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1.
J Hum Nutr Diet ; 36(4): 1131-1143, 2023 08.
Artigo em Inglês | MEDLINE | ID: mdl-36738128

RESUMO

BACKGROUND: The consumption of a healthy balanced diet is the cornerstone of treatment for people living with type 2 diabetes (PLWT2DM). The United Kingdom recommends a standardised voluntary front-of-pack food labelling system which uses the green-amber-red colour coding to indicate the presence of nutrients in a food item. Research with PLWT2DM suggests that they may find it challenging to interpret the information on food labels. This paper draws from a larger study exploring nutrition information practices for PLWT2DM. The aim of this paper is to explore the experiences of using nutrition information found on food labels among PLWT2DM and their partners/carers. METHODS: This study used a qualitative and mixed methods design, using a solicited 4-week unstructured diary followed by a qualitative interview with each participant. The theoretical framework drew on practice theory. Data were analysed using thematic analysis. RESULTS: Nineteen PLWT2DM and one partner took part. Data consisted of 19 diaries and interviews. Almost all participants used food labels to help manage their condition; however, the colour-coding link with traffic lights appeared to overemphasise the need to avoid foods with red labels. Participants' beliefs about sugar influenced their food choices which in turn could impact on their nutritional intake. Highly developed mathematical skills were needed to interpret information about portion sizes. CONCLUSIONS: Healthcare professionals and patient support groups should focus more on educating PLWT2DM about how to interpret food labels so that they are able to apply these to their own food choices. Future research and development of subsequent versions of the food labelling system should include PLWT2DM to ensure that labels are both clear and relevant to them.


Assuntos
Diabetes Mellitus Tipo 2 , Autogestão , Humanos , Rotulagem de Alimentos/métodos , Diabetes Mellitus Tipo 2/terapia , Valor Nutritivo , Comportamento de Escolha , Comportamento do Consumidor , Preferências Alimentares
2.
Eur J Cancer Care (Engl) ; 28(3): e13085, 2019 May.
Artigo em Inglês | MEDLINE | ID: mdl-31066129

RESUMO

INTRODUCTION: Men with prostate cancer may receive radiotherapy as part of their management. They encounter a range of information related to radiotherapy, and a crucial role for therapeutic radiographers and other healthcare practitioners is ensuring patients receive appropriate information related to their treatment. This integrative review aims to identify, synthesise and analyse literature reporting experiences of men with localised prostate cancer related to information in radiotherapy. METHODS: A systematic literature search encompassing database and hand searches was carried out between February and March 2017 with date limits of 2000-2017 applied. Initially, 4,954 articles were identified. Systematic screening and detailed examination identified that 33 met the inclusion criteria. Data were synthesised and analysed thematically. RESULTS: Few studies explicitly addressed the issue of information in radiotherapy for men with localised prostate cancer. Themes that emerged and were explored are information needs, information regarding adverse effects, information and time, information preferences, satisfaction with information related to radiotherapy and patient experience related to radiotherapy information. CONCLUSION: This review suggests that although several aspects related to information for men with localised prostate cancer have been documented, few were explored in detail with respect to radiotherapy indicating that further research in this area is warranted.


Assuntos
Educação de Pacientes como Assunto , Neoplasias da Próstata/radioterapia , Braquiterapia , Humanos , Masculino , Avaliação das Necessidades , Neoplasias da Próstata/patologia , Radioterapia de Intensidade Modulada
3.
Clin Rehabil ; 33(12): 1963-1977, 2019 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-31409124

RESUMO

OBJECTIVES: Many patients do not meet recommended levels of therapy-based exercise. This review aims to explore how adult patients view being prescribed therapy-based exercise, the information/education they are given and receive and if/how they independently practise and adhere. DESIGN: A qualitative systematic review conducted using an ethnographic approach and in accordance with the PRISMA statement. SOURCES: PubMed, CINAHL, SCOPUS and EMBASE databases (01 January 2000-31 December 2018). METHODS: Qualitative studies with a focus on engagement/adherence with therapy-based exercise were included. Data extraction and quality appraisal were undertaken by two reviewers. Results were discussed and data synthesized. RESULTS: A total of 20,294 titles were screened, with data extracted from 39 full texts and data from 18 papers used to construct three themes. 'The Guidance received' suggests that the type of delivery desired to support and sustain engagement was context-dependent and individually situated. 'The Therapist as teacher' advocates that patients see independent therapy-based exercise as a shared activity and value caring, kind and professional qualities in their therapist. 'The Person as learner' proposes that when having to engage with and practise therapy-based exercise because of ill-health, patients often see themselves as new learners who experience fear and uncertainty about what to do. Patients may have unacknowledged ambivalences about learning that impact on engagement and persistence. CONCLUSION: The quality of the interaction between therapists and patients appears integral to patients engaging with, and sustaining practice of, rehabilitation programmes. Programmes need to be individualized, and health care professionals need to take patients' previous experiences and ambivalences in motivation and empowerment into account.


Assuntos
Terapia por Exercício , Adulto , Antropologia Cultural , Humanos , Cooperação do Paciente/etnologia , Pesquisa Qualitativa
4.
Health Expect ; 19(6): 1336-1345, 2016 12.
Artigo em Inglês | MEDLINE | ID: mdl-26620796

RESUMO

BACKGROUND: Public involvement in research (PIR) can improve research design and recruitment. Less is known about how PIR enhances the experience of participation and enriches the data collection process. In a study to evaluate how UK care homes and primary health-care services achieve integrated working to promote older people's health, PIR was integrated throughout the research processes. OBJECTIVES: This paper aims to present one way in which PIR has been integrated into the design and delivery of a multisite research study based in care homes. DESIGN: A prospective case study design, with an embedded qualitative evaluation of PIR activity. SETTING AND PARTICIPANTS: Data collection was undertaken in six care homes in three sites in England. Six PIR members participated: all had prior personal or work experience in care homes. DATA COLLECTION: Qualitative data collection involved discussion groups, and site-specific meetings to review experiences of participation, benefits and challenges, and completion of structured fieldwork notes after each care home visit. RESULTS: PIR members supported recruitment, resident and staff interviews and participated in data interpretation. Benefits of PIR work were resident engagement that minimized distress and made best use of limited research resources. Challenges concerned communication and scheduling. Researcher support for PIR involvement was resource intensive. DISCUSSION AND CONCLUSIONS: Clearly defined roles with identified training and support facilitated involvement in different aspects of the data collection process. This can also ensure that vulnerable older people who participate in research have a positive experience that reinforces the value of their views.


Assuntos
Comportamento do Consumidor , Casas de Saúde , Projetos de Pesquisa , Coleta de Dados/métodos , Inglaterra , Feminino , Humanos , Masculino , Estudos de Casos Organizacionais , Papel Profissional , Estudos Prospectivos , Pesquisa Qualitativa
5.
BMC Geriatr ; 16: 89, 2016 May 04.
Artigo em Inglês | MEDLINE | ID: mdl-27142469

RESUMO

BACKGROUND: Risks and prevalence of malnutrition and dehydration are high in older people but even higher in older people with dementia. In the EDWINA (Eating and Drinking Well IN dementiA) systematic review we aimed to assess effectiveness of interventions aiming to improve, maintain or facilitate food/drink intake indirectly, through food service or dining environment modification, education, exercise or behavioural interventions in people with cognitive impairment or dementia (across all settings, levels of care and support, types and degrees of dementia). METHODS: We comprehensively searched Medline and twelve further databases, plus bibliographies, for intervention studies with ≥3 cognitively impaired adult participants (any type/stage). The review was conducted with service user input in accordance with Cochrane Collaboration's guidelines. We duplicated assessment of inclusion, data extraction, and validity assessment, tabulating data. Meta-analysis (statistical pooling) was not appropriate so data were tabulated and synthesised narratively. RESULTS: We included 56 interventions (reported in 51 studies). Studies were small and there were no clearly effective, or clearly ineffective, interventions. Promising interventions included: eating meals with care-givers, family style meals, soothing mealtime music, constantly accessible snacks and longer mealtimes, education and support for formal and informal care-givers, spaced retrieval and Montessori activities, facilitated breakfast clubs, multisensory exercise and multicomponent interventions. CONCLUSIONS: We found no definitive evidence on effectiveness, or lack of effectiveness, of specific interventions but studies were small and short term. A variety of promising indirect interventions need to be tested in large, high-quality RCTs, and may be approaches that people with dementia and their formal or informal care-givers would wish to try. TRIAL REGISTRATION: The systematic review protocol was registered (CRD42014007611) and is published, with the full MEDLINE search strategy, on Prospero (http://www.crd.york.ac.uk/PROSPERO/display_record.asp?ID=CRD42014007611).


Assuntos
Demência/dietoterapia , Demência/psicologia , Ingestão de Líquidos , Intervenção Médica Precoce/métodos , Ingestão de Alimentos/psicologia , Terapia Comportamental/métodos , Ensaios Clínicos como Assunto/métodos , Desidratação/diagnóstico , Desidratação/prevenção & controle , Desidratação/psicologia , Demência/diagnóstico , Ingestão de Líquidos/fisiologia , Ingestão de Alimentos/fisiologia , Exercício Físico/psicologia , Humanos , Resultado do Tratamento
6.
BMC Geriatr ; 16: 26, 2016 Jan 22.
Artigo em Inglês | MEDLINE | ID: mdl-26801619

RESUMO

BACKGROUND: Eating and drinking difficulties are recognised sources of ill health in people with dementia. In the EDWINA (Eating and Drinking Well IN dementiA) systematic review we aimed to assess effectiveness of interventions to directly improve, maintain or facilitate oral food and drink intake, nutrition and hydration status, in people with cognitive impairment or dementia (across all settings, levels of care and support, types and degrees of dementia). Interventions included oral nutrition supplementation, food modification, dysphagia management, eating assistance and supporting the social element of eating and drinking. METHODS: We comprehensively searched 13 databases for relevant intervention studies. The review was conducted with service user input in accordance with Cochrane Collaboration's guidelines. We duplicated assessment of inclusion, data extraction, and validity assessment, tabulating data, carrying out random effects meta-analysis and narrative synthesis. RESULTS: Forty-three controlled interventions were included, disappointingly none were judged at low risk of bias. Oral nutritional supplementation studies suggested small positive short term but unclear long term effects on nutritional status. Food modification or dysphagia management studies were smaller and of low quality, providing little evidence of an improved nutritional status. Eating assistance studies provided inconsistent evidence, but studies with a strong social element around eating/drinking, although small and of low quality provided consistent suggestion of improvements in aspects of quality of life. There were few data to address stakeholders' questions. CONCLUSIONS: We found no definitive evidence on effectiveness, or lack of effectiveness, of specific interventions but studies were small and short term. People with cognitive impairment and their carers have to tackle eating problems despite this lack of evidence, so promising interventions are listed. The need remains for high quality trials tailored for people with cognitive impairment assessing robust outcomes. SYSTEMATIC REVIEW REGISTRATION: The systematic review protocol was registered (CRD42014007611) and is published, with the full MEDLINE search strategy, on Prospero.


Assuntos
Transtornos de Deglutição/complicações , Desidratação , Demência , Desnutrição , Terapia Nutricional/métodos , Qualidade de Vida , Idoso , Transtornos de Deglutição/fisiopatologia , Desidratação/etiologia , Desidratação/prevenção & controle , Demência/complicações , Demência/fisiopatologia , Demência/psicologia , Demência/terapia , Comportamento de Ingestão de Líquido/fisiologia , Comportamento Alimentar/fisiologia , Humanos , Desnutrição/etiologia , Desnutrição/prevenção & controle , Estado Nutricional , Resultado do Tratamento
7.
Appetite ; 85: 118-25, 2015 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-25464023

RESUMO

Food stored, prepared, cooked and eaten at home contributes to foodborne disease which, globally, presents a significant public health burden. The aim of the study reported here was to investigate, analyse and interpret domestic kitchen practices in order to provide fresh insight about how the domestic setting might influence food safety. Using current theories of practice meant the research, which drew on qualitative and ethnographic methods, could investigate people and material things in the domestic kitchen setting whilst taking account of people's actions, values, experiences and beliefs. Data from 20 UK households revealed the extent to which kitchens are used for a range of non-food related activities and the ways that foodwork extends beyond the boundaries of the kitchen. The youngest children, the oldest adults and the family pets all had agency in the kitchen, which has implications for preventing foodborne disease. What was observed, filmed and photographed was not a single practice but a series of entangled encounters and actions embedded and repeated, often inconsistently, by the individuals involved. Households derived logics and principles about foodwork that represented rules of thumb about 'how things are done' that included using the senses and experiential knowledge when judging whether food is safe to eat. Overall, food safety was subsumed within the practice of 'being' a household and living everyday life in the kitchen. Current theories of practice are an effective way of understanding foodborne disease and offer a novel approach to exploring food safety in the home.


Assuntos
Doenças Transmitidas por Alimentos/prevenção & controle , Conhecimentos, Atitudes e Prática em Saúde , Adulto , Idoso , Idoso de 80 Anos ou mais , Culinária , Características da Família , Feminino , Contaminação de Alimentos/prevenção & controle , Microbiologia de Alimentos , Inocuidade dos Alimentos , Inquéritos Epidemiológicos , Humanos , Masculino , Pessoa de Meia-Idade , Gravidez , Pesquisa Qualitativa , Reino Unido
8.
BMC Nurs ; 13(1): 4, 2014 Feb 19.
Artigo em Inglês | MEDLINE | ID: mdl-24552165

RESUMO

BACKGROUND: Falls are a leading cause of mortality and morbidity in older people and the risk of falling is exacerbated by mental health conditions. Existing reviews have focused on people with dementia and cognitive impairment, but not those with other mental health conditions or in mental health settings. The objective of this review is to evaluate the effectiveness of fall prevention interventions for older people with mental health problems being cared for across all settings. METHODS: A systematic review of fall prevention interventions for older people with mental health conditions. We undertook electronic database and lateral searches to identify studies reporting data on falls or fall related injuries. Searches were initially conducted in February 2011 and updated in November 2012 and October 2013; no date restrictions were applied. Studies were assessed for risk of bias. Due to heterogeneity results were not pooled but are reported narratively. RESULTS: Seventeen RCTs and four uncontrolled studies met the inclusion criteria; 11 involved single interventions and ten multifactorial. Evidence relating to fall reduction was inconsistent. Eight of 14 studies found a reduction in fallers (statistically significant in five), and nine of 14 reported a significant reduction in rate or number of falls. Four studies found a non-significant increase in falls. Multifactorial, multi-disciplinary interventions and those involving exercise, medication review and increasing staff awareness appear to reduce the risk of falls but evidence is mixed and study quality varied. Changes to the environment such as increased supervision or sensory stimulation to reduce agitation may be promising for people with dementia but further evaluation is needed. Most of the studies were undertaken in nursing and residential homes, and none in mental health hospital settings. CONCLUSIONS: There is a dearth of falls research in mental health settings or which focus on patients with mental health problems despite the high number of falls experienced by this population group. This review highlights the lack of robust evidence to support practitioners to implement practices that prevent people with mental health problems from falling.

9.
Br J Community Nurs ; 19(5): 226, 228-32, 2014 May.
Artigo em Inglês | MEDLINE | ID: mdl-24784557

RESUMO

Foodborne illness (FBI) is a major public health problem in the UK. Recent increases in cases of listeriosis in older people have focused attention on consumer food-related practices. Previous studies highlight poor relationships between what people know, what they say they do and what they actually do in the kitchen. The aim of the Kitchen Life study was to examine what actually happens in the domestic kitchen to assess whether and how this has the potential to influence food safety in the home. Drawing on a qualitative ethnographic approach, methods included a kitchen tour, photography, observation, video observation, informal interviews and diary methods. Ten households with older people (aged 60+) were recruited across the UK. It was found that trust in the food supply, use of food-labelling (including use-by dates), sensory logics (such as the feel or smell of food) and food waste were factors with the potential to influence risk of foodborne illness. Practices shifted with changing circumstances, including increased frailty, bereavement, living alone, receiving help with care and acquiring new knowledge, meaning that the risk of and vulnerability to foodborne illness is not straightforward.


Assuntos
Conservação de Alimentos/métodos , Inocuidade dos Alimentos , Doenças Transmitidas por Alimentos/prevenção & controle , Idoso , Idoso de 80 Anos ou mais , Coleta de Dados/métodos , Feminino , Conhecimentos, Atitudes e Prática em Saúde , Humanos , Masculino , Pessoa de Meia-Idade , Odorantes , Rotulagem de Produtos , Refrigeração , Reino Unido
10.
Health Expect ; 16(3): 277-91, 2013 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-21838834

RESUMO

BACKGROUND: Many older people use one or more prescribed medicines on a daily basis. Effective medicines management at hospital discharge can support appropriate use of medicines following discharge and help avoid unnecessary hospital re-admission. Many people, however, feel they receive insufficient information about medicines on discharge from hospital. OBJECTIVES: To explore older people and their family carers' experience of hospital discharge in relationship to the organization and management of medicines. DESIGN: Qualitative interviews with older people over 75 years old, taking four or more medicines, and their carers, following discharge from hospital in the United Kingdom (UK). Participants completed medication diaries prior to the interview. SETTING: Interviews took place in the participant's home. RESULTS: Nineteen interviews were conducted involving 12 carers and seven older people. Participants were generally not satisfied with the discharge process, particularly concerning perceived delays in discharge. Inadequate explanations about medicines at discharge were commonly reported and led to omission of medicines, incorrect dosage, anxiety and confusion. Poor communication between the hospital and general practitioners or community pharmacists was also evident. CONCLUSIONS: Despite significant policy recommendations and research in this area, many problems with the management of medicines during hospital discharge were shown, and a lack of partnership was evident between hospital staff and patients/family carers regarding the use of medicines post-discharge. Improved medicines management during hospital discharge is required to ensure older people take their medications as prescribed and to protect them from the adverse effects of medicines not being taken correctly.


Assuntos
Continuidade da Assistência ao Paciente , Conduta do Tratamento Medicamentoso , Alta do Paciente , Idoso , Idoso de 80 Anos ou mais , Cuidadores/psicologia , Continuidade da Assistência ao Paciente/normas , Feminino , Humanos , Entrevistas como Assunto , Masculino , Conduta do Tratamento Medicamentoso/normas , Alta do Paciente/normas , Satisfação do Paciente , Reino Unido
11.
Br J Community Nurs ; 18(1): 34-9, 2013 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-23299147

RESUMO

Information about health is gained from various sources but little is known about the health information-seeking behaviours of older people and what factors affect this. This pilot study aimed to explore older people's experiences and views on their health information-seeking behaviours and to gain a better understanding of these. A qualitative study with nine older people was undertaken, using diaries and semi-structured interviews to gather data. Three key themes emerged relating to why they sought information, what shaped this and where health information was accessed. This study is generating new knowledge of older people's experiences and views on their health information-seeking behaviour. By understanding these, community nurses will be better placed to promote strategies that improve older people's access to appropriate health information and support its effective use.


Assuntos
Idoso/psicologia , Educação em Saúde , Nível de Saúde , Comportamento de Busca de Informação , Idoso de 80 Anos ou mais , Informação de Saúde ao Consumidor , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Projetos Piloto
12.
Br J Community Nurs ; 18(10): 498, 500-4, 2013 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-24471217

RESUMO

This article explores the content of discussion by patients and practitioners where they were invited to talk about food and diet. A qualitative methodology using focus groups was employed within one Primary Care Trust in the east of England. Patients described their desire for access to nutritional guidance in primary care and their feelings of powerlessness when following dietary advice. Primary care practitioners discussed their experiences of giving information alongside their scepticism about patients' adherence to dietary advice. Without prompting from the interviewer, patients and practitioners independently chose weight management to illustrate their experiences. Frustrations were expressed by patients and practitioners groups who felt unmotivated to seek or give information respectively on weight management.


Assuntos
Atitude do Pessoal de Saúde , Atitude Frente a Saúde , Comportamento Alimentar , Obesidade/prevenção & controle , Educação de Pacientes como Assunto , Feminino , Grupos Focais , Humanos , Masculino , Atenção Primária à Saúde , Reino Unido
13.
BMC Geriatr ; 12: 71, 2012 Nov 14.
Artigo em Inglês | MEDLINE | ID: mdl-23151009

RESUMO

BACKGROUND: Older people living in care homes in England have complex health needs due to a range of medical conditions, mental health needs and frailty. Despite an increasing policy expectation that professionals should operate in an integrated way across organisational boundaries, there is a lack of understanding between care homes and the National Health Service (NHS) about how the two sectors should work together, meaning that residents can experience a poor "fit" between their needs, and services they can access. This paper describes a survey to establish the current extent of integrated working that exists between care homes and primary and community health and social services. METHODS: A self-completion, online questionnaire was designed by the research team. Items on the different dimensions of integration (funding, administrative, organisational, service delivery, clinical care) were included. The survey was sent to a random sample of residential care homes with more than 25 beds (n = 621) in England in 2009. Responses were analysed using quantitative and qualitative methods. RESULTS: The survey achieved an overall response rate of 15.8%. Most care homes (78.7%) worked with more than one general practice. Respondents indicated that a mean of 14.1 professionals/ services (other than GPs) had visited the care homes in the last six months (SD 5.11, median 14); a mean of .39 (SD.163) professionals/services per bed. The most frequent services visiting were district nursing, chiropody and community psychiatric nurses. Many (60%) managers considered that they worked with the NHS in an integrated way, including sharing documents, engaging in integrated care planning and joint learning and training. However, some care home managers cited working practices dictated by NHS methods of service delivery and priorities for care, rather than those of the care home or residents, a lack of willingness by NHS professionals to share information, and low levels of respect for the experience and knowledge of care home staff. CONCLUSIONS: Care homes are a hub for a wide range of NHS activity, but this is ad hoc with no recognised way to support working together. Integration between care homes and local health services is only really evident at the level of individual working relationships and reflects patterns of collaborative working rather than integration. More integrated working between care homes and primary health services has the potential to improve quality of care in a cost-effective manner, but strategic decisions to create more formal arrangements are required to bring this about. Commissioners of services for older people need to capitalise on good working relationships and address idiosyncratic patterns of provision to care homes.The low response rate is indicative of the difficulty of undertaking research in care homes.


Assuntos
Comportamento Cooperativo , Coleta de Dados/métodos , Atenção Primária à Saúde/organização & administração , Instituições Residenciais/organização & administração , Medicina Estatal/organização & administração , Inglaterra/epidemiologia , Humanos , Projetos Piloto , Atenção Primária à Saúde/métodos , Instituições Residenciais/métodos
14.
Health Soc Care Community ; 30(6): e6699-e6707, 2022 11.
Artigo em Inglês | MEDLINE | ID: mdl-36300541

RESUMO

In recent years, Meals on Wheels (MoW) services have been in a state of decline as austerity policies have become entrenched. However, this decline is occurring with little knowledge of the impact withdrawal of MoW services has on the health and well-being of those who use them. The pandemic has raised awareness of precarity and vulnerability in relation to food that affects many people in the UK and other Westernised countries and this provides further context for the analysis presented. This paper presents findings of a mixed methods ethnographic study drawing on qualitative interviews and visual methods underpinned by social practice theory to explore the household food practices of older people receiving MoW services. Interviews were conducted with 14 older people receiving MoW, eight MoW staff delivering MoW services in the east of England and one expert. The Covid-19 pandemic interrupted the study, and once the first lockdown began visits to the homes of older people were terminated and the remaining interviews were undertaken by telephone. The study found that a number of threats accumulated to change food practices and moved people towards vulnerability to food insecurity. Threats included difficulty accessing food and cooking due to sensory and physical challenges. The MoW service increased participants' coping capacity. As well as benefiting from the food provided, the relational aspect of the service was important. Brief encounters between MoW staff built caring relationships that developed over time to ensure older people felt valued and cared for. The study demonstrates how MoW services make a positive contribution to food practices, supporting vulnerable adults to continue living well in their own homes and protecting them from food insecurity and ill-being. Local authorities looking to make cost savings through ending MoW services should consider the impact this would have on the well-being of older residents.


Assuntos
COVID-19 , Serviços de Alimentação , Humanos , Idoso , Pandemias , COVID-19/epidemiologia , COVID-19/prevenção & controle , Controle de Doenças Transmissíveis , Segurança Alimentar , Refeições
15.
Health Place ; 78: 102906, 2022 11.
Artigo em Inglês | MEDLINE | ID: mdl-36108358

RESUMO

Measures to control the spread of COVID-19 have changed the way we shop for food and interact with food environments. This qualitative study explored food shopping practices in the East of England, a large diverse region including coastal, urban and rural settings. In 2020/2021 we interviewed 38 people living in the region and 27 professionals and volunteers providing local support around dietary health. Participants reported disruption to supermarket shopping routines; moving to online shopping; and increased reliance on local stores. COVID-19 has impacted disproportionately upon lower-income households and neighbourhoods. The longer-term implications for dietary health inequalities must be investigated.


Assuntos
COVID-19 , Abastecimento de Alimentos , Humanos , Comércio , COVID-19/epidemiologia , COVID-19/prevenção & controle , População Rural , Alimentos
16.
Dementia (London) ; 21(4): 1250-1269, 2022 May.
Artigo em Inglês | MEDLINE | ID: mdl-35088605

RESUMO

BACKGROUND: Dementia Friendly Communities (DFCs) offer an approach to community engagement to improve the lives of people living with dementia and their family supporters. The involvement of those living with dementia is key to creating successful DFCs. This paper examines how people affected by dementia were involved in developing and designing DFCs in England, and the impact of their involvement. METHODS: This study used a mixed method case study design in six DFCs in England. Data collection involved documentary analysis, a survey, and interviews and focus groups with service providers and people living with dementia and their supporters. FINDINGS: All six DFCs aspired to involve people living with dementia and their family supporters, but often relied on a small number of people living with dementia. The range of involvement activities in DFCs included Steering Group meetings, wider public consultations, and enabling feedback through data collection methods such as surveys and 'ad hoc' conversations. Organisations within the DFCs with experience of public consultation offered structured opportunities for involvement. There was no evidence of people living with dementia initiating or co-leading the organisation, its direction and/or the activities of the DFCs. CONCLUSION: The involvement of people living with dementia in DFCs went beyond rhetoric, with some evidence of context sensitive and meaningful participation. Approaches towards involvement should focus on involvement in strategic planning, and on harnessing expertise in delivering different involvement activities to optimise participation of a greater breadth of people living with dementia. Engagement with local organisations who work with, and for, people living with dementia, and dedicating the resources needed for involvement work, are crucial for creating DFCs. The success of DFCs are determined by how the needs of people living with dementia are identified, discussed and reviewed by those within the community who are most affected.


Assuntos
Demência , Inglaterra , Grupos Focais , Humanos , Projetos de Pesquisa , Inquéritos e Questionários
17.
Dementia (London) ; 21(8): 2381-2401, 2022 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-36067141

RESUMO

OBJECTIVES: In the context of a growing number of dementia friendly communities (DFCs) globally, a need remains for robust evaluation, and for tools to capture relevant evidence. This paper reports the development of a suite of evaluation resources for DFCs through a national study in England. METHODS: Fieldwork took place in six diverse case study sites across England. A mixed methods design was adopted that entailed documentary analysis, focus groups, interviews, observations, and a survey. Participants were people affected by dementia and practice-based stakeholders. A national stakeholder workshop was held to obtain input beyond the research sites. A workshop at the end of the study served to check the resonance of the findings and emerging outputs with stakeholders from the case study DFCs. RESULTS: The study had three key outputs for the evaluation of DFCs: First, an evaluation framework that highlights thematic areas to be considered in evaluating DFCs. Second, a Theory of Change that presents inputs into a DFC and short, medium and longer term outcomes. Third, a matrix for assessing a DFC's degree of maturity, which enables a sense of the kinds of outcomes a DFC might realistically aspire to. These three outputs form a suite of interlinking and complementary evaluation resources for DFCs. CONCLUSIONS: The study has contributed evidence-based resources for monitoring and evaluation that complement existing frameworks. They can be applied to arrive at a detailed assessment of how well a DFC works for people affected by dementia, and at insights into the underlying factors that can guide future policy and practice.


Assuntos
Demência , Humanos , Demência/terapia , Grupos Focais , Cuidados Paliativos , Inglaterra
18.
Age Ageing ; 40(6): 724-30, 2011 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-22016345

RESUMO

BACKGROUND: uptake of and adherence to fall prevention interventions is often poor and we know little about older people's perceptions of and beliefs about fall prevention interventions and how these affect uptake. OBJECTIVE: to explore older people's perceptions of the facilitators and barriers to participation in fall prevention interventions in the UK. METHODS: we undertook a qualitative study with older people who had taken part in or declined to participate in fall prevention interventions using semi-structured interviews (n = 65), and 17 focus groups (n = 122) with older people (including 32 Asian and 30 Chinese older people). This took place in community settings in four geographical areas of the South of England. The mean age of participants was 75 years (range 60-95). Data analysis used a constant comparative method. RESULTS: older people reported that health professionals and their response to reported falls played a major role in referral to and uptake of interventions, both facilitating and hindering uptake. Health professionals frequently failed to refer people to fall prevention interventions following reports of falls and fall-related injuries. CONCLUSIONS: consideration should be given to inclusion of opportunistic and routine questioning of older people about recent falls by practitioners in primary care settings. Referrals should be made to appropriate services and interventions for those who have experienced a fall to prevent further injuries or fracture.


Assuntos
Acidentes por Quedas/prevenção & controle , Atitude Frente a Saúde , Pessoal de Saúde/tendências , Aceitação pelo Paciente de Cuidados de Saúde/psicologia , Papel do Médico , Idoso , Idoso de 80 Anos ou mais , Feminino , Grupos Focais , Acessibilidade aos Serviços de Saúde , Humanos , Entrevistas como Assunto , Idioma , Masculino , Pessoa de Meia-Idade , Participação do Paciente , Medição de Risco , Autoimagem , Reino Unido
19.
BMC Health Serv Res ; 11: 320, 2011 Nov 24.
Artigo em Inglês | MEDLINE | ID: mdl-22115126

RESUMO

BACKGROUND: In the UK there are almost three times as many beds in care homes as in National Health Service (NHS) hospitals. Care homes rely on primary health care for access to medical care and specialist services. Repeated policy documents and government reviews register concern about how health care works with independent providers, and the need to increase the equity, continuity and quality of medical care for care homes. Despite multiple initiatives, it is not known if some approaches to service delivery are more effective in promoting integrated working between the NHS and care homes. This study aims to evaluate the different integrated approaches to health care services supporting older people in care homes, and identify barriers and facilitators to integrated working. METHODS: A systematic review was conducted using Medline (PubMed), CINAHL, BNI, EMBASE, PsycInfo, DH Data, Kings Fund, Web of Science (WoS incl. SCI, SSCI, HCI) and the Cochrane Library incl. DARE. Studies were included if they evaluated the effectiveness of integrated working between primary health care professionals and care homes, or identified barriers and facilitators to integrated working. Studies were quality assessed; data was extracted on health, service use, cost and process related outcomes. A modified narrative synthesis approach was used to compare and contrast integration using the principles of framework analysis. RESULTS: Seventeen studies were included; 10 quantitative studies, two process evaluations, one mixed methods study and four qualitative. The majority were carried out in nursing homes. They were characterised by heterogeneity of topic, interventions, methodology and outcomes. Most quantitative studies reported limited effects of the intervention; there was insufficient information to evaluate cost. Facilitators to integrated working included care home managers' support and protected time for staff training. Studies with the potential for integrated working were longer in duration. CONCLUSIONS: Despite evidence about what inhibits and facilitates integrated working there was limited evidence about what the outcomes of different approaches to integrated care between health service and care homes might be. The majority of studies only achieved integrated working at the patient level of care and the focus on health service defined problems and outcome measures did not incorporate the priorities of residents or acknowledge the skills of care home staff. There is a need for more research to understand how integrated working is achieved and to test the effect of different approaches on cost, staff satisfaction and resident outcomes.


Assuntos
Prestação Integrada de Cuidados de Saúde/métodos , Serviços de Saúde para Idosos , Serviços de Assistência Domiciliar , Pesquisa sobre Serviços de Saúde , Equipe de Assistência ao Paciente , Educação de Pacientes como Assunto , Qualidade da Assistência à Saúde
20.
J Hum Nutr Diet ; 24(6): 552-9, 2011 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-21902735

RESUMO

BACKGROUND: In primary care, leaflets are often used to communicate health information. Increasingly, primary healthcare practitioners need to provide dietary advice. There is limited research exploring how nutrition information leaflets are used in primary care. The present study explored practitioner and lay experiences with respect to providing and receiving nutrition information in primary care, focusing in particular on the use of leaflets for nutrition information. METHODS: A qualitative design was used incorporating focus groups with 57 practitioners based at seven general practitioner practices and a purposive sample of 30 lay participants attending six Consumer Health Organisations within one primary care trust. Focus groups were taped and transcribed verbatim and data were analysed thematically, assisted by computer software n6® (QSR International Pty Ltd, Melbourne, Australia). RESULTS: Practitioners discussed barriers to giving nutritional advice, access to leaflets, lay receptiveness to advice and their perceptions about the value of leaflets to lay people. Food was not considered in terms of its nutritional components by lay participants and the need for nutritional information was not perceived to be relevant until they had received a medical diagnosis. Lay participants discussed the importance of receiving nutritional advice relating to their medical diagnosis and the altered status of written information that was delivered personally. Practitioner and lay groups suggested improvements to ensure that nutritional advice be supported by relevant and appropriate written information. CONCLUSIONS: This research has underlined the continuing importance of nutrition information leaflets and concludes that there is particular value in involving lay participants in the development of nutrition information leaflets.


Assuntos
Conhecimentos, Atitudes e Prática em Saúde , Ciências da Nutrição/educação , Educação de Pacientes como Assunto , Médicos de Atenção Primária , Atenção Primária à Saúde/normas , Dieta , Dietética/normas , Feminino , Grupos Focais , Humanos , Entrevistas como Assunto , Masculino , Folhetos , Software
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