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A delicate balance between control and flexibility: Experiences of care and support among pre-teenage children with type 1 diabetes and their families.
Pals, Regitze Anne Saurbrey; Coyne, Imelda; Skinner, Timothy; Grabowski, Dan.
Afiliação
  • Pals RAS; Steno Diabetes Center Copenhagen, Gentofte, Denmark.
  • Coyne I; Department of Psychology, University of Copenhagen, Copenhagen, Denmark.
  • Skinner T; School of Nursing and Midwifery, Trinity College Dublin, Dublin, Ireland.
  • Grabowski D; Department of Psychology, University of Copenhagen, Copenhagen, Denmark.
Sociol Health Illn ; 43(2): 369-391, 2021 02.
Article em En | MEDLINE | ID: mdl-33338277
ABSTRACT
For children with type 1 diabetes, the period of adolescence is associated with higher blood glucose levels and increased psychological distress compared to other age groups. Focusing on pre-teens (9-12 years) with type 1 diabetes and their families has been suggested as key to understanding and reducing these challenges. The aim of this study was to explore 1, how diabetes affects family life, 2, experiences of and needs for support and 3, how care responsibilities are negotiated among pre-teens with type 1 diabetes and their families. Data were obtained from four interactive workshops with pre-teens (n = 17), their parents (n = 26) and their siblings (n = 14). Dialogue tools, for example quotes and picture cards, were used to facilitate discussion and reflection concerning family life with type 1 diabetes. Data analysis resulted in three themes 1, diabetes takes up 'a lot of space', 2, giving and receiving support and 3, balancing control and flexibility. While diabetes took up significant space in the families, family members protected each other from their respective frustrations. The findings point to the significance of considering all key family members and their interactions in diabetes interventions. This includes balancing control and flexibility, negotiating responsibilities and building trust.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Diabetes Mellitus Tipo 1 Limite: Adolescent / Child / Humans Idioma: En Ano de publicação: 2021 Tipo de documento: Article

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Diabetes Mellitus Tipo 1 Limite: Adolescent / Child / Humans Idioma: En Ano de publicação: 2021 Tipo de documento: Article