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Multiple sclerosis registries in Europe - An updated mapping survey.
Glaser, A; Stahmann, A; Meissner, T; Flachenecker, P; Horáková, D; Zaratin, P; Brichetto, G; Pugliatti, M; Rienhoff, O; Vukusic, S; de Giacomoni, A C; Battaglia, M A; Brola, W; Butzkueven, H; Casey, R; Drulovic, J; Eichstädt, K; Hellwig, K; Iaffaldano, P; Ioannidou, E; Kuhle, J; Lycke, K; Magyari, M; Malbasa, T; Middleton, R; Myhr, K M; Notas, K; Orologas, A; Otero-Romero, S; Pekmezovic, T; Sastre-Garriga, J; Seeldrayers, P; Soilu-Hänninen, M; Stawiarz, L; Trojano, M; Ziemssen, T; Hillert, J; Thalheim, C.
Afiliação
  • Glaser A; Department of Clinical Neuroscience and Centrum for Molecular Medicine at Karolinska, Institutet, Stockholm, Sweden. Electronic address: anna.glaser@ki.se.
  • Stahmann A; MS-Register of the German MS-Society, MS Forschungs- und Projektentwicklungs-gGmbH, Hannover, Germany.
  • Meissner T; University Medical Center Göttingen, Department of Medical Informatics, Göttingen, Germany.
  • Flachenecker P; Neurological Rehabilitation Center Quellenhof, Bad Wildbad, Germany.
  • Horáková D; Department of Neurology and Center of Clinical Neuroscience, First Faculty of Medicine, Charles University and General University Hospital in Prague, Czech Republic.
  • Zaratin P; Italian Multiple Sclerosis Foundation, Via Operai 40, Genoa 16149, Italy; MS International Federation, London, UK.
  • Brichetto G; MS International Federation, London, UK; Scientific Research Area, Italian MS Society, Genoa, Italy.
  • Pugliatti M; Department of Biomedical and Surgical Sciences, University of Ferrara, Italy; S. Anna University Hospital, Via Aldo Moro 8 - 1C3, 44124 Ferrara, (FE), Italy.
  • Rienhoff O; University Medical Center Göttingen, Department of Medical Informatics, Göttingen, Germany.
  • Vukusic S; Hospices Civils de Lyon, Service de Neurologie, sclérose en plaques, pathologies de la myéline et neuro-inflammation, F-69677 Bron, France; Observatoire Français de la Sclérose en Plaques, Centre de Recherche en Neurosciences de Lyon, INSERM 1028 et CNRS UMR5292, F-69003, Lyon, France; Université de
  • de Giacomoni AC; Hospices Civils de Lyon, Service de Neurologie, sclérose en plaques, pathologies de la myéline et neuro-inflammation, F-69677 Bron, France; Observatoire Français de la Sclérose en Plaques, Centre de Recherche en Neurosciences de Lyon, INSERM 1028 et CNRS UMR5292, F-69003, Lyon, France; Université de
  • Battaglia MA; Italian Multiple Sclerosis Foundation, Via Operai 40, Genoa 16149, Italy; MS International Federation, London, UK; Department of Life Sciences, University of Siena, Italy.
  • Brola W; Department of Neurology, Specialist Hospital, Konskie, Poland; The Faculty of Medicine and Health Science, Institute of Physiotherapy, Jan Kochanowski University, Kielce, Poland.
  • Butzkueven H; Central Clinical School, Alfred Centre, Monash University, 99 Commercial Rd, Melbourne, VIC 3004, Australia.
  • Casey R; Hospices Civils de Lyon, Service de Neurologie, sclérose en plaques, pathologies de la myéline et neuro-inflammation, F-69677 Bron, France; Observatoire Français de la Sclérose en Plaques, Centre de Recherche en Neurosciences de Lyon, INSERM 1028 et CNRS UMR5292, F-69003, Lyon, France; Université de
  • Drulovic J; Clinic of Neurology, CCS, Faculty of Medicine, University of Belgrade, Belgrade, Serbia.
  • Eichstädt K; MS-Register of the German MS-Society, MS Forschungs- und Projektentwicklungs-gGmbH, Hannover, Germany.
  • Hellwig K; Department of Neurology, St. Josef-Hospital Bochum, Ruhr University Bochum, Bochum, Germany.
  • Iaffaldano P; Department of Basic Medical Sciences, Neurosciences and Sense Organs, University of Bari "Aldo Moro", Italy.
  • Ioannidou E; The Greek Multiple Sclerosis Society, Thessaloniki, Greece.
  • Kuhle J; Neurology, Departments of Medicine, Biomedicine and Clinical Research, University Hospital Basel, University of Basel, Switzerland.
  • Lycke K; Department of Clinical Neuroscience, Karolinska Institutet, Stockholm, Sweden.
  • Magyari M; The Danish Multiple Sclerosis Registry, Department of Neurology, Rigshospitalet, University of Copenhagen, Denmark.
  • Malbasa T; Association of multiple sclerosis societies of Croatia, Trnsko 34, p.p.74, Zagreb 10020, Croatia.
  • Middleton R; Swansea University Medical School, SWANSEA SA2 8PP, United Kingdom.
  • Myhr KM; Department of Clinical Medicine, University of Bergen, Norway; The Norwegian MS-Registry and Biobank, Department of Neurology, Haukeland University Hospital, Bergen, Norway.
  • Notas K; The Greek Multiple Sclerosis Society, Thessaloniki, Greece; Aristotle University of Thessaloniki, Greece.
  • Orologas A; Aristotle University of Thessaloniki, Greece.
  • Otero-Romero S; Preventive Medicine and Epidemiology Department, Hospital Universitari Vall d'Hebron, Universitat Autònoma de Barcelona, Barcelona, Spain; Department of Neurology / Neuroimmunology, Multiple Sclerosis Centre of Catalonia (Cemcat), Hospital Universitari Vall d'Hebron, Universitat Autònoma de Barcelon
  • Pekmezovic T; Institute of Epidemiology, Faculty of Medicine, University of Belgrade, Serbia.
  • Sastre-Garriga J; Department of Neurology / Neuroimmunology, Multiple Sclerosis Centre of Catalonia (Cemcat), Hospital Universitari Vall d'Hebron, Universitat Autònoma de Barcelona, Barcelona, Spain.
  • Seeldrayers P; President of the Belgian Study Group for Multiple Sclerosis, Belgium.
  • Soilu-Hänninen M; Division of Clinical Neurosciences, Turku University Hospital and University of Turku, Turku, Finland.
  • Stawiarz L; Department of Clinical Neuroscience, Karolinska Institutet, Stockholm, Sweden.
  • Trojano M; Department of Basic Medical Sciences, Neurosciences and Sense Organs, University of Bari "Aldo Moro", Italy.
  • Ziemssen T; Department of Neurology, MS Center Dresden, Center of Clinical Neuroscience, University Hospital Carl Gustav Carus, Dresden University of Technology, Germany.
  • Hillert J; Department of Clinical Neuroscience and Centrum for Molecular Medicine at Karolinska, Institutet, Stockholm, Sweden.
  • Thalheim C; European Multiple Sclerosis Platform (EMSP), Schaerbeek, Belgium.
Mult Scler Relat Disord ; 27: 171-178, 2019 01.
Article em En | MEDLINE | ID: mdl-30384204
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Sistema de Registros / Esclerose Múltipla Limite: Humans País/Região como assunto: Europa Idioma: En Ano de publicação: 2019 Tipo de documento: Article
Texto completo
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Sistema de Registros / Esclerose Múltipla Limite: Humans País/Região como assunto: Europa Idioma: En Ano de publicação: 2019 Tipo de documento: Article