[Phenomenological considerations regarding the self-perception of children/adolescents living with siblings with disabilities]. / Considerações fenomenológicas sobre a percepção de si da criança/adolescente convivendo com irmão com deficiência.

The scope of this article was to understand the self-perception of children/adolescents who live with siblings with disabilities. It involved qualitative research, with a hermeneutic-phenomenological approach, with 20 children and adolescents who live with a disabled sibling from a municipality in the state of Rio Grande do Sul/Brazil. Phenomenological interviews, field diaries and hermeneutic interpretations were used. There were gaps in care, need for attention and understanding on the part of the family, due to the attention given to the disabled sibling. Also, the fear and anguish of the death of the grandparents, the death of the disabled sibling, the nostalgia of the grandparents after their death. It was shown that these children/adolescents live together and question the birth and existence of the sibling. By shining a light on the child/adolescent's life experience, gaps and weaknesses in the relationship with parents, in health care, in situations of vulnerabilities experienced by the child/adolescent and family were revealed. Thus, attention needs to be devoted to this population, considering that they live with siblings with disabilities, and have several vulnerabilities that need to be discussed, aiming at developing inclusive and efficient care strategies.

O objetivo deste artigo é compreender a percepção de si de crianças/adolescentes que convivem com o irmão com deficiência. Pesquisa qualitativa, com abordagem hermenêutico-fenomenológica e participação de 20 crianças e adolescentes que convivem com o irmão com deficiência em um município do estado do Rio Grande do Sul, Brasil. Utilizou-se entrevista fenomenológica, diário de campo e interpretação hermenêutica. Evidenciaram-se lacunas de cuidado, necessidade de atenção, compreensão por parte da família, visto a atenção ser ao irmão com deficiência. O medo e a angústia da morte dos avós, da morte do irmão com deficiência, a saudade dos avós após sua morte. Percebe-se que essas crianças/adolescentes convivem e questionam o nascimento e a existência do irmão. Desvelou-se, ao dar luz ao mundo vivido da criança/adolescente, lacunas e fragilidades na relação com os pais, na atenção à saúde e nas situações de vulnerabilidades vivenciadas pela criança/adolescente e a família. Dessa forma, é necessário atenção a essa população, considerando que convivem com irmãos com deficiência e apresentam diversas vulnerabilidades que precisam ser discutidas, visando elaborações de estratégias de cuidado inclusivas e eficientes.

"He is normal": phenomenological considerations of child/adolescent's perception of the disabled sibling.

OBJECTIVE: To understand the child/adolescent's perception of the disabled sibling. METHOD: Qualitative research, with a phenomenological approach, conducted between 2018 and 2019, in a municipality in the south of Brazil, with 20 children/adolescents who are siblings of people with disabilities, through a phenomenological interview. Respecting ethical precepts, hermeneutics was used for interpretation. RESULTS: The child/adolescent perceives his/her disabled sibling as a normal person, given his/her behavior, way of being and intellectual capacity. Still, it understands him as a special being, who has limitations regarding learning, but does not see him as different, thus, unlinks the idea of disability associated with the disease/abnormality. FINAL CONSIDERATIONS: The perception of the disabled sibling occurs within the perception of normality. The child identifies his sibling's lower learning capacitor a way that is unique to him, a fact that does not condition him to be seen as abnormal, defining his being-in-the-world as a special way of existing.

Child/adolescent caring for the disabled sibling in the family world.

OBJECTIVE: To understand the meaning for the child/adolescent of participating in the care of the disabled sibling. METHOD: Research in the light of the Heideggerian phenomenological approach, carried out in the northern region of Rio Grande do Sul - Brazil. Twenty children/adolescents who lived with their disabled sibling participated. The information was collected through phenomenological interviews, interpreted in the light of hermeneutics from Paul Ricoeur. RESULTS: The child/adolescent helps the family in caring for the disabled sibling, in feeding, bathing, dressing, among other activities, at sometimes there is excessive responsibility of the child/adolescent for the care of the sibling. FINAL CONSIDERATIONS: The inclusion of the child/adolescent who lives with a disabled sibling and their families in the planning and implementation of health care activities is essential. It stands out as a research contribution to the qualification of the practice of health professionals, especially the nurse in the scope of care for the child/adolescent who experience this phenomenon.

The family's adaptation process to their child's hospitalization in an Intensive Care Unit. / O processo de adaptação familiar à hospitalização infantil em Unidade de Terapia Intensiva.

OBJECTIVE: To learn about the adaptation process of family members when experiencing their child's hospitalization in an Intensive Care Unit. METHOD: A qualitative, descriptive and exploratory study conducted at the Pediatrics Unit with family members of children from the Pediatric Intensive Care Unit. The thematic analysis technique was used. RESULTS: Thirteen (13) family members, 12 mothers and one father participated. The following categories emerged from the results: Family impact on children's hospitalization in a Pediatric Intensive Care Unit and Mechanisms for adapting family members to hospitalization in a Pediatric Intensive Care Unit. CONCLUSION: The mechanisms adopted by the family in the process of adapting the child to admission to the Pediatric Intensive Care Unit were: positive thinking, understanding the treatment and the operation of the unit. Health professionals can offer strategies to the family in order to make hospitalization less traumatic, making it possible to share experiences and expand the knowledge of those involved.

Interaction betwenn family and child/adolescent with hearing deficiency. / Interação entre a família e a criança/adolescente com deficiência auditiva.

PURPOSE: to know the family interaction with the hearing impaired child/adolescent. METHODS: descriptive and exploratory qualitative research developed at a Special School in Southern Brazil. Participants were 10 primary caregivers of deaf children/adolescents between 10 and 19 years old. The collection took place in November 2017, through semi-structured interviews containing questions about the communication process of deaf children/adolescents with their families. The information was analyzed through thematic analysis. The study was submitted and approved by the Ethics Committee under opinion number 2.333.560. RESULTS: as the main theme of the study "Interaction between the family and the child/adolescent with hearing impairment", it addresses two sub-themes: potentialities and weaknesses in the communication of the family with the child/adolescent with hearing impairment and learning in the care of the child/adolescent with hearing impairment. CONCLUSION: it was identified that the interaction of the deaf with the family and society is impaired by people's lack of knowledge about the deaf community and the Brazilian Sign Language, which raises concern in caregivers who often overprotect the child/adolescent which may limit the full development of their skills and autonomy.

OBJETIVO: conhecer como ocorre a interação da família com a criança/adolescente com deficiência auditiva. MÉTODO: pesquisa qualitativa de caráter descritivo e exploratório desenvolvida em uma escola especial no Sul do Brasil. Os participantes foram 10 cuidadores principais de crianças/adolescentes surdas entre 10 e 19 anos. A coleta ocorreu no mês de novembro de 2017, por meio de entrevista semiestruturada contendo questões acerca do processo de comunicação de crianças/adolescentes surdos com suas famílias. As informações foram analisadas por meio de análise temática. O estudo foi encaminhado e aprovado pelo Comitê de Ética sob o parecer número 2.333.560. RESULTADOS: desvelou-se como temática principal do estudo "Interação entre a família e a criança/adolescente com deficiência auditiva", que contempla dois subtemas: potencialidades e fragilidades na comunicação da família com a criança/adolescente com deficiência auditiva e aprendendo no cuidado da criança/adolescente com deficiência auditiva. CONCLUSÃO: identificou-se que a interação do surdo com a família e a sociedade é prejudicada pelo desconhecimento das pessoas acerca da comunidade surda e da Língua Brasileira de Sinais, o que gera preocupação nos cuidadores que, muitas vezes, superprotegem a criança/adolescente, podendo limitar o pleno desenvolvimento de suas habilidades e autonomia.

[Children with special needs: counterpoints between law and reality]. / Criança portadora de necessidades especiais: contrapontos entre a legislação e a realidade.

This study is as theoretical and philosophical reflection and it aims to confront the Brazilian legislation (which is about children who have special needs) with the daily practice Although children's rights have been legalized in 1990 by Statute for Children and Teenagers, we can daily see that there is a gap between what the law guarantees and what is performed in practice. It is necessary to put this legislation into practice so that it is possible to break off with a historical trajectory of prejudice which is imposed against these children. However in order to reach such practicality it is essential that families of children with special needs know their rights in order to exercise their citizenship and enjoy a better quality of life According to the available literature, reality can be changed through the exercise of children and family citizenship and this fact makes them aware of their rights.

[Perceptions of nurses about leadership]. / As percepções dos enfermeiros acerca da liderança.

This study aimed at ascertaining the perceptions of nurses facing the use of managerial leadership as a tool in their work process. This was a qualitative study of descriptive and exploratory type, conducted with eleven nurses from a large hospital in the southern region of Rio Grande do Sul, Brazil, during the months of February and March 2008. For data collection were used semi-structured interviews and focus group. The content analysis was chosen as a technique for processing the data, resulting in two categories: meanings attributed to the leadership and authority versus authoritarianism. It was noticed that even the leadership offering advantages in nursing work, are still great the difficulties to understand it and, especially, to put it into practice, making it necessary to create programs and strategies to improve the performance of the leadership as a nurses managerial instrument.

[Institutional characteristics that interfere in the leadership of nurses]. / Características institucionais que interferem na liderança do enfermeiro.

The development of this study aimed at knowing the institutional characteristics that interfere with leadership of the nurse. This is a qualitative survey of descriptive and exploratory type, held in a large hospital located in the southern Rio Grande do Sul, Brazil, during the months of February and March 2008, in which participated 11 nurses. For the collection of data, we used semistructured interview. It was opted for the analysis of content as a technique for data processing in which emerged a category concerning institutional character that consists of six subcategories: remuneration, material resources, autonomy and institutional support, rotation, devaluation of the profession, and lack of incentive to develop leaders. It was identified that the little incentive to the improvement of the nurses front to the leadership is one institutional problem that can be minimized through the permanent education and the creation and implementation of programs of development for leaders in nursing.

[Mothers experiencing the diagnosis of cerebral palsy in their children]. / Mães vivenciando o diagnóstico da paralisia cerebral em seus filhos.

The study aimed at understanding how the mothers of children with special needs, due to the diagnosis of cerebral palsy, experienced the disclosure of the diagnosis. An exploratory-descriptive research was held from a qualitative approach. Data were collected and recorded through semi-structured interviews with six mothers of children with cerebral palsy that attended the institution of the study and analyzed according to Roy's Adaptation Model. The results pointed out that the main difficulties faced by the mothers were related to the understanding and acceptance of the situation by the family and the lack of preparation of the health professionals in revealing the diagnosis of special needs of their children.

Institutionalized child care experiences: the hidden side of work.

OBJECTIVE: To know the caregiver's perception about the work/care with the institutionalized child. METHODS: Qualitative research that used the Theory of Attachment and Symbolic Interactionism as theoretical references and the Grounded Theory as a methodological reference. Data was collected through semi-structured interviews with 15 caregivers of a child sheltering institution, in the year 2015. The analysis was performed from the open coding and categorization. RESULTS: Care work aims to meet the needs of institutionalized children, focusing on food, hygiene and education. In addition, it is little recognized, which generates a feeling of devaluation in caregivers. CONCLUSIONS: Continued qualification and support to the caregivers is indispensable for elaborating more effective and integral work/care strategies.

Support systems in the pediatric intensive therapy unit: family perspective.

OBJECTIVE: to identify and to analyze the support systems used by family members for the adaptation process to the child's hospitalization in the intensive care unit. METHOD: qualitative research, conducted in a hospital located in the Southern Brazil. Data were collected between June and July 2017, through semi-structured interviews with family members of hospitalized children. The adaptation model and thematic analysis were used for data processing. RESULTS: four themes emerged: family and friends as a support system; the family members of other hospitalized children as a support system; spirituality as a support system; health team as a support system. FINAL CONSIDERATIONS: identifying the support systems used in the process of family adaptation and their manifestations of interdependence was possible. The need of the nurses to intensify the listening to strengthen the support system of the family members of the children hospitalized in the unit studied.

[Work-related musculoskeletal disorders and their association with occupational nursing]. / Doenças osteomusculares relacionadas ao trabalho (DORT) e sua associação com a enfermagem ocupacional.

Work-related musculoskeletal diseases (MSD) are disorders in the musculoskeletal structures caused by chronic occupational processes. The objective of this study was to get to know scientific papers on MSD related to the nursing profession. A bibliographic research of the last ten years was conducted at Health Virtual Library using the main data bases. Twenty-one summaries were found. Among them, thirteen were selected because they specifically focused on the subject. Three main areas were identified: occupational health nurses in relation to MSDs--their importance in health prevention and promotion; Ergonomics as MSDs prevention method: performed as changes on work consider risk factors; Vulnerability of Nursing staff to MSDs--predisposing factors to disease caused by inappropriate working conditions. The conclusion was that an occupational and ergonomic health service is important to prevent MSDs, especially among the nursing staff.

Vulnerabilidades vivenciadas por familiares/ cuidadores de crianças com condição crônica / Vulnerabilities experienced by family members/caregivers of children with chronic conditions

Resumo Objetivou-se conhecer as vulnerabilidades vivenciadas pelos familiares/cuidadores de crianças com condição crônica. Pesquisa qualitativa sustentada pelo referencial teórico do filósofo francês Roselló, da qual participaram 15 familiares/cuidadores de crianças com condições crônicas. As informações foram coletadas nos anos de 2018 e 2019 e submetidas à análise temática. Os resultados são apresentados em três temas: A doença como expressão da vulnerabilidade do ser criança; A doença crônica da criança como condição de vulnerabilidade do familiar/cuidador; O suporte das redes de apoio: potencialidades e vulnerabilidades no cotidiano da criança com condição crônica e do familiar/cuidador. Conhecer os componentes da vulnerabilidade vivenciados pelas famílias das crianças com condição crônica é algo complexo, pois exige refletir sobre as situações que essas famílias enfrentam, tendo em vista suas peculiaridades, sentimentos, organização familiar e acessibilidade aos serviços de saúde. Portanto, o conhecimento acerca do contexto em que essas famílias estão inseridas é fundamental para que se possa estabelecer um planejamento adequado das ações de saúde voltadas à promoção de seu bem-estar.

Abstract The objective was to know the vulnerabilities experienced by family members/caregivers of children with a chronic. Qualitative research supported by the theoretical framework of the French philosopher Roselló Un which 15 family members/caregivers of children with chronic conditions participated in the study. The information was collected in the years 2018 and 2019 and submitted to thematic analysis. The results are presented in three themes: The disease as an expression of the vulnerability of being a child; The child's chronic illness as a condition of vulnerability of the family member/caregiver; The support of support networks: potentialities and vulnerabilities in the daily life of children with chronic conditions and family members/caregivers. Knowing the components of vulnerability experienced by the families of children with chronic conditions is complex, as it requires analyzing and reflecting on the situations these families face, considering their peculiarities, feelings, family organization and the accessibility they have to health services. Therefore, knowledge about the context in which these families are inserted is essential to establish an adequate planning of health actions aimed at promoting their well-being.

Formation and disruption of bonds between caregivers and institutionalized children.

OBJECTIVE: to understand the perspective of caregivers about the formation and disruption of bonds with institutionalized children. METHOD: a qualitative research that used as a theoretical framework the Attachment Theory and the Symbolic Interactionism, and the Grounded Theory as methodological framework. Participating in the study were 15 female caregivers of children aged zero to three years, from a child care institution in the south of Brazil, from April to July 2015. RESULTS: three categories were elaborated: "Experiencing the formation of bond and attachment"; "Disrupting with the established bonds and detaching"; "Learning how to work with formation and disruption of bond". FINAL CONSIDERATIONS: we need to think of ways to minimize the negative effects formation and disruption of bonds. In this sense, active listening and the offer of psychological support favor the sharing of experiences and the emotional strengthening of the female caregivers.

Considerações fenomenológicas sobre a percepção de si da criança/adolescente convivendo com irmão com deficiência / Phenomenological considerations regarding the self-perception of children/adolescents living with siblings with disabilities

Resumo O objetivo deste artigo é compreender a percepção de si de crianças/adolescentes que convivem com o irmão com deficiência. Pesquisa qualitativa, com abordagem hermenêutico-fenomenológica e participação de 20 crianças e adolescentes que convivem com o irmão com deficiência em um município do estado do Rio Grande do Sul, Brasil. Utilizou-se entrevista fenomenológica, diário de campo e interpretação hermenêutica. Evidenciaram-se lacunas de cuidado, necessidade de atenção, compreensão por parte da família, visto a atenção ser ao irmão com deficiência. O medo e a angústia da morte dos avós, da morte do irmão com deficiência, a saudade dos avós após sua morte. Percebe-se que essas crianças/adolescentes convivem e questionam o nascimento e a existência do irmão. Desvelou-se, ao dar luz ao mundo vivido da criança/adolescente, lacunas e fragilidades na relação com os pais, na atenção à saúde e nas situações de vulnerabilidades vivenciadas pela criança/adolescente e a família. Dessa forma, é necessário atenção a essa população, considerando que convivem com irmãos com deficiência e apresentam diversas vulnerabilidades que precisam ser discutidas, visando elaborações de estratégias de cuidado inclusivas e eficientes.

Abstract The scope of this article was to understand the self-perception of children/adolescents who live with siblings with disabilities. It involved qualitative research, with a hermeneutic-phenomenological approach, with 20 children and adolescents who live with a disabled sibling from a municipality in the state of Rio Grande do Sul/Brazil. Phenomenological interviews, field diaries and hermeneutic interpretations were used. There were gaps in care, need for attention and understanding on the part of the family, due to the attention given to the disabled sibling. Also, the fear and anguish of the death of the grandparents, the death of the disabled sibling, the nostalgia of the grandparents after their death. It was shown that these children/adolescents live together and question the birth and existence of the sibling. By shining a light on the child/adolescent's life experience, gaps and weaknesses in the relationship with parents, in health care, in situations of vulnerabilities experienced by the child/adolescent and family were revealed. Thus, attention needs to be devoted to this population, considering that they live with siblings with disabilities, and have several vulnerabilities that need to be discussed, aiming at developing inclusive and efficient care strategies.

Caracterização e concepções de saúde de estudantes universitários que vivem em uma residência estudantil / Caracterización y concepciones de salud de estudiantes universitarios que viven en una residencia de estudiantes / Characterization and health conceptions of university students who live in a student residence

Objetivo:identificar o perfil e a concepção de saúde dos estudantes universitários residentes na casa do estudante. Método: estudo qualitativo do qual participaram 20 estudantes de uma residência universitária, sendo os dados analisados através da análise temática. Resultados: os estudantes apresentaram seus conceitos de saúde, adoecimento, cuidados adotados e acesso a serviços de saúde, havendo uma pluralidade nesses conceitos, sendo que cada um compreende de uma maneira diferente. Os universitários referiram já terem vivenciado o adoecimento em algum período do ano, devido ao estresse gerado pela demanda excessiva ou pelas características climáticas. Assim, procuraram práticas alternativas e automedicação para auxiliar no processo do cuidado. Conclusões:é necessário refletir sobre as demandas dos universitários, visando melhorar o atendimento e o acolhimento desses, para que possam atingir seu potencial máximo na vida acadêmica.

Objective: to identify the health profile and conception of university students residing in the student's home. Method: qualitative study in which 20 students from a university residence participated, the data being analyzed through thematic analysis. Results: the students presented their concepts of health, illness, care adopted and access to health services, with a plurality of these concepts, and each one understands it in a different way. The university students reported having already experienced illness at some time of the year, due to the stress generated by excessive demand or weather conditions. Thus, they sought alternative practices and self-medication to assist in the care process. Conclusions: it is necessary to reflect on the demands of university students, aiming to improve their care and reception, so that they can reach their maximum potential in academic life.

Objetivo: identificar el perfil y la concepción de salud de los universitarios residentes en el domicilio del estudiante. Método: estudio cualitativo en el que participaron 20 estudiantes de una residencia universitaria, y los datos fueron analizados a través del análisis temático. Resultados: los estudiantes presentaron sus conceptos de salud, enfermedad, cuidados adoptados y acceso a los servicios de salud, con una pluralidad de estos conceptos, y cada uno lo entiende de forma diferente. Los universitarios relataron haber padecido ya la enfermedad en alguna época del año, debido al estrés generado por el exceso de demanda o por las características climáticas. Por lo tanto, buscaron prácticas alternativas y de automedicación para ayudar en el proceso de atención. Conclusiones: es necesario reflexionar sobre las demandas de los estudiantes universitarios, con el objetivo de mejorar su atención y acogida, para que puedan alcanzar su máximo potencial en la vida académica.

"He is normal": phenomenological considerations of child/adolescent's perception of the disabled sibling / "Él es normal": consideraciones fenomenológicas de la percepción del niño/adolescente del hermano con discapacidad / "Ele é normal": considerações fenomenológicas da percepção da criança/adolescente do irmão com deficiência

ABSTRACT Objective: To understand the child/adolescent's perception of the disabled sibling. Method: Qualitative research, with a phenomenological approach, conducted between 2018 and 2019, in a municipality in the south of Brazil, with 20 children/adolescents who are siblings of people with disabilities, through a phenomenological interview. Respecting ethical precepts, hermeneutics was used for interpretation. Results: The child/adolescent perceives his/her disabled sibling as a normal person, given his/her behavior, way of being and intellectual capacity. Still, it understands him as a special being, who has limitations regarding learning, but does not see him as different, thus, unlinks the idea of disability associated with the disease/abnormality. Final considerations: The perception of the disabled sibling occurs within the perception of normality. The child identifies his sibling's lower learning capacitor a way that is unique to him, a fact that does not condition him to be seen as abnormal, defining his being-in-the-world as a special way of existing.

RESUMEN Objetivo: Comprender la percepción del niño/adolescente sobre el hermano con discapacidad. Método: Investigación cualitativa con enfoque fenomenológico, desarrollada, entre 2018 y 2019, en un municipio del sur de Brasil, con 20 niños/adolescentes hermanos de personas con discapacidad, a través de entrevista fenomenológica. Respetando los preceptos éticos. Para la interpretación se utilizó la hermenéutica. Resultados: El niño/adolescente percibe a su hermano discapacitado como una persona normal, dado su comportamiento, forma de ser y capacidad intelectual. Aun así, lo entiende como un ser especial, que tiene limitaciones en aprendizaje, pero no lo ve como diferente, desvinculando así la idea de discapacidad asociada a la enfermedad/anormalidad. Consideraciones finales: La percepción del hermano discapacitado se da dentro de la percepción de normalidad. El niño identifica la menor capacidad de aprender del hermano o una forma que le es propia, hecho que no lo condiciona a ser visto como anormal, definiendo su ser-en-el-mundo como una forma especial de existir.

RESUMO Objetivo: Compreender a percepção da criança/adolescente sobre o irmão com deficiência. Método: Pesquisa qualitativa com abordagem fenomenológica, desenvolvida entre 2018 e 2019,em um município ao sul do Brasil, com 20crianças/adolescentes irmãos de pessoas com deficiência, mediante entrevista fenomenológica.Respeitados os preceitos éticos, utilizou-se a hermenêutica para interpretação. Resultados: A criança/adolescente percebe seu irmão com deficiência como uma pessoa normal, diante de seu comportamento, modo de ser e capacidade intelectual. Ainda, o entende como um ser especial, que possui limitações em relação à aprendizagem, porém não o vê como diferente, desvinculando a ideia da deficiência associada à doença/anormalidade. Considerações finais: A percepção sobre o irmão com deficiência ocorre dentro da perceptiva de normalidade. A criança identifica a menor capacidade de aprendizagem do irmão ou um jeito que é só dele, fato que não o condiciona a ser visto como anormal, definindo seu ser-no-mundo como um modo especial de existir.

Vulnerabilidades experienciadas na escolarização de crianças e adolescentes com doenças crônicas: perspectiva dos profissionais da educação

Resumo: Objetivo: Conhecer a perspectiva dos profissionais de educação acerca das dificuldades enfrentadas na educação escolar de crianças e adolescentes com doenças crônicas, tendo em vista os aspectos de vulnerabilidade. Método: Estudo descritivo e exploratório de natureza qualitativa. A coleta de dados foi realizada em uma cidade ao Sul do Brasil. Participaram quinze profissionais da educação que em seu cotidiano atendiam crianças ou adolescentes com doença crônica. Os dados foram analisados por meio da análise temática e interpretados por meio do conceito de vulnerabilidade. Resultados: Emergiram três temas: vulnerabilidades programáticas vivenciadas na escolarização e cuidado a crianças e adolescentes com doença crônica; vulnerabilidades individuais experienciadas na relação da família com a escola e sua influência sobre o processo de escolarização; e vulnerabilidade social e o processo de escolarização de crianças e adolescentes com doenças crônicas. Conclusões: Evidencia-se a necessidade de um olhar apurado para as dimensões de vulnerabilidades vivenciadas, envolvendo a disponibilização de recursos humanos e materiais, a fim de minimizar adversidades e limitações na escolarização, objetivando sanar demandas individuais dos alunos, suas famílias e dos educadores.

Resumen: Objetivo: Conocer la perspectiva de los profesionales de la educación sobre las dificultades que enfrentan en la educación escolar de niños y adolescentes con enfermedades crónicas, considerando los aspectos de vulnerabilidad. Método: Estudio descriptivo y exploratorio de carácter cualitativo. La recolección de datos se llevó a cabo en una ciudad del sur de Brasil. Participaron 15 profesionales de la educación que, en su rutina diaria, asisten a niños o adolescentes con enfermedades crónicas. Los datos fueron analizados a través de análisis temáticos e interpretados a través del concepto de vulnerabilidad. Resultados: Surgieron tres temas: las vulnerabilidades programáticas experimentadas en la escolarización y atención de niños y adolescentes con enfermedades crónicas; las vulnerabilidades individuales experimentadas en la relación de la familia con la escuela y su influencia en el proceso de escolarización; y la vulnerabilidad social y el proceso de escolarización de niños y adolescentes con enfermedades crónicas. Conclusión: Es evidente la necesidad de una mirada precisa a las dimensiones de las vulnerabilidades experimentadas, que involucran la disponibilidad de recursos humanos y materiales, con el fin de minimizar las adversidades y limitaciones en la escolarización, con el objetivo de atender las demandas individuales de los estudiantes, sus familias y educadores.

Abstract: Objective: To know the perspective of education professionals about the difficulties faced in the school education of children and adolescents with chronic diseases, considering the aspects of vulnerability. Method: Descriptive and exploratory study of a qualitative nature. Data collection was carried out in a city in southern Brazil. The participants were fifteen education professionals who, in their daily routine, assist children or adolescents with chronic diseases. Data was analyzed through thematic analysis and interpreted through the concept of vulnerability. Results: Three themes emerged: programmatic vulnerabilities experienced in schooling and caring for children and adolescents with chronic illness; individual vulnerabilities experienced in the relationship between the family and the school and its influence on the schooling process; and social vulnerability and the schooling process of children and adolescents with chronic diseases. Conclusion: There is an evident need for an accurate look at the dimensions of vulnerabilities experienced, involving the availability of human and material resources, to minimize adversities and limitations in schooling, aiming to address individual demands of students, their families, and educators.

Segurança da criança no cuidado de enfermagem na atenção primária à saúde / Child safety in nursing care in primary health care / La seguridad infantil en el cuidado de enfermería en la atención primaria de salud

Objetivo: Investigar a segurança da criança no cuidado de enfermagem prestado na atenção primária à saúde. Métodos: Pesquisa exploratória com abordagem qualitativa, realizada com nove profissionais de enfermagem de duas unidades básicas de saúde, de um município do Sul do Brasil, no segundo semestre de 2020. Os dados foram coletados por meio de entrevistas semiestruturadas, organizados com o software webQDA e analisados com a análise temática. Resultados: Os resultados foram organizados em dois temas: Orientações fornecidas pelos profissionais de enfermagem para segurança da criança; Medidas adotadas pelos profissionais de enfermagem para a segurança da criança. Evidenciouse que a segurança do paciente em pediatria exige que a enfermagem execute uma avaliação integral da criança, de modo a reconhecer o contexto onde se articula o cuidado, bem como focando na comunicação efetiva e no trabalho multiprofissional, para garantir a qualidade da assistência. Conclusão: Os profissionais atentam para a segurança da criança no cuidado prestado, contudo evidenciam a necessidade de explorar melhor a temática nos serviços de saúde, através de educação permanente e do estabelecimento de protocolos, de modo a viabilizar uma unificação dos conhecimentos e tornar o cuidado mais efetivo e seguro. (AU)

Objective: To investigate child safety in nursing care provided in primary health care. Methods: Exploratory research with a qualitative approach, carried out with nine nursing professionals from two basic health units in a city in southern Brazil, in the second half of 2020. Data were collected through semi-structured interviews, organized with the webQDA software and analyzed with thematic analysis. Results: The results were organized into two themes: guidance provided by nursing professionals for child safety; Measures taken by nursing professional for child safety. It was evident that patient safety in pediatrics requires that nursing perform a comprehensive assessment of the child, in order to recognize the context in which care is articulated, as well as focusing on effective communications and multidisciplinary work, to ensure the quality of care. Conclusion: Professionals pay attention to the child's safety in the care provided, however they highlight the need to be better explore the theme in health services, through permanent education and the establishment of protocols, in order to enable a unification of knowledge and make care more effective and safer. (AU)

Objetivo: Investigar la seguridad infantil en los cuidados de enfermería brindados en la atención primaria de salud. Métodos: Investigación exploratoria con enfoque cualitativo, realizada con nueve profesionales de enfermería de dos unidades básicas de salud en una ciudad del sur de Brasil, en el segundo semestre de 2020. Los datos fueran recolectados a través de entrevistas semiestructuradas, organizados con el software webQDA y analizados con análisis temático. Resultados: Los resultados se organizaron en dos temas: Orientación brindada por profesionales de enfermaría para la seguridad infantil; Medidas adoptadas por los profesionales de enfermería para la seguridad infantil. Se evidenció que la seguridad del paciente en pediatría requiere que la enfermaría realice una valoración integral del niño, a fin de reconocer el contexto en el que se articula el cuidado, además de enfocarse en la comunicación efectiva y el trabajo multidisciplinario, para asegurar la calidad del cuidado. Conclusión: Los profesionales prestan atención a seguridad del niño en el cuidado brindado, sin embargo, destacan la necesidad profundizar la exploración del tema en los servicios de salud, a través de la educación permanente y el establecimiento de protocolos, a fin de posibilitar la unificación de conocimientos y hacer la atención más efectiva y segura. (AU)

Child/adolescent caring for the disabled sibling in the family world / Niño/adolescente en el cuidado del hermano discapacitado en el mundo familiar / Criança/adolescente no cuidado ao irmão com deficiência no mundo da família

ABSTRACT Objective: To understand the meaning for the child/adolescent of participating in the care of the disabled sibling. Method: Research in the light of the Heideggerian phenomenological approach, carried out in the northern region of Rio Grande do Sul - Brazil. Twenty children/adolescents who lived with their disabled sibling participated. The information was collected through phenomenological interviews, interpreted in the light of hermeneutics from Paul Ricoeur. Results: The child/adolescent helps the family in caring for the disabled sibling, in feeding, bathing, dressing, among other activities, at sometimes there is excessive responsibility of the child/adolescent for the care of the sibling. Final considerations: The inclusion of the child/adolescent who lives with a disabled sibling and their families in the planning and implementation of health care activities is essential. It stands out as a research contribution to the qualification of the practice of health professionals, especially the nurse in the scope of care for the child/adolescent who experience this phenomenon.

RESUMEN Objetivo: Comprender el significado para el niño/adolescente de participar en el cuidado del hermano discapacitado. Método: Investigación a la luz del enfoque fenomenológico heideggeriano, realizada en una región al norte do Rio Grande do Sul - Brasil. Participaron veinte niños/adolescentes que vivían con su hermano discapacitado. La información fue recolectada a través de entrevistas fenomenológicas, interpretadas a la luz de la hermenéutica de Paul Ricoeur. Resultados: El niño/adolescente ayuda a las familias a cuidar a sus hermanos discapacitados, como jugar, ayudar con la alimentación, bañarse, vestirse, entre otras actividades, sin embargo, a veces hay una responsabilidad excesiva, para el cuidado del hermano. Consideraciones finales: La inclusión del niño/adolescente que vive con un hermano discapacitado y sus familias en la planificación e implementación de actividades de atención médica es esencial. La calificación de la práctica de los profesionales de la salud, especialmente la enfermera (o) en el ámbito de la atención al niño/adolescente que vive en estos contextos, se destaca como una contribución de la investigación.

RESUMO Objetivo: Compreender o significado para a criança/adolescente de participar do cuidado do irmão com deficiência. Método: Pesquisa a luz da abordagem fenomenológica heideggeriana, realizada na região norte do Rio Grande do Sul. Participaram 20 crianças/adolescentes que conviviam com o irmão com deficiência. As informações foram coletadas mediante entrevista fenomenológica, interpretadas a luz da hermenêutica de Paul Ricoeur. Resultados: A criança/adolescente auxilia a família no cuidado do irmão com deficiência, na alimentação, no banho, no vestir-se, dentre outras atividades, em alguns momentos observa-se excessiva responsabilização da criança/adolescente para com o cuidado do irmão. Considerações finais: Constata-se ser imprescindível a inclusão da criança/adolescente que vive com irmão com deficiência e suas famílias no planejamento e implantação das atividades de cuidado à saúde. Destaca-se como contribuição da pesquisa à qualificação da prática dos profissionais de saúde, em especial da enfermeira(o), no âmbito do cuidado à criança/adolescente que vive esse fenômeno.