A Parent's Journey: Incorporating Principles of Palliative Care into Practice for Children with Chronic Neurologic Diseases.
Semin Pediatr Neurol
; 22(3): 159-65, 2015 Sep.
Article
em En
| MEDLINE
| ID: mdl-26358425
ABSTRACT
Rather than in conflict or in competition with the curative model of care, pediatric palliative care is a complementary and transdisciplinary approach used to optimize medical care for children with complex medical conditions. It provides care to the whole child, including physical, mental, and spiritual dimensions, in addition to support for the family. Through the voice of a parent, the following case-based discussion demonstrates how the fundamentals of palliative care medicine, when instituted early in the course of disease, can assist parents and families with shared medical decision making, ultimately improving the quality of life for children with life-limiting illnesses. Pediatric neurologists, as subspecialists who provide medical care for children with chronic and complex conditions, should consider invoking the principles of palliative care early in the course of a disease process, either through applying general facets or, if available, through consultation with a specialty palliative care service.
Texto completo:
1
Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Cuidados Paliativos
/
Pais
/
Pediatria
/
Doenças do Sistema Nervoso
Tipo de estudo:
Prognostic_studies
/
Qualitative_research
Limite:
Child
/
Female
/
Humans
Idioma:
En
Ano de publicação:
2015
Tipo de documento:
Article