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Conducting a large, multi-site survey about patients' views on broad consent: challenges and solutions.
Smith, Maureen E; Sanderson, Saskia C; Brothers, Kyle B; Myers, Melanie F; McCormick, Jennifer; Aufox, Sharon; Shrubsole, Martha J; Garrison, Nanibaá A; Mercaldo, Nathaniel D; Schildcrout, Jonathan S; Clayton, Ellen Wright; Antommaria, Armand H Matheny; Basford, Melissa; Brilliant, Murray; Connolly, John J; Fullerton, Stephanie M; Horowitz, Carol R; Jarvik, Gail P; Kaufman, Dave; Kitchner, Terri; Li, Rongling; Ludman, Evette J; McCarty, Catherine; McManus, Valerie; Stallings, Sarah; Williams, Janet L; Holm, Ingrid A.
Afiliação
  • Smith ME; Center for Genetic Medicine, Feinberg School of Medicine, Northwestern University, 645 N. Michigan Avenue, Chicago, IL, 60611, USA. m-smith6@northwestern.edu.
  • Sanderson SC; Icahn School of Medicine at Mount Sinai, New York, NY, USA.
  • Brothers KB; University College London, London, UK.
  • Myers MF; University of Louisville School of Medicine, Louisville, KY, USA.
  • McCormick J; Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.
  • Aufox S; Penn State College of Medicine, Hershey, PA, USA.
  • Shrubsole MJ; Center for Genetic Medicine, Feinberg School of Medicine, Northwestern University, 645 N. Michigan Avenue, Chicago, IL, 60611, USA.
  • Garrison NA; Vanderbilt University Medical Center and Vanderbilt University, Nashville, TN, USA.
  • Mercaldo ND; Seattle Children's Research Institute, Seattle, WA, USA.
  • Schildcrout JS; Vanderbilt University Medical Center and Vanderbilt University, Nashville, TN, USA.
  • Clayton EW; Vanderbilt University Medical Center and Vanderbilt University, Nashville, TN, USA.
  • Antommaria AH; Vanderbilt University Medical Center and Vanderbilt University, Nashville, TN, USA.
  • Basford M; Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.
  • Brilliant M; Vanderbilt University Medical Center and Vanderbilt University, Nashville, TN, USA.
  • Connolly JJ; Marshfield Clinic Research Foundation, Marshfield, WI, USA.
  • Fullerton SM; The Children's Hospital of Philadelphia, Philadelphia, PA, USA.
  • Horowitz CR; University of Washington, Seattle, WA, USA.
  • Jarvik GP; Icahn School of Medicine at Mount Sinai, New York, NY, USA.
  • Kaufman D; University of Washington, Seattle, WA, USA.
  • Kitchner T; National Human Genome Research Institute, National Institutes of Health, Bethesda, MD, USA.
  • Li R; Marshfield Clinic Research Foundation, Marshfield, WI, USA.
  • Ludman EJ; National Human Genome Research Institute, National Institutes of Health, Bethesda, MD, USA.
  • McCarty C; Group Health Research Institute, Seattle, WA, USA.
  • McManus V; Essentia Institute of Rural Health, Duluth, MN, USA.
  • Stallings S; Marshfield Clinic Research Foundation, Marshfield, WI, USA.
  • Williams JL; Vanderbilt University Medical Center and Vanderbilt University, Nashville, TN, USA.
  • Holm IA; Geisinger Health System, Danville, PA, USA.
BMC Med Res Methodol ; 16(1): 162, 2016 11 24.
Article em En | MEDLINE | ID: mdl-27881091
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Inquéritos e Questionários / Confidencialidade / Disseminação de Informação / Estudo de Associação Genômica Ampla / Registros Eletrônicos de Saúde Tipo de estudo: Guideline / Prognostic_studies / Qualitative_research Limite: Humans País/Região como assunto: America do norte Idioma: En Ano de publicação: 2016 Tipo de documento: Article
Texto completo
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XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Inquéritos e Questionários / Confidencialidade / Disseminação de Informação / Estudo de Associação Genômica Ampla / Registros Eletrônicos de Saúde Tipo de estudo: Guideline / Prognostic_studies / Qualitative_research Limite: Humans País/Região como assunto: America do norte Idioma: En Ano de publicação: 2016 Tipo de documento: Article