Survey of community-based programs serving U.S. families with Huntington's disease: perceived barriers and facilitators in the residential placement process.
Care Manag J
; 9(2): 65-74, 2008.
Article
em En
| MEDLINE
| ID: mdl-18619086
ABSTRACT
This article describes the contours of the residential care placement experience for social service staff health care providers, and their client families of patients with Huntington's disease. The purpose of this study was to determine the factors, conditions, and barriers encountered by outpatient clinical staff and families in the transition to skilled nursing care. A Long-Term Care Contact Survey was developed to (a) gather information about long-term care referral sites; (b) determine the factors considered in choosing a facility; (c) describe the factors that hindered the transition to long-term care; (d) describe conditions prior to institutionalization; and (e) determine research interest. The study found that large cohorts of patients with Huntington's disease in residential care are scarce. A lack of confidence in the available options suggests the need for increased support for educational and social services to facility staff Speech/swallowing therapy and physical therapy as placement facilitators reflect salient issues of latter stages of the disease, implicating funding support needs. Families facing this transition require long-term guidance for financiail, caregiving, and psychosocial issues.
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Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Instituições Residenciais
/
Percepção Social
/
Família
/
Doença de Huntington
/
Serviços de Saúde Comunitária
/
Acessibilidade aos Serviços de Saúde
Tipo de estudo:
Diagnostic_studies
/
Evaluation_studies
/
Guideline
/
Qualitative_research
Limite:
Humans
País/Região como assunto:
America do norte
Idioma:
En
Ano de publicação:
2008
Tipo de documento:
Article