Your browser doesn't support javascript.
loading
Gender Issues and Related Social Stigma Affecting Patients with a Disorder of Sex Development in India.
Joseph, Angela Ann; Kulshreshtha, Bindu; Shabir, Iram; Marumudi, Eunice; George, Tony Sam; Sagar, Rajesh; Mehta, Manju; Ammini, Ariachery C.
Afiliação
  • Joseph AA; Department of Psychiatry, All India Institute of Medical Sciences, Ansari Nagar, New Delhi, 110029, India. joseph.angela12@gmail.com.
  • Kulshreshtha B; Department of Endocrinology, Ram Manohar Lohia Hospital, New Delhi, India.
  • Shabir I; Department of Endocrinology, All India Institute of Medical Sciences, New Delhi, India.
  • Marumudi E; Department of Endocrinology, All India Institute of Medical Sciences, New Delhi, India.
  • George TS; Department of Psychology, Christ University, Bangalore, India.
  • Sagar R; Department of Psychiatry, All India Institute of Medical Sciences, Ansari Nagar, New Delhi, 110029, India.
  • Mehta M; Department of Psychiatry, All India Institute of Medical Sciences, Ansari Nagar, New Delhi, 110029, India.
  • Ammini AC; Department of Endocrinology, All India Institute of Medical Sciences, New Delhi, India.
Arch Sex Behav ; 46(2): 361-367, 2017 Feb.
Article em En | MEDLINE | ID: mdl-27649694
ABSTRACT
Children with disorders of sex development (DSD) manifest at birth with malformed genitalia or later with atypical pubertal development. Those born with malformed genitalia are often diagnosed at birth. However, in resource-poor countries like India, where not all births are supervised by healthcare workers, some of these children remain undiagnosed until puberty or even later. The aim of this study was to assess the gender issues and psychosocial problems of children with DSD. Participants included 205 children with DSD (103 with 46,XX DSD and 102 with 46,XY DSD). Both the children with DSD and their parents underwent semistructured interviews by a clinical psychologist. The birth of a child with DSD was perceived as a major medical and social problem by parents from all socioeconomic strata. Mothers were distressed as many believed the DSD condition was transmitted through the mother. Children who were not diagnosed and treated during infancy or early childhood experienced considerable social discrimination not only from relatives and friends but also from medical and paramedical staff in hospitals. Several patients had been operated during infancy without an etiological diagnosis and without provision of adequate information to the parents. Some children had problems related to complications of surgery. Most teenage patients with 5α-reductase-2 deficiency reared as females presented with gender dysphoria, while children with androgen insensitivity (except for one) or with gonadal dysgenesis developed a gender identity concordant with their gender of rearing. Parents of children with DSD preferred a male gender assignment for their children (if that was possible) because of the social advantages of growing up male in a patriarchal society.
Assuntos
Palavras-chave

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Transtornos do Desenvolvimento Sexual Tipo de estudo: Qualitative_research Limite: Adolescent / Child / Female / Humans / Male País/Região como assunto: Asia Idioma: En Ano de publicação: 2017 Tipo de documento: Article

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Transtornos do Desenvolvimento Sexual Tipo de estudo: Qualitative_research Limite: Adolescent / Child / Female / Humans / Male País/Região como assunto: Asia Idioma: En Ano de publicação: 2017 Tipo de documento: Article