Detalhe da pesquisa
1.
The Role of Solidarity(-ies) in Rare Diseases Research.
Adv Exp Med Biol
; 1031: 589-604, 2017.
Artigo
em Inglês
| MEDLINE | ID: mdl-29214593
2.
Decentralized clinical trials (DCTs): A few ethical considerations.
Front Public Health
; 10: 1081150, 2022.
Artigo
em Inglês
| MEDLINE | ID: mdl-36590004
3.
Nonurgent patients in the emergency department? A French formula to prevent misuse.
BMC Health Serv Res
; 10: 66, 2010 Mar 15.
Artigo
em Inglês
| MEDLINE | ID: mdl-20230602
4.
Organ Transplantation From Nonstandard Risk Donors: Midway Between Rigid and Flexible Rules.
Transplant Proc
; 51(9): 2856-2859, 2019 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-31606186
5.
A personalist approach to public-health ethics.
Bull World Health Organ
; 86(8): 624-9, 2008 Aug.
Artigo
em Inglês
| MEDLINE | ID: mdl-18797621
6.
Ethical models underpinning responses to threats to public health: a comparison of approaches to communicable disease control in Europe.
Bioethics
; 22(9): 466-76, 2008 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-18959729
7.
Meeting Patients' Right to the Correct Diagnosis: Ongoing International Initiatives on Undiagnosed Rare Diseases and Ethical and Social Issues.
Int J Environ Res Public Health
; 15(10)2018 09 21.
Artigo
em Inglês
| MEDLINE | ID: mdl-30248891
8.
The RD-Connect Registry & Biobank Finder: a tool for sharing aggregated data and metadata among rare disease researchers.
Eur J Hum Genet
; 26(5): 631-643, 2018 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-29396563
9.
Recommendations for Improving the Quality of Rare Disease Registries.
Int J Environ Res Public Health
; 15(8)2018 08 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-30081484
10.
[A survey on some Italian doctors' opinions about errors in clinical medicine]. / Un confronto di opinioni di alcuni medici italiani sugli errori nella medicina clinica.
Ann Ist Super Sanita
; 42(3): 348-64, 2006.
Artigo
em Italiano
| MEDLINE | ID: mdl-17124359
11.
'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research.
Eur J Hum Genet
; 24(10): 1403-8, 2016 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-27049302
12.
Improving the informed consent process in international collaborative rare disease research: effective consent for effective research.
Eur J Hum Genet
; 24(9): 1248-54, 2016 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-26860059
13.
The Quality of Rare Disease Registries: Evaluation and Characterization.
Public Health Genomics
; 19(2): 108-15, 2016.
Artigo
em Inglês
| MEDLINE | ID: mdl-26998603
14.
Rare disease registries classification and characterization: a data mining approach.
Public Health Genomics
; 18(2): 113-22, 2015.
Artigo
em Inglês
| MEDLINE | ID: mdl-25677717
15.
Antipsychotics in individuals with intellectual disability.
Lancet
; 371(9623): 1501-2; author reply 1502, 2008 May 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-18456094
16.
The EPIRARE proposal of a set of indicators and common data elements for the European platform for rare disease registration.
Arch Public Health
; 72(1): 35, 2014.
Artigo
em Inglês
| MEDLINE | ID: mdl-25352985
17.
Evaluation of medical practices in France: who is the best teacher?
Med Teach
; 30(8): 818, 2008.
Artigo
em Inglês
| MEDLINE | ID: mdl-18946829
18.
How legislation on decisional capacity can negatively affect the feasibility of clinical trials in patients with dementia.
Drugs Aging
; 29(8): 607-14, 2012 Aug 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-22574633
19.
A study of the Healthy Growth Charter in socially disadvantaged children.
Ann Ist Super Sanita
; 47(4): 417-23, 2011.
Artigo
em Inglês
| MEDLINE | ID: mdl-22194077
20.
Personalism for public health ethics.
Ann Ist Super Sanita
; 46(2): 204-9, 2010.
Artigo
em Inglês
| MEDLINE | ID: mdl-20567073