Ethical, Legal, and Social Issues Related to the Inclusion of Individuals With Intellectual Disabilities in Electronic Health Record Research: Scoping Review.

Raspa, Melissa; Moultrie, Rebecca; Wagner, Laura; Edwards, Anne; Andrews, Sara; Frisch, Mary Katherine; Turner-Brown, Lauren; Wheeler, Anne

Raspa, Melissa; Moultrie, Rebecca; Wagner, Laura; Edwards, Anne; Andrews, Sara; Frisch, Mary Katherine; Turner-Brown, Lauren; Wheeler, Anne.

Afiliação

Raspa M; RTI International, Research Triangle Park, NC, United States.
Moultrie R; RTI International, Research Triangle Park, NC, United States.
Wagner L; RTI International, Research Triangle Park, NC, United States.
Edwards A; RTI International, Research Triangle Park, NC, United States.
Andrews S; RTI International, Research Triangle Park, NC, United States.
Frisch MK; The University of North Carolina at Chapel Hill, TEACCH Autism Program, Chapel Hill, NC, United States.
Turner-Brown L; The University of North Carolina at Chapel Hill, TEACCH Autism Program, Chapel Hill, NC, United States.
Wheeler A; RTI International, Research Triangle Park, NC, United States.

J Med Internet Res ; 22(5): e16734, 2020 05 21.

Article em En | MEDLINE | ID: mdl-32436848

Assuntos

Registros Eletrônicos de Saúde/normas; Análise Ética/métodos; Deficiência Intelectual/epidemiologia; Humanos

Palavras-chave

electronic health records; genetics; informed consent; intellectual disability; privacy

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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Análise Ética / Registros Eletrônicos de Saúde / Deficiência Intelectual Tipo de estudo: Systematic_reviews Limite: Humans Idioma: En Ano de publicação: 2020 Tipo de documento: Article

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