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1.
Politics Life Sci ; 41(2): 161-181, 2023 03.
Artigo em Inglês | MEDLINE | ID: mdl-36880543

RESUMO

The COVID-19 pandemic has spotlighted the importance of high-quality data for empirical health research and evidence-based political decision-making. To leverage the full potential of these data, a better understanding of the determinants and conditions under which people are willing to share their health data is critical. Building on the privacy theory of contextual integrity, the privacy calculus, and previous findings regarding different data types and recipients, we argue that established social norms shape the acceptance of novel practices of data collection and use. To investigate the willingness to share health data, we conducted a preregistered vignette experiment. The scenarios experimentally varied the vignette dimensions by data type, recipient, and research purpose. While some findings contradict our hypotheses, the results indicate that all three dimensions affected respondents' data sharing decisions. Additional analyses suggest that institutional and social trust, privacy concerns, technical affinity, altruism, age, and device ownership influence the willingness to share health data.


Assuntos
COVID-19 , Pandemias , Humanos , Prontuários Médicos , Biomarcadores , Disseminação de Informação
2.
Patterns (N Y) ; 3(10): 100591, 2022 Oct 14.
Artigo em Inglês | MEDLINE | ID: mdl-36277823

RESUMO

Human perceptions of fairness in (semi-)automated decision-making (ADM) constitute a crucial building block toward developing human-centered ADM solutions. However, measuring fairness perceptions is challenging because various context and design characteristics of ADM systems need to be disentangled. Particularly, ADM applications need to use the right degree of automation and granularity of data input to achieve efficiency and public acceptance. We present results from a large-scale vignette experiment that assessed fairness perceptions and the acceptability of ADM systems. The experiment varied context and design dimensions, with an emphasis on who makes the final decision. We show that automated recommendations in combination with a final human decider are perceived as fair as decisions made by a dominant human decider and as fairer than decisions made only by an algorithm. Our results shed light on the context dependence of fairness assessments and show that semi-automation of decision-making processes is often desirable.

3.
JMIR Mhealth Uhealth ; 8(8): e19857, 2020 08 28.
Artigo em Inglês | MEDLINE | ID: mdl-32759102

RESUMO

BACKGROUND: The COVID-19 pandemic is the greatest public health crisis of the last 100 years. Countries have responded with various levels of lockdown to save lives and stop health systems from being overwhelmed. At the same time, lockdowns entail large socioeconomic costs. One exit strategy under consideration is a mobile phone app that traces the close contacts of those infected with COVID-19. Recent research has demonstrated the theoretical effectiveness of this solution in different disease settings. However, concerns have been raised about such apps because of the potential privacy implications. This could limit the acceptability of app-based contact tracing in the general population. As the effectiveness of this approach increases strongly with app uptake, it is crucial to understand public support for this intervention. OBJECTIVE: The objective of this study is to investigate the user acceptability of a contact-tracing app in five countries hit by the pandemic. METHODS: We conducted a largescale, multicountry study (N=5995) to measure public support for the digital contact tracing of COVID-19 infections. We ran anonymous online surveys in France, Germany, Italy, the United Kingdom, and the United States. We measured intentions to use a contact-tracing app across different installation regimes (voluntary installation vs automatic installation by mobile phone providers) and studied how these intentions vary across individuals and countries. RESULTS: We found strong support for the app under both regimes, in all countries, across all subgroups of the population, and irrespective of regional-level COVID-19 mortality rates. We investigated the main factors that may hinder or facilitate uptake and found that concerns about cybersecurity and privacy, together with a lack of trust in the government, are the main barriers to adoption. CONCLUSIONS: Epidemiological evidence shows that app-based contact tracing can suppress the spread of COVID-19 if a high enough proportion of the population uses the app and that it can still reduce the number of infections if uptake is moderate. Our findings show that the willingness to install the app is very high. The available evidence suggests that app-based contact tracing may be a viable approach to control the diffusion of COVID-19.


Assuntos
Busca de Comunicante/métodos , Infecções por Coronavirus/prevenção & controle , Intenção , Aplicativos Móveis , Pandemias/prevenção & controle , Pneumonia Viral/prevenção & controle , Adolescente , Adulto , Idoso , COVID-19 , Infecções por Coronavirus/epidemiologia , Comparação Transcultural , Feminino , França/epidemiologia , Alemanha/epidemiologia , Humanos , Itália/epidemiologia , Masculino , Pessoa de Meia-Idade , Pneumonia Viral/epidemiologia , Inquéritos e Questionários , Reino Unido/epidemiologia , Estados Unidos/epidemiologia , Adulto Jovem
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