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1.
BMC Med Educ ; 22(1): 637, 2022 Aug 23.
Artigo em Inglês | MEDLINE | ID: mdl-35996125

RESUMO

Training to enhance healthcare practitioners' capabilities in engaging people in sensitive and end-of life-related conversations is in demand. However, evaluations have either not measured, or found very limited impact on actual practice and patient experience. Training effectiveness is improved when it is based on in-depth evidence, reflects the complexity of real-life interactions, and instils principles adaptable to everyday practice. A relatively new source of in-depth evidence and practice-relevant insights on healthcare interactions is conversation analytic research, a form of observational analysis of real-life interactions. However, conversation analytic research findings have largely been disseminated by and for scientists, rather than clinicians and trainers. We used conversation analytic evidence to develop resources for use by healthcare trainers. The aim was to increase training's evidence-base and authenticity. We further aimed to develop resources applicable to working with learners ranging from novices to advanced practitioners. METHODS:  Using an intervention development approach, we created online video-clips and supplementary written materials for professionals who deliver training, supervision, and support in healthcare communication for staff and students. The materials were reviewed by an advisory group comprising clinicians, lay consultees, educators, and researchers, and piloted by trainers in UK universities, NHS organisations and independent hospices. We refined materials based on their feedback. RESULTS:  The resulting 'RealTalk' resources focus on practices for communicating with patients and their companions about end-of-life and prognosis. Two core training modules were developed, each comprising several patient case studies featuring video-clips from real-life healthcare consultations. The clips featured practices that patients and experienced practitioners use in approaching end-of-life matters. The case studies also included evidence-based descriptions of observable practices and the principles underlying these, alongside transcripts and case synopses. CONCLUSIONS:  RealTalk training resources aim to facilitate evidence-based, experiential and reflective learning, focusing on communication challenges, practices and principles for end-of-life-related interactions. The resources are designed for use by trainers for delivering all levels of training, from introductory to advanced, in both formal and informal training settings. Our development process may serve as a blueprint for the production of future evidence-based training resources based on conversation analytic research.


Assuntos
Comunicação , Atenção à Saúde , Competência Clínica , Morte , Humanos , Apoio Social
2.
BMC Palliat Care ; 20(1): 186, 2021 Dec 08.
Artigo em Inglês | MEDLINE | ID: mdl-34876096

RESUMO

BACKGROUND: There is growing recognition that a diverse range of healthcare professionals need competence in palliative approaches to care. Effective communication is a core component of such practice. This article informs evidence-based communication about illness progression and end of life through a rapid review of studies that directly observe how experienced clinicians manage such discussions. METHODS: The current rapid review updates findings of a 2014 systematic review, focussing more specifically on evidence related to illness progression and end-of-life conversations. Literature searches were conducted in nine bibliographic databases. Studies using conversation analysis or discourse analysis to examine recordings of actual conversations about illness progression or end of life were eligible for inclusion in the review. An aggregative approach was used to synthesise the findings of included studies. RESULTS: Following screening, 26 sources were deemed to meet eligibility criteria. Synthesis of study findings identified the structure and functioning of ten communication practices used in discussions about illness progression and end-of-life. CONCLUSION: The ten practices identified underpin five evidence-based recommendations for communicating with patients or family members about illness progression and end of life.


Assuntos
Comunicação , Cuidados Paliativos , Morte , Família , Pessoal de Saúde , Humanos
3.
Health Commun ; 36(14): 2010-2021, 2021 12.
Artigo em Inglês | MEDLINE | ID: mdl-32959710

RESUMO

The presence of companions adds complexity to healthcare interactions. Few studies have characterized challenges arising when interactions involve healthcare professionals (HCPs), patients, and companions, or how those challenges are managed. Using conversation analysis, we examined recorded episodes where patients and companions adopt divergent positions on healthcare measures (e.g., walking aids, homecare, medications). We found nine such episodes within a dataset of 37 palliative care consultations with 37 patients, their companions, and ten healthcare practitioners (HCPs) - doctors, physiotherapists and occupational therapists. Palliative care is one of several healthcare domains where companions substantially contribute to care, consultations, and decision making. We propose that, when patients and companions adopt divergent positions, HCPs face a 'dilemma of affiliation' wherein taking a position on the healthcare measure (e.g., recommending it) entails siding with one party, against the other. By examining what happens in the face of patient-companion divergence, we characterize HCPs' strategies and substantiate our proposal that these reflect an underlying dilemma. We show that: HCPs do not immediately take a position on the healthcare measure after patient-companion divergence emerges; and when HCPs take a position later in the consultation, they do so without ostensibly siding with the party who previously supported the healthcare measure. Further, once an HCP takes a position, the party who supports the measure can treat the HCP as an ally. We offer insights and propose implications for: palliative care; the interactional complexities of healthcare decision-making; and consultations in which companions participate.


Assuntos
Amigos , Médicos , Comunicação , Atenção à Saúde , Pessoal de Saúde , Humanos
4.
Palliat Med ; 31(8): 707-715, 2017 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-28590153

RESUMO

BACKGROUND: Research using video recordings can advance understanding of healthcare communication and improve care, but making and using video recordings carries risks. AIM: To explore views of hospice patients, carers and clinical staff about whether videoing patient-doctor consultations is acceptable for research and training purposes. DESIGN: We used semi-structured group and individual interviews to gather hospice patients, carers and clinical staff views. We used Braun and Clark's thematic analysis. SETTING/PARTICIPANTS: Interviews were conducted at one English hospice to inform the development of a larger video-based study. We invited patients with capacity to consent and whom the care team judged were neither acutely unwell nor severely distressed (11), carers of current or past patients (5), palliative medicine doctors (7), senior nurses (4) and communication skills educators (5). RESULTS: Participants viewed video-based research on communication as valuable because of its potential to improve communication, care and staff training. Video-based research raised concerns including its potential to affect the nature and content of the consultation and threats to confidentiality; however, these were not seen as sufficient grounds for rejecting video-based research. Video-based research was seen as acceptable and useful providing that measures are taken to reduce possible risks across the recruitment, recording and dissemination phases of the research process. CONCLUSION: Video-based research is an acceptable and worthwhile way of investigating communication in palliative medicine. Situated judgements should be made about when it is appropriate to involve individual patients and carers in video-based research on the basis of their level of vulnerability and ability to freely consent.


Assuntos
Cuidadores/psicologia , Hospitais para Doentes Terminais , Capacitação em Serviço , Corpo Clínico/psicologia , Cuidados Paliativos , Encaminhamento e Consulta , Pesquisa , Gravação de Videoteipe/ética , Feminino , Humanos , Entrevistas como Assunto , Masculino , Pesquisa Qualitativa
5.
Health Expect ; 20(6): 1228-1247, 2017 12.
Artigo em Inglês | MEDLINE | ID: mdl-28520201

RESUMO

BACKGROUND: Shared decision making (SDM) is generally treated as good practice in health-care interactions. Conversation analytic research has yielded detailed findings about decision making in health-care encounters. OBJECTIVE: To map decision making communication practices relevant to health-care outcomes in face-to-face interactions yielded by prior conversation analyses, and to examine their function in relation to SDM. SEARCH STRATEGY: We searched nine electronic databases (last search November 2016) and our own and other academics' collections. INCLUSION CRITERIA: Published conversation analyses (no restriction on publication dates) using recordings of health-care encounters in English where the patient (and/or companion) was present and where the data and analysis focused on health/illness-related decision making. DATA EXTRACTION AND SYNTHESIS: We extracted study characteristics, aims, findings relating to communication practices, how these functioned in relation to SDM, and internal/external validity issues. We synthesised findings aggregatively. RESULTS: Twenty-eight publications met the inclusion criteria. We sorted findings into 13 types of communication practices and organized these in relation to four elements of decision-making sequences: (i) broaching decision making; (ii) putting forward a course of action; (iii) committing or not (to the action put forward); and (iv) HCPs' responses to patients' resistance or withholding of commitment. Patients have limited opportunities to influence decision making. HCPs' practices may constrain or encourage this participation. CONCLUSIONS: Patients, companions and HCPs together treat and undertake decision making as shared, though to varying degrees. Even for non-negotiable treatment trajectories, the spirit of SDM can be invoked through practices that encourage participation (eg by bringing the patient towards shared understanding of the decision's rationale).


Assuntos
Comunicação , Tomada de Decisões , Participação do Paciente , Humanos , Relações Médico-Paciente , Pesquisa
6.
Clin Rehabil ; 29(11): 1064-76, 2015 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-25587088

RESUMO

OBJECTIVES: To identify interventions that aim to reduce dependency in activities of daily living (ADL) in homecare service users. To determine: content; effectiveness in improving ability to perform ADL; and whether delivery by qualified occupational therapists influences effectiveness. DATA SOURCES: The Cochrane Central Register of Controlled Trials, MEDLINE, EMBASE, AMED, CINAHL, PsycINFO, OTseeker, PEDro, Web of Science, CIRRIE, and ASSIA. REVIEW METHODS: We included: randomised controlled trials, non-randomised controlled trials and controlled before and after studies. Two reviewers independently screened studies for inclusion, assessed risk of bias and extracted data. A narrative synthesis of the findings was conducted. RESULTS: Thirteen studies were included, totalling 4975 participants. Ten (77%) were judged to have risk of bias. Interventions were categorised as those termed 're-ablement' or 'restorative homecare' (n=5/13); and those involving separate components which were not described using this terminology (n=8/13). Content of the intervention and level of health professional input varied within and between studies. Effectiveness on ADL: eight studies included an ADL outcome, five favoured the intervention group, only two with statistical significance, both these were controlled before and after studies judged at high risk of bias. ADL outcome was reported using seven different measures. Occupational therapy: there was insufficient evidence to determine whether involvement of qualified occupational therapists influenced effectiveness. CONCLUSION: There is limited evidence that interventions targeted at personal ADL can reduce homecare service users' dependency with activities, the content of evaluated interventions varies greatly.


Assuntos
Atividades Cotidianas , Dependência Psicológica , Terapia por Exercício/métodos , Serviços de Assistência Domiciliar/organização & administração , Terapia Ocupacional/métodos , Adulto , Fatores Etários , Idoso , Estudos de Casos e Controles , Feminino , Humanos , Vida Independente , Masculino , Pessoa de Meia-Idade , Equipe de Assistência ao Paciente/organização & administração , Prognóstico , Ensaios Clínicos Controlados Aleatórios como Assunto , Recuperação de Função Fisiológica , Medição de Risco , Resultado do Tratamento
7.
Ann Emerg Med ; 64(6): 640-8, 2014 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-24746844

RESUMO

STUDY OBJECTIVE: Optimal practices for recruiting, consenting, and randomizing patients, and delivering treatment in out-of-hospital ultra-acute stroke trials, remain unclear. We aim to identify key barriers and facilitators relevant to the design and conduct of ambulance-based stroke trials and to formulate preliminary recommendations for the design of future trials. METHODS: Using semistructured interviews, we investigated the experiences and challenges faced by paramedics who took part in a randomized controlled trial in suspected ultra-acute stroke, the Rapid Intervention With Glyceryl Trinitrate in Hypertensive Stroke Trial (RIGHT), in which recruitment, consent, randomization, assessment, and treatment were delivered by paramedics before hospitalization. RESULTS: We purposively selected a diversity sample of 14 of the 78 paramedics who participated in RIGHT. We identified 13 themes (7 facilitators and 6 barriers to out-of-hospital stroke research). A simple stroke diagnostic tool, use of proxy consent on behalf of patients, and straightforward trial processes were identified as the main facilitators. Recruitment became easier with each new randomization attempt. Key barriers reported were informed consent in the emergency setting, lack of institutional support for research, learning curve and rarity (each paramedic treats only a few eligible patients), and difficulty in attending training sessions. Interviewed paramedics were motivated to participate in research. CONCLUSION: Ultra-acute stroke research in the out-of-hospital environment is feasible, but important barriers need to be addressed. Proxy consent by paramedics addresses some of the difficulties with the consent process in the out-of-hospital setting.


Assuntos
Atitude do Pessoal de Saúde , Pesquisa Biomédica , Serviços Médicos de Emergência , Auxiliares de Emergência , Acidente Vascular Cerebral/tratamento farmacológico , Humanos , Hipertensão/complicações , Entrevistas como Assunto , Papel Profissional , Pesquisa Qualitativa , Acidente Vascular Cerebral/etiologia , Consentimento do Representante Legal
8.
Transfusion ; 53(10 Pt 2): 2575-84, 2013 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-23721256

RESUMO

BACKGROUND: Human parvovirus 4 (ParV4), a newly described member of the family Parvoviridae, like B19V, has been found in pooled plasma preparations. The extent, and significance, of ParV4 exposure in UK blood donors remain to be determined and reliable detection of ParV4 immunoglobulin (Ig)G, using validated methods, is needed. STUDY DESIGN AND METHODS: With ParV4 virus-like particles a ParV4 IgG time-resolved fluorescence immunoassay (TRFIA) was developed. There is no gold standard or reference assay for measuring ParV4 IgG and the utility of the TRFIA was first examined using a panel of sera from people who inject drugs (PWIDS)--a high-prevalence population for ParV4 infection. Western blotting was used to confirm the specificity of TRFIA-reactive sera. Two cohorts of UK blood donor sera comprising 452 sera collected in 1999 and 156 sera collected in 2009 were tested for ParV4 IgG. Additional testing for B19V IgG, hepatitis C virus antibodies (anti-HCV), and ParV4 DNA was also undertaken. RESULTS: The rate of ParV4 IgG seroprevalence in PWIDS was 20.7% and ParV4 IgG was positively associated with the presence of anti-HCV with 68.4% ParV4 IgG-positive sera testing anti-HCV-positive versus 17.1% ParV4 IgG-negative sera. Overall seropositivity for ParV4 IgG, in 608 UK blood donors was 4.76%. The ParV4 IgG seropositivity for sera collected in 1999 was 5.08%, compared to 3.84% for sera collected in 2009. No ParV4 IgG-positive blood donor sera had detectable ParV4 DNA. CONCLUSION: ParV4 IgG has been found in UK blood donors and this finding needs further investigation.


Assuntos
Doadores de Sangue , Fluorimunoensaio , Programas de Rastreamento/métodos , Infecções por Parvoviridae/diagnóstico , Parvovirus/isolamento & purificação , Adolescente , Adulto , Idoso , Idoso de 80 Anos ou mais , Animais , Anticorpos Antivirais/sangue , Western Blotting , Humanos , Pessoa de Meia-Idade , Infecções por Parvoviridae/sangue , Infecções por Parvoviridae/epidemiologia , Parvovirus/genética , Parvovirus/imunologia , Reação em Cadeia da Polimerase/métodos , Estudos Soroepidemiológicos , Células Sf9 , Reino Unido/epidemiologia , Adulto Jovem
9.
BMC Med Res Methodol ; 13: 69, 2013 May 30.
Artigo em Inglês | MEDLINE | ID: mdl-23721181

RESUMO

BACKGROUND: Healthcare delivery is largely accomplished in and through conversations between people, and healthcare quality and effectiveness depend enormously upon the communication practices employed within these conversations. An important body of evidence about these practices has been generated by conversation analysis and related discourse analytic approaches, but there has been very little systematic reviewing of this evidence. METHODS: We developed an approach to reviewing evidence from conversation analytic and related discursive research through the following procedures: • reviewing existing systematic review methods and our own prior experience of applying these • clarifying distinctive features of conversation analytic and related discursive work which must be taken into account when reviewing • holding discussions within a review advisory team that included members with expertise in healthcare research, conversation analytic research, and systematic reviewing • attempting and then refining procedures through conducting an actual review which examined evidence about how people talk about difficult future issues including illness progression and dying RESULTS: We produced a step-by-step guide which we describe here in terms of eight stages, and which we illustrate from our 'Review of Future Talk'. The guide incorporates both established procedures for systematic reviewing, and new techniques designed for working with conversation analytic evidence. CONCLUSIONS: The guide is designed to inform systematic reviews of conversation analytic and related discursive evidence on specific domains and topics. Whilst we designed it for reviews that aim at informing healthcare practice and policy, it is flexible and could be used for reviews with other aims, for instance those aiming to underpin research programmes and projects. We advocate systematically reviewing conversation analytic and related discursive findings using this approach in order to translate them into a form that is credible and useful to healthcare practitioners, educators and policy-makers.


Assuntos
Comunicação , Atenção à Saúde , Literatura de Revisão como Assunto , Fala , Guias como Assunto , Humanos
10.
Patient Educ Couns ; 105(7): 2603-2606, 2022 07.
Artigo em Inglês | MEDLINE | ID: mdl-34736828

RESUMO

OBJECTIVE: Assessing pain intensity is an important palliative care task. Self-report pain intensity scales are frequently used within assessment. In contrast to formal studies of validity and reliability, we examine administration of, and responses to these scales in everyday palliative care. METHODS: We searched episodes of pain scale use in a dataset of (video/audio-recorded) UK palliative care consultations involving five doctors, 37 terminally ill patients and their companions. We found five, and applied the techniques and tools of conversation analysis to characterise scales' administration and functioning. RESULTS: Generally, the patients responded to scales by reporting multiple aspects of pain; the doctors supported and encouraged this. In two episodes, the scales generated misunderstandings. The doctors worked to resolve these in ways that avoided implying the patient was at fault. CONCLUSION: Pain intensity scales can yield richer information than just intensity. They can also generate misunderstandings and social friction which take skill and effort to resolve. PRACTICE IMPLICATIONS: Patients tend to respond to pain intensity scales by reporting on multiple aspects of pain, professionals should support them in this. These scales sometimes generate misunderstandings. To preserve the therapeutic relationship, professionals should work to resolve these without implying the patient is to blame.


Assuntos
Cuidados Paliativos , Encaminhamento e Consulta , Humanos , Dor/diagnóstico , Medição da Dor , Cuidados Paliativos/métodos , Reprodutibilidade dos Testes
11.
J Gen Virol ; 91(Pt 2): 541-4, 2010 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-19846677

RESUMO

The parvovirus PARV4 is the most recently described member of the family Parvoviridae that has a human host. To investigate the prevalence of PARV4 in blood, a quantitative TaqMan PCR was developed and plasma, sera or whole blood from a variety of population groups were examined. Eight samples were positive for PARV4, one at high copy number. The high-titre-positive plasma had an approximate viral load of 5 x 10(8) genome equivalents ml(-1). Two human sera, identified as PARV4 antibody-positive by indirect immunofluorescence, were used in immune electron microscopy to try to visualize native PARV4 within the high-titre human plasma. PARV4 particles were observed using one of these two sera. To our knowledge, this is the first time that native PARV4 has been visualized.


Assuntos
Infecções por Parvoviridae/virologia , Parvovirus/isolamento & purificação , Parvovirus/ultraestrutura , Anticorpos Antivirais/sangue , Humanos , Microscopia Eletrônica , Infecções por Parvoviridae/imunologia , Parvovirus/genética , Parvovirus/imunologia , Carga Viral , Vírion/genética , Vírion/imunologia , Vírion/isolamento & purificação , Vírion/ultraestrutura
12.
BMC Infect Dis ; 9: 14, 2009 Feb 09.
Artigo em Inglês | MEDLINE | ID: mdl-19203380

RESUMO

BACKGROUND: Little is known about the prevalence of HIV or HCV in injecting drug users (IDUs) in Serbia and Montenegro. We measured prevalence of antibodies to HIV (anti-HIV) and hepatitis C virus (anti-HCV), and risk factors for anti-HCV, in community-recruited IDUs in Belgrade and Podgorica, and determined the performance of a parallel rapid HIV testing algorithm. METHODS: Respondent driven sampling and audio-computer assisted survey interviewing (ACASI) methods were employed. Dried blood spots were collected for unlinked anonymous antibody testing. Belgrade IDUs were offered voluntary confidential rapid HIV testing using a parallel testing algorithm, the performance of which was compared with standard laboratory tests. Predictors of anti-HCV positivity and the diagnostic accuracy of the rapid HIV test algorithm were calculated. RESULTS: Overall population prevalence of anti-HIV and anti-HCV in IDUs were 3% and 63% respectively in Belgrade (n = 433) and 0% and 22% in Podgorica (n = 328). Around a quarter of IDUs in each city had injected with used needles and syringes in the last four weeks. In both cities anti-HCV positivity was associated with increasing number of years injecting (eg Belgrade adjusted odds ratio (AOR) 5.6 (95% CI 3.2-9.7) and Podgorica AOR 2.5 (1.3-5.1) for >or= 10 years v 0-4 years), daily injecting (Belgrade AOR 1.6 (1.0-2.7), Podgorica AOR 2.1 (1.3-5.1)), and having ever shared used needles/syringes (Belgrade AOR 2.3 (1.0-5.4), Podgorica AOR 1.9 (1.4-2.6)). Half (47%) of Belgrade participants accepted rapid HIV testing, and there was complete concordance between rapid test results and subsequent confirmatory laboratory tests (sensitivity 100% (95%CI 59%-100%), specificity 100% (95%CI 98%-100%)). CONCLUSION: The combination of community recruitment, ACASI, rapid testing and a linked diagnostic accuracy study provide enhanced methods for conducting blood borne virus sero-prevalence studies in IDUs. The relatively high uptake of rapid testing suggests that introducing this method in community settings could increase the number of people tested in high risk populations. The high prevalence of HCV and relatively high prevalence of injecting risk behaviour indicate that further HIV transmission is likely in IDUs in both cities. Urgent scale up of HIV prevention interventions is needed.


Assuntos
Usuários de Drogas , Soroprevalência de HIV , Inquéritos Epidemiológicos , Abuso de Substâncias por Via Intravenosa/epidemiologia , Sorodiagnóstico da AIDS , Adulto , Testes Anônimos , Estudos Transversais , Feminino , Infecções por HIV/epidemiologia , Hepatite C/epidemiologia , Anticorpos Anti-Hepatite C/sangue , Humanos , Masculino , Montenegro/epidemiologia , Prevalência , Fatores de Risco , Sérvia/epidemiologia
13.
Sociol Health Illn ; 31(6): 835-53, 2009 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-19843270

RESUMO

This paper examines healthcare communication between physiotherapists and patients during treatment sessions, using the perspectives and methods of conversation analysis. In particular, it examines communication about reasons and rationale for treatment actions by analysing physiotherapists' accounts (explanations) for these actions during treatment sessions. Circumstances in which accounts arise are identified, structural aspects described and their functions demonstrated. These accounts can be persuasive, can foster mutuality, minimise resistance and provide education. They contribute to sensitive handling of patients' physical failures and of removing clothing. Questions arising, but as yet unanswered, include whether clinicians' accounts impact on patients' perceptions and their long-term outcomes. Analysis sheds some light on why observers have found accounts are uncommon in actual consultations. It thereby contributes to sociological understandings about why certain matters are and are not communicated during healthcare encounters, demonstrating the significance of practical and interactional constraints. The findings also provide clinically relevant information about when and how accounts can be provided, and what accounting can achieve in terms of both local procedures and the overall character of the consultation and relationship.


Assuntos
Comunicação , Objetivos , Modalidades de Fisioterapia , Relações Profissional-Paciente , Reabilitação do Acidente Vascular Cerebral , Humanos , Especialidade de Fisioterapia
14.
Patient Educ Couns ; 102(2): 223-237, 2019 02.
Artigo em Inglês | MEDLINE | ID: mdl-29685640

RESUMO

OBJECTIVE: To break new ground by directly examining how patients seek life-expectancy estimates, and how doctors support them in doing so. METHODS: Conversation analytic examination of 10 recorded UK hospice consultations involving 3 palliative specialists. RESULTS: Life-expectancy estimate episodes frequently begin after a doctor has given a patient an opportunity to shape the consultation agenda. Rather than posing direct questions, patients cautiously display their interest in receiving an estimate using statements. These often contain preparatory information about: what they already know about their prognosis, their perspective on it, and readiness to hear more. When patients do not provide this information, doctors invite it before giving an estimate. Patients' companions also contribute to this preparatory work. CONCLUSION: Doctors, patients, and companions collaboratively work to prepare a conversational environment wherein emotional states and uncertainties have been addressed prior to delivery of the actual estimate. This helps manage both possible emotional distress, and prognostic uncertainty entailed in seeking and delivering estimates. PRACTICE IMPLICATIONS: Clinicians should be mindful that rather than overtly requesting estimates, patients may seek them more cautiously. Before delivering estimates, doctors can support patients to articulate their existing understanding and perspective regarding prognosis, and their readiness to hear more.


Assuntos
Comunicação , Cuidados Paliativos na Terminalidade da Vida , Expectativa de Vida , Neoplasias/psicologia , Neoplasias/terapia , Oncologistas/psicologia , Cuidados Paliativos/psicologia , Relações Médico-Paciente , Encaminhamento e Consulta/organização & administração , Adulto , Feminino , Hospitais para Doentes Terminais , Humanos , Masculino , Neoplasias/mortalidade , Participação do Paciente
15.
Patient Educ Couns ; 102(4): 670-679, 2019 04.
Artigo em Inglês | MEDLINE | ID: mdl-30528873

RESUMO

OBJECTIVE: Giving terminally ill people opportunities to participate in advance care planning involves tensions between: endorsing and supporting patients' expectations, plans and decisions, and addressing how realistic these are. The latter risks exerting undue pressure to change plans; undermining autonomy; jeopardising therapeutic relationships. Our objective is to describe how experienced hospice doctors raise potential/actual problems with patients' expectations, plans or decisions. METHODS: Conversation analysis of video-recorded consultations between five UK hospice consultants, 37 patients and their companions. RESULTS: Eleven episodes involving five doctors were found. In all of these we identified a 'Hypothetical Scenario Sequence' where doctors raise a hypothetical future scenario wherein current plans/expectations turn out to be problematic, then engage patients in discussing what could be done about this. We describe features of this sequence and how it can circumvent the risks of addressing problems with patients' expectations and plans. CONCLUSION: Our research breaks new ground, showing that by treating expectations, plans and decisions as potentially not actually problematic, practitioners can recognise and support patients' preferences whilst preparing them for possible difficulties and inevitable uncertainties. PRACTICE IMPLICATIONS: Where professionals judge it appropriate to raise problems about patients' preferences, plans and decisions, this sequence can manage the associated risks.


Assuntos
Planejamento Antecipado de Cuidados , Comunicação , Tomada de Decisões , Técnicas de Apoio para a Decisão , Preferência do Paciente , Médicos/psicologia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Motivação , Assistência Terminal , Doente Terminal
16.
Patient Educ Couns ; 73(2): 186-95, 2008 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-18768287

RESUMO

OBJECTIVE: (1) To systematically review direct evidence about effects of interventions to improve communication performance amongst allied health professionals (AHPs). (2) To summarise indirect evidence pertinent to design, delivery, effects, and evaluation of such interventions. METHODS: (1) Systematic search and narrative review of evaluations of interventions for AHPs. (2) Systematic search and narrative summary of reviews of corresponding interventions in medicine and nursing. RESULTS: Five reports of interventions for AHPs were included. All reported positive effects of training. Strongest evidence was from two small-n within-subjects controlled studies that evaluated highly specific training for qualified therapists in brain injury rehabilitation environments. Indirect evidence from nine systematic reviews in medicine and nursing indicated positive effects of communication training. Robust designs yielded smallest effect sizes. Interventions based on strong conceptual and empirical foundations and targeting specific areas of practice appeared more effective. Strongest evidence is for performance-based training for clinicians already working with patients. CONCLUSION: More empirical and conceptual understandings about AHPs' communication practices are required so as to improve the design, delivery and subsequent evaluation of communication training amongst these important healthcare workers. PRACTICE IMPLICATIONS: Preliminary and indirect evidence suggest it is possible to positively influence AHP clinicians' performance and patients' outcomes if training interventions are specific, founded on evidence about effective practice and delivered using practical modalities.


Assuntos
Pessoal Técnico de Saúde/educação , Comunicação , Relações Profissional-Paciente , Humanos , Terapia Ocupacional/educação , Especialidade de Fisioterapia/educação , Fonoterapia/educação , Ensino/métodos
17.
Patient Educ Couns ; 99(8): 1271-84, 2016 08.
Artigo em Inglês | MEDLINE | ID: mdl-27066862

RESUMO

OBJECTIVES: To contribute to understandings about acceptability and risks entailed in video-based research on healthcare communication. To generate recommendations for non-covert video-based research on healthcare communication - with a focus on maximising its acceptability to participants, and managing and reducing its risks. METHODS: A literature review and synthesis of (a) empirical research on participant acceptability and risks of video recording; (b) regulations of professional and governmental bodies; (c) reviews and commentaries; (d) guidance and recommendations. These were gathered across several academic and professional fields (including medical, educational, and social scientific). RESULTS: 36 publications were included in the review and synthesis (7 regulatory documents, 7 empirical, 4 reviews/commentaries, 18 guidance/recommendations). In the context of research aiming in some way to improve healthcare communication: CONCLUSION AND PRACTICE IMPLICATIONS: The recommendations are designed to support deliberations and decisions about individual studies and to support ethical scrutiny of proposed research studies. Whilst preliminary, it is nevertheless the most comprehensive and detailed currently available.


Assuntos
Comunicação , Educação Médica , Projetos de Pesquisa , Gravação em Vídeo , Atenção à Saúde/métodos , Humanos
18.
PLoS One ; 11(5): e0156174, 2016.
Artigo em Inglês | MEDLINE | ID: mdl-27243630

RESUMO

OBJECTIVE: To examine how palliative medicine doctors engage patients in end-of-life (hereon, EoL) talk. To examine whether the practice of "eliciting and responding to cues", which has been widely advocated in the EoL care literature, promotes EoL talk. DESIGN: Conversation analysis of video- and audio-recorded consultations. PARTICIPANTS: Unselected terminally ill patients and their companions in consultation with experienced palliative medicine doctors. SETTING: Outpatient clinic, day therapy clinic, and inpatient unit of a single English hospice. RESULTS: Doctors most commonly promoted EoL talk through open elaboration solicitations; these created opportunities for patients to introduce-then later further articulate-EoL considerations in such a way that doctors did not overtly ask about EoL matters. Importantly, the wording of elaboration solicitations avoided assuming that patients had EoL concerns. If a patient responded to open elaboration solicitations without introducing EoL considerations, doctors sometimes pursued EoL talk by switching to a less participatory and more presumptive type of solicitation, which suggested the patient might have EoL concerns. These more overt solicitations were used only later in consultations, which indicates that doctors give precedence to patients volunteering EoL considerations, and offer them opportunities to take the lead in initiating EoL talk. There is evidence that doctors treat elaboration of patients' talk as a resource for engaging them in EoL conversations. However, there are limitations associated with labelling that talk as "cues" as is common in EoL communication contexts. We examine these limitations and propose "possible EoL considerations" as a descriptively more accurate term. CONCLUSIONS: Through communicating-via open elaboration solicitations-in ways that create opportunities for patients to volunteer EoL considerations, doctors navigate a core dilemma in promoting EoL talk: giving patients opportunities to choose whether to engage in conversations about EoL whilst being sensitive to their communication needs, preferences and state of readiness for such dialogue.


Assuntos
Atitude Frente a Morte , Comunicação em Saúde/métodos , Medicina Paliativa/métodos , Relações Médico-Paciente , Doente Terminal/psicologia , Feminino , Cuidados Paliativos na Terminalidade da Vida/métodos , Humanos , Masculino , Médicos
19.
BMJ Open ; 6(8): e011868, 2016 08 16.
Artigo em Inglês | MEDLINE | ID: mdl-27531732

RESUMO

OBJECTIVES: The objective of this study was to test the feasibility of conducting a randomised controlled trial (RCT) of an intervention targeted at activities of daily living (ADL), delivered by an occupational therapist, in homecare reablement. DESIGN: Feasibility parallel group RCT. SETTING: Single-site local authority homecare reablement service. PARTICIPANTS: People referred for homecare reablement with ability to consent. Exclusion criteria were as follows: inability to speak English, receiving other community therapy services, needing two or more to assist transfer and receiving end-of-life care. CONTROL: 'Usual care' was 6 weeks of homecare reablement delivered by social care workers (no routine health professional input). INTERVENTION: A targeted ADL programme, delivered by an occupational therapist incorporating goal setting, teaching/practising techniques, equipment/adaptations and provision of advice/support. This was in addition to usual care. OUTCOME MEASURES: Aspects of feasibility including eligibility, recruitment, intervention delivery, attrition and suitability and sensitivity of outcome measures. Participant outcomes were personal and extended ADL, quality of life, falls and use of health and social care services. RESULTS: 30 participants were recruited, 15 to each arm, which was 60% of those eligible. Data from 22 (73%) were analysed at 6 months. Of the 15 participants, 13 (86%) received the intervention and were able to set one or more ADL goals. There were improvements from baseline in both groups, although overall improvements were greater in the occupational therapy (OT) intervention group. The biggest threat to feasibility was a change in service configuration during the trial, involving additional occupational therapy input, affecting usual care and recruitment. CONCLUSIONS: Despite the service reconfiguration, it was feasible to recruit and retain participants, deliver the intervention and collect outcome data that were responsive to change. The choice of primary outcome measure remains unclear. A further powered study is feasible and warranted; however, the design will require careful consideration because of ongoing national changes in service configurations. TRIAL REGISTRATION NUMBER: ISRCTN21710246; Results.


Assuntos
Fragilidade/reabilitação , Transtornos Mentais/reabilitação , Doenças Musculoesqueléticas/reabilitação , Doenças do Sistema Nervoso/reabilitação , Atividades Cotidianas , Idoso , Idoso de 80 Anos ou mais , Inglaterra , Estudos de Viabilidade , Feminino , Serviços de Assistência Domiciliar , Humanos , Masculino , Terapia Ocupacional
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