excessive workload for nurses may lead to poor quality of care and high nursing turnover rates. Energy expenditure (EE), heart rate (HR) and work pace (WP) can be used to examine the physiological impact from the workload. METHODS: A total of 145 nurses wore monitors for one 12-hour day shift to record HR and WP, which were used to calculate EE. Individual and work-related factors were assessed through questionnaires and work logs. RESULTS: Energy expenditure accumulated over the 12 hours reached the EE level of 8-hour shifts in which individuals work at a moderate physical intensity level. The HR data indicated a moderate cardiac stress level throughout the shifts, despite which WP decreased after 15.00 hours. Inadequate work break and sleep, family care-giving responsibility and aging may challenge work recovery. CONCLUSIONS: Nursing workload of 12-hour shifts has a negative physiological impact on hospital nurses. IMPLICATIONS FOR NURSING MANAGEMENT: Nurse managers need to be aware of the physiological strain experienced by staff nurses, and focus on ensuring sufficient breaks and proper work accommodations for older nurses.


Assuntos
Recursos Humanos de Enfermagem Hospitalar , Estresse Fisiológico/fisiologia , Tolerância ao Trabalho Programado , Carga de Trabalho , Adulto , Análise de Variância , Atitude do Pessoal de Saúde , Eletrocardiografia Ambulatorial , Metabolismo Energético , Feminino , Frequência Cardíaca , Hospitais Comunitários , Humanos , Pessoa de Meia-Idade , Meio-Oeste dos Estados Unidos , Recursos Humanos de Enfermagem Hospitalar/organização & administração , Recursos Humanos de Enfermagem Hospitalar/psicologia , Saúde Ocupacional , Admissão e Escalonamento de Pessoal , Reorganização de Recursos Humanos/estatística & dados numéricos , Inquéritos e Questionários , Estudos de Tempo e Movimento , Tolerância ao Trabalho Programado/fisiologia , Tolerância ao Trabalho Programado/psicologia , Carga de Trabalho/psicologia , Carga de Trabalho/estatística & dados numéricos
14.
Ann Epidemiol ; 58: 76-82, 2021 06.
Artigo em Inglês | MEDLINE | ID: mdl-33689845

RESUMO

OBJECTIVE: The goal of this study was to examine the association between aspects of the psychosocial work environment and prevalence of musculoskeletal disorders (MSDs) and associated functional consequences among pediatric healthcare providers. BACKGROUND: The psychosocial work demands make pediatric care providers susceptible to MSDs and subsequent functional consequences, but research on this at-risk group is lacking. METHODS: Randomly selected pediatric registered nurses, behavioral health specialists, and patient care assistants (N = 569) completed a survey assessing psychosocial factors, MSDs, and functional consequences (e.g., missing work). Logistic regression was used to assess associations between psychosocial factors and outcomes. RESULTS: The analysis yielded moderate-to-strong, significant associations between psychosocial environment factors and MSDs and their functional consequences. The odds of MSDs increased nearly three-fold in the highest quartile of the psychosocial summary score vs. the lowest (OR: 2.7, 95% CI: 1.6-4.5). The highest quartiles of the psychosocial environment measures were significantly associated with functional consequences of MSDs. CONCLUSION: Results confirm knowledge about the association between the psychosocial environment and MSDs and demonstrates the association also exists among pediatric providers. Our study highlights the importance of studying the functional consequences of MSDs, which characterize the impact of MSD burden at work and elsewhere.


Assuntos
Doenças Musculoesqueléticas , Doenças Profissionais , Estudos Transversais , Pessoal de Saúde , Humanos , Doenças Musculoesqueléticas/epidemiologia , Doenças Profissionais/epidemiologia , Prevalência , Fatores de Risco , Local de Trabalho
15.
MDM Policy Pract ; 5(2): 2381468320940708, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32685687

RESUMO

Purpose. To understand the medical decision support needs specific to adolescents and young adults (AYAs) with ulcerative colitis (UC) and inform development of a decision support tool addressing AYAs' preferences. Methods. We conducted focus groups with AYAs with UC and mentors from a pediatric inflammatory bowel disease clinic's peer mentoring program. Focus groups were led by a single trained facilitator using a semistructured guide aimed at eliciting AYAs' roles in medical decision making and perceived decision support needs. All focus groups were audio recorded, transcribed, and coded by the research team. Data were analyzed using content analysis and the immersion crystallization method. Results. The facilitator led six focus groups: one group with peer mentors aged 18 to 24 years, three groups with patients aged 14 to 17 years, and two groups with patients aged 18 to 24 years. Decision timing and those involved in decision making were identified as interacting components of treatment decision making. Treatment decisions by AYAs were further based on timing, location (inpatient v. outpatient), and family preference for making decisions during or outside of clinic. AYAs involved parents and health care providers in medical decisions, with older participants describing themselves as "final decision makers." Knowledge and experience were facilitators identified to participating in medical decision making. Conclusions. AYAs with UC experience changes to their roles in medical decisions over time. The support needs identified will inform the development of strategies, such as decision support tools, to help AYAs with chronic conditions develop and use skills needed for participating in medical decision making.

16.
J Patient Saf ; 16(3): 232-237, 2020 09.
Artigo em Inglês | MEDLINE | ID: mdl-28272293

RESUMO

OBJECTIVES: The objectives were (1) to describe barriers and facilitators of adverse event reporting by adolescent patients and parents in a pediatric hospital and (2) to identify characteristics the participants wished to have in a formal reporting system of adverse events. METHODS: We used a qualitative design in which 6 focus groups, 3 with parents and 3 with adolescents, were conducted. The transcripts of audio recordings, notes of team debriefings, and written field notes of group behaviors were analyzed using NVivo software for qualitative data analysis. RESULTS: Participants reported that the quality of the experience with the health care system, type of communication with health care providers, and degree of personal self-confidence in communication within the health care system were 3 interacting factors influencing willingness to report adverse events. Preferred reporting mechanisms were different for different participants and included face-to-face meetings with hospital representatives, Web sites, smart phone capability, phone calls from a human, and paper mail. Reporting systems should be easy to use, ensure confidentiality, and provide user feedback. CONCLUSIONS: Experience, communication, and confidence are 3 factors that can engage an adolescent patient and parents in their health care. Confident adolescent patients and parents in turn have a possibility of reporting an adverse safety event given an opportunity.


Assuntos
Erros Médicos/estatística & dados numéricos , Adolescente , Adulto , Comunicação , Feminino , Grupos Focais , Humanos , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa , Adulto Jovem
17.
Pediatr Nurs ; 35(5): 290-5, 2009.
Artigo em Inglês | MEDLINE | ID: mdl-19916345

RESUMO

Managing post-operative pain continues to elude health care professionals despite children's reports of severe pain. Although research has demonstrated that guided imagery is a beneficial complementary treatment for pain, clinicians rarely incorporate it into their practice. This study evaluated the effectiveness of a guided imagery audio compact disc (CD) in reducing post-operative pain, increasing relaxation, and stimulating imagery in children by child life specialists in the clinical setting. This cross sectional study compared pain and relaxation scores before and after the use of the CD. Sixteen children (7 to 12 years of age) reported pain on a 0 to 10 scale and relaxation on a 1 to 5 scale, and answered questions about what they imagined. Pain scores were significantly decreased, with no significant differences in relaxation scores. Findings support that school-age children are capable of using guided imagery, and relaxation may not be necessary to achieve pain reduction.


Assuntos
Discos Compactos , Terapia de Relaxamento , Criança , Estudos Transversais , Educação Continuada em Enfermagem , Feminino , Humanos , Masculino
18.
J Hosp Med ; 14(10): 602-606, 2019 10 01.
Artigo em Inglês | MEDLINE | ID: mdl-31251154

RESUMO

BACKGROUND: Hospitalized children generate up to 152 alarms per patient per day outside of the intensive care unit. In that setting, as few as 1% of alarms are clinically important. How nurses make decisions about responding to alarms, given an alarm's low specificity for detecting clinical deterioration, remains unclear. OBJECTIVE: Our objective was to describe how bedside nurses think about and act upon monitor alarms for hospitalized children. DESIGN, SETTING, PARTICIPANTS: This was a qualitative study that involved the direct observation of nurses working on a general pediatric unit at a large children's hospital. MEASUREMENTS: We used a structured tool that included predetermined categories to assess nurse responses to monitor alarms. Data on alarm frequency and type were pulled from bedside monitors. RESULTS: We conducted 61.3 patient-hours of observation with nine nurses, in which we documented 207 nurse responses to patient alarms. For 67% of alarms heard outside of the room, the nurse decided not to respond without further assessment. Nurses most commonly cited reassuring clinical context (eg, medical team in room), as the rationale for alarm nonresponse. The nurse deemed clinical intervention necessary in only 14 (7%) of the observed responses. CONCLUSION: Nurses rely on clinical and contextual details to determine how to respond to alarms. Few of the alarm responses in our study resulted in a clinical intervention. These findings suggest that multiple system-level and educational interventions may be necessary to improve the efficacy and safety of continuous monitoring.


Assuntos
Alarmes Clínicos/estatística & dados numéricos , Recursos Humanos de Enfermagem Hospitalar/estatística & dados numéricos , Pediatria/estatística & dados numéricos , Fadiga de Alarmes do Pessoal de Saúde , Pré-Escolar , Feminino , Departamentos Hospitalares , Humanos , Lactente , Masculino , Estudos Prospectivos , Pesquisa Qualitativa
19.
Scand J Work Environ Health ; 44(4): 377-384, 2018 07 01.
Artigo em Inglês | MEDLINE | ID: mdl-29777614

RESUMO

Objectives Compared to other industries, healthcare has one of the highest rates of non-fatal occupational injury/illness. Evidence indicates these rates are underestimated, highlighting the need for improved injury surveillance. This study aims to demonstrate the feasibility of integrating active data collection in a passive injury surveillance system to improve detection of injuries in a healthcare establishment. Methods Using digital voice recorders (DVR), pediatric healthcare providers prospectively recorded events throughout their shift for two weeks. This sample-based active injury surveillance was then integrated into an institutional surveillance system (ISS) centered on passive data collection initiated by employee reports. Results Injuries reported using DVR during two-week intervals from February 2014 to July 2015 were 40.7 times more frequent than what would be expected on the basis of the usual ISS reports. Psychological injuries (eg, stress, conflict) and near-misses were captured at a rate of 16.1 per 1000 days [95% confidence interval (CI) 14.1-18.3] and 35.6 per 1000 days (95% CI 32.7-38.8), respectively. Finally, 68% (95% CI 65-72%) of participants preferred using DVR either as an alternative or complement to the existing ISS. Conclusions This study showed that it is feasible to improve injury surveillance in a healthcare establishment by integrating active data collection based on voice recording within a passive injury surveillance system. Enhanced surveillance provides richer information that can guide the development of effective injury prevention strategies.


Assuntos
Acidentes de Trabalho/estatística & dados numéricos , Coleta de Dados/métodos , Pessoal de Saúde/estatística & dados numéricos , Hospitais Pediátricos , Near Miss/estatística & dados numéricos , Traumatismos Ocupacionais , Adulto , Feminino , Teoria Fundamentada , Humanos , Masculino , Adulto Jovem
20.
Dev Neurorehabil ; 21(1): 32-39, 2018 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-27792401

RESUMO

PURPOSE: Hospitalized patients with a developmental or intellectual disability and a psychiatric disorder (dual-diagnosis) often pose a risk to themselves or others leading to high injury rates for their providers. Therefore, evidence-based strategies to reduce employee injuries resulting from interactions are necessary. METHODS: To reduce injuries resulting from interactions with dual-diagnosis patients, the Initial Behavioural Assessment (IBA) and Protective Equipment Decision Key (PEDK) were used in inpatient neuropsychiatry. The IBA-PEDK identify patients' aggressive behaviors to provide employees with personal protective equipment (PPE). Inter-rater reliability, validity, and adherence were examined. RESULTS: Injuries significantly decreased after implementing the IBA-PEDK. The average kappa coefficient was 0.64 with a 90.6% agreement. Ninety-three percent of respondents reported wearing PPE at the time of injury. CONCLUSIONS: A quick, user-friendly tool that provides a standardized method for determining PPE based on patient-specific behavior can significantly reduce aggression-related injuries.


Assuntos
Agressão , Pessoal de Saúde , Neuropsiquiatria/instrumentação , Traumatismos Ocupacionais/prevenção & controle , Equipamento de Proteção Individual/normas , Adolescente , Adulto , Criança , Feminino , Hospitais Pediátricos , Hospitais Psiquiátricos , Humanos , Deficiência Intelectual/psicologia , Masculino , Transtornos Mentais/psicologia , Neuropsiquiatria/métodos
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