Detalhe da pesquisa
1.
Genetic Research within Indigenous Communities: Engagement Opportunities and Pathways Forward.
Genet Med
; : 101158, 2024 Apr 30.
Artigo
em Inglês
| MEDLINE | ID: mdl-38699966
2.
Motivations for and against Participation in Neonatal Research: Insights from Interviews of Diverse Parents Approached for Neonatal Research in the US.
J Pediatr
; : 113923, 2024 Mar 14.
Artigo
em Inglês
| MEDLINE | ID: mdl-38492913
3.
Motivations and concerns of patients considering participation in an implementation study of a hereditary cancer risk assessment program in diverse primary care settings.
Genet Med
; 24(3): 610-621, 2022 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-34906471
4.
ORCA, a values-based decision aid for selecting additional findings from genomic sequencing in adults: Efficacy results from a randomized trial.
Genet Med
; 24(8): 1664-1674, 2022 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-35522237
5.
Literacy-adapted, electronic family history assessment for genetics referral in primary care: patient user insights from qualitative interviews.
Hered Cancer Clin Pract
; 20(1): 22, 2022 Jun 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-35689290
6.
Integrating stakeholder feedback in translational genomics research: an ethnographic analysis of a study protocol's evolution.
Genet Med
; 22(6): 1094-1101, 2020 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-32089547
7.
Patient perspectives on the use of categories of conditions for decision making about genomic carrier screening results.
Am J Med Genet A
; 176(2): 376-385, 2018 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-29250907
8.
The Emergence of Clinical Research Ethics Consultation: Insights From a National Collaborative.
Am J Bioeth
; 18(1): 39-45, 2018 Jan.
Artigo
em Inglês
| MEDLINE | ID: mdl-29313771
9.
A randomized study of multimedia informational aids for research on medical practices: Implications for informed consent.
Clin Trials
; 14(1): 94-102, 2017 Feb.
Artigo
em Inglês
| MEDLINE | ID: mdl-27625314
10.
Promoting Disclosure and Understanding in Informed Consent: Optimizing the Impact of the Common Rule "Key Information" Requirement.
Am J Bioeth
; 21(5): 70-72, 2021 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-33945415
11.
Reimagining the Goal of Informed Consent to Help Patients Make Decisions About Research.
Am J Bioeth
; 20(5): 22-23, 2020 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-32677869
12.
Flexibility Required: Balancing the Interests of Children and Risk in Drug Development for Rare Pediatric Conditions.
Am J Bioeth
; 20(4): 116-118, 2020 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-32208080
13.
Justifying Investigator/Clinician Consent When The Physician-Patient Relationship Can Support Better Research Decision-Making.
Am J Bioeth
; 19(4): 26-28, 2019 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-31544673
14.
Improving Care for Suicidal Patients While Protecting Human Subjects: Addressing Ethical Challenges in Mental Health Research Involving Emergency Medical Services Providers.
Am J Bioeth
; 19(10): 99-101, 2019 Oct.
Artigo
em Inglês
| MEDLINE | ID: mdl-31557112
15.
Experiences and preferences for learning about neonatal research: insights from parent interviews.
J Perinatol
; 44(3): 404-414, 2024 Mar.
Artigo
em Inglês
| MEDLINE | ID: mdl-38001157
16.
Equity Concerns Across Pediatric Research Recruitment: An Analysis of Research Staff Interviews.
Acad Pediatr
; 24(2): 318-329, 2024 Mar.
Artigo
em Inglês
| MEDLINE | ID: mdl-37442368
17.
Research to Promote Longevity and Health Span in Companion Dogs: A Pediatric Perspective.
Am J Bioeth
; 18(10): 64-65, 2018 Oct.
Artigo
em Inglês
| MEDLINE | ID: mdl-30339074
18.
Defining the Scope and Improving the Quality of Clinical Research Ethics Consultation: Response to Open Peer Commentaries About the National Collaborative.
Am J Bioeth
; 18(2): W13-W15, 2018 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-29393779
19.
Current landscape of research ethics consultation services: National survey results.
J Clin Transl Sci
; 6(1): e148, 2023.
Artigo
em Inglês
| MEDLINE | ID: mdl-36756077
20.
Research recruitment through the patient portal: perspectives of community focus groups in Seattle and Atlanta.
JAMIA Open
; 6(1): ooad004, 2023 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-36751464