RESUMO
OBJECTIVE: This study was aimed at describing the level of stress and types of coping strategies used among Malay parents of children with cleft lip and/or palate (CL/P). DESIGN: Cross-sectional study. SETTING: A dental clinic and a general hospital. PARTICIPANTS: Parents (N = 84) whose children were less than 12 years old with CL/P. METHODS: Socio-demographic data and clinical characteristics of CL/P were collected. Self-administered validated Malay versions of the stress scale from the Depressive, Anxiety and Stress Scale-42 (DASS-42) and COPE Inventory questionnaires were used. Descriptive statistics and Multivariate Analysis of Covariance were used for data analysis. RESULTS: The prevalence of stress among parents of children with CL/P was 21.4% [95% confidence interval (12.4, 30.4)]. The most common coping strategies were problem-focused (mean 58.15, standard deviation (SD) 7.75), followed by emotion-focused (mean 54.05, SD 4.78). The adjusted mean score for overall coping strategies was significantly different between stressed and non-stressed parents after adjustment for education, number of children, sex of child with CL/P, and cleft type [F (df) = 4.174 (3,74), P = .009]. There was a significant mean difference between stressed and non-stressed parents for avoidant coping strategies [P = .003]. Problem-focused and emotion-focused coping strategies did not differ after Bonferroni correction. CONCLUSIONS: Around a fifth of parents caring for children with CL/P experienced stress and avoidant coping strategies were more common among stressed parents. Multi-disciplinary team care should provide social support to parents of children with CL/P.
RESUMO
OBJECTIVE: To investigate the anxiety among mothers whom their babies have failed test results in the first stage of Universal Neonatal Hearing Screening Program. PATIENTS AND METHODS: A cross-sectional study was carried out on mothers whom their baby have positive test results in the first stage of Universal Neonatal Hearing Screening Program. Face to face interview was conducted to obtain data on sociodemographic profiles, knowledge about hearing loss and past medical history. Symptoms experienced by the mothers due to positive hearing test results and level of anxiety were measured by using the Malay translation Beck Anxiety Inventory questionnaire. These mothers were then given an appointment to come for the second screening six weeks after the first screening. The same questionnaire was given to them before the start of the second screening. SPSS version 11.5 was used for data entry and analysis. Wilcoxon signed Rank Test was used to compare the level of anxiety between the first and second screening. RESULTS: From a total of 78 mothers who were participated during the first screening, 50 of them have completed the study at the second screening (response rate=64%). Fifty-two percent of them knew about the hearing screening before hand. Ninety-six percent of the mothers became alert about their child response towards sounds after they knew that their child had failed the first hearing screening. During the first screening, 74% of the mothers felt mild anxiety which was decreased to 68% before the mothers undergone the second screening. Moderate anxiety was felt by 10% of the mothers during both the first and second screening. There were 8% of the mothers having severe anxiety during the first screening but have reduced to half (4%) before the mothers undergone the second screening. The anxiety level was significantly less before the second screening with the median score of 5 (IQR: 13.0) compared to after the first screening (8, IQR=14.25); p=0.001. CONCLUSIONS: There are considerable portion of the mothers of false-positive test result during Universal Neonatal Hearing Screening Program experienced unacceptable anxiety. This group of mothers needs to be identified and given a necessary help.