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Person Ability Scores as an Alternative to Norm-Referenced Scores as Outcome Measures in Studies of Neurodevelopmental Disorders.
Farmer, Cristan A; Kaat, Aaron J; Thurm, Audrey; Anselm, Irina; Akshoomoff, Natacha; Bennett, Amanda; Berry, Leandra; Bruchey, Aleksandra; Barshop, Bruce A; Berry-Kravis, Elizabeth; Bianconi, Simona; Cecil, Kim M; Davis, Robert J; Ficicioglu, Can; Porter, Forbes D; Wainer, Allison; Goin-Kochel, Robin P; Leonczyk, Caroline; Guthrie, Whitney; Koeberl, Dwight; Love-Nichols, Jamie; Mamak, Eva; Mercimek-Andrews, Saadet; Thomas, Rebecca P; Spiridigliozzi, Gail A; Sullivan, Nancy; Sutton, Vernon R; Udhnani, Manisha D; Waisbren, Susan E; Miller, Judith S.
Afiliação
  • Farmer CA; Cristan A. Farmer, National Institute of Mental Health.
  • Kaat AJ; Aaron J. Kaat, Northwestern University.
  • Thurm A; Audrey Thurm, National Institute of Mental Health.
  • Anselm I; Irina Anselm, Boston Children's Hospital and Harvard University.
  • Akshoomoff N; Natacha Akshoomoff, University of California San Diego.
  • Bennett A; Amanda Bennett, Children's Hospital of Philadelphia.
  • Berry L; Leandra Berry, Baylor College of Medicine.
  • Bruchey A; Aleksandra Bruchey, Lumos Pharma, Inc.
  • Barshop BA; Bruce A. Barshop, University of California San Diego.
  • Berry-Kravis E; Elizabeth Berry-Kravis, Rush University.
  • Bianconi S; Simona Bianconi, Eunice Kennedy Shriver National Institute of Child Health and Human Development.
  • Cecil KM; Kim M. Cecil, University of Cincinnati.
  • Davis RJ; Robert J. Davis, Lumos Pharma, Inc.
  • Ficicioglu C; Can Ficicioglu, Children's Hospital of Philadelphia and University of Pennsylvania.
  • Porter FD; Forbes D. Porter, Eunice Kennedy Shriver National Institute of Child Health and Human Development.
  • Wainer A; Allison Wainer, Rush University.
  • Goin-Kochel RP; Robin P. Goin-Kochel, Baylor College of Medicine.
  • Leonczyk C; Caroline Leonczyk, Rush University.
  • Guthrie W; Whitney Guthrie, Children's Hospital of Philadelphia.
  • Koeberl D; Dwight Koeberl, Duke University.
  • Love-Nichols J; Jamie Love-Nichols, Boston Children's Hospital and Harvard University.
  • Mamak E; Eva Mamak, The Hospital for Sick Children.
  • Mercimek-Andrews S; Saadet Mercimek Andrews, University of Toronto, The Hospital for Sick Children, ON.
  • Thomas RP; Rebecca P. Thomas, Children's Hospital of Philadelphia.
  • Spiridigliozzi GA; Gail A. Spiridigliozzi, Duke University.
  • Sullivan N; Nancy Sullivan, Boston Children's Hospital and Harvard Medical School.
  • Sutton VR; Vernon R. Sutton, Baylor College of Medicine.
  • Udhnani MD; Manisha D. Udhnani, Children's Hospital of Philadelphia.
  • Waisbren SE; Susan E. Waisbren, Boston Children's Hospital and Harvard University.
  • Miller JS; Judith S. Miller, University of Pennsylvania.
Am J Intellect Dev Disabil ; 125(6): 475-480, 2020 11 01.
Article em En | MEDLINE | ID: mdl-33211814
ABSTRACT
Although norm-referenced scores are essential to the identification of disability, they possess several features which affect their sensitivity to change. Norm-referenced scores often decrease over time among people with neurodevelopmental disorders who exhibit slower-than-average increases in ability. Further, the reliability of norm-referenced scores is lower at the tails of the distribution, resulting in floor effects and increased measurement error for people with neurodevelopmental disorders. In contrast, the person ability scores generated during the process of constructing a standardized test with item response theory are designed to assess change. We illustrate these limitations of norm-referenced scores, and relative advantages of ability scores, using data from studies of autism spectrum disorder and creatine transporter deficiency.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Psicometria / Avaliação de Resultados em Cuidados de Saúde / Transtornos do Neurodesenvolvimento / Testes Neuropsicológicos Tipo de estudo: Diagnostic_studies / Prognostic_studies Limite: Child / Humans Idioma: En Ano de publicação: 2020 Tipo de documento: Article

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Psicometria / Avaliação de Resultados em Cuidados de Saúde / Transtornos do Neurodesenvolvimento / Testes Neuropsicológicos Tipo de estudo: Diagnostic_studies / Prognostic_studies Limite: Child / Humans Idioma: En Ano de publicação: 2020 Tipo de documento: Article