Detalhe da pesquisa
1.
Development of quality indicators of transfer and transition in adolescents and young adults with congenital heart disease.
BMC Health Serv Res
; 23(1): 1154, 2023 Oct 25.
Artigo
em Inglês
| MEDLINE | ID: mdl-37880667
2.
Transition to adulthood and transfer to adult care of adolescents with congenital heart disease: a global consensus statement of the ESC Association of Cardiovascular Nursing and Allied Professions (ACNAP), the ESC Working Group on Adult Congenital Heart Disease (WG ACHD), the Association for European Paediatric and Congenital Cardiology (AEPC), the Pan-African Society of Cardiology (PASCAR), the Asia-Pacific Pediatric Cardiac Society (APPCS), the Inter-American Society of Cardiology (IASC), the Cardiac Society of Australia and New Zealand (CSANZ), the International Society for Adult Congenital Heart Disease (ISACHD), the World Heart Federation (WHF), the European Congenital Heart Disease Organisation (ECHDO), and the Global Alliance for Rheumatic and Congenital Hearts (Global ARCH).
Eur Heart J
; 42(41): 4213-4223, 2021 11 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-34198319
3.
[2020 ESC guidelines on treatment of adult congenital heart disease (ACHD)]. / ESC-Leitlinie 2020 zur Behandlung von Erwachsenen mit angeborenem Herzfehler (ACHD).
Herz
; 46(1): 14-27, 2021 Feb.
Artigo
em Alemão
| MEDLINE | ID: mdl-33258988
4.
Recommendations for advance care planning in adults with congenital heart disease: a position paper from the ESC Working Group of Adult Congenital Heart Disease, the Association of Cardiovascular Nursing and Allied Professions (ACNAP), the European Association for Palliative Care (EAPC), and the International Society for Adult Congenital Heart Disease (ISACHD).
Eur Heart J
; 41(43): 4200-4210, 2020 11 14.
Artigo
em Inglês
| MEDLINE | ID: mdl-32862229
5.
Healthcare system inputs and patient-reported outcomes: a study in adults with congenital heart defect from 15 countries.
BMC Health Serv Res
; 20(1): 496, 2020 Jun 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-32493367
6.
Adolescents' with congenital heart disease and their parents' experiences of a nurse-led transition program. An interpretive phenomenological study / Wie Eltern und ihre Kinder die pflegegeleitete Transitionssprechstunde für Adoleszente mit angeborenen Herzfehlern erleben. Eine interpretierende phänomenologische Studie
Pflege
; 31(1): 9-18, 2018 02.
Artigo
em Alemão
| MEDLINE | ID: mdl-28925325
7.
Regional variation in quality of life in patients with a Fontan circulation: A multinational perspective.
Am Heart J
; 193: 55-62, 2017 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-29129255
8.
Red Flags for Maltese Adults with Congenital Heart Disease: Poorer Dental Care and Less Sports Participation Compared to Other European Patients-An APPROACH-IS Substudy.
Pediatr Cardiol
; 38(5): 965-973, 2017 Jun.
Artigo
em Inglês
| MEDLINE | ID: mdl-28341902
9.
Emerging adulthood: The ageing problem of congenital heart disease.
Nurs Crit Care
; 27(2): 145-147, 2022 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-35384187
10.
Anxiety and Depression in Adults With Congenital Heart Disease.
J Am Coll Cardiol
; 83(3): 430-441, 2024 Jan 23.
Artigo
em Inglês
| MEDLINE | ID: mdl-38233017
11.
Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS.
Eur J Cardiovasc Nurs
; 22(4): 339-344, 2023 05 25.
Artigo
em Inglês
| MEDLINE | ID: mdl-35901014
12.
Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease.
Int J Cardiol
; 363: 30-39, 2022 09 15.
Artigo
em Inglês
| MEDLINE | ID: mdl-35780933
13.
Transfer and transition practices in 96 European adult congenital heart disease centres.
Int J Cardiol
; 328: 89-95, 2021 04 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-33276020
14.
Sense of coherence in adults with congenital heart disease in 15 countries: Patient characteristics, cultural dimensions and quality of life.
Eur J Cardiovasc Nurs
; 20(1): 48-55, 2021 02 11.
Artigo
em Inglês
| MEDLINE | ID: mdl-32524857
15.
Atrial arrhythmias and patient-reported outcomes in adults with congenital heart disease: An international study.
Heart Rhythm
; 18(5): 793-800, 2021 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-32961334
16.
Physical Functioning, Mental Health, and Quality of Life in Different Congenital Heart Defects: Comparative Analysis in 3538 Patients From 15 Countries.
Can J Cardiol
; 37(2): 215-223, 2021 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-32739453
17.
Patient-Reported Outcomes in Adults With Congenital Heart Disease Following Hospitalization (from APPROACH-IS).
Am J Cardiol
; 145: 135-142, 2021 04 15.
Artigo
em Inglês
| MEDLINE | ID: mdl-33460605
18.
Health behaviours reported by adults with congenital heart disease across 15 countries.
Eur J Prev Cardiol
; 27(10): 1077-1087, 2020 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-31529991
19.
Implantable cardioverter-defibrillators and patient-reported outcomes in adults with congenital heart disease: An international study.
Heart Rhythm
; 17(5 Pt A): 768-776, 2020 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-31790832
20.
How and why ESC guidelines should be implemented to improve health support in different countries.
Eur J Cardiovasc Nurs
; 2024 Apr 24.
Artigo
em Inglês
| MEDLINE | ID: mdl-38655750