"I need to know if I'm going to die young": Adolescent and young adult experiences of genetic testing for Li-Fraumeni syndrome.

Forbes Shepherd, Rowan; Werner-Lin, Allison; Keogh, Louise A; Delatycki, Martin B; Forrest, Laura E

Forbes Shepherd, Rowan; Werner-Lin, Allison; Keogh, Louise A; Delatycki, Martin B; Forrest, Laura E.

Afiliação

Forbes Shepherd R; Parkville Familial Cancer Centre, Peter MacCallum Cancer Centre, Melbourne, Victoria, Australia.
Werner-Lin A; Sir Peter MacCallum Department of Oncology, The University of Melbourne, Melbourne, Victoria, Australia.
Keogh LA; Bruce Lefroy Centre for Genetic Health Research, Murdoch Children's Research Institute, Parkville, Victoria, Australia.
Delatycki MB; School of Social Policy and Practice, The University of Pennsylvania, Philadelphia, Pennsylvania, USA.
Forrest LE; Melbourne School of Population and Global Health, The University of Melbourne, Melbourne, Victoria, Australia.

J Psychosoc Oncol ; 39(1): 54-73, 2021.

Article em En | MEDLINE | ID: mdl-32449501

Assuntos

Atitude Frente a Saúde; Testes Genéticos; Síndrome de Li-Fraumeni/genética; Adolescente; Adulto; Feminino; Humanos; Síndrome de Li-Fraumeni/diagnóstico; Síndrome de Li-Fraumeni/psicologia; Masculino; Pesquisa Qualitativa; Incerteza; Adulto Jovem

Palavras-chave

Adolescent and young adult; LiFraumeni syndrome; TP53; genetic testing; psychosocial; qualitative

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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Atitude Frente a Saúde / Testes Genéticos / Síndrome de Li-Fraumeni Tipo de estudo: Diagnostic_studies / Prognostic_studies / Qualitative_research Limite: Adolescent / Adult / Female / Humans / Male Idioma: En Ano de publicação: 2021 Tipo de documento: Article

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