Pulmonary exacerbations in patients with primary ciliary dyskinesia: an expert consensus definition for use in clinical trials.

Lucas, Jane S; Gahleitner, Florian; Amorim, Adelina; Boon, Mieke; Brown, Philippa; Constant, Carolina; Cook, Simon; Crowley, Suzanne; Destouches, Damien M S; Eber, Ernst; Mussaffi, Huda; Haarman, Eric; Harris, Amanda; Koerner-Rettberg, Cordula; Kuehni, Claudia E; Latzin, Philipp; Loebinger, Michael R; Lorent, Natalie; Maitre, Bernard; Moreno-Galdó, Antonio; Nielsen, Kim G; Özçelik, Ugur; Philipsen, Lue Katrine Drasbæk; Pohunek, Petr; Polverino, Eva; Rademacher, Jessica; Robinson, Phil; Snijders, Deborah; Yiallouros, Panayiotis; Carr, Siobhán B

Lucas, Jane S; Gahleitner, Florian; Amorim, Adelina; Boon, Mieke; Brown, Philippa; Constant, Carolina; Cook, Simon; Crowley, Suzanne; Destouches, Damien M S; Eber, Ernst; Mussaffi, Huda; Haarman, Eric; Harris, Amanda; Koerner-Rettberg, Cordula; Kuehni, Claudia E; Latzin, Philipp; Loebinger, Michael R; Lorent, Natalie; Maitre, Bernard; Moreno-Galdó, Antonio; Nielsen, Kim G; Özçelik, Ugur; Philipsen, Lue Katrine Drasbæk; Pohunek, Petr; Polverino, Eva; Rademacher, Jessica; Robinson, Phil; Snijders, Deborah; Yiallouros, Panayiotis; Carr, Siobhán B.

Afiliação

Lucas JS; Primary Ciliary Dyskinesia Centre, NIHR Southampton Biomedical Research Centre, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK.
Gahleitner F; Primary Ciliary Dyskinesia Centre, NIHR Southampton Biomedical Research Centre, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK.
Amorim A; Pulmonology Dept, Centro Hospitalar S. João, Porto, Portugal.
Boon M; Faculty of Medicine, Porto University, Porto, Portugal.
Brown P; Dept of Paediatrics, University Hospital Gasthuisberg, Leuven, Belgium.
Constant C; PCD Family Support Group, UK.
Cook S; Paediatric Pulmonology Unit, Paediatrics Dept, Centro Hospitalar Lisboa Norte, Lisbon Academic Medical Centre, Lisbon, Portugal.
Crowley S; PCD Family Support Group, UK.
Destouches DMS; Paediatric Dept of Allergy and Lung Diseases, Oslo University Hospital, Oslo, Norway.
Eber E; Association des Patients Ayant une Dyskinésie Ciliaire Primitive, France.
Mussaffi H; Division of Paediatric Pulmonology and Allergology, Dept of Paediatrics and Adolescent Medicine, Medical University of Graz, Graz, Austria.
Haarman E; Schneider Children's Medical Center of Israel, Petach-Tikva and Sackler School of Medicine, Tel Aviv University, Tel Aviv, Israel.
Harris A; Dept of Pediatric Pulmonology, VU University Medical Center, Amsterdam, The Netherlands.
Koerner-Rettberg C; Primary Ciliary Dyskinesia Centre, NIHR Southampton Biomedical Research Centre, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK.
Kuehni CE; Dept of Paediatric Pneumology, University Children's Hospital of Ruhr University, Bochum, Germany.
Latzin P; Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland.
Loebinger MR; Paediatric Respiratory Medicine, University Children's Hospital of Bern, University of Bern, Bern, Switzerland.
Lorent N; Host Defence Unit, Royal Brompton and Harefield NHS Foundation Trust, London, UK.
Maitre B; Imperial College London, London, UK.
Moreno-Galdó A; Dept of Respiratory Medicine, University Hospitals Leuven, Leuven, Belgium.
Nielsen KG; Service de Pneumologie, Hôpital Intercommunal de Créteil, DHU A-TVB, Inserm U955, Université Paris Est-Créteil, Créteil, France.
Özçelik U; Section of Pediatric Allergy, Pulmonology and Cystic Fibrosis, Hospital Vall d'Hebron, Universitat Autónoma de Barcelona, CIBERER, ISCIII, Barcelona, Spain.
Philipsen LKD; Danish PCD & chILD Centre, CF Centre Copenhagen Paediatric Pulmonary Service, ERN Accredited for PCD and CF Health Care, Dept of Paediatrics and Adolescent Medicine, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark.
Pohunek P; Dept of Pediatric Pulmonology, University Medical Faculty, Ankara, Turkey.
Polverino E; Danish PCD & chILD Centre, CF Centre Copenhagen Paediatric Pulmonary Service, ERN Accredited for PCD and CF Health Care, Dept of Paediatrics and Adolescent Medicine, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark.
Rademacher J; Paediatric Dept, Second Faculty of Medicine, Charles University and Motol University Hospital, Prague, Czech Republic.
Robinson P; Vall d'Hebron Research Institute, Respiratory Disease Dept, Hospital Vall d'Hebron, CIBER, Barcelona, Spain.
Snijders D; Dept of Respiratory Medicine, Hannover Medical School, Hanover, Germany.
Yiallouros P; PCD Service, Dept of Respiratory and Sleep Medicine, Royal Children's Hospital, Melbourne, Australia.
Carr SB; Primary Ciliary Dyskinesia Centre, Dept of Woman and Child Health (SDB), University of Padova, Padua, Italy.

ERJ Open Res ; 5(1)2019 Feb.

Article em En | MEDLINE | ID: mdl-30723730

Texto completo

Imprimir

XML

PubMed Links

Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Tipo de estudo: Prognostic_studies / Qualitative_research / Systematic_reviews Idioma: En Ano de publicação: 2019 Tipo de documento: Article

Texto completo

Imprimir

XML

PubMed Links

Buscar no Google