Detalhe da pesquisa
1.
Family secrets: Experiences and outcomes of participating in direct-to-consumer genetic relative-finder services.
Am J Hum Genet
; 109(3): 486-497, 2022 03 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-35216680
2.
Genomic sequencing research in pediatric cancer care: Decision-making, attitudes, and perceived utility among adolescents and young adults and their parents.
Genet Med
; : 101168, 2024 May 17.
Artigo
em Inglês
| MEDLINE | ID: mdl-38767058
3.
Families' experiences accessing care after genomic sequencing in the pediatric cancer context: "It's just been a big juggle".
J Genet Couns
; 2024 Jan 15.
Artigo
em Inglês
| MEDLINE | ID: mdl-38225886
4.
Data stewardship in FTLD research: Investigator and research participant views.
Alzheimers Dement
; 20(4): 2886-2893, 2024 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-38456576
5.
Direct-to-Consumer Genetic Testing: Value and Risk.
Annu Rev Med
; 72: 151-166, 2021 01 27.
Artigo
em Inglês
| MEDLINE | ID: mdl-32735764
6.
Building Effective Mentoring Relationships During Clinical Ethics Fellowships: Pedagogy, Programs, and People.
HEC Forum
; 2022 Feb 26.
Artigo
em Inglês
| MEDLINE | ID: mdl-35218454
7.
Airmen and health-care providers' attitudes toward the use of genomic sequencing in the US Air Force: findings from the MilSeq Project.
Genet Med
; 22(12): 2003-2010, 2020 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-32807975
8.
Beyond Our Borders? Public Resistance to Global Genomic Data Sharing.
PLoS Biol
; 14(11): e2000206, 2016 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-27806054
9.
Laws About Transparent School Vaccination Reporting: Public Health Context and Ethics.
Am J Public Health
; 109(12): 1687-1690, 2019 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-31622148
10.
Donors, authors, and owners: how is genomic citizen science addressing interests in research outputs?
BMC Med Ethics
; 20(1): 84, 2019 11 21.
Artigo
em Inglês
| MEDLINE | ID: mdl-31752834
11.
United States: law and policy concerning transfer of genomic data to third countries.
Hum Genet
; 137(8): 647-655, 2018 Aug.
Artigo
em Inglês
| MEDLINE | ID: mdl-30069637
12.
Sharing data under the 21st Century Cures Act.
Genet Med
; 19(12): 1289-1294, 2017 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-28541278
13.
Legal Barriers to Adolescent Participation in Research About HIV and Other Sexually Transmitted Infections.
Am J Public Health
; 106(1): 40-4, 2016 Jan.
Artigo
em Inglês
| MEDLINE | ID: mdl-26562103
14.
Cultivating Administrative Support for a Clinical Ethics Consultation Service.
J Clin Ethics
; 27(4): 341-351, 2016.
Artigo
em Inglês
| MEDLINE | ID: mdl-28001140
15.
Disability and Contingency Care.
Am J Bioeth
; 20(7): 190-192, 2020 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-32716778
16.
"Systematizing" ethics consultation services.
HEC Forum
; 27(1): 35-45, 2015 Mar.
Artigo
em Inglês
| MEDLINE | ID: mdl-25274503
17.
The ethics of conducting molecular autopsies in cases of sudden death in the young.
Genome Res
; 26(9): 1165-9, 2016 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-27412853
18.
Translational Research and Health Equity: Gene Therapies for Sickle Cell Disease as a Case Study.
Ethics Hum Res
; 46(3): 34-39, 2024.
Artigo
em Inglês
| MEDLINE | ID: mdl-38629220
19.
Off-Target Effects of a Defense of Denial.
Am J Bioeth
; 18(9): 22-24, 2018 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-30265597
20.
Payer reimbursement practices and incentives for improving interpretation of germline genetic testing.
J Law Biosci
; 10(2): lsad020, 2023.
Artigo
em Inglês
| MEDLINE | ID: mdl-37435610