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The first Team Haemophilia Education meeting, 2015, Amsterdam, The Netherlands.
Berntorp, Erik; Hart, Daniel; Mancuso, Maria Elisa; d'Oiron, Roseline; Perry, David; O'Mahony, Brian; Kaczmarek, Radoslaw; Crato, Miguel; Pasi, John; Miners, Alec; Carlsson, Katarina Steen; Kitchen, Steve; Boehlen, Françoise; Giangrande, Paul; Cebura, Elizabete; Uitslager, Nanda; Osooli, Mehdi; Janeckova, Daniela; Haldon, Rosie; Rivolta, Gianna Franca.
Afiliação
  • Berntorp E; Skåne University Hospital, Lund University, Malmö, Sweden.
  • Hart D; Barts and the London School of Medicine and Dentistry, Queen Mary University of London, London, UK.
  • Mancuso ME; Angelo Bianchi Bonomi Haemophilia and Thrombosis Centre, Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico, Milan, Italy.
  • d'Oiron R; Centre for Haemophilia and Rare Congenital Bleeding Disorders, University Hospitals Paris-Sud, AP-HP Bicêtre Hospital, Le Kremlin-Bicêtre, France.
  • Perry D; Addenbrooke's Hospital, University of Cambridge, Cambridge, UK.
  • O'Mahony B; Irish Haemophilia Society, Dublin, Ireland.
  • Kaczmarek R; Polish Haemophilia Society, Warsaw, Poland.
  • Crato M; Portuguese Haemophilia Society, Lisbon, Portugal.
  • Pasi J; Barts and the London School of Medicine and Dentistry, Queen Mary University of London, London, UK.
  • Miners A; London School of Hygiene and Tropical Medicine, London, UK.
  • Carlsson KS; Swedish Institute for Health Economics, Lund, Sweden.
  • Kitchen S; Department of Coagulation, Royal Hallamshire Hospital, Sheffield, UK.
  • Boehlen F; Haemostasis Unit, University Hospitals of Geneva, Geneva, Switzerland.
  • Giangrande P; Oxford Haemophilia & Thrombosis Centre, Oxford University Hospitals, Oxford, UK.
  • Cebura E; Haemophilia Treatment Centre, University Children's Hospital, Riga, Latvia.
  • Uitslager N; Van Creveldkliniek, University Medical Centre, Utrecht, The Netherlands.
  • Osooli M; Skåne University Hospital, Lund University, Malmö, Sweden.
  • Janeckova D; Haemophilia Treatment Centre, University Hospital Motol, Prague, Czech Republic.
  • Haldon R; Katharine Dormandy Haemophilia Centre and Thrombosis Unit, Royal Free Hospital, London, UK.
  • Rivolta GF; Regional Reference Centre for Inherited Bleeding Disorders, University Hospital of Parma, Parma, Italy.
Eur J Haematol ; 97 Suppl 83: 3-18, 2016 Jul.
Article em En | MEDLINE | ID: mdl-27272000
ABSTRACT
Haemophilia remains a complex disorder to diagnose and manage, requiring close cooperation between multidisciplinary healthcare professionals. There are still many unmet challenges in haemophilia care. The first Team Haemophilia Education (THE) meeting, held on 7-8 May 2015 in Amsterdam, The Netherlands, aimed to promote the optimal care of haemophilia patients through education of the multidisciplinary treatment team. This was achieved by reviewing the latest developments in haemophilia management, considering how these can be implemented in the clinic to improve patient care and providing a platform for networking and debate for all haemophilia treatment team members. Haemophilia treatment centres from several countries were asked to complete a premeeting online questionnaire to establish the biggest challenges that they face when managing patients. The concerns expressed were used to develop the agenda, which comprised a combination of formal presentations, case studies and informal workshops covering such topics as pharmacokinetics, laboratory assays and tailoring of treatment to individual patients. This report is a summary of the key developments in haemophilia care presented by various investigators and healthcare professionals at THE meeting 2015.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Hemofilia B / Hemofilia A Tipo de estudo: Qualitative_research Limite: Humans País/Região como assunto: Europa Idioma: En Ano de publicação: 2016 Tipo de documento: Article

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Hemofilia B / Hemofilia A Tipo de estudo: Qualitative_research Limite: Humans País/Região como assunto: Europa Idioma: En Ano de publicação: 2016 Tipo de documento: Article