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Supporting home hospice family caregivers: Insights from different perspectives.
Ellington, Lee; Cloyes, Kristin G; Xu, Jiayun; Bellury, Lanell; Berry, Patricia H; Reblin, Maija; Clayton, Margaret F.
Afiliação
  • Ellington L; College of Nursing,University of Utah,Salt Lake City,Utah,USA.
  • Cloyes KG; College of Nursing,University of Utah,Salt Lake City,Utah,USA.
  • Xu J; College of Nursing,University of Utah,Salt Lake City,Utah,USA.
  • Bellury L; Georgia Baptist College of Nursing,Mercer University,Atlanta,Georgia,USA.
  • Berry PH; Hartford Center of Gerontological Excellence,Oregon Health and Science University,Portland,Oregon,USA.
  • Reblin M; Department of Health Outcomes and Behavior,Moffitt Cancer Center,Tampa,Florida,USA.
  • Clayton MF; College of Nursing,University of Utah,Salt Lake City,Utah,USA.
Palliat Support Care ; 16(2): 209-219, 2018 04.
Article em En | MEDLINE | ID: mdl-28464961
ABSTRACTObjective:Our intention was to describe and compare the perspectives of national hospice thought leaders, hospice nurses, and former family caregivers on factors that promote or threaten family caregiver perceptions of support. METHOD: Nationally recognized hospice thought leaders (n = 11), hospice nurses (n = 13), and former family caregivers (n = 14) participated. Interviews and focus groups were audiotaped and transcribed. Data were coded inductively, and codes were hierarchically grouped by topic. Emergent categories were summarized descriptively and compared across groups. RESULTS: Four categories linked responses from the three participant groups (95%, 366/384 codes): (1) essentials of skilled communication (30.6%), (2) importance of building authentic relationships (28%), (3) value of expert teaching (22.4%), and (4) critical role of teamwork (18.3%). The thought leaders emphasized communication (44.6%), caregivers stressed expert teaching (51%), and nurses highlighted teamwork (35.8%). Nurses discussed teamwork significantly more than caregivers (z = 2.2786), thought leaders discussed communication more than caregivers (z = 2.8551), and caregivers discussed expert teaching more than thought leaders (z = 2.1693) and nurses (z = 2.4718; all values of p < 0.05). SIGNIFICANCE OF RESULTS: Our findings suggest differences in priorities for caregiver support across family caregivers, hospice nurses, and thought leaders. Hospice teams may benefit from further education and training to help cross the schism of family-centered hospice care as a clinical ideal to one where hospice team members can fully support and empower family caregivers as a hospice team member.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Cuidados Paliativos na Terminalidade da Vida / Cuidadores / Serviços de Assistência Domiciliar Tipo de estudo: Qualitative_research Limite: Adult / Female / Humans / Male Idioma: En Ano de publicação: 2018 Tipo de documento: Article

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Cuidados Paliativos na Terminalidade da Vida / Cuidadores / Serviços de Assistência Domiciliar Tipo de estudo: Qualitative_research Limite: Adult / Female / Humans / Male Idioma: En Ano de publicação: 2018 Tipo de documento: Article