RESUMO
Cerebral palsy (CP) is a permanent motor disorder that appears in early age and it requires multiple tests to assess the physical and mental capabilities of the patients. Current medical record data collection systems, e.g., EPIC, employed for CP are very general, difficult to navigate, and prone to errors. The data cannot easily be extracted which limits data analysis on this rich source of information. To overcome these limitations, we designed and prototyped a database with a graphical user interface geared towards clinical research specifically in CP. The platform with MySQL and Java framework is reliable, secure, and can be easily integrated with other programming languages for data analysis such as MATLAB. This database with GUI design is a promising tool for data collection and can be applied in many different fields aside from CP to infer useful information out of the vast amount of data being collected.
RESUMO
Sickle cell disease is a genetic mutation that causes sickling of the red blood cells, affecting between 90,000 and 100,000 Americans. Researchers must develop methods of data acquisition capable of maximizing both the amount of data being collected and types of data being collected to form the most accurate diagnosis and treatment for patients. Popular data acquisition forms are the use of mobile phones, sensory systems, and wearable technology. In this paper, we attempt to bridge the gap between the three, combining a wearable sensory system with the computation and communication power of mobile phones. We propose the application of sickle cell disease as a structure around which to design a textile-based data acquisition system.