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1.
Med Educ ; 58(9): 1107-1116, 2024 09.
Artigo em Inglês | MEDLINE | ID: mdl-38449338

RESUMO

INTRODUCTION: Despite legislation mandating accommodation policies in postsecondary education, support for students with disabilities is often not implemented within health and human services (HHS) education programs, particularly in fieldwork settings. As part of a Canada-wide study exploring the experiences of disabled students in 10 HHS programs, we examined how HHS students described their experiences accessing accommodations in fieldwork to understand how conceptions of disability relate to students' fieldwork experiences. Using a critical disability studies framework, we explored how HHS fieldwork education understands disability, accommodations and professional competence and what those understandings reveal about the discrepancy between mandated accommodations and what happens in practice. METHODS: Thirty-five students requiring accommodations in HHS fieldwork education participated in interviews. Through a critical interpretive analysis of interview data, we developed first-person composite narratives to show the richness and complexity of the students' diverse, yet similar, subjective experiences with fieldwork accommodations. FINDINGS: Two composite narratives demonstrate how conceptions of disability incommensurate with professional competence expectations influenced student experiences with disclosing disability and obtaining accommodations in fieldwork. Fear of stigma and having one's competence questioned, or having accommodation requests denied for being misaligned with professional expectations, demonstrate how HHS fieldwork education and practice are upheld by ableist systemic structures. DISCUSSION: The dominant medical model of disability in HHS education creates institutional barriers that require students to constantly (re)construct their 'professional' identity in relation to their 'patient' identity. This patient-professional identity construction relates to HHS professional competency standards and assumptions about what makes a 'good' professional. Suggestions include reworking competency standards and implementing critical pedagogical approaches to teach future and current HHS professionals to question both personal and practice assumptions. With institutional backing, such changes may support diversity within HHS and a culture shift toward more equitable education and health care.


Assuntos
Pessoas com Deficiência , Humanos , Canadá , Masculino , Competência Profissional , Feminino , Negociação
2.
Med Educ ; 57(6): 535-547, 2023 06.
Artigo em Inglês | MEDLINE | ID: mdl-36516022

RESUMO

INTRODUCTION: People with disabilities are underrepresented in health professions education and practice. Barriers for inclusion include stigma, disabling discourses, discriminatory programme design and oppressive interactions. Current understandings of this topic remain descriptive and fragmented. Existing research often includes only one profession, excludes particular types of disability and focuses on one aspect of the career journey. To expand understanding, we examined the recurrent forms of social relations that underlie the participation of disabled individuals in learning and practice contexts across five health professions. METHOD: We analysed 124 interviews with 56 disabled health practitioners and students. Participants were interviewed up to three times over 1.5 years. Using constructivist grounded theory, authors used a staged analytic approach that resulted in higher level conceptual categories that advance interpretations of social processes. Finally, the authors compared and integrated findings among students and practitioners. RESULTS: Participants experience challenges to their sense of legitimacy and belonging as health providers. They describe tensions within the health education and practice between the commitment to inclusion and the day-to-day realities experienced by disabled participants. We identified six distinct, but related, conditions underlying these tensions: (i) validity and transparency of competencies' evaluation; (ii) the social and physical contexts; (iii) integration of inclusive practices; (iv) boundaries between personal and professional identities; (v) vulnerability to authority figures; and (vi) dynamic person-level factors. DISCUSSION: If we are to commit to health practitioners and students with disabilities experiencing an overall sense of legitimacy and belonging, priority needs to be given to system-level practices and policies to support inclusion. Attention to the day-to-day marginalisation of students and practitioners with disabilities in the health professions is also needed. Additionally, inclusive and transparent delineation of competency requirements is needed. Finally, educational actions are needed to increase understanding of disability in the health professions, with particular attention to promoting social relations that foster collective responsibility for supporting inclusion.


Assuntos
Pessoas com Deficiência , Negociação , Humanos , Estudantes , Aprendizagem , Ocupações em Saúde
3.
Adv Health Sci Educ Theory Pract ; 28(2): 477-497, 2023 05.
Artigo em Inglês | MEDLINE | ID: mdl-36315305

RESUMO

Social support is vital in promoting the health, well-being, and performance of students and clinicians in health professions. Health settings' demanding and competitive nature imposes unique challenges on students and clinicians with disabilities. This paper aims to explore the trajectories and experiences of social support interactions amongst students and clinicians with disabilities in health professions. In a qualitative longitudinal study, 124 in-depth semi-structured interviews were conducted with 27 health students and 29 health clinicians with disabilities. Data analysis was informed by grounded theory as an adapted analytic approach involving constant comparisons. A few main characteristics of social support and trajectories in which social support is negotiated emerged from the data: (1) The need to be accepted and not questioned when asking for support, (2) Support interactions that do not heighten otherness, (3) Failure to acknowledge the challenges, (4) Interactions that support the process of disclosure (5) Interactions that allow mobilization of social support without strain or an extra effort. These findings have important implications for designing more supportive health professions, educational programs, and workplaces for people living with disabilities.


Assuntos
Pessoas com Deficiência , Apoio Social , Humanos , Estudos Longitudinais , Estudantes , Ocupações em Saúde
4.
Adv Health Sci Educ Theory Pract ; 27(2): 501-520, 2022 05.
Artigo em Inglês | MEDLINE | ID: mdl-35325338

RESUMO

Indigenous Peoples are underrepresented in many of the Health and Human Services Educational Programs (HHSEP, e.g.: Nursing, Social Work). As various studies have reported the benefits of diversifying HHSEP, the barriers and facilitators of increasing the number of Indigenous Peoples in these professions must be identified. The purpose of this exploratory study is to identify and understand the barriers and facilitators Indigenous Peoples face when entering, learning or working in HHSEP. A narrative approach was used in the facilitation of culturally safe sharing circles with Indigenous students and staff to collect perspectives based on their individual experiences in HHSEP. Inductive thematic analysis was used to identify emerging themes in participant experiences and the impact of those experiences on participation in learning and working at the university in these educational programs. Results from this exploratory study identified current academic structures and ideologies rooted in colonialism, that act as barriers for engagement and inclusion of Indigenous students, staff, and clinical and academic faculty. These findings shaped the main themes of this study including negotiation of identity in different spaces, negotiating colonial structures in HHSEP, and negotiating changes and transitions in HHSEP. We anticipate these preliminary results will act as a catalyst for uncovering further changes to be made regarding attitudes, procedures, and practices present in an academic environment that limit the inclusion of Indigenous Peoples in HHSEP.


Assuntos
Serviços de Saúde do Indígena , Estudantes , Colonialismo , Humanos
5.
Adv Health Sci Educ Theory Pract ; 25(1): 111-129, 2020 03.
Artigo em Inglês | MEDLINE | ID: mdl-31538268

RESUMO

Disabled people are underrepresented within healthcare professions, although their participation has potential benefits for them personally, and for broader society. Disabled peoples' participation in healthcare professions is limited by assumptions about disability. Little research explores how healthcare professions can be organized to support disabled peoples' employment. Within a critical realist paradigm influenced by grounded theory, this study used interviews to explore the experiences of 56 disabled healthcare clinicians and students, and advance a conceptual taxonomy of disability experience within healthcare professions. Participants describe their experiences of disability in the healthcare professional context in terms of characteristics and dimensions of disability-how characteristics interact with factors within healthcare training and practice environments. We profile two particularly salient dimensions of the disability experience: visibility and onset of disability. These are developed to describe complexity and specificity of the experiences of individuals negotiating the healthcare context. Among participants there is extensive heterogeneity related to the experience of disability in healthcare professional contexts. Despite some having similar disability characteristics, no two individuals experience the same combination of characteristics and dimensions of disability. Given the complexity of experiences for disabled healthcare professionals/students, a taxonomy for conceptualizing this experience is presented. Readers are encouraged to consider the taxonomy through which they might conceptualize individual, embodied, and socially embedded experiences of disabled healthcare professionals and students. Stakeholders involved in healthcare professions and education should consider this shift in perspective, with a view to increasing access of disabled people to health professional practice.


Assuntos
Pessoas com Deficiência/psicologia , Emprego , Pessoal de Saúde/psicologia , Estudantes de Ciências da Saúde/psicologia , Adulto , Escolha da Profissão , Feminino , Teoria Fundamentada , Humanos , Entrevistas como Assunto , Masculino
6.
Qual Health Res ; 30(13): 2064-2076, 2020 11.
Artigo em Inglês | MEDLINE | ID: mdl-32449447

RESUMO

Students and clinicians with disabilities are underrepresented in the academic health programs and professional clinical settings. Disability studies foregrounds the unique ways of knowing and being that clinicians with disabilities can offer. Based on a larger grounded theory study of the experiences of students and clinicians with disabilities, this article examines the role that clinicians' abilities to draw on their personal experiences of living with a disability have on their interactions with clients. The analysis of semistructured interviews with 55 students and clinicians with disabilities from different fields contributes to the development of a theory of epistemic connection. The theory is informed by the following three themes: (a) building rapport through understanding, (b) from understanding to advocacy and creative approaches, and (c) between professionalism and disability. The findings emphasize not only the importance of diversifying the health care workforce but also incorporating disability epistemology into the health care culture.


Assuntos
Pessoas com Deficiência , Atenção à Saúde , Pessoal de Saúde , Humanos , Pesquisa Qualitativa
7.
Clin Rehabil ; 31(1): 82-92, 2017 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-26721873

RESUMO

OBJECTIVE: To assess the feasibility of Wii.n.Walk for improving walking capacity in older adults with lower limb amputation. DESIGN: A parallel, evaluator-blind randomized controlled feasibility trial. SETTING: Community-living. PARTICIPANTS: Individuals who were ⩾50 years old with a unilateral lower limb amputation. INTERVENTION: Wii.n.Walk consisted of Wii Fit training, 3x/week (40 minute sessions), for 4 weeks. Training started in the clinic in groups of 3 and graduated to unsupervised home training. Control group were trained using cognitive games. MAIN MEASURES: Feasibility indicators: trial process (recruitment, retention, participants' perceived benefit from the Wii.n.Walk intervention measured by exit questionnaire), resources (adherence), management (participant processing, blinding), and treatment (adverse event, and Cohen's d effect size and variance). Primary clinical outcome: walking capacity measured using the 2 Minute Walk Test at baseline, end of treatment, and 3-week retention. RESULTS: Of 28 randomized participants, 24 completed the trial (12/arm). Median (range) age was 62.0 (50-78) years. Mean (SD) score for perceived benefit from the Wii.n.Walk intervention was 38.9/45 (6.8). Adherence was 83.4%. The effect sizes for the 2 Minute Walk Test were 0.5 (end of treatment) and 0.6 (3-week retention) based on intention to treat with imputed data; and 0.9 (end of treatment) and 1.2 (3-week retention) based on per protocol analysis. The required sample size for a future larger RCT was deemed to be 72 (36 per arm). CONCLUSIONS: The results suggested the feasibility of the Wii.n.Walk with a medium effect size for improving walking capacity. Future larger randomized controlled trials investigating efficacy are warranted.


Assuntos
Amputação Cirúrgica/reabilitação , Terapia por Exercício/instrumentação , Extremidade Inferior , Jogos de Vídeo , Caminhada/fisiologia , Idoso , Membros Artificiais , Tolerância ao Exercício , Estudos de Viabilidade , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Equilíbrio Postural/fisiologia , Resultado do Tratamento
8.
J Interprof Care ; 31(5): 604-612, 2017 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-28922022

RESUMO

The growing complexity of healthcare requires family and interprofessional partnerships to deliver effective care. Interprofessional coaching can enhance family-centred practice and collaboration. The purpose of this study was to explore the acceptability and feasibility of collaborative coaching training to improve family centredness within acute paediatric rehabilitation. Using a participatory action design, service providers (SPs; n = 36) underwent a 6-month coaching programme involving coaching workshops, learning triads, and tailored sessions with a licensed coach. The feasibility and acceptability of coaching on SPs' family interactions and care was explored. Measure of Processes of Care (MPOC) and MPOC-SP, a coaching skills questionnaire, and focus groups were used to evaluate the acceptability of coaching training. We found that structured coaching training was feasible and SPs reported significant improvements in their coaching skills; however, MPOC and MPOC-SP scores did not reveal significant differences. Qualitative themes indicated that clinicians are developing coaching competencies and applying these skills in clinical practice. Participants perceived that the coaching approach strengthened relationships amongst colleagues, and they valued the opportunity for interprofessional learning. Findings suggest that coaching offers promise as an approach to facilitate successful patient outcomes and improve processes of care. Preliminary findings indicate that interprofessional coaching training is acceptable, feasible, and can significantly improve SP coaching skills and improve team cohesion. Further research to study the effects of coaching on interprofessional care using validated outcome measures and to assess the impact on service delivery is recommended.


Assuntos
Serviços de Saúde da Criança/organização & administração , Crianças com Deficiência/reabilitação , Tutoria , Equipe de Assistência ao Paciente/organização & administração , Relações Profissional-Família , Criança , Comunicação , Feminino , Humanos , Relações Interprofissionais , Entrevistas como Assunto , Masculino
9.
Arch Phys Med Rehabil ; 97(3): 462-477.e40, 2016 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-26365129

RESUMO

OBJECTIVES: To identify and critically appraise potential participation measurement tools for children aged 18 months to 17 years with power mobility (PM) needs. DATA SOURCES: Searches in 9 electronic databases identified peer-reviewed publications in English to January 2015, along with hand-searching included bibliographies. STUDY SELECTION: The Preferred Reporting Items for Systematic reviews and Meta-Analyses statement was followed with inclusion criteria set a priori. Keywords and subject headings included participation and measurement terms with descriptors of young people who are potential PM candidates. Publications describing measurement properties of English-language tools were included if the items included ≥ 85% content related to participation and described at least 2 participation dimensions. DATA EXTRACTION: Two reviewers reached consensus after independently screening titles and abstracts, identifying full-text articles meeting criteria, extracting data, and conducting quality ratings. Tool descriptions, clinical utility, and measurement properties were extracted. Study quality and measurement properties were evaluated using the COnsensus-based Standards for the selection of health Measurement INstruments checklist and the McMaster Outcome Measures Rating Form. DATA SYNTHESIS: Of 1330 titles identified, 138 peer-reviewed publications met study inclusion criteria. Fifty tools were identified, of which 20 met inclusion criteria. Evidence supporting reliability and validity varied considerably. Two tools had responsiveness evidence, an important measurement property when evaluating change. Quality ratings were strongest for internal consistency and content validity. Ratings were downgraded because of small sample sizes and a limited description of missing data or study conditions. CONCLUSIONS: While potential tools emerged (Assessment of Preschool Children's Participation, Preferences for Activities of Children, Child and Adolescent Scale of Participation, Child Engagement in Daily Life, Canadian Occupational Performance Measure, Questionnaire of Young People's Participation), none were judged best suited for use with children having PM needs. Further empirical studies with this population are needed before recommending use for PM applications.


Assuntos
Avaliação da Deficiência , Crianças com Deficiência/reabilitação , Limitação da Mobilidade , Adolescente , Criança , Pré-Escolar , Necessidades e Demandas de Serviços de Saúde , Humanos , Lactente
10.
Qual Health Res ; 26(8): 1055-66, 2016 07.
Artigo em Inglês | MEDLINE | ID: mdl-27194645

RESUMO

An increasing number of high-functioning stroke survivors are present with minimal functional impairments and are often discharged with reduced access to community reintegration. Our objectives were to explore the lived experience of high-functioning stroke survivors and to identify gaps in community and rehabilitation services. Photovoice was used with five high-functioning stroke survivors to photo-document their experiences. A modified inductive thematic analysis was used, and meanings behind the photographs were elicited through four focus group sessions followed by photography exhibitions. Five themes emerged: lack of understanding and consideration for persons with disability, emotional and behavioral impacts after stroke, self-reliance and dependence on others, importance of appropriate and accessible services, and financial determinants of quality of life. By including service users' voices; investing in adapted, community-based programs; and providing educational programs for creating attitudinal change among service providers, the polarization between who can and cannot access services will be reduced.


Assuntos
Fotografação , Qualidade de Vida , Acidente Vascular Cerebral , Sobreviventes , Pessoas com Deficiência , Grupos Focais , Humanos , Acidente Vascular Cerebral/complicações , Acidente Vascular Cerebral/psicologia
11.
Can J Occup Ther ; 83(2): 72-82, 2016 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-26902095

RESUMO

BACKGROUND: People who undergo a gender transition process experience changes in different everyday occupations. These changes may impact their health and life satisfaction. PURPOSE: This study examined the difference in the occupational performance history scales (occupational identity, competence, and settings) between male-to-female transgender women and cisgender women and the relation of these scales to health and life satisfaction. METHOD: Twenty-two transgender women and 22 matched cisgender women completed a demographic questionnaire and three reliable measures in this cross-sectional study. Data were analyzed using a two-way analysis of variance and multiple linear regressions. FINDINGS: The results indicate lower performance scores for the transgender women. In addition, occupational settings and group membership (transgender and cisgender groups) were found to be predictors of life satisfaction. IMPLICATIONS: The present study supports the role of occupational therapy in promoting occupational identity and competence of transgender women and giving special attention to their social and physical environment.


Assuntos
Terapia Ocupacional/métodos , Satisfação Pessoal , Procedimentos de Readequação Sexual/psicologia , Adulto , Estudos Transversais , Humanos , Entrevistas como Assunto , Israel , Pessoa de Meia-Idade , Competência Profissional , Fatores Socioeconômicos
12.
Dev Med Child Neurol ; 57(6): 556-63, 2015 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-25510205

RESUMO

AIM: To identify and reach consensus on important elements of measuring participation in everyday life for children who need or use power mobility. METHOD: A panel (n=74) of parents, therapists, and researchers with pediatric power mobility and participation expertise completed an online modified Delphi survey. Three rounds determined important elements of participation for two groups: early childhood (18mo-5y) and school-aged (6-12y). 'Elements of participation' defined the 'who, what, where, and how' of measuring participation, generated from a literature review and participants' suggestions. Consensus was set a priori as ≥80% agreement. RESULTS: Consensus was reached on 21 out of 48 elements of participation important to measure for our population: eight elements for the younger group and 18 elements for the older group. When ranked by importance, four of the top five elements were common across both age groups. INTERPRETATION: For children using power mobility, measuring participation in a variety of settings is critical, along with considering both the child's and family's participation. Evaluating child engagement and enjoyment of participation are priorities, as is measuring barriers and facilitators. For school-aged children, evaluating child and parent reports of participation are essential. These elements can guide tool selection and/or development.


Assuntos
Crianças com Deficiência/reabilitação , Tecnologia Assistiva , Participação Social , Adulto , Criança , Pré-Escolar , Técnica Delphi , Família , Feminino , Humanos , Lactente , Masculino , Pessoa de Meia-Idade , Limitação da Mobilidade
13.
Phys Occup Ther Pediatr ; 35(2): 163-77, 2015 May.
Artigo em Inglês | MEDLINE | ID: mdl-25229503

RESUMO

BACKGROUND: Developmental coordination disorder (DCD) significantly affects a child's motor abilities and negatively impacts their self-efficacy and participation in physical activity. Using a task-specific approach and cognitive strategies in a group setting, we designed a summer camp intervention for children with DCD. AIMS: Our purpose was to examine the effectiveness of the summer camp in meeting child-chosen functional motor goals and increasing self-efficacy and participation. METHODS: This mixed methods study examined performance and satisfaction of child-chosen goals, self-efficacy, and participation of 11 children before and after the camp. Survey and interview data from three children and nine parents were collected to supplement quantitative findings. RESULTS: Statistically significant improvement in performance and satisfaction of child-chosen goals was noted. While no measureable changes in self-efficacy and participation were observed, parents and children reported positive benefits to camp participation, including the confidence to try new activities, being with other children with DCD, and learning more about the disorder. CONCLUSION: The intensive, group-based summer camp may offer a valuable alternative to improve the functional skills of children with DCD, while providing other notable benefits.


Assuntos
Acampamento , Terapia Cognitivo-Comportamental , Transtornos das Habilidades Motoras/psicologia , Transtornos das Habilidades Motoras/terapia , Destreza Motora , Satisfação do Paciente , Criança , Feminino , Objetivos , Humanos , Entrevistas como Assunto , Masculino , Pais , Participação do Paciente , Resolução de Problemas , Estações do Ano , Autoeficácia , Inquéritos e Questionários
14.
Can J Occup Ther ; 82(2): 93-105, 2015 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-26281433

RESUMO

BACKGROUND: Clinicians recognize that client motivation is key to optimizing rehabilitation; however, they are limited in its assessment by a paucity of motivation measures. PURPOSE: This paper presents the preliminary psychometrics of the Pediatric Motivation Scale (PMOT) designed to measure motivation from a child's perspective. METHOD: Content validity of the PMOT was measured through expert feedback (n = 12), and field testing ocurred with 41 children, 21 in rehabilitation and 20 healthy. Pearson product-moment correlations were used to analyze subscale correlations, test-retest reliability, and convergent validity with the Pediatric Volitional Questionnaire (PVQ). Internal consistency was measured using Cronbach's alpha. FINDINGS: Preliminary psychometric evaluation indicates strong internal consistency for PMOT total (α = .96) and subscales (α = .79-.91). The PMOT and PVQ moderately correlated in the rehabilitation subsample (r = .71, p < .01); no correlation was found in the healthy subsample (p > .05). Test-retest reliability was excellent (r = .97). IMPLICATIONS: This study provides preliminary psychometric evidence of the PMOT for children undergoing rehabilitation. These pilot findings warrant ongoing scale development.


Assuntos
Avaliação da Deficiência , Crianças com Deficiência/psicologia , Crianças com Deficiência/reabilitação , Motivação , Pediatria/métodos , Adolescente , Criança , Feminino , Humanos , Entrevistas como Assunto , Masculino , Psicometria
15.
Brain Inj ; 28(8): 1022-35, 2014.
Artigo em Inglês | MEDLINE | ID: mdl-24661000

RESUMO

PRIMARY OBJECTIVE: To systematically review the evidence of the effects of motivating rehabilitation interventions on outcomes in children with acquired brain injury (ABI). METHODS: A literature search of six databases was conducted to identify intervention studies published until July 2013. The American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) systematic review methodology was used as a framework. Two reviewers independently extracted data and assessed level of evidence and quality of studies. RESULTS: Of 891 records initially retrieved, 166 were screened by abstract and 31 by full text; 10 studies comprised of five randomized controlled trials, two case series and three single subject research design studies met the inclusion criteria. Studies fell into three intervention categories: (1) token economy based interventions; (2) virtual reality (VR); and (3) memory and attention interventions. CONCLUSIONS: A paucity of evidence has examined the effects of rehabilitation interventions with a motivational component. Token economies can significantly enhance memory and response inhibition performance in children with ABI. VR systems are motivating, yet findings are limited by the lack of use and availability of psychometrically evaluated measures of motivation. Findings point to the need for further research to evaluate the effects of motivation-based interventions.


Assuntos
Lesões Encefálicas/reabilitação , Motivação , Adolescente , Lesões Encefálicas/fisiopatologia , Lesões Encefálicas/psicologia , Criança , Pré-Escolar , Bases de Dados Factuais , Medicina Baseada em Evidências , Humanos , Lactente , Psicometria , Resultado do Tratamento
16.
Health Promot Int ; 29(3): 549-57, 2014 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-23424161

RESUMO

To augment the rigor of health promotion research, this perspective article describes how cultural factors impact the outcomes of health promotion studies either intentionally or unintentionally. It proposes ways in which these factors can be addressed or controlled in designing studies and interpreting their results. We describe how variation within and across cultures can be considered within a study, e.g. the conceptualization of research questions or hypotheses, and the methodology including sampling, surveys and interviews. We provide multiple examples of how culture influences the interpretation of study findings. Inadequately accounting or controlling for cultural variations in health promotion studies, whether they are planned or unplanned, can lead to incomplete research questions, incomplete data gathering, spurious results and limited generalizability of the findings. In health promotion research, factors related to culture and cultural variations need to be considered, acknowledged or controlled irrespective of the purpose of the study, to maximize the reliability, validity and generalizability of study findings. These issues are particularly relevant in contemporary health promotion research focusing on global lifestyle-related conditions where cultural factors have a pivotal role and warrant being understood.


Assuntos
Cultura , Promoção da Saúde , Pesquisa sobre Serviços de Saúde , Projetos de Pesquisa , Humanos
17.
Autism ; 28(4): 1010-1028, 2024 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-37615409

RESUMO

LAY ABSTRACT: Children and youth with autism use screens in their daily lives and in their rehabilitation programs. Although parents and clinicians experience specific challenges when supporting positive screen time use of children and youth with autism, no detailed information for this group exists. Therefore, this study aimed to develop clear guidelines that are agreed by expert clinicians and parents of children and youth with autism. Using a method called Delphi, 30 experts-20 clinicians and 10 caregivers, who have experience working with or caring for children and youth with autism were invited to complete a series of three surveys. In each round, the experts had to rate their agreement with statements regarding screen time management. The agreement level was set to 75%. The final themes to be included in the guidelines were accepted by more than 75% of the panel. The final guidelines included six main sections: (1) general principles, (2) considerations for timing and content of leisure screen time use, (3) strategies for caregivers and clinicians to monitor and regulate screen time use, (4) behaviors to monitor for screen time overuse, (5) additional guidelines for clinicians, and (6) resources. The new guidelines developed in this study can provide potential guidance on how to further the development of digital citizenship for children and youth with autism and provide strategies to families to help manage screen time use.


Assuntos
Transtorno do Espectro Autista , Transtorno Autístico , Criança , Humanos , Adolescente , Cuidadores , Cidadania , Inquéritos e Questionários
18.
Nurse Educ Pract ; 79: 104085, 2024 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-39116670

RESUMO

AIM: This study explores and compares the impact of in-person and online versions of a Research-based Theatre production named "Alone in the Ring," aimed at increasing knowledge and fostering positive attitudes towards persons with disabilities in healthcare professions. The study examines changes in attitudes towards disabled persons in healthcare professions, levels of engagement in the play and knowledge about the experiences and challenges of disabled individuals in healthcare professions. It also investigates possible actions to increase inclusion for disabled persons in healthcare education and practice. BACKGROUND: Disabled students face numerous barriers in healthcare education and practice, many of which are rooted in stigma and negative attitudes. Research-based Theatre promotes experiential learning to address these attitudes and stereotypes. The performance "Alone in the Ring" is based on a comprehensive study of the experiences of disabled students and clinicians in health professions, aiming to promote inclusion for students with disabilities in these fields. DESIGN: This study uses a pre-test and post-test design with two comparison groups. METHOD: The study employed an explanatory sequential mixed method design to explore the impact of online versus in-person Research-based Theatre teaching in healthcare education. Participants were graduate health students (N = 198); 100 watched the in-person version and 98 watched the online version. Surveys were administered before and after the performance. Participants were also invited to share their experiences in semi-structured interviews and their responses were analyzed using thematic analysis. RESULTS: Results indicated that students generally felt more comfortable with disabled persons in healthcare professions in the post-survey compared to the pre-survey, with online participants reporting greater comfort and higher engagement than those in-person. Knowledge of disabled persons' experiences and challenges, as well as possible actions to increase belonging and inclusion, improved significantly for both groups from pre- to post-performance, with online participants showing a greater change. Qualitative data revealed that online theatre was perceived as authentic and beneficial for accessibility, engagement and emotional impact on students, though challenges included potential distractions and technological issues. Positive correlations were found between changes in knowledge, positive attitude and engagement, suggesting that increased engagement and a shift in attitudes can promote knowledge and awareness of the inclusion of disabled persons in healthcare professions. CONCLUSION: These results support the use of online theatre-based academic teaching that experientially engages students, increases empathy and can promote more inclusive healthcare educational settings for disabled persons.


Assuntos
Pessoas com Deficiência , Empatia , Humanos , Pessoas com Deficiência/psicologia , Pessoas com Deficiência/educação , Feminino , Masculino , Adulto , Inquéritos e Questionários , Drama , Estudantes de Ciências da Saúde/psicologia
19.
Aust Occup Ther J ; 60(6): 410-5, 2013 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-24299480

RESUMO

BACKGROUND/AIM: Traditional developmental models assume that the underlying capacities of children contribute to their participation. In this framework, preschoolers who are referred for occupational therapy services usually undergo an assessment intended to identify capacities in certain domains. Contrary to this, newer ecological models assume that child participation is a consequence of a multidimensional interaction between personal and environmental factors. As a result clinicians are increasingly focusing their assessment on performance and participation. This study aimed to assess the correlation between children's performance skills, their capacities and participation; and to explore whether parents' observations, alongside therapist observations and standardised assessments, contribute to an enhanced understanding of child participation. METHOD: Participants included 188 parents and their children, aged 4-6 years, with and without mild developmental difficulties. Data were collected using standardised assessments for child capacities, and questionnaires completed by parents and occupational therapists regarding child participation and performance skills. RESULTS: Significant correlations were found between parent assessments of child performance skills and child participation, but not with child capacities. The opposite was found to be true for occupational therapist assessments of child performance skills which were found to correlate with child capacities, but not with participation. Additionally, an interaction effect was found for both groups. Occupational therapists reported higher performance skills as compared to parents, but the difference was only significant for children without mild difficulties. CONCLUSION: As suggested by ecological models of child participation, the findings highlight the importance of parent-therapist collaboration in the assessment process of children.


Assuntos
Avaliação da Deficiência , Terapia Ocupacional/métodos , Pais/psicologia , Atividades Cotidianas , Adolescente , Criança , Estudos Transversais , Feminino , Humanos , Masculino , Jogos e Brinquedos , Instituições Acadêmicas , Participação Social
20.
Prog Community Health Partnersh ; 17(1): 25-35, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-37462572

RESUMO

BACKGROUND: Children who are neurodiverse have traditionally been segregated from their peers in community-based programs, despite evidence of health benefits of inclusive education. OBJECTIVES: This community-initiated project aims to explore barriers and facilitators to inclusive aquatics programming for children with developmental and/or mental health challenges. METHODS: Using a participatory-action research methodology, semi-structured interviews and focus groups were conducted with 14 participants from various stakeholder groups, including parents of children who are neurodiverse, helping professionals, and community programmers. RESULTS: Participants described unique definitions of inclusion, from integration with neurotypical peers, to individualized goal-setting and achievement. Major facilitators include adequate resources, flexibility around accommodations, and motivated staff. Major barriers include social stigma, financial limitations, and lack of communication between caregivers and service providers. CONCLUSIONS: Participants felt strongly about the need to improve inclusion practices within aquatics-and other community-based-programs. Increased collaboration between families, community programmers, and helping professionals can foster better inclusion and outcomes for children who are neurodiverse. By incorporating various perspectives into the design of future programs, program administrators can ensure more equitable access such that all children are able to participate.


Assuntos
Pesquisa Participativa Baseada na Comunidade , Pesquisa sobre Serviços de Saúde , Humanos , Criança , Participação da Comunidade , Pais , Cuidadores
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