Parents' Participation in Managing Their Children's Postoperative Pain at Home: An Integrative Literature Review.

OBJECTIVES: This integrative review aimed to synthesize and critically evaluate the methodological quality of the evidence on parent's participation in managing their children's postoperative pain at home. DESIGN: Integrative review. DATA SOURCES: To locate relevant articles, two reviewers independently searched four electronic databases systematically using predefined inclusion and exclusion criteria. REVIEW/ANALYSIS METHODS: The methodological quality of 23 eligible studies was critically appraised using published evaluation criteria. A qualitative content analysis was then conducted to synthesize findings of the studies to identify thematic trends and factors on the nature of parents' participation and ability to effectively manage their children's pain at home. RESULTS: Methodological quality of most of the 15 surveys was adequate, whereas shortcomings were identified in 6 of the 7 clinical trials and the 1 qualitative study that were included in this review. The three themes identified pertained to parent use of informational sources, postoperative pain medications, and nonpharmacologic pain treatment approaches. Results indicate parents lack the information they need to effectively make use of pharmacologic and nonpharmacologic pain treatment approaches. CONCLUSIONS: There is need to improve communication between parents and health professionals before and after the child's surgery and to provide parents with specific verbal and written instructions and strategies on how to assess and manage their children's pain.

Violence by Burning Against Women and Girls: An Integrative Review.

Violence against women and girls by burning is a serious and confronting form of gender-based violence. Often, perpetrators aim to disfigure their victims or cause great pain, rather than kill them. Little is known about the characteristics of females who are subjected to violence by burning. This study aimed to review the literature concerning the prevalence, demographic profile, injury event, contributing factors and health outcomes for women and girls who have experienced burn-related violence. A search across five databases (PubMed, CINAHL, PsycINFO, Scopus and LILACS) was conducted up to April 2021 to identify original peer-review research, with a focus on violence by burning against women and girls. The review was guided by the five-stage approach to integrative reviews developed by Whittemore and Knafl (2005). Fifteen studies were identified. Victims were predominantly married, with low socio-economic status, limited education, and high emotional and financial dependency on their partners or families. Burn injuries were mostly caused by flame or acid, with significant morbidity or high mortality. Motives included family/marital issues or property/financial disputes. This review identified the limited evidence available in the peer-reviewed literature related to burn-related violence against women and girls worldwide. Findings suggest the need for further research to provide a clearer understanding of the complex issues involved.

Domestic burns that occurred during the COVID-19 pandemic in Brazil: a descriptive cross-sectional study.

BACKGROUND: Due to "stay at home" restrictions during the coronavirus disease 2019 (COVID-19) pandemic, people spent more time at home leading to an increase in home accidents, including burns. OBJECTIVE: To investigate the epidemiology of burns that occurred within homes during the COVID-19 pandemic in Brazil. DESIGN AND SETTINGS: This was a quantitative, descriptive, and cross-sectional study with a non-probabilistic sample. METHODS: Data were collected through the distribution of survey links on social networking sites and websites, and through email between December 2020 and February 2021. Participants were over 18 years of age, living in Brazil. Data analysis was performed using descriptive and dispersion statistics. RESULTS: A total of 939 adults (aged > 18 years) participated in this study. The mean age was 37.2 years (standard deviation [SD] = 12.5), 75.6% were female, 70.0% self-reported white skin color, 74% had completed higher education, and 28.1% had an income of 3 to 6 times the monthly minimum wage. A total of 21.6% suffered burns during the pandemic, 44.3% from a hot object. Approximately 49.3% never had access to a burn prevention campaign. CONCLUSION: It is necessary to develop burn prevention strategies that reach a wider population and to strengthen public policies to reduce the prevalence of domestic burns, especially during the pandemic.

Virtual Reality Therapy to Control Burn Pain: Systematic Review of Randomized Controlled Trials.

Virtual reality therapy has been shown to be an excellent alternative to non-pharmacological treatment for the control of burn pain. The objective was to evaluate the effects of virtual reality therapy on pain control in people who have suffered burns published in the scientific literature. Systematic review carried out as recommended by Cochrane. The search was carried out in the Embase, PubMed, Lilacs, and Cochrane Library databases, in the period from March 2021. Randomized clinical trials were included without language restriction and year of publication. The risk of bias was assessed using the Cochrane tool. Of the 3755 articles found, only 17 articles were selected for reading in full. Of these, only four articles met the inclusion criteria. The results of the studies showed that the use of virtual reality therapy reduced the intensity of pain in children and adolescents with burns, despite the fact that most results are not statistically significant. No selected study had a high risk of bias. Virtual reality therapy has been shown to be effective in controlling pain, reducing the time spent thinking about it and greater distraction during the procedures. However, most randomized clinical trials results were not statistically significant in at least one of the moments when pain was assessed. It is noteworthy that randomized clinical trials are still necessary to administer virtual reality therapy, especially in adults.

Family knowledge about the legal rights of children and adolescents with cancer.

OBJECTIVE: Identify the knowledge of family members of children and adolescents with cancer about their legal rights, difficulties, and concessions to ensure them. METHOD: Quantitative study, survey type, of intersectional design. A questionnaire drawn up by the researchers was applied in order to characterize the minor and their family and also to identify the family's knowledge about legal rights. Descriptive statistics were used to analyze data. RESULTS: 61 family members who participated know some more rights to the detriment of others and are especially motivated to search for information when negative impacts on the financial life increase, with repercussions beyond family health. CONCLUSION: the studied population requires more information and demands knowledge about some rights guaranteed by law. Guidance on rights empowers the family and guarantees the necessary care, searching to have an intersectoral action qualify care and assist in restructuring family dynamics to deal with chronic conditions.

[Profile of care delivered to children and adolescents victims of external causes of morbimortality, 2000-2006]. / Perfil dos atendimentos a crianças e adolescentes vítimas de causas externas de morbimortalidade, 2000-2006.

External causes are important factors of infant morbimortality and permanent impairments around the world. This quantitative, descriptive and cross-sectional study aimed to characterize emergency care for children and adolescents, aged from zero to 19 years old, victims of external causes of morbimortality in a university hospital in the countryside of São Paulo, Brazil, between the years of 2000 and 2006. By the end of the study, researchers found 6302 emergency attendances and most of the reported cases occurred among 15 to 19-year-old males adolescents, between Saturday and Monday, and from 7 to 12 pm. The main diagnoses of external causes were transport accidents, followed by assault. As a conclusion, it was found that the nurses' role in caring for patients who are recovering from accidents, violence and aggression is of fundamental importance for the families and community. It is essential in order to contribute to the planning and development of preventive and assisting actions.

Humanização como tema de ensino em um programa de pós-graduação: um relato de experiência / Humanization as a teaching topic in a postgraduate program: an experience report

Relatar a experiência vivenciada por enfermeiras mestrandas e docente de disciplina eletiva de universidade pública do interior de Minas Gerais. Método: estudo descritivo, do tipo relato de experiência, a fim de relatar reflexões críticas acerca da Política Nacional de Humanização (PNH) realizadas em disciplina de Programa de Pós-graduação stricto sensu ministrada entre agosto e novembro de 2023. Resultados: participaram sete enfermeiras, todas do sexo feminino, com vivências em instituições de saúde públicas e privadas. Foi possível compreender sobre diversos aspectos, e duas categorias foram elaboradas: Repercussões e entraves referentes à implantação plena da PNH; Humanização e ensino teórico-prático nas instituições formadoras. Também foi produzido um mapa mental sobre a temática. Conclusão: destaca-se a importância de discutir sobre humanização nas instituições de ensino para o aprofundamento do tema e disseminação do conhecimento associado ao olhar prático humanizado.(AU)

To report on the experience of master's degree nurses and a lecturer in an elective course at a public university in the interior of Minas Gerais. Method: this is a descriptive, experience-report type study, aimed at reporting critical reflections on the National Humanization Policy (NHP) carried out in a stricto sensu postgraduate program course taught between August and November 2023. Results: Seven nurses took part, all female, with experience in public and private healthcare institutions. It was possible to understand various aspects, and two categories were created: Repercussions and obstacles regarding the full implementation of the PNH; Humanization and theoretical-practical teaching in training institutions. A mind map on the subject was also produced. Conclusion: The importance of discussing humanization in educational institutions is highlighted in order to deepen the subject and disseminate knowledge associated with a practical humanized approach.(AU)

Relatar la experiencia de enfermeros de maestría y de un profesor en un curso electivo de una universidad pública del interior de Minas Gerais. Método: se trata de un estudio descriptivo, de tipo experiencia-informe, con el objetivo de relatar reflexiones críticas sobre la Política Nacional de Humanización (PNH) realizadas en una asignatura del programa de posgrado stricto sensu impartida entre agosto y noviembre de 2023. Resultados: Participaron siete enfermeras, todas del sexo femenino, con experiencia en instituciones de salud públicas y privadas. Se pudieron conocer diversos aspectos y se desarrollaron dos categorías: repercusiones y obstáculos en la plena implantación de la PNH; humanización y enseñanza teórico-práctica en las instituciones de formación. También se elaboró un mapa mental sobre el tema. Conclusión: Se destaca la importancia de discutir la humanización en las instituciones de enseñanza para profundizar el tema y difundir el conocimiento asociado a un abordaje humanizado práctico.(AU)

School reintegration of pediatric burn survivors: An integrative literature review.

BACKGROUND: The school is an essential context for children's social interaction with peers and to develop academic skills. Therefore, a fast reintegration can help children with burns to normalize their life. Thus, school reintegration is an important outcome after burns. The aim of this review was to systematically synthesize the literature addressing school reintegration programs of pediatric burns survivors. METHODS: Five electronic databases were searched independently by two reviewers. The search yielded 13 eligible publications. A qualitative content analysis was conducted. RESULTS: The two themes identified centered around (1) the roles, obstacles, and support for the different stakeholders (i.e., the child, parents and teacher) and (2) the contents of the school reintegration programs in which subthemes such as purpose, planning, essential elements, team, and effect were distinguished. The results show that return to school should start as soon as the child is admitted to the hospital and the program should acknowledge the different stakeholders' needs and tailor the program to these needs. CONCLUSION: The review emphasizes the necessity of an integrated school reintegration program empowering both the child, the parents and the teachers and tailored to the child's specific situation. Furthermore, it offers recommendations for further improvement of the field.

Domestic burns that occurred during the COVID-19 pandemic in Brazil: a descriptive cross-sectional study

Abstract BACKGROUND: Due to "stay at home" restrictions during the coronavirus disease 2019 (COVID-19) pandemic, people spent more time at home leading to an increase in home accidents, including burns. OBJECTIVE: To investigate the epidemiology of burns that occurred within homes during the COVID-19 pandemic in Brazil. DESIGN AND SETTINGS: This was a quantitative, descriptive, and cross-sectional study with a non-probabilistic sample. METHODS: Data were collected through the distribution of survey links on social networking sites and websites, and through email between December 2020 and February 2021. Participants were over 18 years of age, living in Brazil. Data analysis was performed using descriptive and dispersion statistics. RESULTS: A total of 939 adults (aged > 18 years) participated in this study. The mean age was 37.2 years (standard deviation [SD] = 12.5), 75.6% were female, 70.0% self-reported white skin color, 74% had completed higher education, and 28.1% had an income of 3 to 6 times the monthly minimum wage. A total of 21.6% suffered burns during the pandemic, 44.3% from a hot object. Approximately 49.3% never had access to a burn prevention campaign. CONCLUSION: It is necessary to develop burn prevention strategies that reach a wider population and to strengthen public policies to reduce the prevalence of domestic burns, especially during the pandemic.

Queimaduras em crianças durante a pandemia da COVID-19: Representação da mídia digital brasileira / Burns in children during the COVID-19 pandemic: Representation of Brazilian digital media

OBJETIVO: Analisar a representação de casos de queimaduras durante a pandemia no Brasil disponíveis na mídia digital. MÉTODO: Pesquisa documental com análise qualitativa dos dados. Dados obtidos de reportagens disponíveis na mídia digital brasileira, publicadas entre 11 de março de 2020 e 11 de março de 2022, em formato escrito, acerca de crianças de até 12 anos incompletos que sofreram queimaduras no Brasil durante a pandemia da COVID-19, independentemente de ser acidente ou violência. A ferramenta de busca utilizada foi o Google® a partir de combinações de palavras-chave. A análise temática indutiva foi utilizada para a interpretação dos dados. RESULTADOS: Foram selecionadas 179 matérias: 130 foram acidentes, predominantes na Região Sudeste. Do total, 66 casos descreveram a identidade do responsável, 76 revelaram a identificação das vítimas e 34 mostraram fotos do rosto. Houve predominância do sexo masculino (90 casos); 18 matérias relataram mais de uma criança envolvida no acontecimento. Três categorias foram elaboradas: Apresentação das matérias; Condições relacionadas às queimaduras domésticas; Queimaduras infantis: acidente ou violência?. CONCLUSÕES: As reportagens mostraram aumento no número de queimaduras em crianças durante a pandemia relacionadas, principalmente, ao distanciamento social, à supervisão inadequada dos pais, ao uso do álcool como medida de prevenção contra o Coronavírus e como item para cozinhar alimentos, e devido a mudanças na situação socioeconômica, como o aumento do preço do gás de cozinha. Também foram relatados casos de violência envolvendo queimaduras. Pode-se observar que a divulgação dos casos ocorreu de forma descritiva, informativa e preventiva.

OBJECTIVE: To analyze the representation of burn cases during the pandemic in Brazil available in digital media. METHODS: This is a documentary research with qualitative data analysis. The data were obtained from available articles in digital media published between March 11, 2020 and March 11, 2022, in written format, about children under the age of 12 years old that burned in Brazil during the COVID-19 pandemic, despite being accident or violence. The search tool used was Google® based on keyword combinations. The inductive thematic analysis was used for data interpretation. RESULTS: There were 179 articles selected: 130 were accidents, mainly in the Southeast Region. From the total, 66 describe the responsible person's identity, 76 identify the victim and 34 show their face in photos. The majority was male (90 cases); 18 news reported more than one child involved in the situation. Three categories were elaborated: Presentation of the articles; Conditions related to domestic burns; Childhood burns: accident or violence?. CONCLUSIONS: The reports showed an increase in the number of burns in children during the pandemic, mainly related to social distancing, inadequate supervision of parents, alcohol use, as a preventive measure against coronavirus and as an item for cooking food, and due to changes in socioeconomic situation, such as the increase in the price of cooking gas. Cases of violence involving burns were also reported. It can be observed that the dissemination of cases occurred in a descriptive, informative and preventive way.

Classificação do nível de complexidade assistencial dos pacientes em hospital oncológico / Clasificación del nivel de complejidad asistencial de los pacientes en un hospital oncológico / Levels of care complexity classification of patients in an oncology hospital

RESUMO Objetivo Classificar o nível de complexidade assistencial requerido da Enfermagem por pacientes oncológicos internados. Método Estudo observacional, seccional, de abordagem quantitativa, realizado diariamente com pacientes oncológicos em unidades de internação de Oncologia Clínica e Cirúrgica de um hospital de referência ao tratamento de câncer durante o período de três meses. A coleta foi realizada por meio da aplicação de um questionário semiestruturado e instrumento de classificação de pacientes de Fugulin et al. (2007). Resultados Foram entrevistados 242 pacientes e realizadas 1309 avaliações com maior quantidade de indivíduos do sexo masculino e que possuíam o Ensino Fundamental incompleto. Houve maior ocorrência de câncer no sistema gastrintestinal e sistema reprodutor feminino, respectivamente, na internação de Oncologia Clínica e Cirúrgica, com maior taxa de ocupação nos meses de junho e de maio, nessa ordem. O comportamento observado foi bastante similar em ambas as internações, correspondendo, respectivamente, a pacientes que se enquadravam nos cuidados mínimos (33,1%; 35,1%) e intermediários (30,2%; 37,5%). Conclusão e implicações para a prática O sistema de classificação de pacientes e dimensionamento em Enfermagem na área oncológica merece maiores discussões e carece de instrumentos validados capazes de representar a real situação do cuidado.

RESUMEN Objetivo Clasificar el nivel de complejidad asistencial requerido en Enfermería por pacientes oncológicos hospitalizados. Método Estudio observacional, seccional, con enfoque cuantitativo, realizado diariamente con pacientes oncológicos en unidades de internación de Oncología Clínica y Quirúrgica de un hospital de referencia para el tratamiento del cáncer durante un período de tres meses. La recolección de datos se realizó mediante la aplicación de un cuestionario semiestructurado y un instrumento de clasificación de pacientes de Fugulin et al. (2007). Resultados Se entrevistaron 242 pacientes y se realizaron 1309 evaluaciones con mayor número de individuos del sexo masculino que tenían la Enseñanza Básica incompleta. Hubo mayor ocurrencia de cáncer en el aparato digestivo y aparato reproductor femenino, respectivamente, en el ingreso de Oncología Clínica y Quirúrgica, con la mayor tasa de ocupación en los meses de junio y mayo, en ese orden. El comportamiento observado fue bastante similar en ambas hospitalizaciones, correspondiendo, respectivamente, a pacientes que se encontraban en cuidados mínimos (33,1%; 35,1%) e intermedios (30,2%; 37,5%). Conclusión e implicaciones para la práctica El sistema de clasificación y dimensionamiento de pacientes en Enfermería en el área de oncología merece mayor discusión y carece de instrumentos validados capaces de representar la situación real del cuidado.

ABSTRACT Objective To classify the level of complexity of care required from Nursing by hospitalized oncology patients. Methods This is an observational, sectional, quantitative study, carried out daily with oncology patients in the Clinical and Surgical Oncology inpatient units of a cancer treatment reference hospital during a three-month period. The collection was carried out through the application of a semi-structured questionnaire and an instrument of patient classification by Fugulin et al. (2007). Results 242 patients were interviewed and 1309 evaluations were performed, with a greater number of males and those with incomplete elementary school education. There was a higher occurrence of cancer in the gastrointestinal system and female reproductive system, respectively, in the admission of Clinical and Surgical Oncology, with higher occupancy rate in the months of June and May, in that order. The behavior observed was quite similar in both admissions, corresponding, respectively, to patients who fell into minimal (33.1%; 35.1%) and intermediate care (30.2%; 37.5%). Conclusion and implications for practice The patient classification and dimensioning system in Nursing in oncology deserves further discussion and lacks validated instruments capable of representing the real situation of care.

Childhood cancer: Impact on parents' marital dynamics.

PURPOSE: To explore and analyze how marital relationships are affected by the crisis generated by the diagnosis and intensive regimens required in the treatment of children with cancer. METHOD: A descriptive study with a qualitative data analysis was conducted. In-depth individual interviews were carried out with 18 married biological parents of children with cancer. Data was analyzed using an inductive content analysis. RESULTS: The following themes represented the couples' experiences: (1) Abrupt changes after the child's diagnosis resulting in marital strain and need to focus on the present; (2) United but distant; (3) Exchanging roles; (4) Being parents all the time; (5) Focusing on the positive side of the experience; (6) Rescuing the marital relationship. The marital relationship of parents with a child/adolescent who has cancer may undergo either positive or negative changes, with intimacy and sexuality being negatively affected by the disease. Although the relationship may be more fragile after the illness, increased mutual commitment was observed in some couples. CONCLUSIONS: Results indicate that health professionals should include parents as an important focus of their care. The establishment of solid bonds to enhance couples' communication is recommended as a way to provide anticipatory guidance to address the identified changes in marital relationships. The opportunities for dialog and partnership help couples to target their needs and recognize their strengths in order to mitigate the impact of a child's illness.

Family knowledge about the legal rights of children and adolescents with cancer / Conocimiento familiar sobre los derechos legales de niños y adolescentes con cáncer / Conhecimento familiar sobre direitos legais de crianças e adolescentes com câncer

ABSTRACT Objective: Identify the knowledge of family members of children and adolescents with cancer about their legal rights, difficulties, and concessions to ensure them. Method: Quantitative study, survey type, of intersectional design. A questionnaire drawn up by the researchers was applied in order to characterize the minor and their family and also to identify the family's knowledge about legal rights. Descriptive statistics were used to analyze data. Results: 61 family members who participated know some more rights to the detriment of others and are especially motivated to search for information when negative impacts on the financial life increase, with repercussions beyond family health. Conclusion: the studied population requires more information and demands knowledge about some rights guaranteed by law. Guidance on rights empowers the family and guarantees the necessary care, searching to have an intersectoral action qualify care and assist in restructuring family dynamics to deal with chronic conditions.

RESUMEN Objetivo: Identificar el conocimiento de familiares de niños y adolescentes con cáncer sobre sus derechos legales, dificultades y facilidades para asegurarlos. Método: Estudio cuantitativo, del tipo survey, de delineamiento interseccional. Aplicó encuesta elaborada por las investigadoras para caracterización del menor y su familia, e identificación del conocimiento del familiar sobre derechos legales. Utilizó estadística descriptiva para analizar los datos. Resultados: Participaron 61 familiares. Los familiares conocen más algunos derechos que otros, siendo especialmente motivados a buscar por informaciones cuando aumentan los impactos negativos en la vida financiera, con repercusiones para además de la salud familiar. Conclusión: La población estudiada requiere más informaciones y demanda por conocimientos sobre algunos derechos asegurados por ley. La orientación cuanto a los derechos empodera las familias y garantiza los cuidados necesarios, siendo preciso actuación intersectorial para calificar el cuidado y auxiliar en la reestructuración de la dinámica familiar para lidiar con la condición crónica.

RESUMO Objetivo: identificar o conhecimento de familiares de crianças e adolescentes com câncer sobre os seus direitos legais, dificuldades e facilidades para assegurá-los. Método: Estudo quantitativo, do tipo survey, de delineamento interseccional. Aplicou-se questionário elaborado pelas pesquisadoras para caracterização do menor e de sua família, e identificação do conhecimento do familiar sobre os direitos legais. Utilizou-se estatística descritiva para analisar os dados. Resultados: Participaram 61 familiares. Os familiares conhecem mais alguns direitos em detrimento de outros, sendo especialmente motivados a buscar por informações quando aumentam os impactos negativos na vida financeira, com repercussões para além da saúde familiar. Conclusão: a população estudada requer mais informações e demanda por conhecimentos sobre alguns direitos assegurados por lei. A orientação quanto aos direitos empodera as famílias e possibilita a garantia dos cuidados necessários, sendo preciso atuação intersetorial para qualificar o cuidado e auxiliar na reestruturação da dinâmica familiar para lidar com a condição crônica.

Family knowledge about the legal rights of children and adolescents with cancer / Conocimiento familiar sobre los derechos legales de niños y adolescentes con cáncer / Conhecimento familiar sobre direitos legais de crianças e adolescentes com câncer

ABSTRACT Objective: Identify the knowledge of family members of children and adolescents with cancer about their legal rights, difficulties, and concessions to ensure them. Method: Quantitative study, survey type, of intersectional design. A questionnaire drawn up by the researchers was applied in order to characterize the minor and their family and also to identify the family's knowledge about legal rights. Descriptive statistics were used to analyze data. Results: 61 family members who participated know some more rights to the detriment of others and are especially motivated to search for information when negative impacts on the financial life increase, with repercussions beyond family health. Conclusion: the studied population requires more information and demands knowledge about some rights guaranteed by law. Guidance on rights empowers the family and guarantees the necessary care, searching to have an intersectoral action qualify care and assist in restructuring family dynamics to deal with chronic conditions.

RESUMEN Objetivo: Identificar el conocimiento de familiares de niños y adolescentes con cáncer sobre sus derechos legales, dificultades y facilidades para asegurarlos. Método: Estudio cuantitativo, del tipo survey, de delineamiento interseccional. Aplicó encuesta elaborada por las investigadoras para caracterización del menor y su familia, e identificación del conocimiento del familiar sobre derechos legales. Utilizó estadística descriptiva para analizar los datos. Resultados: Participaron 61 familiares. Los familiares conocen más algunos derechos que otros, siendo especialmente motivados a buscar por informaciones cuando aumentan los impactos negativos en la vida financiera, con repercusiones para además de la salud familiar. Conclusión: La población estudiada requiere más informaciones y demanda por conocimientos sobre algunos derechos asegurados por ley. La orientación cuanto a los derechos empodera las familias y garantiza los cuidados necesarios, siendo preciso actuación intersectorial para calificar el cuidado y auxiliar en la reestructuración de la dinámica familiar para lidiar con la condición crónica.

RESUMO Objetivo: identificar o conhecimento de familiares de crianças e adolescentes com câncer sobre os seus direitos legais, dificuldades e facilidades para assegurá-los. Método: Estudo quantitativo, do tipo survey, de delineamento interseccional. Aplicou-se questionário elaborado pelas pesquisadoras para caracterização do menor e de sua família, e identificação do conhecimento do familiar sobre os direitos legais. Utilizou-se estatística descritiva para analisar os dados. Resultados: Participaram 61 familiares. Os familiares conhecem mais alguns direitos em detrimento de outros, sendo especialmente motivados a buscar por informações quando aumentam os impactos negativos na vida financeira, com repercussões para além da saúde familiar. Conclusão: a população estudada requer mais informações e demanda por conhecimentos sobre alguns direitos assegurados por lei. A orientação quanto aos direitos empodera as famílias e possibilita a garantia dos cuidados necessários, sendo preciso atuação intersetorial para qualificar o cuidado e auxiliar na reestruturação da dinâmica familiar para lidar com a condição crônica.

Health-Related Quality of Life in adolescent survivors of burns: Agreement on self-reported and mothers' and fathers' perspectives.

AIM: This study examined the agreement on self-reported Health-Related Quality of Life (HRQOL) between adolescents with burns and their mother's and father's observation at 6 and 18 months after the burn. Moreover, factors potentially influencing discrepancies between the adolescent and proxy reports were examined. METHODS: Children with burns (11-18 years old) and their mother and father were invited to participate. A total of 54 adolescents aged 11 years or older filled out the American Burn Association/Shriners Hospitals for Children Burn Outcomes Questionnaire (BOQ). Descriptive and correlational analyses were performed. RESULTS: The physical functioning scores showed to be optimal in almost all participants (99%) and across the three informants. Adolescents reported better functioning than their fathers and mothers on most of the scales. On average the correlations between self-reports and proxy reports were moderate to good. Higher parental traumatic stress scores were linked to less favorable parent-reported burn outcomes. CONCLUSION: Overall, this study showed that a large proportion of the parents had similar views on the adolescents physical functioning, but disparities emerged also, mainly in psychosocial scales. The discrepancies between self- and parent reports should be discussed when they have a role in treatment decisions. Preferably, besides parent-reports, adolescents' self-reports should be included in clinical assessments and treatment decisions, as parental traumatic stress symptoms are a possible factor influencing parental observations.

Sexuality in burn victims: an integrative literature review.

AIMS: To analyze and synthesize knowledge concerning sexuality in adult burn victims through an integrative literature review. METHOD: Two researchers independently searched six electronic databases (PUBMED, LILACS, ISI Web of Science, PSYCINFO, CINAHL and EMBASE) and also performed a hand search using the following descriptors, in different combinations: burn, sexuality, gender identity, sexual behavior and sexual factors, in order to identify the articles published in English, Portuguese or Spanish, in the last 20 years. A total of 1781 articles were found and 22 were selected based on the inclusion and exclusion criteria. RESULTS: The findings were organized into two categories that influence sexuality: (1) studies where the main purpose was to assess sexuality in burn victims; (2) studies that indirectly assess sexuality. CONCLUSION: The synthesis of the knowledge concerning sexuality in burn victims showed that sexual dysfunction can be related to the younger ages, TBSA > 20%, burns on the genitalia and on exposed areas, prolonged length of hospital stay, avoidance coping, and mental disorders. The multidisciplinary team should be prepared to integrate sexuality as an important variable in the continuing treatment of burn patients.

Cultural adaptation to Brazil of the questionnaire Costs of caring for children with cancer.

OBJECTIVE: to present the cultural adaptation of the questionnaire Costs of caring for children with cancer, offering a valid and reliable tool to assess the economic repercussions of childhood cancer for Brazilian families. METHOD: it is a methodological research with a cross-sectional design. The methodological framework to validate the questionnaire was a combined process that included seven steps: translation to Portuguese; first translated consensus version; evaluation by Expert Committee; consensus on the Expert Committee version; back-translation; consensus of back-translated versions; semantic validation. The study was conducted in two phases: phase one was the translation and back-translations process, with five expert committee members. Phase two was the semantic validation, with 24 participants, who answered an instrument about their impressions of the questionnaire and suggested modifications. RESULTS: in phase one, items were included, excluded, and replaced to make the content equivalent and valid for use with Brazilian context. In phase two, the majority of the participants were mothers, who made suggestions about the relevance and clarity of the items in the questionnaire. CONCLUSIONS: the authors discussed these recommendations and made adaptations, turning the questionnaire into a valid and reliable tool for application.

Conhecimento de profissionais de saúde acerca do atendimento inicial intra-hospitalar ao paciente vítima de queimaduras / Conocimiento de profesionales de salud acerca de la atención inicial intrahospitalaria al paciente víctima de quemaduras / Knowledge of health professionals concerning initial in-hospital care for burn victims

Resumo OBJETIVO Descrever o conhecimento de profissionais de saúde acerca do atendimento inicial intra-hospitalar ao paciente vítima de queimaduras. MÉTODO Estudo descritivo, de abordagem qualitativa, realizado em três unidades que prestam atendimento de urgência e emergência, localizadas em cidade do interior de Minas Gerais. A coleta e a análise dos dados ocorreram simultaneamente, no período de setembro a outubro de 2017. As entrevistas semiestruturadas, audiogravadas e transcritas na íntegra foram submetidas à análise de conteúdo dedutiva. RESULTADOS Participaram 31 profissionais de saúde, entre médicos, fisioterapeutas e profissionais de enfermagem. Foram elaboradas três categorias: "Experiências com queimaduras", "Conhecimento sobre as condutas assistenciais" e "Transformação do conhecimento". Considerações finais A maioria dos profissionais demonstrou conhecimento básico, inadequado ou desconhecimento acerca do atendimento ao paciente vítima de queimaduras, mesmo possuindo experiências profissionais, pessoais ou acadêmicas na temática. Espera-se que as evidências encontradas neste estudo contribuam para embasar ações de capacitação destes profissionais.

Resumen OBJETIVO: Describir el conocimiento de profesionales de salud acerca de la atención inicial intrahospitalaria al paciente víctima de quemaduras. Método: Estudio descriptivo, de abordaje cualitativo, realizado en tres unidades de atención de urgencia y emergencia ubicadas en el interior de Minas Gerais. La colecta y el análisis de datos ocurrieron simultáneamente, entre septiembre y octubre de 2017. Las entrevistas semiestructuradas, audiogravadas y integralmente transcritas, fueron sometidas al análisis de contenido deductivo. Resultados: Participaron 31 profesionales de salud, entre médicos, fisioterapeutas y profesionales de enfermería. Se elaboraron tres categorías: "Experiencias con quemaduras", "Conocimiento sobre las conductas asistenciales" y "Transformación del conocimiento". Consideraciones finales: La mayoría de los profesionales demostró conocimiento básico, inadecuado o desconocimiento acerca de la atención al paciente víctima de quemaduras, aun teniendo experiencias profesionales, personales o académicas en el tema. Se espera que las evidencias encontradas en este estudio contribuyan a elaborar acciones de capacitación de estos profesionales.

Abstract OBJECTIVE Describe the knowledge of health professionals in relation to initial in-hospital care for burn victims. METHOD Descriptive study, with a qualitative approach, conducted in three units that provide urgent and emergency care, in a city in the state of Minas Gerais. The data collection and analysis occurred simultaneously from September to October 2017. The audio-recorded, semi-structured interviews were transcribed in whole and underwent a deductive content analysis. RESULTS Thirty-one health professionals, including physicians, physical therapists and nursing professionals, participated in the study. Three categories were created: "Experience with burns", "Knowledge of care protocols", and "Transformation of knowledge". FINAL CONSIDERATIONS Even though the professionals had professional, personal or academic knowledge or experience in caring for burn victims, most of them had basic, inadequate or no knowledge in this area. It is hoped that the findings of this study will help lay the foundation for capacity-building initiatives for these professionals.

Children with Type 1 Diabetes Mellitus and their friends: the influence of this interaction in the management of the disease.

Friends' support is a key element in the management of Type 1 Diabetes Mellitus. This study describes the influence of friends on the lives of children with Diabetes Mellitus and its implications for managing the disease. Empirical data were collected through semi-structured interviews, supported with the use of puppets, with 19 children aged between seven and 12 years old. The qualitative analysis of the testimonies allowed understanding the phenomenon from two perspectives: the attitude of friends towards the child, positively or negatively affecting the disease's management, and the attitude of the child toward friends. The knowledge of those involved and the interaction between the children with DM1 and their friends impacts the management of the disease. Understanding the implications of these interactions contributes to the delivery of qualified nursing care to this population.

Characterization of the hospitalization of children and adolescents with cancer.

This study characterizes hospitalizations of children and adolescents with cancer, from 1998 to 2008, to describe the clientele in follow-up in the Regional Health Area of Ribeirão Preto, SP, Brazil. Morbidity was surveyed in Ribeirão Preto, SP, Brazil, using hospitalization data from the Unified Health System. The studied variables included: origin, residence, year when care was provided, deaths, age and gender of patients diagnosed with child and adolescent cancer according to the International Classification of Disease 10th edition, Chapter II. The results indicated 7,234 hospitalizations of individuals younger than 18 years old diagnosed with neoplasm, 95% of which were from Ribeirão Preto, SP, Brazil, and the remainder from cities located in all five of the Brazilian regions. Identifying the characteristics of patients contributes to the identification of information to broaden the sensitization of health professionals concerning the need for secondary preventive actions, such as early diagnosis.