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Assessment of the impact of phenylketonuria and its treatment on quality of life of patients and parents from seven European countries.
Bosch, Annet M; Burlina, Alberto; Cunningham, Amy; Bettiol, Esther; Moreau-Stucker, Flavie; Koledova, Ekaterina; Benmedjahed, Khadra; Regnault, Antoine.
Afiliação
  • Bosch AM; Department of Paediatrics, Division of Metabolic Disorders, Academic Medical Centre, University Hospital of Amsterdam, Amsterdam, The Netherlands. a.m.bosch@amc.uva.nl.
  • Burlina A; Division of Metabolic Disorders, Department of Paediatrics, University Hospital of Padova, Padova, Italy. alberto.burlina@unipd.it.
  • Cunningham A; Hayward Genetics Center, Tulane University School of Medicine, New Orleans, LA, USA. acunnin@tulane.edu.
  • Bettiol E; Infection Control Program, University of Geneva Hospitals and Faculty of Medicine, Geneva, Switzerland. Esther.Bettiol@hcuge.ch.
  • Moreau-Stucker F; EMD Serono Inc, Billerica, MA, USA. flavie.moreau-stucker@emdserono.com.
  • Koledova E; Mapi, Health Economics & Outcomes Research and Strategic Market Access, Lyon, France.
  • Benmedjahed K; Merck KGaA, Darmstadt, Germany. KBenmedjahed@mapigroup.com.
  • Regnault A; Merck KGaA, Darmstadt, Germany. aregnault@mapigroup.com.
Orphanet J Rare Dis ; 10: 80, 2015 Jun 18.
Article em En | MEDLINE | ID: mdl-26084935
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Fenilcetonúrias / Qualidade de Vida / Doenças Raras Tipo de estudo: Clinical_trials / Etiology_studies / Observational_studies / Qualitative_research / Risk_factors_studies Limite: Adolescent / Adult / Aged / Child / Female / Humans / Male / Middle aged País/Região como assunto: Europa Idioma: En Ano de publicação: 2015 Tipo de documento: Article
Texto completo
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XML
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Fenilcetonúrias / Qualidade de Vida / Doenças Raras Tipo de estudo: Clinical_trials / Etiology_studies / Observational_studies / Qualitative_research / Risk_factors_studies Limite: Adolescent / Adult / Aged / Child / Female / Humans / Male / Middle aged País/Região como assunto: Europa Idioma: En Ano de publicação: 2015 Tipo de documento: Article