Detalhe da pesquisa
1.
Quantitative Foot Muscle Magnetic Resonance Imaging Reliably Measures Disease Progression in Children and Adolescents with Charcot-Marie-Tooth Disease Type 1A.
Ann Neurol
; 2024 Apr 13.
Artigo
em Inglês
| MEDLINE | ID: mdl-38613459
2.
Patient-Reported Impact of Symptoms in Fibromyalgia (PRISM-FM).
J Rheumatol
; 51(6): 628-636, 2024 Jun 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-38224983
3.
Patient-Reported Impact of Symptoms in Fibromyalgia (PRISM-FM).
J Rheumatol
; 2024 May 16.
Artigo
em Inglês
| MEDLINE | ID: mdl-38755016
4.
A longitudinal study of disease progression in facioscapulohumeral muscular dystrophy (FSHD).
Muscle Nerve
; 69(3): 362-367, 2024 Mar.
Artigo
em Inglês
| MEDLINE | ID: mdl-38189531
5.
Patient- and caregiver-reported impact of symptoms in Duchenne muscular dystrophy.
Muscle Nerve
; 70(1): 120-129, 2024 Jul.
Artigo
em Inglês
| MEDLINE | ID: mdl-38720616
6.
The Crohn's Disease-Health Index: Development and Evaluation of a Novel Outcome Measure.
J Clin Gastroenterol
; 2024 Jan 26.
Artigo
em Inglês
| MEDLINE | ID: mdl-38277500
7.
The Facioscapulohumeral Muscular Dystrophy-Health Index: Development and evaluation of a disease-specific outcome measure.
Muscle Nerve
; 68(4): 422-431, 2023 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-37610084
8.
Assessing Prevalence and Characteristics of Oro-bulbar Involvement in Children and Adults with SMA Type 2 and 3 Using a Multimodal Approach.
Dysphagia
; 38(6): 1568-1580, 2023 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-37289231
9.
Patient-Reported Impact of Symptoms in Crohn's Disease.
Am J Gastroenterol
; 117(12): 2033-2045, 2022 12 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-36375002
10.
Assessing perspectives of disease burden and clinically meaningful changes using the Spinal Muscular Atrophy Health Index in adolescents and young adults.
Muscle Nerve
; 66(3): 276-281, 2022 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-35616549
11.
P047 The Crohn's Disease-Health Index (CD-HI): Development and Validation of a Novel, Disease-Specific Patient Reported Outcome Measure for Clinical Trials.
Am J Gastroenterol
; 116(Suppl 1): S12, 2021 Dec 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-37461965
12.
A patient-focused survey to assess the effects of the COVID-19 pandemic and social guidelines on people with muscular dystrophy.
Muscle Nerve
; 64(3): 321-327, 2021 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-34105174
13.
The Spinal Muscular Atrophy Health Index: A novel outcome for measuring how a patient feels and functions.
Muscle Nerve
; 63(6): 837-844, 2021 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-33711174
14.
Validation of the Italian version of the Charcot-Marie-Tooth Health Index.
J Peripher Nerv Syst
; 25(3): 292-296, 2020 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-32511835
15.
The Charcot-Marie-Tooth Health Index: Evaluation of a Patient-Reported Outcome.
Ann Neurol
; 84(2): 225-233, 2018 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-30014533
16.
Facioscapulohumeral muscular dystrophy functional composite outcome measure.
Muscle Nerve
; 2018 Jan 30.
Artigo
em Inglês
| MEDLINE | ID: mdl-29381807
17.
Myotonic dystrophy patient preferences in patient-reported outcome measures.
Muscle Nerve
; 2018 Jan 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-29328504
18.
Electrical impedance myography in facioscapulohumeral muscular dystrophy: A 1-year follow-up study.
Muscle Nerve
; 58(2): 213-218, 2018 Aug.
Artigo
em Inglês
| MEDLINE | ID: mdl-29543984
19.
Electrical impedance myography in facioscapulohumeral muscular dystrophy.
Muscle Nerve
; 54(4): 696-701, 2016 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-26840230
20.
Myotonic dystrophy health index: Correlations with clinical tests and patient function.
Muscle Nerve
; 53(2): 183-90, 2016 Feb.
Artigo
em Inglês
| MEDLINE | ID: mdl-26044513