[Supporting Patients with Disease Living at Home].

ABSTRACT

In daily life, many are not familiar with progressive intractable disease. It is often the case that the patient's family confronts a rare progressive disease only once a diagnosis is made. In recent years, the internet has made it possible for families to learn about diseases in detail, and they can more or less predict the likely course of nursing care required by the patient in the days to come. Yet families often lack understanding of terms related to a disease and how to respond to disease progression. It is desirable that, when a patient confronts a disease and home health care is going to be provided, a care provider be able to show empathy for the patient and the family and build a trust relationship with them. Under the theme of"living at home with disease,"this study examines the case of a patient who copes with the diagnosis of a specified disease and who remains at home. This paper highlights the importance of ongoing collaboration between community medicine and home health care service.