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1.
Gesundheitswesen ; 78(8-09): e80-4, 2016 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-27398772

RESUMO

OBJECTIVE: The aim of health sciences is to maintain and improve the health of individuals and populations and to limit disability. Health research has expanded astoundingly over the last century and a variety of scientific disciplines rooted in very different scientific and intellectual traditions has contributed to these goals. To allow health scientists to fully contextualize their work and engage in interdisciplinary research, a common understanding of the health sciences is needed. The aim of this paper is to respond to the call of the 1986 Ottawa Charter to improve health care by looking both within and beyond health and health care, and to use the opportunity offered by WHO's International Classification of Functioning, Disability and Health (ICF) for a universal operationalization of health, in order to develop a common understanding and conceptualization of the field of health sciences that account for its richness and vitality. METHODS: A critical analysis of health sciences based on WHO's ICF, on WHO's definition of health systems and on the content and methodological approaches promoted by the biological, clinical and socio-humanistic traditions engaged in health research. RESULTS: The field of health sciences is presented according to: 1) a specification of the content of the field in terms of people's health needs and the societal response to them, 2) a meta-level framework to exhaustively represent the range of mutually recognizable scientific disciplines engaged in health research and 3) a heuristic framework for the specification of a set of shared methodological approaches relevant across the range of these disciplines. CONCLUSION: This conceptualization of health sciences is offered to contextualize the work of health researchers, thereby fostering interdisciplinarity.


Assuntos
Pessoas com Deficiência/reabilitação , Conhecimentos, Atitudes e Prática em Saúde , Pesquisa sobre Serviços de Saúde/organização & administração , Classificação Internacional de Funcionalidade, Incapacidade e Saúde/organização & administração , Modelos Organizacionais , Política de Saúde , Humanos , Objetivos Organizacionais , Ciência
2.
Ann Rheum Dis ; 74(5): 830-5, 2015 May.
Artigo em Inglês | MEDLINE | ID: mdl-24399232

RESUMO

OBJECTIVES: The burden of disease in patients with ankylosing spondylitis (AS) can be considerable. However, no agreement has been reached among expert members of Assessment of SpondyloArthritis International Society (ASAS) to define severity of AS. Based on the International Classification of Functioning, Disability and Health (ICF), a core set of items for AS has been selected to represent the entire spectrum of possible problems in functioning. Based on this, the objective of this study was to develop a tool to quantify health in AS, the ASAS Health Index. METHODS: First, based on a literature search, experts' and patients' opinion, a large item pool covering the categories of the ICF core set was generated. In several steps this item pool was reduced based on reliability, Rasch analysis and consensus building after two cross-sectional surveys to come up with the best fitting items representing most categories of the ICF core set for AS. RESULTS: After the first survey with 1754 patients, the item pool of 251 items was reduced to 82. After selection by an expert committee, 50 items remained which were tested in a second cross-sectional survey. The results were used to reduce the number of items to a final set of 17 items. This selection showed the best reliability and fit to the Rasch model, no residual correlation, and absence of consistent differential item function and a Person Separation Index of 0.82. CONCLUSIONS: In this long sequential study, 17 items which cover most of the ICF core set were identified that showed the best representation of the health status of patients with AS. The ASAS Health Index is a linear composite measure which differs from other measures in the public domain.


Assuntos
Atividades Cotidianas , Adaptação Psicológica , Indicadores Básicos de Saúde , Qualidade de Vida , Espondilite Anquilosante/fisiopatologia , Adulto , Idoso , Consenso , Estudos Transversais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Espondilite Anquilosante/psicologia , Inquéritos e Questionários
3.
Schweiz Arch Tierheilkd ; 166(6): 309-320, 2024 Jun.
Artigo em Alemão | MEDLINE | ID: mdl-38807434

RESUMO

INTRODUCTION: The aim of this retrospective study is to describe and compare conservative and surgical treatment of navicular fractures in horses. An attempt is made to identify critical points that can favorably influence the prognosis of this orthopedic disease. All horses treated for a navicular fracture at the Equine Clinic, Vetsuisse Faculty, University of Zurich between 2005 and 2017 were included in this study. The severity of lameness at initial examination, radiographic assessment, hoof conformation, treatment (conservative or surgical), complications and outcome were determined from the medical records. Conservative and surgical treatment consisted of stable rest, a controlled exercise program and therapeutic orthopedic shoeing. During surgical treatment, fracture reduction was also carried out with a cortical screw. Computer assisted surgery were used in five horses and computer tomography in three horses. Follow-up examinations included clinical and radiographic examinations. The outcome was divided into three categories: 1 = very good; 2 = good; 3 = poor. Twelve horses met the inclusion criteria; Four horses were treated conservatively and eight were treated surgically. After conservative treatment, two horses (50 %) had a very good outcome and two (50 %) had a good outcome. After surgical treatment, four horses (50 %) had a very good outcome and four (50 %) had a poor outcome. Overall, 67 % of horses had a very good or good outcome, although radiographic signs of bone healing was not present in any of these cases. Various complications were identified, such as the fracture of a screw, the fragmentation of the small navicular bone fragment, the development of osteoarthrosis in the coffin joint and progressive podotrochosis. This study shows that the prognosis of navicular fractures is generally cautious and that degenerative changes to the navicular apparatus worsen the prognosis. In the present study, surgical treatment did not improve the prognosis of navicular fractures despite the intrasurgical use of three-dimensional imaging. However, technical advances could reduce the complication rate in the future.


INTRODUCTION: Le but de cette étude rétrospective était de décrire et de comparer le traitement conservateur et chirurgical des fractures de l'os naviculaires chez le cheval. Une tentative est faite pour identifier les points critiques qui peuvent influencer favorablement le pronostic de cette maladie orthopédique. Tous les chevaux traités pour une fracture de l'os naviculaire à la Clinique équine de la Faculté Vetsuisse de l'Université de Zurich entre 2005 et 2017 ont été inclus dans cette étude. La gravité de la boiterie lors de l'examen initial, l'évaluation radiographique, la conformation du sabot, le traitement (conservateur ou chirurgical), les complications et le résultat ont été déterminés à partir des dossiers médicaux. Le traitement conservateur et chirurgical consistait en un repos au box, un programme d'exercice contrôlé et un ferrage orthopédique thérapeutique. Au cours du traitement chirurgical, une réduction de la fracture a également été effectuée à l'aide d'une vis corticale. La chirurgie assistée par ordinateur a été utilisée sur cinq chevaux et la tomographie assistée par ordinateur sur trois chevaux. Les examens de suivi comprenaient des examens cliniques et radiographiques. Les résultats ont été divisés en trois catégories: 1 = très bon; 2 = bon; 3 = mauvais. Douze chevaux répondaient aux critères d'inclusion ; quatre chevaux ont été traités de manière conservatrice et huit ont été traités chirurgicalement. Après un traitement conservateur, deux chevaux (50 %) ont eu un très bon résultat et deux (50 %) un bon résultat. Après le traitement chirurgical, quatre chevaux (50 %) ont eu un très bon résultat et quatre (50 %) un mauvais résultat. Dans l'ensemble, 67 % des chevaux ont eu un très bon ou un bon résultat, bien que les signes radiographiques de guérison osseuse n'aient été présents dans aucun de ces cas. Diverses complications ont été identifiées, telles que la fracture d'une vis, la fragmentation du petit fragment de l'os naviculaire, le développement d'une arthrose dans l'articulation interphalangienne distale et une podotrochlose progressive. Cette étude montre que le pronostic des fractures de l'os naviculaire est généralement réservé et que les modifications dégénératives de l'appareil naviculaire aggravent le pronostic. Dans la présente étude, le traitement chirurgical n'a pas amélioré le pronostic des fractures du naviculaire malgré l'utilisation intra-chirurgicale de l'imagerie tridimensionnelle. Cependant, les progrès techniques pourraient réduire le taux de complications dans le futur.


Assuntos
Tratamento Conservador , Fraturas Ósseas , Animais , Cavalos/lesões , Fraturas Ósseas/veterinária , Fraturas Ósseas/cirurgia , Estudos Retrospectivos , Prognóstico , Tratamento Conservador/veterinária , Doenças dos Cavalos/cirurgia , Ossos do Tarso/lesões , Ossos do Tarso/cirurgia , Resultado do Tratamento , Coxeadura Animal/etiologia , Masculino , Feminino
4.
Spinal Cord ; 50(10): 734-9, 2012 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-22525308

RESUMO

STUDY DESIGN: Psychometric study analyzing the data of a cross-sectional, multicentric study with 1048 persons with spinal cord injury (SCI). OBJECTIVE: To shed light on how to apply the Brief Core Sets for SCI of the International Classification of Functioning, Disability and Health (ICF) by determining whether the ICF categories contained in the Core Sets capture differences in overall health. METHODS: Lasso regression was applied using overall health, rated by the patients and health professionals, as dependent variables and the ICF categories of the Comprehensive ICF Core Sets for SCI as independent variables. RESULTS: The ICF categories that best capture differences in overall health refer to areas of life such as self-care, relationships, economic self-sufficiency and community life. Only about 25% of the ICF categories of the Brief ICF Core Sets for the early post-acute and for long-term contexts were selected in the Lasso regression and differentiate, therefore, among levels of overall health. CONCLUSION: ICF categories such as d570 Looking after one's health, d870 Economic self-sufficiency, d620 Acquisition of goods and services and d910 Community life, which capture changes in overall health in patients with SCI, should be considered in addition to those of the Brief ICF Core Sets in clinical and epidemiological studies in persons with SCI.


Assuntos
Atividades Cotidianas/classificação , Atividades Cotidianas/psicologia , Índice de Gravidade de Doença , Traumatismos da Medula Espinal/epidemiologia , Traumatismos da Medula Espinal/psicologia , Estudos Transversais , Humanos , Psicometria/estatística & dados numéricos , Fatores Socioeconômicos , Traumatismos da Medula Espinal/terapia
5.
Spinal Cord ; 49(5): 600-13, 2011 May.
Artigo em Inglês | MEDLINE | ID: mdl-21116283

RESUMO

OBJECTIVE: To validate the International Classification of Functioning, Disability and Health (ICF) core sets for individuals with spinal cord injury (SCI) in the early post-acute and long-term context from the perspective of occupational therapists (OTs). SETTING: International. METHODS: OTs experienced in the treatment in SCI were asked about problems, resources and aspects of the environment treated by them, in a three-round electronic mail survey using the Delphi technique. Responses were linked to the ICF by two researchers; kappa coefficient was calculated as statistical measure of agreement. RESULTS: In total, 67 experts from 27 countries named 2586 different concepts. For the early post-acute context, 223 concepts were linked to ICF categories. Three ICF categories from the component body function, three ICF categories from the component body structures and five ICF categories from the component activities and participation were not represented in the ICF core set for the early post-acute context with an expert agreement of more than 75%. For the long-term context, 205 concepts were linked to ICF categories. Two ICF categories from the component body function, four ICF categories from the component body structures and two ICF categories from the component activities and participation were not represented in the ICF core set with an expert agreement of more than 75%. CONCLUSION: OTs addressed a vast variety of problems that they take care of in their interventions in persons with SCI. The Comprehensive ICF core sets covered a high percentage of these problems. Further research is necessary on a few aspects that are not included in the ICF core sets for SCI.


Assuntos
Técnica Delphi , Saúde Global , Classificação Internacional de Doenças/normas , Terapia Ocupacional/normas , Traumatismos da Medula Espinal/classificação , Traumatismos da Medula Espinal/reabilitação , Adulto , Bases de Dados como Assunto/normas , Feminino , Pesquisas sobre Atenção à Saúde/normas , Humanos , Masculino , Pessoa de Meia-Idade , Variações Dependentes do Observador , Terapia Ocupacional/métodos , Modalidades de Fisioterapia/normas , Sistema de Registros/normas , Traumatismos da Medula Espinal/diagnóstico , Adulto Jovem
6.
Spinal Cord ; 49(4): 502-14, 2011 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-21102571

RESUMO

OBJECTIVE: To validate the International Classification of Functioning, Disability and Health (ICF) Core Set for individuals with spinal cord injury (SCI) in the early post-acute and long-term context from the perspective of physical therapists. SETTING: International. METHODS: Physical therapists experienced in the treatment of SCI were asked about problems, resources and aspects of the environment treated by them, in a three-round electronic mail survey using the Delphi technique. Responses were linked to the ICF by two researches; κ-coefficient was calculated as statistical measure of agreement. RESULTS: In all, 81 experts from 27 countries named 3694 concepts. They were linked to 187 ICF categories for the early post-acute context. Three ICF categories from the component body function, five ICF categories from the component body structures and two ICF categories from the component activities and participation were not represented in the ICF Core Set for the early post-acute context. In all, 207 ICF categories were linked for the long-term context. Four ICF categories from the component body function, five ICF categories from the component body structures and two ICF categories from the component activities and participation were not represented in the ICF Core Set for the long-term context. CONCLUSION: Physical therapists addressed a vast variety of problems that they take care of in their interventions in patients with SCI. The Comprehensive ICF Core Sets covered a high percentage of these problems. Further research is necessary on several responses not covered in the ICF.


Assuntos
Coleta de Dados/métodos , Técnica Delphi , Classificação Internacional de Doenças/normas , Serviço Hospitalar de Fisioterapia/tendências , Traumatismos da Medula Espinal/classificação , Traumatismos da Medula Espinal/reabilitação , Adulto , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Traumatismos da Medula Espinal/mortalidade
7.
Ann Rheum Dis ; 69(1): 102-7, 2010 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-19282309

RESUMO

OBJECTIVE: To report on the results of a standardised consensus process agreeing on concepts typical and/or relevant when classifying functioning and health in patients with ankylosing spondylitis (AS) based on the International Classification of Functioning and Health (ICF). METHODS: Experts in AS from different professional and geographical backgrounds attended a consensus conference and were divided into three working groups. Rheumatologists were selected from members of the Assessment of SpondyloArthritis international Society (ASAS). Other health professionals were recommended by ASAS members. The aim was to compose three working groups with five to seven participants to allow everybody's contribution in the discussions. Experts selected ICF categories that were considered typical and/or relevant for AS during a standardised consensus process by integrating evidence from preceding studies in alternating working group and plenary discussions. A Comprehensive ICF Core Set was selected for the comprehensive classification of functioning and a Brief ICF Core Set for application in trials. RESULTS: The conference was attended by 19 experts from 12 countries. Eighty categories were included in the Comprehensive Core Set, which included 23 Body functions, 19 Body structures, 24 Activities and participation and 14 Environmental factors. Nineteen categories were selected for the Brief Core Set, which included 6 Body functions, 4 Body structures, 7 Activities and participation and 2 Environmental factors. CONCLUSION: The Comprehensive and Brief ICF Core Sets for AS are now available and aim to represent the external reference to define consequences of AS on functioning.


Assuntos
Índice de Gravidade de Doença , Espondilite Anquilosante/fisiopatologia , Atividades Cotidianas/classificação , Avaliação da Deficiência , Pessoas com Deficiência/classificação , Humanos , Espondilite Anquilosante/reabilitação
8.
Spinal Cord ; 48(3): 221-9, 2010 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-19752871

RESUMO

STUDY DESIGN: Cross-sectional, multicenter study. OBJECTIVES: To identify the most common problems of individuals with spinal cord injury (SCI) in the early post-acute and the long-term context, respectively, using the International Classification of Functioning, Disability and Health (ICF) as a frame of reference. SETTING: International. METHODS: The functional problems of individuals with SCI were recorded using the 264 ICF categories on the second level of the classification. Prevalence of impairment was reported along with their 95% confidence intervals. Data were stratified by context. RESULTS: Sixteen study centers in 14 countries collected data of 489 individuals with SCI in the early post-acute context and 559 in the long-term context, respectively. Impairments in thirteen ICF categories assigned to Body functions and Body structures were more frequently reported in the long-term context, whereas limitations/restrictions in 34 ICF categories assigned to Activities and Participation were more frequently found in the early post-acute context. Eleven ICF categories from the component Environmental Factors were more frequently regarded as barriers, facilitators or both by individuals with SCI in the early post-acute context as compared with individuals with SCI in the long-term context. Only two environmental factors were more relevant for people with SCI in the long-term context than in the early post-acute context. CONCLUSION: The study identified a large variety of functional problems reflecting the complexity of SCI and indicated differences between the two contexts. The ICF has potential to provide a comprehensive framework for the description of functional health in individuals with SCI worldwide.


Assuntos
Avaliação da Deficiência , Nível de Saúde , Recuperação de Função Fisiológica/fisiologia , Traumatismos da Medula Espinal/classificação , Atividades Cotidianas , Adolescente , Adulto , Idoso , Idoso de 80 Anos ou mais , Sudeste Asiático , Estudos Transversais , Interpretação Estatística de Dados , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Garantia da Qualidade dos Cuidados de Saúde , Comportamento Social , Fatores Socioeconômicos , Traumatismos da Medula Espinal/reabilitação , Adulto Jovem
9.
Spinal Cord ; 48(4): 305-12, 2010 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-20065984

RESUMO

STUDY DESIGN: A formal decision-making and consensus process integrating evidence gathered from preparatory studies was followed. OBJECTIVES: The objective of the study was to report on the results of the consensus process to develop the first version of a Comprehensive International Classification of Functioning, Disability and Health (ICF) Core Set, and a Brief ICF Core Set for individuals with spinal cord injury (SCI) in the long-term context. SETTING: The consensus conference took place in Switzerland. Preparatory studies were performed worldwide. METHODS: Preparatory studies included an expert survey, a systematic literature review, a qualitative study and empirical data collection involving people with SCI. Relevant ICF categories were identified in a formal consensus process by international experts from different backgrounds. RESULTS: The preparatory studies identified a set of 595 ICF categories at the second, third or fourth level. A total of 34 experts from 31 countries attended the consensus conference (12 physicians, 6 physical therapists, 5 occupational therapists, 6 nurses, 3 psychologists and 2 social workers). Altogether, 168 second-, third- or fourth-level categories were included in the Comprehensive ICF Core with 44 categories from body functions, 19 from body structures, 64 from activities and participation and 41 from environmental factors. The Brief Core Set included a total of 33 second-level categories with 9 on body functions, 4 on body structures, 11 on activities and participation and 9 on environmental factors. CONCLUSION: A formal consensus process integrating evidence and expert opinion based on the ICF led to the definition of the ICF Core Sets for individuals with SCI in the long-term context. Further validation of this first version is needed.


Assuntos
Índice de Gravidade de Doença , Traumatismos da Medula Espinal/classificação , Humanos , Recuperação de Função Fisiológica , Suíça
10.
Spinal Cord ; 48(4): 297-304, 2010 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-19786973

RESUMO

STUDY DESIGN: A formal decision-making and consensus process integrating evidence gathered from preparatory studies was followed. OBJECTIVES: The aim of this study was to report on the results of the consensus process to develop the first version of a Comprehensive International Classification of Functioning, Disability and Health (ICF) Core Set and a Brief ICF Core Set for individuals with spinal cord injury (SCI) in the early post-acute context. SETTING: The consensus conference took place in Switzerland. Preparatory studies were performed worldwide. METHODS: Preparatory studies included an expert survey, a systematic literature review, a qualitative study and empirical data collection involving people with SCI. ICF categories were identified in a formal consensus process by international experts from different backgrounds. RESULTS: The preparatory studies identified a set of 531 ICF categories at the second, third and fourth levels. From 30 countries, 33 SCI experts attended the consensus conference (11 physicians, 6 physical therapists, 5 occupational therapists, 6 nurses, 3 psychologists and 2 social workers). Altogether 162 second-, third- or fourth-level categories were included in the Comprehensive ICF Core Sets with 63 categories from the component Body Functions, 14 from Body Structures, 53 from Activities and Participation and 32 from Environmental Factors. The Brief Core Set included a total of 25 second-level categories with 8 on Body Functions, 3 on Body Structures, 9 on Activities and Participation, and 5 on Environmental Factors. CONCLUSION: A formal consensus process-integrating evidence and expert opinion based on the ICF led to the ICF Core Sets for individuals with SCI in the early post-acute context. Further validation of this first version is needed.


Assuntos
Índice de Gravidade de Doença , Traumatismos da Medula Espinal/classificação , Humanos , Suíça
11.
Ann Rheum Dis ; 68(6): 879-84, 2009 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-18625628

RESUMO

BACKGROUND: The comprehensive International Classification of Functioning, Disability and Health (ICF) Core Set for rheumatoid arthritis (RA) is a selection of 96 categories from the ICF, representing relevant aspects in the functioning of patients with RA. OBJECTIVES: To study the responsiveness of the ICF Core Set for RA in rheumatological practice. METHODS: A total of 46 patients with RA (72% women, mean (SD) age 53.6 (12.6) years, disease duration 6.3 (8.0) years) were interviewed at baseline and again after 6 months treatment with a disease-modifying antirheumatic drug (DMARD), applying the ICF Core Set for RA with qualifiers for problems on a modified three-point scale (no problem, mild/moderate, severe/complete). Patient-reported outcomes included Modified Health Assessment Questionnaire (MHAQ) and Short-Form 36 (SF-36) health survey, and disease activity was calculated. Responsiveness was measured as change in qualifiers in ICF categories, and was also compared with change in patient-reported outcomes. RESULTS: After 6 months of DMARD treatment, improvement by at least one qualifier was seen in 20% of patients (averaged across all ICF categories), 71% experienced no change and 9% experienced worsening symptoms. Findings were similar across the different aspects of functioning. Mainly moderate effect sizes were seen for 6-month changes in the ICF Core Set for RA, especially in patients with improved health status, with similar effect size for disease activity. The components in the ICF Core Set for RA were only weakly associated with patient-reported outcomes and disease activity. CONCLUSIONS: The ICF Core Set for RA demonstrated moderate responsiveness in this real-life setting of patients where minor changes occurred during treatment with DMARDs.


Assuntos
Antirreumáticos/uso terapêutico , Artrite Reumatoide/tratamento farmacológico , Avaliação da Deficiência , Atividades Cotidianas , Adulto , Idoso , Feminino , Seguimentos , Indicadores Básicos de Saúde , Humanos , Masculino , Pessoa de Meia-Idade , Estudos Prospectivos , Inquéritos e Questionários , Resultado do Tratamento
12.
Diabet Med ; 26(7): 700-7, 2009 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-19573119

RESUMO

AIMS: The Comprehensive ICF Core Set for diabetes mellitus (DM) is a specific application of the International Classification of Functioning, Disability and Health (ICF) of the World Health Organization for clinical and research purposes involving the disorder. It represents the typical spectrum of functional problems in patients with DM. The objective of the study was to validate the Comprehensive ICF Core Set for DM from the perspective of patients. The specific aims were to explore the aspects of function and health important to patients with DM using focus group methodology and to examine to what extent these aspects are represented by the Comprehensive ICF Core Set for DM. METHODS: A qualitative study using focus group methodology was conducted. Sampling of patients followed the maximum variation strategy. Sample size was determined by saturation. The focus group discussions were digitally recorded and transcribed verbatim. The meaning condensation procedure was used for data analysis. The resulting meaningful concepts were linked to ICF categories according to established linking rules. RESULTS: Forty patients participated in eight focus groups. Seventy-five of the 85 ICF categories contained in the Comprehensive ICF Core Set for DM were identified by the patients. Forty-seven additional categories that are not covered by the Comprehensive ICF Core Set for DM were identified. CONCLUSIONS: The Comprehensive ICF Core Set for DM could be largely confirmed by the focus groups. Categories currently not covered by the Comprehensive ICF Core Set for DM should be investigated further.


Assuntos
Atitude Frente a Saúde , Diabetes Mellitus/classificação , Classificação Internacional de Doenças/normas , Adolescente , Adulto , Idoso , Diabetes Mellitus/fisiopatologia , Diabetes Mellitus/psicologia , Feminino , Grupos Focais , Nível de Saúde , Humanos , Masculino , Pessoa de Meia-Idade , Organização Mundial da Saúde , Adulto Jovem
13.
Clin Exp Rheumatol ; 27(4 Suppl 55): S92-101, 2009.
Artigo em Inglês | MEDLINE | ID: mdl-19822053

RESUMO

OBJECTIVE: The objective of this study is to identify similarities and differences in functioning in AS and RA using the ICF as the framework for the description of functioning. METHODS: The Comprehensive ICF Core Sets for RA and AS were compared qualitatively regarding their content. A comparison study of common second-level ICF categories from both ICF Core Sets collected in two different cross-sectional studies in the Netherlands was performed. Significant differences regarding the level of impairments, limitations or restrictions were analyzed within the Mann-Whitney U-Test. To study whether the common ICF categories have different meaning for the two populations the Rasch model for dichotomous response option was used. RESULTS: The Comprehensive ICF Core Set for AS includes 74 ICF categories in 19 chapters and the Comprehensive ICF Core Set for RA includes 96 ICF categories in 22 chapters. Interviews among 87 patients with AS and 143 patients with RA on 24 of the common ICF categories revealed significant differences regarding the extent of problems. DIF analyses reflect that the meaning of some ICF categories, such as 'd410 Changing basic body positions' is different in relation to functioning depending on the health condition. CONCLUSION: This study was the first to compare functioning in AS and RA based on the ICF. The results confirmed to a large extend the experiences well known from other studies and thereby showed that the ICF is useful to describe and compare functioning. Some aspects could be identified which are not easy to understand with existing evidence and need to be explained in the future.


Assuntos
Artrite Reumatoide/classificação , Artrite Reumatoide/fisiopatologia , Espondilite Anquilosante/classificação , Espondilite Anquilosante/fisiopatologia , Atividades Cotidianas , Artrite Reumatoide/diagnóstico , Avaliação da Deficiência , Feminino , Nível de Saúde , Humanos , Classificação Internacional de Doenças , Masculino , Pessoa de Meia-Idade , Avaliação de Resultados em Cuidados de Saúde , Dor/diagnóstico , Dor/fisiopatologia , Medição da Dor , Reprodutibilidade dos Testes , Índice de Gravidade de Doença , Espondilite Anquilosante/diagnóstico
14.
Disabil Rehabil ; 31(7): 528-37, 2009.
Artigo em Inglês | MEDLINE | ID: mdl-18608418

RESUMO

OBJECTIVE: To explore whether it is possible to construct clinical measures of functioning for patients with ankylosing spondylitis (AS) by integrating information obtained across categories of the International Classification of Functioning, Disability and Health (ICF). METHODS: Sixty-eight ICF categories that were identified as relevant by patients with AS and that covered body functions, structures, and activity and participation were analysed based on the Rasch model for ordered response options. The following properties were studied: unidimensionality, reliability, fit of the ICF categories to the Rasch model, the appropriateness of the order of the response options of the ICF qualifier, and the targeting between the ICF categories and the person's abilities. RESULTS: After accounting for disordered thresholds and misfitting ICF categories, a clinical measure of functioning for AS was proposed that contained 64 ICF categories. On the basis of a transformation table, the raw scores obtained by adding the answers to the 64 ICF categories can be transformed to the Rasch logit scale and to a meaningful interval scale ranging from zero to 100. CONCLUSION: For the first time, it has been shown that clinical measures of functioning, in principle, can be constructed based on the comprehensive ICF framework covering body functions and structures and activities and participation domains. The results of this investigation are preliminary and must be validated, but they are promising and can contribute to the acceptance and usefulness of the ICF in clinical practice.


Assuntos
Atividades Cotidianas , Avaliação da Deficiência , Classificação Internacional de Doenças , Espondilite Anquilosante/fisiopatologia , Distribuição de Qui-Quadrado , Feminino , Alemanha , Nível de Saúde , Humanos , Masculino , Pessoa de Meia-Idade , Países Baixos , Psicometria
15.
Sleep Med ; 9(2): 191-8, 2008 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-17644416

RESUMO

BACKGROUND: With the International Classification of Functioning, Disability and Health (ICF), we can now rely on a globally agreed-upon framework and system for classifying the typical spectrum of problems in the functioning of persons given the environmental context in which they live. ICF Core Sets are subgroups of ICF items selected to capture those aspects of functioning that are most likely to be affected by sleep disorders. OBJECTIVE: The objective of this paper is to outline the developmental process for the ICF Core Sets for Sleep. METHODS: The ICF Core Sets for Sleep will be defined at an ICF Core Sets Consensus Conference, which will integrate evidence from preliminary studies, namely (a) a systematic literature review regarding the outcomes used in clinical trials and observational studies, (b) focus groups with people in different regions of the world who have sleep disorders, (c) an expert survey with the involvement of international clinical experts, and (d) a cross-sectional study of people with sleep disorders in different regions of the world. CONCLUSION: The ICF Core Sets for Sleep are being designed with the goal of providing useful standards for research, clinical practice and teaching. It is hypothesized that the ICF Core Sets for Sleep will stimulate research that leads to an improved understanding of functioning, disability, and health in sleep medicine. It is of further hope that such research will lead to interventions and accommodations that improve the restoration and maintenance of functioning and minimize disability among people with sleep disorders throughout the world.


Assuntos
Avaliação da Deficiência , Nível de Saúde , Cooperação Internacional , Transtornos do Sono-Vigília/classificação , Transtornos do Sono-Vigília/prevenção & controle , Humanos , Transtornos do Sono-Vigília/terapia , Organização Mundial da Saúde
16.
Gesundheitswesen ; 70(11): 674-8, 2008 Nov.
Artigo em Alemão | MEDLINE | ID: mdl-19039727

RESUMO

BACKGROUND: Medical reports of the national pension insurance are essential for the national pension regulatory authority to decide on granting services regarding participation as well as retirement pensions due to inability to work. There are guidelines regarding the content of medical reports. It is also generally accepted that the evaluation of functioning is an essential component of them. However, it is still an open question to what extent the standardisation and the objectiveness of medical reports can be improved. The ICF (International Classification of Functioning, Disability and Health) is a framework as well as a common language for describing functioning and disability. ICF Core Sets are lists of disease-specific relevant ICF categories and can be a useful practicable tool for medical reports for national pension insurance. They could support the standardization of the medical reports. The aim of this planned project is to examine whether the ICF Core Sets for low back pain and chronic widespread pain could serve as a useful basis for medical reports for national pension insurance regarding the patients suffering low back pain or chronic widespread pain. METHOD: Six hundred medical reports from patients with low back pain or chronic widespread pain, respectively, will be translated into the language of the ICF using a retrospective qualitative study design. For this translation ('linking') process specialised physicians from the national pension insurance and members of the Institute for Health and Rehabilitations Science will be trained to use established linking rules. STATE OF THE PROJECT: Currently, a total of 244 medical reports from the national pension insurance with the health conditions low back pain or chronic widespread pain were selected by members of the national pension insurance. The medical reports are anonymised in different federal states according to the appropriate requirements. The first 10 medical reports have already being analysed. OUTLOOK: First analyses show that the structure of medical reports varies enormously. Therefore a comparison of the content without having a common basis is hardly possible. This demonstrates the importance of the project and the possible usefulness of the ICF and the ICF Core Sets for structuring the content of medical reports for the national pension insurance.


Assuntos
Avaliação da Deficiência , Documentação/estatística & dados numéricos , Fidelidade a Diretrizes/estatística & dados numéricos , Classificação Internacional de Doenças , Dor/diagnóstico , Dor/epidemiologia , Pensões/estatística & dados numéricos , Doença Crônica , Feminino , Alemanha/epidemiologia , Humanos , Dor Lombar/classificação , Dor Lombar/diagnóstico , Dor Lombar/epidemiologia , Masculino , Dor/classificação , Reprodutibilidade dos Testes , Sensibilidade e Especificidade
17.
Eur J Neurol ; 14(11): 1256-65, 2007 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-17956446

RESUMO

Objective of this study was to examine the effectiveness of a coordinated, community based 3-year advisory program in 1534 patients with acquired brain injury. Patients and caregivers were offered a coordinated advisory program after discharge from rehabilitation. Patients in the historical control group received standard aftercare. The main outcomes were functional status [Functional Independence Measure (FIM)], and days spent in the acute hospital. The secondary outcome was survival. Patients were comparable for sex (intervention: 41.3% female, control: 38.0%), and younger in the control group (mean age intervention: 55.3, control: 49.6). Functional status at discharge was lower in the intervention group (mean FIM intervention: 66.2, control: 80.3). Patients in the intervention group experienced a moderate gain in FIM. Rate of days in hospital was 15.4 per 1000 person days (intervention) and 15.5 per 1000 person days (control). Patients of the intervention group had an increased rate of days in hospital. A total of 16.0% of patients in the intervention group and 19.3% in the control group died during follow-up. Patients in the intervention had a significant lower mortality risk depending on follow-up period and discharge FIM. The advisory program may be effective for all patients with acquired brain injury.


Assuntos
Lesões Encefálicas/reabilitação , Consultores , Características de Residência , Lesões Encefálicas/epidemiologia , Lesões Encefálicas/terapia , Estudos de Coortes , Consultores/psicologia , Feminino , Seguimentos , Humanos , Masculino , Pessoa de Meia-Idade , Alta do Paciente/tendências , Estudos Prospectivos , Recuperação de Função Fisiológica/fisiologia
18.
Clin Exp Rheumatol ; 25(3): 354-60, 2007.
Artigo em Inglês | MEDLINE | ID: mdl-17631729

RESUMO

OBJECTIVE: To identify the most relevant problems to be addressed in the multi-disciplinary care of patients with acute arthritis using focus groups of health professionals followed by a Delphi process. METHODS: Focus group and Delphi methodology were applied. The focus groups were conducted at three specialist rheumatology hospital clinics in Germany, each group comprising rheumatologists, nurses, physiotherapists, occupational therapists, psychologists and social workers. The participants were asked to decide which categories of the International Classification of Functioning, Disability and Health (ICF) are relevant to the care of patients with acute inflammatory arthritis. The results from the focus groups were then followed by an anonymous Delphi process. RESULTS: Twenty-six health professionals participated in the 3 focus groups. 167 of the second-level ICF categories (63% of all second-level categories) were considered as relevant by the rheumatology health professionals. Items from all four components, Body Functions, Body Structures, Activities and Participation and Environmental Factors were represented. Agreement between focus groups and between different health professional groups was substantial for all components with the exception of Environmental Factors (Cohen's kappa 0.23). CONCLUSION: The involvement of experts from different health professions is a valuable tool to identify typical patient characteristics, expressed as distinct ICF categories, to aid in patient care in the acute rheumatology setting. Acute patient care cannot and should not be separated from ongoing long-term management.


Assuntos
Artrite/fisiopatologia , Artrite/terapia , Avaliação da Deficiência , Grupos Focais/métodos , Doença Aguda , Artrite/classificação , Técnica Delphi , Pessoal de Saúde , Humanos , Avaliação de Resultados em Cuidados de Saúde , Índice de Gravidade de Doença
19.
Clin Exp Rheumatol ; 25(2): 252-8, 2007.
Artigo em Inglês | MEDLINE | ID: mdl-17543150

RESUMO

OBJECTIVE: The aim of this consensus process was to construct a preliminary version of the ICF Core Set for acute inflammatory arthritis. METHODS: The development of the ICF Core Set involved a formal decision-making and consensus process, integrating evidence gathered from preliminary studies including focus groups of health professionals, a systematic review of the literature, and empiric data collection from patients. RESULTS: Thirty-three experts selected a total of 79 second-level categories for the Comprehensive Core Set and 40 second-level categories for the Brief Core Set. The largest number of categories was selected from the ICF component Activities and Participation (28 categories or 35%). Eighteen (23%) of the categories were selected from the component Body Functions, 13 (16%) from the component Body Structures, and 20 (25%) from the component Environmental Factors. CONCLUSION: The ICF Core Set for acute arthritis is a clinical framework designed to comprehensively assess patients in acute care hospitals and early post-acute rehabilitation facilities. This preliminary version of the ICF Core Set will be further tested through empiric studies in German-speaking countries and internationally.


Assuntos
Atividades Cotidianas , Artrite/classificação , Artrite/fisiopatologia , Avaliação da Deficiência , Nível de Saúde , Doença Aguda , Artrite/psicologia , Grupos Focais , Hospitais , Humanos , Cooperação Internacional , Participação do Paciente , Centros de Reabilitação , Organização Mundial da Saúde
20.
Eura Medicophys ; 43(3): 359-67, 2007 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-17828060

RESUMO

AIM: Segmental stabilizing exercises (SSE) for specific dysfunction of local muscles (m. transversus abdominis, m. multifidus, pelvic floor muscles and diaphragm pelvis) have been advocated in patients with low back pain (LBP). The specific aims of this study were to examine: 1) whether participants of a group program learn SSE; 2) whether they respond to SSE with a reduction in present LBP and 3) to what extent people report using SSE in daily living. METHODS: One-hundred nurses participated in this explorative pilot study. Data from a 12-week multimodal program including SSE as intervention for the prevention of LBP were analysed. The prone test was taken as an indicator for the participants' ability to perform SSE correctly. Present back pain was assessed on a numerical rating scale (0-10). A compliance questionnaire and a transfer questionnaire assessed compliance and transfer of SSE into daily living. RESULTS: After the intervention, 72% of participants were able to perform SSE correctly as measured by the prone test. Between 48% and 78% of the participants with present LBP experienced a minimal, clinically important change (minimal clinical changes, [MCC]) while performing SSE. No strong interrelations between the ability to correctly perform SSE and the MCC of LBP could be identified. Participants reported exercising SSE for 12 min on average 4-5 days a week. At 3 months after the intervention, 76% of participants reported using SSE ''always'' in their work with patients. CONCLUSION: First findings are that SSE can be learned by the majority of the participants of a group program for the prevention of LBP. Additionally, SSE reduces present LBP and so can help people with LBP learn to help themselves. We are unable to explain how participants benefited from SSE even when they were unable to perform SSE correctly, as measured by the prone test.


Assuntos
Terapia por Exercício/métodos , Dor Lombar/prevenção & controle , Adulto , Feminino , Seguimentos , Humanos , Masculino , Pessoa de Meia-Idade , Medição da Dor , Cooperação do Paciente , Educação de Pacientes como Assunto , Projetos Piloto , Decúbito Ventral , Resultado do Tratamento
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