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Identifying data sources for a national population-based registry: the experience of the Spanish Rare Diseases Registry.
Zoni, A C; Domínguez Berjón, M F; Barceló, E; Esteban Vasallo, M D; Abaitua, I; Jiménez Villa, J; Margolles Martins, M; Navarro, C; Posada, M; Ramos Aceitero, J M; Vázquez Santos, C; Zurriaga Llorens, O; Astray Mochales, J.
Afiliação
  • Zoni AC; Area of Epidemiology, Sub-directorate of Health Promotion and Prevention, General Directorate of Primary Care, Health Department of the Autonomous Government of Madrid, Spain. Electronic address: anaclarazoni@gmail.com.
  • Domínguez Berjón MF; Area of Epidemiology, Sub-directorate of Health Promotion and Prevention, General Directorate of Primary Care, Health Department of the Autonomous Government of Madrid, Spain.
  • Barceló E; Area of Epidemiology, Sub-directorate of Health Promotion and Prevention, General Directorate of Primary Care, Health Department of the Autonomous Government of Madrid, Spain.
  • Esteban Vasallo MD; Area of Epidemiology, Sub-directorate of Health Promotion and Prevention, General Directorate of Primary Care, Health Department of the Autonomous Government of Madrid, Spain.
  • Abaitua I; Research Institute for Rare Disease, Institute of Health Carlos III, Madrid, Spain.
  • Jiménez Villa J; Operative Planning and Evaluation Division, Health Area, Catalan Health Service (CatSalut) Autonomous Government of Cataluña, Spain.
  • Margolles Martins M; Epidemiology & Surveillance Service, General Directorate of Public Health, Health Department of the Autonomous Government of Asturias, Spain.
  • Navarro C; Dep. of Pathology & Neuropathology, University Hospital of Vigo (CHUVI-SERGAS), Spain; Neurosciences Research Group 'NC-CHUVI', Instituto de Investigación Biomédica de Vigo (IBIV), Xerencia de Xestión Integrada de Vigo - SERGAS, Spain.
  • Posada M; Research Institute for Rare Disease, Institute of Health Carlos III, Madrid, Spain.
  • Ramos Aceitero JM; Sub-Directorate of Epidemiology, General Directorate of Public Health, Health Department of the Autonomous Government of Extremadura, Spain.
  • Vázquez Santos C; Neurosciences Research Group 'NC-CHUVI', Instituto de Investigación Biomédica de Vigo (IBIV), Xerencia de Xestión Integrada de Vigo - SERGAS, Spain.
  • Zurriaga Llorens O; Epidemiological Surveys & Health Statistics Service, General Directorate of Public Health, Autonomous Government of Valencia, Spain; Centre for Public Health Research (CSISP), Autonomous Government of Valencia, Spain.
  • Astray Mochales J; Area of Epidemiology, Sub-directorate of Health Promotion and Prevention, General Directorate of Primary Care, Health Department of the Autonomous Government of Madrid, Spain.
Public Health ; 129(3): 271-5, 2015 Mar.
Article em En | MEDLINE | ID: mdl-25698495
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Sistema de Registros / Coleta de Dados / Doenças Raras Limite: Humans País/Região como assunto: Europa Idioma: En Ano de publicação: 2015 Tipo de documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Sistema de Registros / Coleta de Dados / Doenças Raras Limite: Humans País/Região como assunto: Europa Idioma: En Ano de publicação: 2015 Tipo de documento: Article