Diagnosis to death: family experiences of paediatric heart disease.

Neubauer, Kathryn; Williams, Erin P; Donohue, Pamela K; Weiss, Elliott M; Lewis-Newby, Mithya; Boss, Renee D

Neubauer, Kathryn; Williams, Erin P; Donohue, Pamela K; Weiss, Elliott M; Lewis-Newby, Mithya; Boss, Renee D.

Afiliação

Neubauer K; Department of Pediatric Palliative Medicine, The Johns Hopkins Children's Center, Baltimore, USA.
Williams EP; Columbia University Irving Medical Center, Vagelos College of Physicians and Surgeons, New York, NY, USA.
Donohue PK; The Berman Institute of Bioethics, Baltimore, MD, USA.
Weiss EM; Department of Pediatrics, The Johns Hopkins Children's Center, Baltimore, MD, USA.
Lewis-Newby M; Department of Pediatrics, Division of Neonatology, University of Washington School of Medicine, Treuman Katz Center for Pediatric Bioethics, Seattle Children's Research Institute, Seattle, WA, USA.
Boss RD; Divisions of Pediatric Cardiac Critical Care Medicine, University of Washington School of Medicine, Treuman Katz Center for Pediatric Bioethics, Seattle Children's Research Institute, Seattle, WA, USA.

Cardiol Young ; 30(11): 1672-1678, 2020 Nov.

Article em En | MEDLINE | ID: mdl-32829727

Assuntos

Família; Insuficiência Cardíaca; Adulto; Criança; Coração; Insuficiência Cardíaca/diagnóstico; Humanos; Pais; Pesquisa Qualitativa; Estados Unidos/epidemiologia

Palavras-chave

Family; children; communication; decision-making; end of life; heart disease; palliative care

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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Família / Insuficiência Cardíaca Tipo de estudo: Diagnostic_studies / Prognostic_studies / Qualitative_research Limite: Adult / Child / Humans País/Região como assunto: America do norte Idioma: En Ano de publicação: 2020 Tipo de documento: Article

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